DIEP 2013

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  • mammalou
    mammalou Member Posts: 823
    edited November 2013


    my implant is tight. It should loosen up a little as swelling goes down, but it will always be firmer than my natural breast, they say.


    I think lipo in general is brutal. I watched a utube of it after my surgery! Icky! My thighs look bad. Swollen and very bruised down to right above my knees. They went in in the crease of my groin area. Overall though, it wasn't very painful and the bruising seems to be healing up pretty fast. Not nearly as bad as I thought it would be.


    They put the fat into my upper breast area, down into my cleavage where I had a sunken spot, and in the upper breast area over to my armpit. It actually filled out very nicely but I saw what looks like lumps when I was in today, she told me that was totally normal and that it would even out. She told me not to massage the fat grafting at all as I could basically massage it away. They did some scar revision on the the side of my breast under the arm. Between MX , node removals! and radiation it was pretty scarred and hard. They injected some fat over there too.


    My tailbone seems worse tonight and it hurts sitting in bed. Who do you go to for a tailbone anyway? I'm so sick of going to doctors. I did get my arm MRI back and it is just some tendinitis things, slap leision, and some frozen shoulder. No bone cancer at least😉.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    Mammalou, thank for the description of the lipo. The fat grafting they did under you arm may really help that skin. I think I told you how they figured out the skin rejuvenating qualities fat grafting has. By the time they get that stem cell/fat grafting thing perfected they will be able to help so many people with burns, etc. Very exciting things to come with that. I am not looking forward to lipo, but if it's necessary I might as well get it over with before next summer.


    I would guess you would need an orthopedic doc for your tailbone. I bet your GP could order an xray and if they found something, then you could go to a Ortho, but like I said, I don't think there is anything they can do for it if it's just a fracture, or a deep bruise. Have you tried icing it?

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited November 2013

    I love my Ninja. See if you can get the one with smoothie cups. Comes in handy. They also sell protein blends on their website but I never tried them.

    Congrats on the weight loss Bailey! That's awesome!

    Mammalou, my husband fractured his coccyx while sledding and they didn't do anything. He used inflatable innertubes to sit on and a cushy toilet seat. Very painful. He hasn't been sledding since!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    Deb,, nanny nanny boo boo, you were right...lmaooooo. Anyway, I know for sure Christina had the hair problem,, so did Damiana, I am not sure about Mammalou. Christina was told her's was too light to laser, if I remember correctly. Damiana has gone on to the great world out there,and I don't know what she did about hers.


    I just got back from the first trip to the grocery store for Thanksgving. I am soooo tired. And, as soon as I walked in the door and the phone rang. My son wanted to know if I got the pancetta for the green bean casserole. UGH!!!! Uh, no...I am not a mind reader. Put it on my list, and it will get purchased.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    Yes, Deb, you were right. It's so hard to find the right combination now. I might have to get a unsweetened one and add by own stevia.


    I made a big mistake and took a nap. Now I feel groggy. Got to get myself out for my walk, especially since we have bad weather coming in over the next few days.


    I was read a piece on eyebrow transplants for woman who had over plucked, or lost them to chemo, or thyroid disease, etc. Anyway, they take the hair from you head and put it in the eyebrow area. For the first year, or two it behaves like the hair on your head and grows too long, which means constant trimming, but then it takes on the characteristic of eyebrow hair eventually, and only grows just so long. I know this is far fetched, but maybe the hair on the foob will realize it doesn't need to grow there and will stop? I bet if you gently plucked it out often, it would eventually get tired and stop growing.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    Oh, sorry....happy bday, Deb. Mine falls on Thanksgiving this year...lol.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013

    Deb when is your birthday? Mine is Sunday!

  • mammalou
    mammalou Member Posts: 823
    edited November 2013


    yes girls, I had a few blonde hairs. I plucked em! So far, they are still gone. Is there such a thing as post anesthesia depression? I was doing so well before this surgery and I have just crashed.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited November 2013

    Mammalou get off me! You landed on top of me! I crashed here first!  

    Okay stupid humor. Your body has been through a lot. Give yourself permission to lay low. And blame it on s.a.d. syndrome like I do. Of course the responsible thing to say is to talk to your doctor. But I do think bouncing back from surgery is rough.

  • Cherrie
    Cherrie Member Posts: 1,423
    edited November 2013


    Mammalou- You are only 9 days out surgery. Please be patient with yourself. Pamper yourself and protein up. It makes a difference. If you are tired nap, this is not the time to push yourself. You can do this. We are all here for you.

