Sacrcoid-like reaction and HER2+

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Alicethecat
Alicethecat Member Posts: 535
edited June 2014 in HER2+ (Positive) Breast Cancer


Hello My HER2+ Sisters


Did you know that it's possible to be diagnosed with sarcoidosis - or a sarcoid-like reaction - that mimics metastasis but actually isn't?


Have a look at this:


http://www.springerplus.com/content/2/1/113


Best wishes


Alice

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  • Sassa
    Sassa Member Posts: 1,588
    edited November 2013

    Yes, it happened to me.  I had uptake in the spleen.  Because my mother had sarcoidosis, my oncologist suspected a sarcoid-like reaction.  A diagnostic CT/PET with w/o contrast found a benign condition.

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  • Alicethecat
    Alicethecat Member Posts: 535
    edited November 2013


    Hello Sassa


    Thanks so much for replying.


    A respiratory consultant I saw last week thinks I may have it. Had wheezing last Friday and wheezing today (Tuesday) and getting a little worried but seems to have been knocked back with my asthma meds and a little red wine. My onc, who understands radiation, is back later this week so will ask him.


    Just heard that I have to go for a lung funciton test in December so I guess more will be revealed.


    Again, thanks for replying. I appreciate sarcoid is rare.


    Best wishes


    Alice

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  • peacestrength
    peacestrength Member Posts: 690
    edited April 2015

    Yes - thanks for posting this info!  More women need to know about this.  Sarcoid also happens in her2- breast cancers.  Sarcoid of the lungs runs in my family.

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