Skipping Invasive Tests??
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Now that surgery, chemo and rads are done, I have a diagnostic mammo every 6 months on the left breast. I also have my yearly mammo on both breasts and an yearly MRI. My issue is that every time the radiologist sees a change, they want to do a biopsy, ultrasound or other test. The first 6 month mammo I had, they scared the crap out of me when they saw my usual cysts. The radiologist had me come back for an ultrasound and recommended a biopsy. I went for the biopsy and after she did the aspiration, I developed breast and truncal lymphedema. The results were benign.
The next time I had my 6 month mammo, the technician pressed the breast so tight that brown fluid came out. They had me come back for an ultrasound and they recommended I have a ductile biopsy. After reading about the fluid, I found out it's normal and after age 40, there is waste in the milk ducts that can secrete. Of course, it only happened because of the pressure she applied. I went back for the ultrasound, but said no to another needle. On that visit, the doctor released some fluid and said there was no blood, so all was well. My issue was that they wanted to put a needle into my nipple when they really didn't have to. I had also had an MRI just a few months before and all was clear.
So, here I am again on my 6 month follow-up and this time the doctor has the tech take extra films. Afterwards, she had me wait to speak with the doctor. Radiologist comes in and tells me they recommend a biopsy again. It appears I now have some micro calcifications in my breast that weren't there six months ago. She says that normally they would just watch this area, but because I've had cancer (mind you Stage 2, grade 1), they have to recommend a biopsy. Her report says Birads 4a, low suspicion. I told her I wasn't thrilled with a biopsy again and she said she has to recommend a biopsy, but is fine with waiting for the 6 month follow-up. She did, however, give me the line, "if it was me, I would have the biopsy just to be sure." When I got home, I was upset and did a bit of research. It seems that many women who have gone through radiation and other cancer treatment develop micro calcifications. It also said they happen after menopause and they are normal. The ones she showed me on the films look nothing like the clusters that show up as dcis.
Anyone else have doctors that are always recommending more and more treatment even after all the "real treatment" is done? -
I think the drs are super cautious with us. I had a yearly mammo on my good breast. Got called back for more shots, then off to an US. Very unnerving. Turned out to be nothing and was labeled BRAIDS 2. They wanted a closer look and a better baseline. My MO sent me for an X-ray for hip pain. I knew it was just the AI, but he was concerned. Since it could be a site for mets, I agreed.
Seems to me your team may be pushing too much for biopsies. The problem with them is that they leave scar tissue which means it is more difficult to see a tumor later. It's easy for them to suggest them. I doubt if the technician was in your place that she would want a biopsy each time she goes for a mammo. Easy to say "If I was you...." -
doxie, thanks so much for your thoughts. You are so right about scar tissue and I didn't even think of that one. In my case, it felt more like she was recommending a biopsy to cover her ass and not to protect mine. I could see it in her face when she spoke. I feel like they cry wolf a lot and you know how that goes. God forbid something really be wrong, but if it is, I suppose I'll know more in 6 months :-). If there is no additional calcifications in that area, I suppose I would have been right to skip. If it looks like there are more calcifications in that area, then perhaps I'll rethink my decision. Thanks for listening. -
Anyone else say no to another biopsy? Where do we draw the line between our best interest and what may just be their recommendations for their legal protection? -
Rocky, i tend to be in agreement with you. I am really aggravated by this and feel my biopsy scheduled tomorrow would maybe have been left a "watch and wait" another six months if a different radiologist had looked at it. I think it is practically criminal that our best imaging we have is so inadequate that we are doing biopsies on 100 women to find 15 or 20 cancers. -
While it is easy to get an ultrasound (why I could get those all day long,) I really hate the biopsies, which in this country tend to be the core needle procedure I like to call the "leather punch." I can relate so much to feeling procedured-out BUT, as you know, none of the imaging techniques are definitive. Those barbaric biopsies are what can definitely rule out cancer. It is a tough call.
That said I, myself, said no to a thyroid biopsy, opting for the 6 mo. monitoring. For some people, it is 6 mos. of anxiety, for others, it beats having a needle shoved in. Guess it comes down to just trying to make an informed decision that we can be individually comfortable with. -
my mammo can back with a bunch of abnormalities. I was sent for a biopsy..I went to a BS..who sent me for a MRI and said no need for a biopsy...but a year later BC! Ad a breast riddled with DCIS in dense breast tissues . Had I had the biopsy initially I could have known about the DCIS and started treatment earlier...it's a crap shot... -
Melissa, I hope your test goes well today.
Elimar, something in my gut was saying that all is well. The radiologist even showed me the mammo on the computer and showed me what her concern was. She said low suspicion. With that image in mind, I looked up DCIS pics all over the internet and saw that what she showed me was barely close to what the real thing looks like. Then I thought, on the other hand, if it is DCIS, well... I'm not real hip on cutting that breast open again. -
When my mammogram in May showed calcium in a cluster, the radiologist wanted to do a computer guided biopsy. My feeling was that that hospital probably needs to do as many tests as it can to pay for its new machine. I went for a second opinion and got a fine needle aspiration instead. It was positive for cancer. I'm not sure in what cases that may be an option, but it was definitely less invasive although less informative about type, stage, etc.
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Rocky...I have Stage 2, Grade 1 IDC too but fortunately have never had to have a biopsy. I do get nervous before a mammogram and even my Oncologist visit and I can understand completely why you were. Sounds like the drs are being overly cautious and I am sure you are exhausted from the constant biopsies but I have to say I would probably keep on keep on with them keeping in mind I am the poster person for anxiety warranted or not. Good luck. diane
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So here's the funny thing right now... my ob/gyn office called the next morning after the mammo to make sure I new what the radiologist found and they agreed that sometimes it's overkill. Late that day, my family doctor's office called to make sure I had the report and that I was following up. My BS (who I do like a lot/old friend) who is the one who is my main doctor hasn't yet called to talk about this. I even called his office today to see if an MRI would tell us more either now or next May when my yearly mammo happens. Well, guess who I haven't heard from and the test was November 12th??? Doesn't sound like he's too concerned :-).
When you find out you have cancer for the first time, you do everything they tell you. When your 2 plus years out and you've seen the "over treatment" that can occur, you don't know who to believe. I do appreciate everyone's thoughts very much. Thanks.
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