What do you do before a double mastectomy? Dance, of course

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  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited November 2013


    I saw this on Facebook. Very mixed feelings on this.

  • cp418
    cp418 Member Posts: 7,079
    edited November 2013

    I hear you --- I think this is stress - fear reaction........

  • Lolita
    Lolita Member Posts: 231
    edited November 2013


    I am 6 years out (exactly today) from a bilateral mastectomy. I watched this video. I cried quite a bit-out of mourning, joy at survival, pride at her (and my) strength. I've never allowed myself that release before. It meant a lot to me. Of course stress and fear are implicated! But what a great way to confront it. Also, I like to dance.

  • Ariom
    Ariom Member Posts: 6,197
    edited November 2013


    I saw this video on the 6 o'clock news in Australia last night.


    I absolutely loved it!


    It was reported simply as a "A Mother of two has a dance party with Medical staff in the OR before her BMX!" after it was shown, the announcer said, "Deborah Cohen wanted the last feeling she had before her surgery, to be Pure Joy!"


    I think she achieved that.

  • LAstar
    LAstar Member Posts: 1,574
    edited November 2013


    I loved it. Good for her that her caregivers have a real connection with her before surgery. I just wanted to be knocked out!

  • RosesToeses
    RosesToeses Member Posts: 721
    edited November 2013


    Pattysmiles, cp418, I'm with you here. I'm happy for this woman that she was able to do something that made her happy, but the video made me very, very uncomfortable.


    To me it felt like promoting it was making light of everything we've gone through and how dangerous and frightening this thing is. Not the woman dancing, but the Today show and others promoting this beyond her own personal circle to people who don't really understand that much about bc.


    I can understand how others find it fun and encouraging, but to me it really wasn't.

  • cp418
    cp418 Member Posts: 7,079
    edited November 2013

    Roses - I totally agree with how you described this video.  I wondered how it had gone viral..........  I was unsure whether to post it as I did not want to upset anyone.  I'm sorry for that.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2013


    this is one woman's way of dealing with her situation. Not what everyone would do but why be critical of how she chose to cope? I laughed and cracked jokes with my ps as he marked me up prior to my bmx/recon surgery. I would hope no one would be critical of how I dealt with my experience.

  • Janetanned
    Janetanned Member Posts: 532
    edited November 2013

    Personally, I'm glad I saw this video.  Everybody's journey is personal and different.  If it helped her 'get through the night', then good for her!  Its probably not for everyone though. 

    I'm so tired of the doom and gloom I've been through since diagnosis, a little dancing made me smile.  And as someone else asked on a different thread - I want to know what drugs she was given!  Smile

  • wyo
    wyo Member Posts: 541
    edited November 2013


    I have to weigh in here as I posted this video link in the surgery sept forum too.


    This is only my view


    This lady is a surgeon, this is where she works and feels most comfortable and in her element. The tables have turned and she is not the one taking out the cancerous uterus and ovaries of her patients.


    These people are her friends and they are traumatized by having to "help" their friend and colleague in the most personal way possible by putting her to sleep and removing her breasts. I see this as her trying to create an environment of optimism and trust not just for her but for her team (friends)


    Watch the hugs at the end of the video- Its really hard to work on friends in surgery even when its not a cancer surgery- she needs their heads in the game and the emotions out. Humor and laughter may sound awful but it works and this doc knows that.


    I have worked in surgery for 30 years- scrubbed and circulated for more patients having cancer surgery than I can count- so I would say its REALLY scary to be the patient not the one in control. I have laughed when patients wanted to, prayed when patients wanted to and played the music when they wanted to fall asleep to Metallica- She is taking care of her team, and the are taking care of her.


    If I had to guess I would say she is scared sh#$less and this is how she is managing being the patient instead of the physician.

  • wyo
    wyo Member Posts: 541
    edited November 2013


    I just hope should she find her way here to this community we accept her in a warm-hearted and caring way to give her the same support that we all get here.


    If she read our threads would she feel welcomed and supported here as just another woman on the breast cancer journey without judgement????

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2013


    right on, wyo!

