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  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    Thank you Crocker! I will do whatever I can to beat the beast! I am just not so into taking medicines. I guess I need to take them way before the syndrome hit me. Eating better now. Thanks!

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    bellerast- thank you for the tips. I had all the nausea meds, but I think the one made me down was the steroids they put in the IV. At Day 6 I am feeling better and ready to go out. I had quite a bit for breakfast and lunch. I will talk to my MO before the second round.

  • adagio
    adagio Member Posts: 982
    edited November 2013


    jianchi - my first chemo wa the very worst of all eight of them. I threw up 8 times the first night aftr chemo because the meds didn't work for me - I thought I was going to die, and I said I will not do this any more - but I did, albeit very reluctantly. You will feel better with each chemo because you will know what to expect - it is a very tough journey, just take each day as it comes - eat when you are hungry and rest when you feel tired. I personally found it worked best for me when I took a couple of short walks outside every day whether I felt like it or not. Good luck. Remember this is a place that you can come with any concerns as there are many of us who have travelled the chemo road and we are willing to put our 2 cents in!

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    adagio-thank you so much! Wow you threw up 8 times! I did it twice, and it was so uncomfortable, to be honest I felt this was no better than dying. Today at day 6, I was able to go to supermarket with family, eat normally, and even made myself a nice protein drink. I have to be strong.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2013


    Jianchi I had EMEND just like Belleeast and it was great. No nausea, no vomiting which is what I was afraid of. I took it for the first three days and never had any problems of sickness. May be your Onco will prescribe it for you as well, hope so because it really works.

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    Cocker- I will for sure ask EMEND. I was given zofran,LORazepam and Prochlorperazine. Nothing worked too well during the first 4 days. They also ordered marinol for me which I haven't tried. I am feeling better now so might wait and see what cycle 2 is like.


    Thank you for all the help and concerns!

  • adagio
    adagio Member Posts: 982
    edited November 2013


    jianchi - I agree with cocker about asking for emend - that's what I did, and it made all the difference in the world. You have to be as comfortable as possible through this journey, so my suggestion would be not to risk the same drugs again if they didn't work for you the first time. You must be your own advocate. Glad you are feeling better though - are you on a 3 week cycle?

  • encyclias
    encyclias Member Posts: 302
    edited November 2013


    Jianchi, I also had Emend and didn't have a single minute of nausea, just as my MO promised. Cheap Zofran never worked for me. Lorazepam (Ativan) is an anti-anxiety pill.


    Hope the rest of your chemo goes fast and easy.


    Carol

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    adagio and Carol - I will call in tomorrow and ask my MO how come I am the last person in the world to know about EMEND! I am doing Does Dense so cycle 2 will come soon. I just hope I will feel better then so I can join our family Thanksgiving dinner. Lorazepam is for anxiety but also said to anti nausea. Anyway, worked nothing for me. What is this marinol? I haven't tried but heard it's super expensive. Doesn't seem to be a good thing.

  • adagio
    adagio Member Posts: 982
    edited November 2013


    jianchi - I also did dose dense. will you be getting neurogenic or neulasta in between chemos? This is a drug which helps the body produce more white blood cells and thus helps prevent infections.

  • LanaM
    LanaM Member Posts: 142
    edited November 2013


    I agree with the rest on Emend - I used it and never had much nausea through DD AC/T! It's a godsend, even if I had to pay $25 co-pay every two weeks for just 2 pills! And my local Wal-Mart didnt carry it until i started using it- had a challenge getting the first prescription filled. Lorazepam is for all 3 - nausea, anxiety and sleep - I used it before bed - my MO said that would help me sleep more than the prescription sleeping pills. For those still going thru chemo stay strong! We all fight together!

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    Adagio- neulasta was given the next day of chemo. Thanks!

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    LanaM- thanks! Emend will be asked for sure. Thank you gals!!!

  • TifJ
    TifJ Member Posts: 1,568
    edited November 2013


    I had Emend in my IV as well. My stomach felt a little yucky, but I never threw up! Lorazepam (Ativan) does help with all 3, but beware it is also addictive. I used it for a year then decided I wanted to get off it. It must be done gradually- do not stop it cold turkey. Your MO will tell you the best way to do this!

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    Tiffany, I did have some nausea med through IV, not sure what it is. Also two blue pills before chemo. I need to ask my MO to confirm. I am like you, really do not like to rely on meds. Thanks!

  • Titan
    Titan Member Posts: 2,956
    edited November 2013


    Had emend for each AC...never ever felt sick.. I agree somewhat with not relying on meds but puking your guts out isn't good either...we go through enough..and we shouldn't have to have all the se's if we can do something to ease them a bit.

  • adagio
    adagio Member Posts: 982
    edited November 2013


    jianchi - before you fill the prescription, you can look up the side effects of the drugs for yourself. I never used Ativan because I am terrified of anything that can become addictive - that's just me! Also, we should be able to choose which drugs we take and which ones we don't want to take - always have plenty of questions for your MO. Information is power, so be sure to question everything and be your very own advocate.

