Chemo May 2013
Comments
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Lorrie,
Lol. This was our life for how many months? Believe it or not it is separation from the nightmare giving you nightmares. You need a new routine after work now that you aren't going to radiation. Go to a gym, the library something for YOU that is positive...those nightmares will go away.
Btw, when I retired from the police department I had nightmares for almost a year that I was late for work, that I forgot to stay for overtime, that my uniform wasn't clean....funny what games the brain will play. Time heals all wounds, that's for sure!
Can't wait for the okey dokey to get back to the gym. I was not a gym rat by any means, but I sure felt good after 30 minutes in the elliptical. Now I am a couch potato!
Driving to visit my mom tomorrow....this ought to be good. 2 hours one way to take care of banking. Woman needs to move a little closer to her daughters!
Pat -
Thx, pat!... I hope they go away... I remember trying to be polite, but sneaking a way ti get away from them.... I woke up "scared"...
Have fun visiting momma! Sorry about the drive...
We have our trio this weekend to spread my mammas ashes... all famiky spending the night Friday night at a nice house, then a charter boat on Sat.....
Someone at work (trying to be humerous) said, "make sure the wind is going in the right direction, otherwise, when you pour out the ashes they will blow all in your faces"... I cracked up thinking.,,, that would be one of her last laughs.... haha could you imagine us all standing there covered in MOM? LOa
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Wow... time for bed and im scared to fall asleep.. haha.., sounds stupid......
Ive forced myself to stay up as long as I can....
Happy thoughts!
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Lorrie,
We joked the same about scattering my dad. In my case I wouldn't have minded and he would have had the last laugh, would have been all good.
Hope you had some happy dreams.
Pat -
You are not alone Patti, still have bad dreams where docs are telling me "sorry to have to tell you this, but your biopsy is positive, You have breast cancer" Dont think I will ever get over the shock of that! -
Gully congrats on the weight loss. Actually congrats mostly on your new way of eating.
Lorrie yuky on the nightmares. if it wasn't so scary for you, it might be funny!?!? Maybe in a cpl weeks it will be funny!? Hood luck with your momma's ashes this weekend.
Pat hope your drive to your mom's went well as did her banking and visit.Remembering my dad's ashes. My stepmom gave them to me to scatter into the Pacific. About 2 weeks later she called and asked me not to scatter in ourarea because the current was to rough up here. She came from Missouri andtook him further south to calmer waters. The month I had him, I took him throughout the house w me and talked to him.
Hubby home from the hospital today. Yay. 5 more days of radiation. We will have a lot to be thankful for this Thanksgiving.
Blessings-Car
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Yey Carla...almost done! And hubby home too! Enjoy.
Woke up to snow today but thankfully not enough to ruin the drive to PA. Banking was a pain in the arse, very long to change over accounts. Took so long I didn't get lunch! (I'm not a happy camper if I miss a meal). Not to worry, I will never starve to death, picked up something at a diner, dropped mom home and left...back in time to finish off homework with the kids. I'm beat! Lol
Pat -
Pat, you are an inspiration! You do so much!
I woke up late (with aonither bad dream......) kicked some 11k ass at a meeting and and came home exhausted!... made thehubby fajitas & call it good....
Last night my dream..I was in the chemo waiting room & getting irritated my apt was at 4 and it was 530. My girls were with me.... just as I stoid up frustrated, the nurs e called my name. Then im in a cooridore asking why I need more chemo & they say "well, you were in mexico, we wnt to be sure"
I said, "but you dont do chemo to kill viruses"
And I woke up @ 430am...... not going back to sleep after that, my house is clean!
I wake up often during rhe night and remember a few "good" dreams too.....jeesh.....
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Lorrie, come spend some sleepless nights here, I need my house cleaned. Well, it might take you a year of sleepless nights, do you do garages?
Pat -
Haha, pat... by the condition of my garage.., you dont want me!
No more bad dreams! Yay... man that was weird!
