September 2013 Chemo Group
Comments
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hi everyone, today is #4 ac. And THE LAST ONE, saw my onco yesterday and after a physical exam one of my 2 .5 cm tumors has reduced by more than 40 percent and the other one is also reducing. The bad news is he said my last AC will be harder as far as fatigue goes. Wow cant wait to be slugging around with screwed up taste buds lol. Gotta be positive right? The one thing that gets me thru the horrible first week is i plan things, where my first vacation will be after this is all done, xmas stuff, i also peruse the real estate in florida in hopes of buying. Nice condo in madeira beach one day. Hey good to dream right helps this s****** were going thru.
Peacock girl. Too funny u go girl! -
wooohooooooooooo!!! Home you go Kbeee!!! HATE hospitals, and I was a nurse
GET better and eat your healthy foods!!! -
mamastewart~ I had mastectomy with expanders, which are heavy hard and feel like rocks by the way, they also seem to go into your armpits...HATED them!!! All that being said I felt exhausted and sore for about a good 3 weeks then started to feel better, I had them switched to implants on week # 6 after mastectomy. I wasn't having radiation and developed a seroma in one expander (leakage of fluids) where the drains were taken out, speaking of drains, that's probably the worst part of the surgery. I had 2 drains from each breast and they drain a fluid out and stay in a week or two until they dribble and nothing more comes out...but there is always a chance a seroma happens and that is just more fluid with nowhere to go...mine had almost absorbed back into body when I got the exchange...
The exchange surgery was a whiz and WAY easier and better than mastectomy, hardly any pain and felt OK a few days out and it's been 2 weeks for me tomorrow and I have been driving, shopping, doing normal things...and I am healed enough to start chemo. tomorrow.
I flew to Colorado to have mine done as a family member is a surgeon there...there is tons of information on their website about it if you want to see...www.parkmeadowscosmeticsurgery.com ~ the specialize in breast reconstruction after cancer and Jeremys mother had it 4 years ago and also has had procedures done. So they are VERY caring and aware and on the forefront of reconstruction, both went to Johns Hopkins....good luck! -
Peacock girl~ that truly made me laugh out loud! Good for you! What a jerk!!! HaAAAAA!!! You are awesome and I hope to be walking in the midst of this going on soon -
Mercedes, I hope you recover quickly from your last A/C. Glad you don't have to do that one any more.
Simplelife, I hope this one doesn't knock you down as badly. Should just be one more of those left?!?
Viji, I have the same "will this ever end" feeling. The end seems so near, but yet so very, very far away. I always said that my kids were growing up too fast and I wanted time to slow down. I am eating those words. Time has screeched to a halt, and I want to put the next couple of months on fast forward!
Felt great, great, great to get to work for 2 hours today and to get out for a walk. Nauseas from the neupogen shot, still, and no appetite for food from the antibiotic, but liquids seem ok. Smoothies and Ensure it is! I always thought of Ensure and those drinks and things just really old people buy. I am NOT really old!!!!! I just feel like it some days. -
Those of you who have chemo on Fridays, when do you do Neulasta or Neupogen? I know they have no one there on weekends. I can do injections, so I could do the Neupogen at home, but I am a little worried about reacting to it, and not having anyone here to deal with the reaction. Does anyone wait until Monday to do Neupogen??? -
KBeee Glad to see your feeling better. -
KBee,
I have the Neulasta shot on Saturday morning at 8:00am. It is the only time they administer it on Saturday. If you are asking where on my body I get it, I always ask them to do it in the arm. It is a very small needle and the pain is more from the push thru of the liquid than the shot itself.All,
Regarding eating... thanks. Some of you really make me laugh. Round 4 has been weird. Not as much pain, but very very tired and zero appetite. -
KBee, I've been told I will receive neulasta shot at the hospital's infusion center, which is open 7 days a week. -
KBee,
I haven't had any immediate reaction to the Neulasta shot, not even a tickle. However, be prepared for it to kick your bumm on Sunday. Take Claritin starting on Friday to ease the bone-crushing sensations on Sunday, Monday, Tuesday, and Wednesday.