  • RosesToeses
    RosesToeses Member Posts: 721
    edited November 2013


    Of course *we* know there's a lot more to a cancer dx and mastectomy than a dance party and a lot more to this woman's journey than this moment captured on film. As I said above, for *her* I'm happy that she got to do things the way she wanted.


    The thing that bothers me, though, is that *this* is the way our society presents breast cancer, this is the viral message that hits the news shows. It isn't really representative, and, as you say, it's probably not even representative of most of how *she* feels about this!


    I have no doubt that if she were to join this community she would find nothing but love and support. And I also have no doubt that her journey and herself as a person are a lot more complex than these few moments on film.


    To *me* the message, not from *her* but from the hype about it, is more like, "see, she's happy and uplifting, even with cancer," with the underlying, message being, "come on, ladies with cancer, stop bringing us down about this cancer stuff--just be happy and dance."


    It makes *me* uncomfortable. Which doesn't make those of us who feel this way hateful or unwelcoming, just makes us uncomfortable and saying so.

  • RobinLK
    RobinLK Member Posts: 840
    edited November 2013


    I applaud her for being herself. My coping strategy is my warped sense of humor. Addressing what I am going through in this way has also been helpful for my friends and family. For them to witness "me being me" has helped them to communicate with me and ask the questions they may have felt uncomfortable asking. We are all traveling this road together, yet we all are individuals who deal with this in our own way. I don't feel like I am minimizing the struggles of others or myself. It is scary and I cherish the fact that I am able to help those around me cope with my diagnosis. They, in turn, are able to help me cope with it.


    I do agree that the media hype is unsettling.

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    The video made me cry and I have watched it several times. We don't know if she is stage 4 or just starting out. I applaud this woman for how she chose to respond to her surgery and especially to embrace "joy".


    When I came out of the recovery room after my double mastectomy I reached for my phone and updated my Facebook status to "rackless". My family were all amazed and relieved to see that I could hold on to my 'other life' where humour was a big part.


    I also selfishly thought "Oh good. A surgeon chose BMX just like me" making my decision more valid to me (fluff stuff).


    I think all responses are ok so I hope no one feels judged for having a negative response to the video.

  • wyo
    wyo Member Posts: 541
    edited November 2013


    The other interesting thing that the media seemed to leave out was that she had friends all over the hospital doing "the dance" at the same time and asked people to dance to that song which has meaning for her and make videos so she can watch them during her recovery to lift her spirits. She is practicing self-care and I agree all responses are okay because you feel what you feel- I just hate how the media portrayed this as some brave courageous act- compared to some of the healthcare sites which focused more on how to meet a patient where they are and a team willing to do that for her.

  • Ariom
    Ariom Member Posts: 6,197
    edited November 2013


    xbrnxgrl! I joked with my surgeon and team right up till "the lights went out!" too.


    It always saddens me, when someone does something out of the "ordinary" like this, how so many, suddenly believe that the intention is to somehow minimize their experience. I'll never "get" that.


    I would have thought there was no right, or wrong way to express yourself before a surgery, of any kind, just your own way.


    I hope Deb Cohen doesn't visit here. Even though the intent of this site is to support each other, I believe the overwhelming number of negative comments and judgement of her, would be very hard to take.


    She was, after all, just trying to go into a life changing surgery, feeling joy and support, from her friends and colleagues.


    I haven't read Deb's blog and I don't know her Dx, I just know that she's another woman going forward.


    I read a wonderful line, spoken by Angelina Jolie's Surgeon, that I think probably speaks of Deb's intention. She said " To a large extent, I believe, recovery reflects expectation!"

  • sandcastle
    sandcastle Member Posts: 587
    edited November 2013

    Sad.....very sad.......liz

  • ballet12
    ballet12 Member Posts: 981
    edited November 2013


    Thank you, wyo, for your very insightful comments about the unique situation this ob/gyn is in, that she is about to be operated on by her colleagues. If you think about it, it is very difficult to operate on one's colleagues, especially in this very intense and personal way. They may be traumatized and saddened by her circumstances. They may also be concerned that they will harm her in some way, or not be successful in their procedure. She has done something to help diffuse the tension and help them focus, as well as help herself to deal with this event in her own way.