Went to pick up my Tamoxifen again - doc forgot to send it in 2 weeks ago & when I went to pick it up had to call and ask about it...called them again last week and he says "sending it as we speak"... uh.... okay... went again tonight and they still havent received it...... aaagh...! Of course it was after 5 so no one answered the phones at the chemo dungeon.....
Ive made special trips to this pharmacy for it cuz they special ordered the mylan brand for me & its a huge pain...... cant wait to talk to the docs office tomorrow.
You know, after my first miserable treatment he thought he had prescribed my seroids & my hubby and I both said no..Then they didnt call me back for days when I needed helo with reflux frim the chemo (ended getting help from this thread for itbefore they called me back....
Now this!Idiots! Haha
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sometimes you get better care when you go in person. Unfortunately that can mean driving for an hour!
Good luck getting the prescription filled!
Pat -
Lorie - didn't it seem that everyone was much nicer when we were getting chemo? I had to go for my Herceptin infusion on Monday and I want to change my appointments to Friday afternoons now because I'll be off with the new job and it doesn't need to interupt anything and they were most unhelpful getting that changed for me!
So last two days at my job and they are doosies!!! I was there til 7pm last night and I'm sure today is going to be a long day. We are slammed with a graduating class and a new class starting on Saturday, and the other Admin is on her vacation, and I"m trying to train my replacement! ARGHHH!!! I should be kicking back and doing nothing all this week!
I think have BC has given me Ostio-arthritus. My legs have been hurting me for ages now but now it's spread to all of my joints, my knees, wrists, fingers - yesterday I had to sit in a little stool at Aaron's orthodontist appointment and it was really painful for me
I don't know who I should go and see about this...I'm trying to be active and exercise but my body is putting limitations on me... -
Kate, hate to say it...tell your MO , maybe they can send for a scan?
Have you looked up "remedies"? Not that anything is permanent. My dad used to say cherry juice would reduce the inflammation of arthritis, an "old fashioned remedy". He did say it is tart. For Christmas one year he gave me 3 jars of cherries so I could drain out the juice to drink. I never did try it. Sometimes the more I move the better my back feels.
Also consider trying the library, I do believe there is a "arthritis for dummies" book. You might find some useful info in there?
Good luck on your last 2 days. You are a trooper. I did the same when I left my job. Notes on everything explaining everything etc. sucked to work to the end. Hope they at least throw a cake or lunch at you!
Pat -
Just got done making my potato salad that everyone loves... I guess my mom told the girls that she wanted us to eat fried chicken & my potato salad when we spread her ashes.... we all head to the beach house tomorrow.... funny.., I started crying when I was making it... im a good cook because of her..... she was an awesome cook in our early years.....
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So on the medical front.... I called the doc office today & guess what.. my chemo docs assistant is out for the day. ? I said " I want to talk to some one NOW ".. got a nice gal on the phone who told me.. "no, I dont see that they have sent in your prescription..."
She told me she would do it right then.... this will be the 5th timd ive tried to get this script to the pharmacy..... if its not important, does that mean I dont need it?
WHATEVER...... I have shit to do until next week ... a mom to spread... daughters to console ....& ill check again...nect week??
Kate.. I think youre right... once you are out if active chemo, they dont give a rats ass
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well..2 weeks on tamoxifen so far. hate the night sweats! herceptin infusions are going well though and almost have enough hair to forgo the hats. have some rib pain. anyone else experience rib and breast pain after radiation?
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Momo....
I only have random zapsnof pain in the breast... ill go a day of nothing, then weird twinges.. but no rib pain. My RO did say it might happen tho...
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Lorrie,
That sucks about the prescription. Can your GP order it? These people sound like clowns!
Good luck with the scattering and picnic.
Momofsam, sorry I did not have radiation so can't help in that regards.
Pat -
momofsam,
i have breast pain and underarm pain, some back aches... they keep saying may be normal after chemo/rad - I see my bs on wednesday and get mammo/ultrasound..praying all is well. -
Lorrie glad u don't have any more nightmares. Although your onc office sounds like a nightmare to me. they really are terrible. Wishing you a good scattering. A memorable memorial.