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kbee-I had the shot at all different times. Twice 24 hours later and once 48 hours and twice a week later. Honestly my numbers always were down on week two whenever they gave it to me and was always up by week three so I don't know if it did me any good or not. -
1st Taxol on 11/11 and today 11/13 my entire body hurt on top if having a cold with the temp dropping outside MO called in antibiotics for cold since mucus was present anyway trying not yo do Rx pain meds so I did Aleve today and it worked temporary but now it feels like ever bow and muscle in my body hurt -
Lociti - Are you doing weekly or dose dense taxol? I'm doing dose dense and I completely know where you're coming from. Days 2-6 are horrendous for me... everything hurts, even my fingertips. It's bone pain and muscle aches and the flu all rolled into one. If you're doing weekly, I thought those side effects weren't as bad (for most), so if you are doing weekly, maybe it won't last as long. {{hugs}} -
I get chemo on Fridays and I get the neulasta shot 24 hours later on Saturday at the hospital in the "short stay" surgery area where I had my lumpectomy in Aug. The infusion ctr is closed but they have a nurse that rotates Saturdays and so you go there... It's weird because I have to check in at the ER and then walk the dark halls back to this unstaffed deserted area to find the nurse at short stay. KJsimpson: I wish I could just get it over with at 8am on Saturday but NOPE, I swear if my husband I and I get there early the nurses will daudle and talk until it's exactly 24 hours since chemo ended the day before. Like really? Does it make THAT much difference? Voodoo or science? I dunno.
Lociti: I hear you on the the neulasta pain it's NASTY. On A/C it was bad, on Taxol? It's just unbearably over the top bad. I too wanted to avoid the heavy gun painkillers but damn I am sick of suffering. So I used the oxycodone to the fullest this time. I also take clairitin on chemo day thru day 5 or 6. Have no idea if it helps at all but OMG if it IS helping? whoa. I can't even imagine the alternative.
I haven't had numbness or tingling in the hands or feet but yesterday my legs had weird buzzing shooting pains, especially in my calves and ankles. Plus just those randome pain "zingers" that come out of nowhere and hit in you in odd places. Today was the first day I didn't have any pain but I literally hit a WALL. Today I just crashed....I trained a client at client at 10 and could barely keep my eyes open so then had to cancel my 11am client....came home threw my shoes off and fell into bed for a 4 hour nap. it was bizarre. I haven't been able to sleep well at all since chemo began (have to take drugs at night to sleep now) and I haven't taken many naps ( used to nap well when I was healthy) ...I managed to get up for an hour and then was promptly back in bed for another two hour nap.
just such a bad day. i'm finally waving a white flag of surrender. i can't even hold up the illusion that i'm doing okay anymore -
kbee thks and glad ur home your journey seems to bequite challenging! In french we have an expression to someone that is going thru rough stuff its (bon courage ma belle) it means good courage sweetie! (And yes as bruce willis famous words in his die hard movies (yipee kaiyaa MF! AC done) and oh yah chemohead setting in a little hallucinations last evening as chilled in my recliner with my entourage 2 dogs next to me and my cat lounging on the sofa,my girls upstairs studying supposedly, my husband in his man cave in the basement My cat she didnt notice the shadow going across thefireplace soit was just me lol. Had this on my first round of chemo my doc said its side effects from the anti nausea pills for 2 days after chemo. Really? I take emend and decadron which is a steroid, shakes. A little hyper lots of fun. Anyway i am Preparing for the worse which usually hits me day 4 and 5 after. Good news my bloods were better than last time red and white, plates all up. My nurse asked me what i did, well week2 when i start to feel better i invorpoate more meats such as hamburgers,steaks, salmon, chicken into the evening menus lots of spinach, broccoli maybe this helps. Iron and protein, fruits apples are the best, lots of water, sport drinks etc...
Question does anyone have any tips on a goodface cream, i use aveeno for body, and i use lancome cremes for my face but they dont seem to do the trick, i have extremely dry skin on my face so amy suggestions -
Feeling tired. Has anyone asked their Drs. To lower the nulesta shot. They did it for me, my bones don't hurt as much. I just feel tired yesterday and today. I go to hydration today hoping it will make me feel better.