  • christina0001
    christina0001 Member Posts: 1,491
    edited November 2013


    Sharon, thanks for giving me an idea of how long I'll have to wait for tattooing.


    holmlea, I'd give yourself a few more weeks to see if the swelling goes down more. But I too had quite a bit of side boob after DIEP; trimming it down was part of my stage 2 surgical revision.


    kat-ski, so glad your consult went well. I've heard so many good things about PRMA; if I hadn't decided on KUMED, PRMA was probably going to be my second choice. The grandsons sound adorable!!!


    mammalou, glad that everything is healing well. Wonderful news. I seem to get bad depressed after surgery, at a certain point. Not sure why. I work in healthcare and it's quite common though. Not sure if it if from anesthesia, the surgery itself, healing, or what. One of these days I'd like to research that a bit... yes, definitely pamper yourself right now.

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited November 2013


    has anyone had an infection on their TE? If so, what were your symptoms? Something just doesn't feel right on that side. I had a red spot on the front of my scar so I put micro pore tape on it and when I pulled it off, it took the top layer of skin with it. Underneath the TE like against my chest wall it feels like a burning sensation almost like heartburn. I feel like I'm being paranoid...

  • mammalou
    mammalou Member Posts: 823
    edited November 2013


    so are you telling me that I'm actually doing pretty good that I went back to work for the last week, cooked, grocery shopped, did laundry, drove 5 hours in the rain back to doc, and pampered my husbands hurt big toe? All without the support or acknowledgment of my husband who stressed himself out so much at the thought of breast cancer 2 1/2 years ago that he can he can hardly function. 😉.


    Thank you for making me realize that I am just too hard on myself sometimes. I'm glad I have you guys here.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013

    ((((((Mammalou))))))


  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    I believe there is a period of depression after anesthesia. I have it every time. There also seems to be a point in the recuperation process where almost everybody crashes. With the DIEP it seems to be around the 3 week mark, with the more minor stage 2's I have been noticing it about a week, or so out. Look back at some of the other's and I think you will see a pattern.

  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    mammalou.....you DEFINITELY are too hard on yourself, because WE think you are AMAZING!!!!!


    dvygrl....YES, TE's can definitely be infection sites. Not the TE itself, but the pocket around it. If these symptoms of burning and redness are new for you, I hope you get to your doc ASAP. If you just had a fill, it might be the result of a new degree of pressure from the increase in size. Either way.....you should get checked out, in my opinion.


    I think we often dismiss how much physical and emotional energy it takes to get ourselves "ready" for surgery, then there is the surgery itself (there is always some amount of blood loss, and that affects each person differently) and the meds our bodies have to metabolize to clear our systems, then the increased physical demand on our bodies to heal, after surgery. None of these "things" are what you should expect to boost your energy or mood.....they all are taxing, energy depleting things. IT TAKES TIME TO RECOVER!!!!! Physically AND emotionally.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    dyvgirl, Have you had the TE since your mx? I haven't had any problems with infections, but I had some healing problems at the beginning. The skin over my expanders seems so delicate, and I am always afraid when I pull any kind of tape off of them. I don't know how much yours are expanded, but mine feel like sandpaper rubbing against my chest wall. I can't wait to get them out!!! I really hope you've bot nothing going on with yours, but a call and sending a pic to the PS wouldn't hurt.

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited November 2013


    Goldie,


    I've had them in for about 5 months so not sure what's going on. The skin seems so thin right at the incision. They've always been uncomfortable, and it's not red and I don't have a fever, it just hurts. I hate it! Will give a call to the PS in the morning and see what he says...

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited November 2013


    Mammalou, I crashed, too, after surgery and it didn't make sense to me. But it got better. Now I'm crashing from everything else!


    Happy birthday, ladies!!

  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    Birthdays???....whoever I missed....HAPPY BIRTHDAY!!!!!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    Dyvgirl, when is you DIEP? Are they making you wait a certain amount of time after chemo? Let us know what your PS says today.


    Jeannie, I hate to hear about all the glitches in your life. All these things will sort themselves out. It is amazing to me the ups and downs a lot of us go through during our cancer journey. Good and bad. Sometime I want life to stop till I am finished with cancer because I feel like I can't keep up. But, I know that's impossible, so we do the best we can. Hang in there!

