Help, very sad and despondent...don't know if I can do this
Hi All,
I have been on these boards a couple of times but mainly lurking. I am half way through my chemo for Stage 3A IDC. I really am having a hard time believing I will get through this. I have two teenage daughters and a 9 year old son and keep thinking I won't be here to see them grow up. I am taking meds for depression and I do have a history of anxiety and depression but this is all too much. I saw my onc yesterday and he said that I am also having symptoms of menopause so that isn't helping either.
I could really use some reassurance at this time. I am trying to be positive but I am finding it so very hard.
Thx for letting me vent a bit.
A
Comments
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A - I'm 3 years out from Stage IIIa IDC. I know it can be overwhelming in the middle of treatment, but I can tell you from my experience, that there is life after breast cancer. That's not to say I don't think about it every day, but it doesn't take over all thoughts like it used to. Try to just take one day at a time. And don't ever hesitate to vent here because we all understand and have been where you are. It's ok to be scared about your future, that's natural. But try not to let those thoughts rule you. Focus on what you need to do to get through treatment and come out on the other side. You can do it!
Hugs,
Kathy
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I am so sorry, Awnie. I don't really know what to say that would help you feel better, but when I read your post I thought of something that always helps me to move forward when I don't know how. In the words of Dr. Martin Luther King:
"Take the first step in faith...You don't have to see the whole staircase, just take the first step."
I know it is hard to do, but try to focus on doing the task at hand. Keep your sights short and focused. Just do the next thing. Even if that is just to keep breathing. You may not believe, right now, that you will get through this, but I believe in you. One step at a time, you will get through this. And your kids will learn from your steady strength.
Sending you hugs. Wishing you peace. -
Being in the middle of treatment is hard. It's hard work. It's exhausting. But you are tougher than you think.
The best thing to do sometimes is get out of your own head. Sitting alone and not feeling well stinks. Find something you love to do, something for yourself or someone else. Some small goal that has nothing to do with cancer or treatment, but fully engrossing yourself in it is a great distraction. Books are good. Hobbies are helpful. Writing letters, etc.
Maybe getting some professional help would be good too. Being able to vent, having concerns validated and addressed, maybe there is a support group too.
Best wishes to you. -
I haven't started chemo yet, I start the first week in Dec. I was just diagnosed with stage III, they thought it was stage II until after the path results from the surgery. I just had a rad mx on the 31st of Oct. I have a really good friend who went through what we are going through and is now 5 years clean. We need to look at the chemo as killing any rogue cancer cells. Stage III is not incurable. I was told to remember that when we feel like crap going through chemo. and radiation, so do those cancer cells. I wish you the best.
Kim -
Awnie, I'm IIIa IDC, too. When you're in the thick of it, it really does feel like it will never end, but I'm now 10 month past my last radiation treatment and 1 year after my last chemo, and I promise you it does get better. You will get through this and you will feel normal and able to focus on your kids and spend time doing your usual things again. And with treatment, our odds are good to live long lives.
Praying for you and wishing you an easier time than you're having. Remember, there are a lot of us here and we are here for you. ((hugs))
(and Kim, wishing you an easy and speedy time of it with your chemo, too!) -
Thank you all for the kind words. Everyone tells me it will get better but sometimes when you are in the middle of it, weighed down with the treatments and side effects and the unknown it feels at times hopeless.
Keeping busy helps for sure. I plan on immersing myself in the upcoming holidays and in planning a getaway for when I am through this.
A -
Hi Awnie,
We all were right where you are right now. Scared and sad. I didn't believe I would be sitting here 3 yrs later and yet here I am. I still have dark thoughts every once in a while, but not nearly as often as I used to (only when I get a weird pain). Now I think of the pain, anxiety and time I wasted worrying that I wouldn't make it! Distraction is a good tool to use when I start to feel bad. "Land of the Lost" with Will Farrell almost always brings me out of a funk. Walking and getting outside and buying something just for me (gotta be careful with that one Ha!). Usually it's a new nail polish or lipstick. This is my favorite season and I can't wait for Christmas carols to start playing on the radio. I'm going to lose myself in the festiveness! I hope you can too!
