The Importance of Comprehensive Breast Centers

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Locs4me
Locs4me Member Posts: 5


I was diagnosed with DCIS with an IDC microinvasion on 10/23/13. My entire preliminary work up was done on the same day (right breast), from mammo - biopsy. The comprehensive breast center that I go to recently purchased 3D tomosynthesis imaging equipment. The DCIS with microinvasion did not show up on my 2D digital mammo but showed up on 3D. The DCiS on the left didn't show up on 3D but showed up on MRI! The MRI was ordered after the assessment of my right breast. Then the left breast was determined to have a suspicious area which was determined to be DCIS!


I had bilateral lumpectomies on 11/14. I am awaiting the path report. Based on what is known thus far it looks like radiation with tamoxifen. Both biopsy reports are + for hormone receptors. The DCIS only breast has a higher grade (3) than the microinvasion breast (1). Left was 3cm the right 14mm.


It really concerns me that the latest technologies are not available to all women. I want to spread the word about the importance of 3D tomosynthesis as well as other treatment modalities!

Comments

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited November 2013


    That's exactly how it should be - you go in for a screening mammo and the radiologist looks at your films right then and there. If more imagining is needed, you take more pictures immediately. If you need MRI, ultrasound or biopsy, head right on over to that room. All results available given to you before you leave for the day with a commitment as to a firm date and time when you will receive your pathology report and the method by which you will receive it. That would eliminate a hell of a lot of stress and time - get in and get out with a preliminary diagnosis in one day. How can we make that happen!!?!

  • Locs4me
    Locs4me Member Posts: 5
    edited November 2013


    After I get over this phase of "discovery" I am going to make some noise! Pick have been very open about my diagnosis and experience on Face Book. There are cancer survivors and folks who are interested lining up! I am also frustrated that there are women who have no idea about their breast tissue density. Shame on health care providers who are not educating their patients.

  • ballet12
    ballet12 Member Posts: 981
    edited December 2013


    Hi Locsforme, it sounds like an amazing place you went to. I am a patient at one of the most famous cancer centers in the country, and they definitely don't do same day biopsy, that's for sure. They do coordinate team member visits, so that after you have the imaging (if you are an already established patient), you meet with the surgeon. They also try to coordinate several visits in one day, so if you are coming back for MRI, they try to coordinate that with a plastic surgery consult, etc. Same day biopsy doesn't happen yet. I have only had one core biopsy done there, and they did deliver the pathology news as predicted, on a given day. The results from surgeries were scheduled for follow-up visits, and unfortunately, that could be 10 days, because it depended on the surgeon's schedule. I guess if I tried to get the results somewhat earlier, I might have been able to, via a nurse. I don't think they do 3D yet (they must have a reason for that), but their 2D is amazing, much better than the equipment at my previous facility (also a large teaching hospital and breast center). I've got dense breasts, and you can really see through them with their equipment. So, sorry you have so much on your plate (bilateral radiation coming?), but glad they caught it.

  • Locs4me
    Locs4me Member Posts: 5
    edited November 2013


    Good morning! Thank you so much for your reply!!! I couldn't sleep in the middle of the night so I began to read posts. I read some of your and was very encouraged by you! Yes, I will be facing bilateral radiation in a few weeks... I am very thankful that this was discovered early. Thank goodness for 3D Tomosynthesis. The ball wouldn't have started rolling without it!


    I am one of those baseline at 35 and never missed an annual mammo from 40 until now (52)... Not a lot of high risk factors.... This bc thing can be so random! The same doc has been reading my mammos for 8 years! Needless to say she was blown away.


    Thank you again for your response!


    Have a wonderful day!!

  • redsox
    redsox Member Posts: 523
    edited November 2013


    If you want faster results and more consolidated scheduling the key steps are:


    Go to a Breast Imaging Center in a major academic or large hospital.


    When your doctor writes the script, ask that it specify that the mammogram is diagnostic rather than screening, and add any likely contingency tests (magnified views, ultrasound, MRI, etc.). Once you have a diagnosis of breast cancer you should ask for diagnostic mammograms from then on. When you call the Imaging Center tell them you are calling to schedule a diagnostic mammogram. If they tell you that they don't differentiate between diagnostic and screening mammograms when scheduling, go somewhere else.


    If you are scheduled for a diagnostic mammogram at a center that has high volume, the radiologist should read the mammogram immediately and you should be able to get at least some of the contingency tests the same day if the initial mammogram indicates the need.


    As far as biopsy goes, that requires enough resources that they can't schedule on the fly. If it is pretty clear you need a biopsy, you may be able to get that scheduled with some of the other tests like ultrasound or MRI right before the biopsy.


    With screening mammograms the need for extra testing is highly variable and they can't have all those resources sitting around on standby. Have you looked at the amount your insurance company paid for your last screening mammogram?

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2013


    i go to a comprehensive breast center associated with an NCI designated cancer center and they have very good facilities, but there are certainly still waits for results and scheduling for biopsies. While it is nice to know things quickly, I think we need to remember that with the exception of inflammatory breast cancer rarely are any of these things an emergency demanding same day service. People who live in low population density areas will likely never have what you are talking about. I imagine people going through testing for other kinds of cancer have to wait too. I know I did for ovarian.

  • twinhill5
    twinhill5 Member Posts: 1
    edited December 2013


    When I get my mammogram the order is for diagnostic because of fibrostic cysts I always had. Because of this the Dr. added ultrasound also. When I got the mamm. done, it was followed by ultrasound by a different tech. who thought she saw something suspicious. She had a Dr. who must be always in the imaging dept. come and take a look at the ultrasound pics. From there she decided a needle biopsy was best to confirm any suspicions. About 5 biopsies were done and markers placed at same time. The Dr. did a stat on the readings and said she also thought it best to have a lumpectomy even tho the results may be negative for breast ca. It turned out I had R Breast DCIS.


    I was fortunate to have a tech. recognize something suspicious, and a Dr. always on hand to go the extra mile and take care of things asap!

  • wildrumara
    wildrumara Member Posts: 450
    edited December 2013

    I was diagnosed at a Comprehensive Breast Center in my city,  and to this day, I tell all my friends and any woman who asks, to go to a Comprehensive Center.   The day of my diagnosis, 8/23/11, I went in for my routine mammogram at 10:30......I walked out of that institution at 3:00,  with a pretty definitive diagnosis of breast cancer. (Had to wait a few days for biopsy results, but the doctors were pretty certain).     I went from a routine mammogram, to a diagnostic mammogram, to the ultrasound room, to a biopsy.......all in the same day.   It was worth the 30 minute drive into the city and like I said, I recommend  this often! 

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