Kate so sorry that you are having to work your behind off on your last week. I guess it is a good reminder as to why you are leaving.
Momofsam no rib or breast pain. Still have 2 more radiatioins. Shoulder has been hurting for about 10 days though. Hoping it's just muscular. Under my arm a little too. Will give it a little more time. My hair is at the point that people aren't sure if it's cancer or that I am sheek. Been enjoying no wig. Although I really like how I look in my wig.
Worrywart. Good luck with your mammogram.
Pat are you all rested up from your trip to your moms?
Carla
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Lorrie thinking and praying for you and your family this weekend.
Carla
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Anyone have a survivorship class at the end of treatment? mine is wed...WTF. sooo tired of doctors. What to expect hmmmm. -
never heard of it....is there something they aren't telling me? Lol -
Ok now getting paranoid! I had my check with my PCP in Oct, where he documented some weight loss and suggested PT for my back pain. Been in PT now for about a month. Got a random call last week from the NP to come in for a survivorship class, I was let go by my onc for 6 months, that was in Sep. Was not supposed to go in until March. I hate not knowing things, never mentioned this class before....and btw its an hour long! Will let you all know what this entails. -
probably the class came up and they are hoping to fill it.
It's a good thing...at least it isn't called something else!
Keep us posted.
Pat -
Thx carla & all.....
The fam & my sisters fam met at the beach house last night... made dinner.... and drank wine while we all opened up a few BIG boxes that my mom left us..., thousands of pictures & albums even stuff passed down from my grandparents... my christening gown... lots and lots of laughs while my mom sat on the mantle & was, hopefully, smiling that she brought the family together to have so many nice memories to share about her... funny how quickly I am forgetting the bad memories...
My favorite was hearing my girls' most favorite memories of her. For what she may not have been as a mother, she made up for, in bucket loads, as a grandma to my girls.
A few others drove for hours to be at the dock to join in the spreading of her ashes. Each one scooped a bit of them and said their goodbye while pouring over the side of the boat.. at the end, we all tossed flowers in....
This time of year in OR, you dont want to go out in the ocean, but it was perfect.... no rain.... slight breeze.... I think she would have been/is happy with how everything came together...
I hope everyone has a restful Sunday with you families....
& thanks for all the kind thoughts!
Lorrie
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Lorrie,
Glad it was successful. What a wonderful memory. Enjoy the pics.
Pat -
Thx pat! I think itll take months to get them all scanned so the fam can keeo passing them on.....
On the boobie front.... just feeling random zings of pain in the boobie, but the rest of my bones feel like im 80 years old! Achy... & im really tired all the time.... I kinda expected this from what ive read so im not concerned. & im almost back to normal in pushing to do normal stuff I did pre-bc.... it just takes time...
Funny... my girls think I should stop wearing my hat. That I look like Jaimie Lee Curtis right niw and should keep it this way.... im not ready yet... my hat is like my blanky now! I even just saw a small tear in it, but I love it. (I have several, but usually wear this one) & had a WONDERFUL conversation with my youngest (the spoiled, snotbag)... shes coming around... seems the better I feel, the better she is. Maybe she just couldnt deal with mama being sick. I dont care anymore as long as our fam stays tight!
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Well, called the onc nurse and she said rib and breast pain is probably due to the radiation. I sure hope next year is better. was in a major car accident tonight but thankful my family (husband and 6 year old daughter) only ended up with some bruising. car is totaled. it just happened to be a rental. the accident was the other driver fault as he pulled right out in front of us going 45 miles an hour. think i have had my share of bad luck this year!
herceptin infusion the wednesday...fun fun fun....
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Im so sorry momo... I hope you all are okay!
Yeah 2013, not a goid year.
Just got a text, my mid daughter is in ER and going in for surgery.... minor... gLl bladder, but what else can happen ?
Cancer
Mom passing
Daughter suffering
UGH
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