Kelli -
Awnie....have you tried a gratitude journal? Even when the going gets tough, most of us have tons to be thankful for. I also think that getting outside helps immensely. I made sure I did that every single day during treatment.
I remember one day I was dragging doing my walk and saw someone using a walker. I realized that I would feel better relatively quickly (and remember I was doing no worse than dragging a bit). This poor person never would be able to walk normally again.
One thing I did was make sure I bought fresh flowers for myself. Nothing like red roses at Christmas to put a smile on my face.
And then there was the silk underwear..... - Claire -
awnie1301...where you are in treatment is so hard. During that time negative thoughts far out weighted the positive thoughts for me too. But, I do remember thinking this is happening to me and how I handle it will decided how all this effects my kids. My son is the youngest too which was a huge driving force to keep as much as normal as I could. If I was in bed he would come lay next to me with such a fearful face that I made sure that when he was around I was out of bed. I also knew that even though it was treatment time there was still life and I planned something special ( made cookies and hot cocoa) for the good days between treatment to look forward to.
After all treatment was done my son wrote me a letter telling me how he learned about handling suffering and sorrow through watching me...our kids watch so closely cause we're their mom! I share this to hopefully help you focus outside yourself as this is what helped me be strong and focused on the finish line of treatment. Your desire to be here for your kids tells me what a wonderful mom you are, use that now as a strength to get through...you will get to the other side and life will go on!! -
((hugs))
I don't have any words of wisdom because I'm struggling too. But, just know that you are not alone ((hugs)) -
Awnie, I was Stage III IDC, too, and I'm still here, 9 (NINE) years later, still NED (no evidence of disease)! That should give you some hope for the future, and the knowledge that all this will have been worth it.
I recall 1/2 way through chemo as being the worst -- then things started getting better for me, and my outlook brightened. Do things for yourself, to help you feel better, maybe indulge yourself a little -- you deserve it! For me, it was getting massages. I actually had them twice a week during chemo. Some of the other recommendations above might help, too.
Talk to your doctor about maybe changing your meds for depression. A psychotherapist who does therapy with cancer patients might help, too. -
Hi Awnie, I too am a stage IIIa. The one good thing about being stage III is that our Oncs throw everything but the kitchen sink at us in our treatment. My Onc told me on the day I had my first consultation that it is his job to keep the cancer away. It's not easy the cocktail of chemo drugs they give us but it gives us hope when we have a treatment plan. You could be a little down now because of the accumulative affects of the chemo, and also the steroid can do head trips of sadness. I became a bit of a hermit and withdrew from everyone. I think we all go thru a process of being sad and sometimes angry at this diagnosis, family and friends who mean well, but say stupid things. During treatment we become so in our head and our heart and then a little time goes by after treatment is over and you start getting your strength back, and before you know it you are easing back into some kind of life with those you love, and suddenly your not obsessing over breast cancer anymore. I am now about 4 years out and I am finding myself going back into some worrying about the cancer rearing it's ugly head somewhere in my bones or liver or brain or lung, or all of them. That is always my fear. But if it's not the cancer I guess at my age it can be half a dozen other things that get me. Last year it was finally after 2 years of agonizing pain, I had a knee replacement, which has improved my life so much. So for me I never know when the next shoe is going to drop. I've had a brain hemorrhagic stroke, breast cancer, and knee replacement. Now I wonder what the heck is nextI hope you feel better
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Awnie, I am still on the roller coaster of stage 3. Have a made good decisions? How can I ever get back to a "normal" life ? My kids are older, but I still put on a " brave face" most of the time, I see the fear on there faces. Yesterday I had my 7 th chemo, only 1 more. Of course radiation to follow. I get so irritated when clueless friends that are flippant, you will be fine, or the ones that sob when I see them. Coming here and connecting with women that are going thru the same thing is helpful. I wonder if I will need to get on anti- anxiety meds. So far I have not asked, but I am thinking about it. Keep in touch & for me, on those dark days, I just concentrated on getting through that day. -
Yep, I have those dark days too. Exercise and getting outside helps me a lot but sometimes there is no escaping it, is there? I wish I had better words to help, but I do understand exactly how you feel. -
Awnie,
I definetly can relate to how you are feeling, I had a very bad time with all of my tx but I made it through just like you will..we all go to the place of thinking not so nice thoughts when we have any type of aches or pains...just remember the chemo is not very nice to our bodies but you can do it...good luck -
Hi Awnie.