  • Sherryc
    Sherryc Member Posts: 5,938
    edited November 2013


    Hey ladies I wanted to post a link here for you all to read. I use a PS group out of San Antonio, TX PRMA. Dr. Ledoux is my PS. They are one of the top in their field in the United States. This year they have published a couple of studies that have to do with DIEP flap that I thought you all would be interested in. The most recent is they they are using a superficial vein along with the main vein to increase success rate of the transfer. The study has a 99% success rate. The other two studies are using the Vascular Lymph node transfer for those suffer with Lymphodema and also a study for obese patients using DIEP successfully. The group does over 500 DIEP flaps a year. Here is a link to their news media and articles you can check out. Hope this is helpful to someone. http://prma-enhance.com/useful-resources/media

  • Sherryc
    Sherryc Member Posts: 5,938
    edited November 2013


    Well seems that I am being questioned about my motives here. I am a breast cancer patient and I do not work for PRMA. I just happen to love my PS. I had a very bad experience with my first BS. Although I did not have DIEP flap because I was not a good candidate not because I did not want to and I have been lucky not to have lymphodema but I do not let my guard down because I am aware it can happen years down the road. I think the work my PS group is doing is amazing and I am passionate about spreading the news of new work being done out in the breast cancer world. I have always thought knowledge is power and if it can help someone else then it is worth it. Sorry if I offended anyone with the multiple post that I had.

  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    Sherryc.....as you can tell by reading our "header"....this thread is for women all across the USA and Canada, and a few special ladies from Europe, as well. There have been many successful outcomes from both NOLA and PRMA, as well as from many other locations too. We have tried on this thread to spread the word of happy outcomes and compassionate experiences, without labelling specific places as "the best". Everyone's personal circumstances and opportunities are different, and there is nothing helpful in implying without "knowledge", that their location or surgeon or care or outcomes will be "inferior".


    Knowledge IS important to share.

  • LucyV
    LucyV Member Posts: 177
    edited November 2013


    Happy to report that the excessive amounts of protein I am eating seem to be working. This hole is closing up! Hopefully by Thanksgiving I will just be stuffing my turkey and not my belly.


    I ordered Bali 3488 online and then got impatient waiting for it. Went to kohls and got one. wow. Really is comfortable and perfect. Nice shaping. I ordered large online but medium fits perfect!

  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    Lucyv....that is wonderful news about the healing!!!! Another "kudo" to goldie for her Bali bra!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013

    Debdylan....HA! When you said your bday was soon I just had this feeling you would say it was Sunday.....we are zodiac sisters.....sisters in the stars!!! :) 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited November 2013


    Yeah, Lucy. Glad you like it. I got a form letter (email. actually) response from Bali. I responded telling the person in customer care, who answered me, that the response wasn't enough. That Bali, which is owned by Hanes, needs to respond in a way that makes me know that the "powers that be" get the importance of such a little thing, and address it as such.


    Lucy, I am so glad you are starting to heal. I hope you have a great holiday season feeling healthy and whole.

  • LucyV
    LucyV Member Posts: 177
    edited November 2013


    thanks nihahi! Thanks Goldie!


    Goldie- when I walked Into kohls and saw the 100's of bras I was so happy to walk up to the rack, Grab a small, medium and large to determine my size and be done! You probably saved me five hours of stress!

  • Sherryc
    Sherryc Member Posts: 5,938
    edited November 2013


    nihahi, I never said anyone else was inferior or receiving inferior care, sorry if anyone took it that way. I am very happy with my PS and happen to think they do awesome work. I know many women who have had DIEP flap from PRMA and are very very happy with their results. I have given out the link to their website to women all over the country because I happen to think it is one of the best websites for information even if you are not using them. I have had many tell me how helpful it was and gave them questions to ask their own PS regarding types of reconstruction available. I did not have DIEP flap because I was too thin and not a good candidate. I did want to have it and was disappointed but I also know my PS recommended what he thought was best for me. With that being said I think the studies they have done are amazing and I believe Knowledge is Power and just wanted to share the studies in case it might help someone else out. I have to say that when I was first gathering info for my reconstruction and hoping that DIEP was an option for me even though I new I was very thin (just hoping they could use what little belly fat I had) and I had heard negative things about implants. When I posted it on the NOLA in Sept thread I was very pressured by several women into going to NOLA for another opinion because in their opinion NOLA was the best as they put it. I had already had three PS opinions and all said the same thing, you are too thin and will need to gain 40 plus pounds to have enough to build some breast. Working out is great when you want to be healthy and stay in shape during treatment. Not so good for reconstruction, it limits your options.

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