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lighthouselady: I am doing dose dense every 2 weeks my mo decided that I did not need the neulasta after my 1st Taxol since all bloodwork was good, however I did have the injection after all 4 ac treatments and this pain does not compare at all feeling a little better today but I will admit the pain can take you by surprise
Peacock Girl: I did Claritin with the ac and neulasta treatment however just had my 1st Taxol on this last Monday no neulasta given as blood work was good so mo will monitor to see if I need the neulasta injection after taxol I wonder if I can just take the Claritin because it helped tremendously anyway chick I hope you feel better soon sometime we have to waive the white flag I am at that point also because I have kids and stay very active with them I try not to let my energy level affect them but I have pulled out the yellow flag and slowing down -
Good news, my wbc count is in normal range! It has finally come down to 9 from 19. It was 20 before that. How can you tell if it gets too low?
Did my Rad simulation & tattoos today, in & out in 10-15 mins! -
70 - here is a link with normal CBC ranges. Anything under the low number for a WBC would be considered low, but it is subjective as to whether, or when, to give a CSF like Neulasta or Neupogen:
http://www.medicinenet.com/complete_blood_count/page2.htm#toce -
Thanks Specialk. But are there any symptoms you get to tell you that you should seek medical attention? -
As far as a low white count the danger signal is infection or a fever spike, and it can be a bit confusing because some of the SE from chemo feel like illness, but it is not like a low hemoglobin that makes you feel tired and causes muscle burning. This is why they have to do CBC throughout treatment. -
70charger, if your white counts were high while on the steroids, it may because of them. My MO said that steroids artificially inflate them. Mine were also around 19 when I came for my second treatment. After learning that, I asked to have blood draws the day before, because I want to do it before I take the steroids so I get a true, accurate reading. When my counts plummeted over the weekend, I felt like I had the flu and I spiked a temp. They counld find no infection. It was a neutropenic fever, meaning it was solely from my low neutrophils. Even though they could find no infection, I was on IV antibiotics until my counts rose.
Mercedes, I have heard that Aquaphor is good. I have not tried it yet, but a lot of others love it!
Peacockgirl, I hope you feel better and better each day. I am sorry you are so exhausted. Chemo just plain rots. I am thankful it exists, but I still hate it! -
Thanks Specialk & Kbeee. -
Mercedes, I use coconut oil on my skin since I got diagnosed. I have a lot of problems with dry skin right now too and it helps a lot. -
So here's my question....when I start the AC, how much Claritin do I take each day to help with the bone pain from the neupogen shots? -
thks simplelife4 and kbee will try these. Xxxxx -
simplelife - take a 10mg regular 24-hour Claritin (not Claritin D) at least an hour prior to your injection, then continue for at least a few days, or longer. I used the redi-tabs because they dissolve on the tongue and you don't need a drink. Sometimes I was running around doing errands prior to going for my injection, and I was really tired of taking so many pills! -
Little tidbit to make you ladies smile - my normally sweet, helpful little boy just refused to hand me a magazine to fan myself with during a hot flash because, and I quote, "I want to watch you explode..." -
what comes from the mouths of babes -
JellyK: a good sense of humor goes a LONG way to getting through this! Hahaha.
Speaking of hot flashes, I'm not sure I've had one per se but last night every stinkin' hour on the hour I woke up too hot and almost in a flop sweat. Then instantly cold again, hat back on. Next hour, covers off ..whip the hat off. It got ridiculous. I was completely up from 3am to 5am and then back to the hour naps until around 730 when I just gave up. I knew that 6 hour nap I had during the day was going to mess with me, I just had no idea how much. I suppose I should be grateful I got the good nap. It is so STINKING wrong this treatment and all that goes along with it robs us of our ability to sleep well!!!
I am going to ask my onco on Tuesday at our regular ridiculous/pointless 2 week get together if I can switch Claritin to Zyrtec for Neulasta SE. Only because I suffered with chronic hives for about 8 years (2001-2008) and Claritin never worked for me. Zyrtec was my go-to antihistamine. Plus it makes me sleep like a rock. He will probably just do what he always does. Roll his eyes at me and tell me to stop looking at the internets.
But hey, awesome things come in small packages, my 6am Friday personal training client just emailed to say she isn't feeling well and is canceling tomorrow. Thank gawd. That is all. Wishing good sleep to all my September sisters!
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