    Exbrnxgirl, I also agree with your comments, that we each cope with these circumstances in a different way, and we can't or shouldn't judge others.


    As to whether this trivializes the circumstances for the unknowing public, all I can say is that until people face this situation, themselves, no video, book, talk, etc. is likely to make a difference one way or the other, just like none of us who don't have metastatic disease can understand what those of you who do have it, can really be going through. We may try to understand, but we really can't fully. One of my close friends has survived IBC (one breast), triple negative (other breast), and a bone marrow transplant. Most people can't possibly grasp the magnitude of what she has gone through.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2013


    I just found out that Dr. Cohan is right up the road (well, freeway) fro me me at UCSF. Go, Bay Area people!

  • TessaW
    TessaW Member Posts: 231
    edited November 2013


    Wrenn _ I love that you could use humor and update FB with "rackless" afterwards. : ) Thank you for saying. So far humor has helped keep me from losing my ever lovin mind. I appreciate it when I can feel like that's a "normal" thing to do.

  • lekker
    lekker Member Posts: 594
    edited November 2013


    Like Dr. Cohan asked her friends to dance "with" her as she entered the OR, I asked my friends to pray together after dropping of the kids at school (about the same time as I was being wheeled in). I asked them to do it because I believe that the power of prayer is magnified when people come together to share their love for someone and bring positive thoughts to him or her. It might not have been Dr. Cohan's intention, but that dancing looked a lot like a prayer to me. I'm a Bay Area woman, too. My twisted sense of humor came out last year when I dressed as Dolly Parton for Halloween three weeks after my BMX. Everyone was so impressed with my "strength" in finding humor in a horrible situation and coming out to a party so soon after a major surgery. I repeatedly told people I wasn't strong as such, I was just doing what made me feel good. I would never tell someone else they should handle it the way I did - I can't even imagine wanting to.

  • Fallleaves
    Fallleaves Member Posts: 806
    edited November 2013


    Thanks for the context, wyo. It makes more sense knowing she was a doctor at that hospital. I have to say seeing this video go viral got on my nerves. No knock to Deborah, I support her choice of coping mechanism, whatever it may be. What bothered me was the response. As if dancing in the face of life changing surgery showed special courage, and we should all be so "upbeat". After having it pop up on my facebook page and reading all the enthusiastic responses, I wrote, "Well, don't I feel lame for just lying there for my surgery...."

  • Ariom
    Ariom Member Posts: 6,197
    edited November 2013


    I was intrigued by the video, and have kept up, by reading Deb's blog on CaringBridge.


    I don't feel it is my place to report here what has happened since her final path came in, in terms of her Dx and future treatments, save to say the support she has received from around the world has been astonishing. The support comes from all kinds of people, a huge number of whom are women who have either been through a BC Dx or have a family member who's been there.


    I haven't read any negative responses there.

  • Fallleaves
    Fallleaves Member Posts: 806
    edited November 2013


    Ariom, I would hope there are no negative responses on Deb's blog (that'd be pretty mean!) I haven't seen anything critical of her. Was there another thread with criticisms of her? I can't imagine anyone not wishing her well. I certainly do.

  • Ariom
    Ariom Member Posts: 6,197
    edited November 2013


    Hi Fallleaves, yes there was a fair amount of criticism here, which really surprised me. I was also surprised by the same kind of criticism of Angelina too.


    I know these boards are for discussion, but I have a problem with "judgement" of a woman's decision. We may not agree with what everyone decides, but we know that each decision is made after a lot of angst and searching. This woman simply wanted to dance. The fact that it went viral on the internet was an unknown. I can't see that it detracts from any other woman's coping method. Or that it trivializes BC.


    I was really moved when I heard the News report in the small town where I live in Australia, of the woman in America who is a Doctor, and had decided to dance in the operating theater with her team and friends because she wanted the last feeling she had before her BMX to be "Pure Joy!"

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