Middle of chemo is rough, . but now you're on the up side and before you know it you will be done.
I remember those days well, filled with fear, anxiety, chemopause and side effects of my tx.
I am know 8.5 yrs well of a stage IIIC dx. It does get better dear and you will be around to see you children grow into adults.
Talk to your onc if you're having more bad days then good, he may need to switch your antidepressant. -
((((Big Hugs A)))),
Look at it this way---you ARE doing it! Right this very minute you are beating this crap up! And you will continue to do so! On some of my worst and darkest days, I kept telling myself, "this is only temporary" over and over again. And you know what? It worked (most of the time). And here I am 4 years later to share this with you. After my initial dx I never thought I'd see it through the treatments, much less still be here today. Don't get me wrong, I have had plenty of scares and know the future is uncertain, but I am LIVING LIFE and trying to enjoy my family and friends. I am one of the biggest screamers at my kids sporting events, including my son who just finished his first season of HS football (playing JV AND Varsity btw
. Who would of thunk it?
Hang in there, and we'll be here to hold your hand. VENT away. You deserve it! And feel free to PM me anytime if I can help you in any other way.
Love,
Sharon -
Has anyone had their chemo not work? Mine didn't work it didn't even slow it down, it continued to grow makes me really scared.I start radiation Dec.4th is first appointment. -
Istewart51, I am assuming that you had chemo first to shrink your tumor? I had a lumpectomy first, so I really cannot offer good advice. Does your oncologist plan on you going through radiation & then have surgery? Someone else will post with more knowledge, sorry you are going through this nightmare. -
awnie, in case no one has told you, Stage IIIa is still considered early stage breast cancer, which has an excellent prognosis.
When I was first dx'd, a bc survivor friend send me a little piece of paper that had this quote by Mary Anne Rademacher on it that someone had given her when she was first dx'd:
Courage doesn't always roar. Sometimes courage is the little voice at the end of the day saying, I will try again tomorrow.
I can't tell you how many times I read and re-read that -- every night before I went to bed -- and it would give me strength when I thought I didn't have any left. I hope it blesses you, too. (((Hugs))) and hang in there. You're just at one of the very hardest points, but it will get better. Deanna -
lstewart, I think it is not that unusual for hormone positive bc to not be particularly responsive to chemo, but don't forget that you will probably be offered the hormone targetted therapy, Tamoxifen or whatever, as an adjunct as well as radiation and surgery.
I had my surgery first, then chemo and rads, so I have NO CLUE as to whether the chemo was effective, nor indeed whether there was even any cancer left to worry about! So I often feel I might be less worried if I had had chemo first, although at the time I might have flipped out at the thought of delaying surgery!I guess you can't have it both ways!
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This too shall pass. Put cancer into the tiniest mental box you can. My kids were 12 and 9 when diagnosed in 1999. 14 years later, I'm still here. Keep the faith! God bless.
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awnie, just putting in my own words of encouragement. I'm over five years out from my diagnosis, and just over five years from the end of my treatment. Five years ago I was just ditching my wig and trying to make the best of the shortest hair I had ever had since I was born.
As a single mother, I had worked all through my treatment, only taking two days off for each infusion every three weeks, and then for surgery. Strong? No, not really. I just had no other option. Somehow you find the will to do the seemingly impossible.
What surprised me the most was the feeling of being cast adrift when the treatment was over. If I could have continued to visit my oncologist every week, I think I would have, just for the sense of security. But I have just started yearly visits, and that feels OK now. In these five years I have learned to put cancer on the back burner and move on with my life.
You will make it through this!
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