  • LovinMyMom
    LovinMyMom Member Posts: 34
    edited November 2013


    Thank you all so much for all your love for my mom. The memorial service went very well yesterday and I think mom would have approved. I appreciated seeing ladies from BCO in support of our family. My husband and I created a slideshow for the memorial and I wanted to share it with you here. I have to warn you it is not easy to watch. The song truly is my step-father's story of his love for my mom. https://www.youtube.com/watch?v=Q6fjLkCFmDA

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited November 2013

    LovinMyMom- You are in our thoughts. Your MOM was such a HELPFUL and POSITIVE person.  May she soar with the angels.

    Jianchi, drink plenty of water.  I know it sounds redundant, but trust me, as time goes along it will make you feel so much better.  I don't know why chemo tends to dry you out??  I ended up having to get a humidifier.  I drank water constantly to flush my body, and also to combat that dried out feeling.  Once you find the right meds your side effects should be mild to something you can put up with.  There are so many little tricks, please inquire.

    Question Ladies:  I had a BMX so I am wondering how long does a breast surgeon need to follow me, or should all my imaging be scheduled through my Med ONC.  I put in a call to my Med ONC's office, I'll let you guys know the answer.  Maybe it can help someone, because I am no longer required to get mamos only MRIs. 

  • Luah
    Luah Member Posts: 1,541
    edited November 2013


    Lovin: What a loving tribute to your mom. Thank you for sharing, it helps give a fuller picture of the dynamo behind the avatar here. Obviously much loved and much missed.


    Jianchi: Besides effective anti-nausea meds, 2 other tips I have: Drink lots of water the day before, the day of, and the day after chemo. And, take the meds exactly as prescribed. One of my meds was discretionary but my onc emphasized to take it at the very first sign of feeling unwell, even just a twinge; waiting until the nausea comes on, she said, would be too late.

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    Ada, fighter-34, Luah and all the ladies that offered me advice, all I can say is thank you, thank you, thank you so much! I am much better today, and I even drove my son to school today! I haven't been able to do so and I was so glad I did! After that I even went shopping, very relaxing picking up small Christmas goodies for friends family who live overseas. Life is so beautiful and I enjoy every minute of it when I am off side effects. I have learnt my lesson that I will take my meds in advance to avoid SEs.


    Hugs to you all!

  • Titan
    Titan Member Posts: 2,956
    edited November 2013


    Lovingmymom...thank you so very much for sharing your mom with us...I loved her smile and how much she loved ALL of you......she certainly knew how to enjoy life and made everyone around her love life also...I know she did me......

  • gillyone
    gillyone Member Posts: 1,727
    edited November 2013


    Lovin' - that was lovely.

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    Oh, forgot to mention that I just learnt today that my nurse did gibe me Emend through IV on my chemo day... Still I felt bad, guess everybody is so different.


    Cycle 2 will be hard I think as this will be the time to lose hair...

  • jenjenl
    jenjenl Member Posts: 948
    edited November 2013

    lovinmymom - what a wonderful tribute to your home.  always with a smile your mom!  always remember that smile dear.  warm regards - jen

  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited November 2013


    Ladies & Gent!


    I just got call from MO doctor. PET scan came back clear! No evidence of disease.


    Blood work in normal ranges.


    I am so relieved. I suppose because of my having to stop chemo because of health side effects has made me more apprehensive. I am not at one year yet but feel good with results. Still taking my B 12 & is seeming to help.


    Such a weight off.


    Praying for a good day for all!!


    Marsha

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2013


    Lovingmymom thank you so much for your post. Your mum was very special on this thread. Always cheerful, always happy, always smiling. She will always be in our hearts as will you and your family.


    lookingforw that is such wonderful news. Take each day as it comes and go and do something special. All will come right.


    Jianchi hope you are feeling good today. It isn't nice to lose your hair but I had mine cut off at the first sign of hair coming out so that it was my decision and not cancers. At least it will come back though after treatment.

  • Jianchi
    Jianchi Member Posts: 352
    edited November 2013


    lookingforward- glad for your good test result!! You should celebrate!


    Cocker- I am feeling better since Sunday. Thank you! I was thinking the same way, shave my hair before chemo does the trick :(

  • Titan
    Titan Member Posts: 2,956
    edited November 2013


    Jianchi..not sure about NOW..but when I took Emend it was in pill form I took one before chemo,one after chemo and then 2 each day after for 2 days...total of 6 pills...then I had the other pills to take if needed..Lorzieapam..or something like that....don't think that the iv emend is enough.

  • gillyone
    gillyone Member Posts: 1,727
    edited November 2013


    Titan - I remember emend being pills too. And other stuff at the same time and then on an as needed basis. Which I never needed. I did need Prilosec though!!!


    Today was my six monthly oncology appointment. All was well; another one under my belt.

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