When does the madness end?

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Hi

Three years ago I was diagnosied as inclusive Stage 4. Three doctors couldn't decided if I had liver mets.

Fast forward to now my liver enzyems are "slightly elavated". Doc 1st asked if I was a drinker. I hadn't had a drink for a long time. So, he has taken me off the Lipator, for 1 month to retest. How am I suppose get thru this month? All I think about is if my cancer is back, l I have to go back on chemo, I just started a new job, what do I tell them?  Is this my last Christmas?  Has anyone else gone thru this?

Barb

Comments

  • bevin
    bevin Member Posts: 1,902
    edited November 2013


    I am sorry no one has been along to provide their input yet, but they will be. I understand weekends are quieter. There is also a stage 4 thread where you may find more information and receive more input.


    Best wishes

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited November 2013


    oh no. I wish I could say something helpful. We are in a similar boat. I am being monitored for recurrence and have an ultrasound on Monday. I can think of nothing else. Today I did grocery shopping and laundry no shower, no make-up, wrinkled dirty clothes and beyond depressed.

  • kdoole01
    kdoole01 Member Posts: 27
    edited November 2013


    In some ways the madness never ends. But the more power we give it, the more power it has over us. I am not a doctor, but I am a nurse in a major medical center and meet tons of patients that are not doing well every day. The ones we don't meet are the ones that are doing great...and believe me there are way more of them out there than are ever within the walls of the hospital. I was dx as Stage IIIa in 2006 and have struggled with liver enzymes that are always messing with my mental sanity. Of course the first time around I was in tears and had myself dead and buried within the year. I am now in my third round of "did you know your liver enzymes are elevated?" and all the usual tests that ensue (and thank goodness, all was still well and I still have that gallbladder that is chocker block full of gallstones!). You were on Lipitor and that medicine causes issues w/patient's livers all the time. You are 3 years without a problem and that is tremendous. No matter what the outcome will be, you cannot let your mind go there for it is wasted energy for sure. If you have to cross that bridge, then you will do it then, but not now. Do not tell work anything, for there is technically nothing to tell. Once we have had cancer, we always consider ourselves a liability. Cancer is a marathon and not an emergency. Any test result we receive is a reflection of where we are up until now and not necessarily a predictor for the future. More than likely it will be the Lipitor. You can ask for an abdominal sono to allay your anxiety as it is not invasive and will probably confirm all is well :-)


    Good luck!

  • vlnrph
    vlnrph Member Posts: 1,632
    edited November 2013


    Excellent advice kdoole! Proves my oft repeated opinion that nurses are worth their weight in gold...


    Waiting for results of a Friday MRI myself (for which I had to fight insurance), I send good wishes to maria for tomorrow. Congrats on getting shopping AND laundry done - who needs makeup anyway?

  • pajim
    pajim Member Posts: 2,785
    edited November 2013


    Mokenagirl, elevated liver enzymes could be anything, including random. Back in my chemo days by liver enzymes would shoot up and drop down with no rhyme or reason. The first few times they did an ultrasound or a scan or what have you. Eventually they just decided I had Gilbert's disease, which is a diagnosis of exclusion. Just random raising of enzymes. I've probably had them all my life but no one knew until they were taking blood every two weeks.


    Scanxiety can be very tough, but please don't let it ruin your life. Don't borrow trouble.

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited November 2013

    I'm wishing us all a Happy Thanksgiving..worries and all. My ultrasound showed a mass and it was removed yesterday. Results next week. In the meantime, I will be grateful for feeling well enough to grocery shop and prepare food for Thanksgiving - which wasn't the case last year. I was too sick from chemo, radiation, and side-effects.

  • bevin
    bevin Member Posts: 1,902
    edited November 2013


    Dear Mariasnow, wishing for a negative biopsy... Keep us posted. I hope you were able to enjoy your Thanksgiving and forget about this for a bit.

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited November 2013


    thanks, Bevin. I had a nice day with loved ones and even enjoyed some of my day today. I ate like twice as much as I normally would fearing who knows how long I will get to enjoy things. Then I was really sick so that probably wasn't the best philosophy. I've been reading about recurrence and bracing myself.

  • kdoole01
    kdoole01 Member Posts: 27
    edited December 2013


    "Scanxiety can be very tough, but please don't let it ruin your life. Don't borrow trouble."


    Excellent advice for all of us!

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited December 2013

    It's true. I have a weird pimple like thing that showed up on my rib in the past few days. I am thinking positively that it is just that - a pimple - or an irritated small mole. On Jan 2nd, after I have enjoyed my holidays, if it is still suspicious I will take action. I'm not going to assume it is anything. My Thanksgiving was ruined waiting for a benign biopsy result.

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