In need of some positive vibes!!!

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Milane
Milane Member Posts: 34


Hello


I am 40 years old and was diagnosed on 23 Sept. with multifocal IDC left side. One tumor is at 1 o clock 2.2 cm and the other is 0.9mm grade2. I found out shortly after, that it is borderline TN (PR weak). I had a PET/Ct and all was clear and a pre op MRI which showed to my surprise 2 spots on the right side. They biopsied the spots 1 o clock 1cm and 0.9mm close to chest muscle. Well that too came back positive for IDC grade3. My Brca1 test was also positive! Now last week my mom (68yrs) went for a mammogram and got the call back. They have no comparing pictures and said she needs an Ultrasound+MRI today.


They found fibroglandular breast, benign calcifications and sub centimeter similar appearing masses in both breast. I cannot believe this is happening. I hope and pray all will be clear in my mothers case.


I will meet with my oncologist on Friday and Surgeon on Tuesday to discuss Neoadjuvant or adjuvant chemo. I still am shocked that I am Multifocal,bilateral,(Synchron),TN and Brca1, but also happy that my doc ordered the MRI and found the right side tumors. My tumors did not show on 3D Mammogram and the right side did not show on PET/CT . Thanks for listening ;-)


Milane

Comments

  • jbdayton
    jbdayton Member Posts: 700
    edited October 2013


    So sorry you have to join this forum. I always feel so emotional for a young lady to have to face this diagnosis. Do you have young children? I was fortunate that my girls are out on their own. I can sympathize with some of your issues. My mother and I had biopsies the same day and both of us came back positive. Mom had a very slow growing ILC and did not need to do anything but go on a hormone drug due to other medical issues. She is 81 and in later stages of Alzheimer's. The worse part for me was I had to make a decision to put her in nursing care. This was one of the hardest things I ever had to do. I had been her caregiver for the last 7 years. She did not understand what was going on and I could not explain it to her because she could not remember anything longer than a few minutes. As overwhelming as that was I also had to deal with my cancer diagnosis and planning. I hope your mother gets B9 results.


    My diagnosis is not as multifaceted as yours. I did have a large enough lump that I did chemo first which gave me time to digest all my options for later.


    The hardest part of all of this is the hurry up and wait then make a decision and wait.


    You will feel more positive after you meet with your MO and BS. You will map out an initial plan and then put on your body armor and begin the fight of your life. You will have many battles to win along the way. I made sure I gave myself a big pat on the back for every little step I took and accomplished. Then you can really celebrate each major battle and gear up for the next one.


    I did find that keeping an open mind and being ready for the plans to change along the way helped me. I am typically a detailed planner so this was hard for me, but as I am nearing the end of my treatments I am relaxing and happy I made the right choices for me. I am down to reconstruction planning but that will be many months down the line.


    I am sorry I cannot help with the TN part but it seems a lot of the ladies in my chemo group had surgery before chemo.


    The most important thing is you rest and that you love your team of doctors. You will handle the rest because somehow we all seemed to have found the inner strength to do just that. You will have many low days but there will be many high days as well. Come to these discussion boards to vent, whine, ask questions or just share a good thought. Everyone is so helpful and loving. We all have a bond that only those facing cancer can understand.


    As you start each new therapy join a group of ladies doing the same treatment. You will make some new friends and build a great support system. Each treatment will be over before you know it even though it will not seem that way at the time.


    My prayers and good wishes will be with you as you proceed with this journey. Best of luck to your mom as well and I hope she gets to support you and not join in this journey with you.


    ((((Hugs)))))

  • Milane
    Milane Member Posts: 34
    edited October 2013


    Thank you for your reply. I too am sorry that so many women have to go through this. I did find out good news yesterday. My mothers Ultrasound turned out fine!! That takes a tremendous weight off of my shoulders. Now I will wait until Friday so we can come up with a treatment plan with my Oncologist.


    Milane

  • carrolmcc
    carrolmcc Member Posts: 14
    edited November 2013


    Good luck to you Milane.

  • ReneeinOH
    ReneeinOH Member Posts: 511
    edited November 2013


    Milane, we have a thread for women who have been dx w/IDC in 2013; please join us--great place for support and to ask questions: http://community.breastcancer.org/forum/96/topic/798679?page=47#idx_1410


    This is all overwhelming, I know. I was told, and found out it was true, that this is the hardest part--the not knowing (and all of this being so new).. Once a treatment plan is in place, it gets easier.

  • msphil
    msphil Member Posts: 1,536
    edited December 2013

    we are here for you and each other, sorry you are in this club, but al least we are in this together, prays for you and US ALL. msphil(idc, stage2,0/3 nodes, L mast, chemo and rads and 5yrs on tamoxifen) and now a 19 yr SURVIVOR(Praise GOD)

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