Starting Chemo, November 2013 Group

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  • inks
    inks Member Posts: 746
    edited November 2013


    I went back looking at older posts and it looks like plumbread had her treatment on Friday but has not checked in here after the treatment. I hope all is well with you and you are just getting a good rest after your treatment. Please let us know how it went. I 'am thinking about you.


    Thank you ellenkc, dellanok and lissy2304 for keeping us up to date with your first treatments. I really appreciate the info about how it went for you and what drugs you got.

  • ellenkc
    ellenkc Member Posts: 173
    edited November 2013


    Thanks, Inks. Yes, I will be getting the shot a day after each future infusion. I need to call the onco tomorrow to figure out logistics for that between Denver where treatment is and here in Pueblo. Sounds like some people give themselves the shots, but I am chicken on that. -- Ellen

  • Dellanok
    Dellanok Member Posts: 9
    edited November 2013


    Dexamethasome is working but still completely wiped out. Lost 4# over the weekend. I plan on calling my MO tomorrow to see what she thinks is going on. I thought they really were suppose to have the nausea/vomiting thing covered with our treatment. Hope and praying you all have a more calm 1st cycle.

  • inks
    inks Member Posts: 746
    edited November 2013


    Veronica37 - we had the same surgery on the same date and we are starting chemo on the same day too.


    Dellanok - 4 pound weight loss over a couple of days sounds scary. Hope you did not get too dehydrated with the vomiting. I have read that some ladies have needed IV fluids. How do they even decide if you are dehydrated?

  • Paulette23
    Paulette23 Member Posts: 499
    edited November 2013

    My head is spinning......I'm scheduled for Wednesday. ....I wanna just RUN!!!! I don't feel prepared in the least...my MD didnt refer me till there was  no time to even think about it. Had surgery and rad in sept...saw onco 1 1/2 weeks ago second opinion last week.....arggggggh... I wanna back out....

  • Paulette23
    Paulette23 Member Posts: 499
    edited November 2013

    Ellenkc.....my ER was 99%...tumor 2.1 cm....I guess that's why they want chemo....it grew like OVERNIGHT!

  • inks
    inks Member Posts: 746
    edited November 2013


    Paulette23 - I hope you feel reassured that 2 doctors recommended chemo. If you need more reassurance you can run your stats by cancermath.net and see how much benefit you will gain from going through with it. Keep your eyes on the prize!

  • Dellanok
    Dellanok Member Posts: 9
    edited November 2013


    Paulette, Not knowing all of your pathology, I do know grade 3 usually implies a fairly aggressive cancer. I am in the same boat. My onc said I probably had the cancer a few mos prior to my mammogram. So if there are any rogue cells in the body, chemo will hopefully take care of them. Hang in there, it is the toughest thing I have had to do, but staying in for the good fight.

  • Palameda
    Palameda Member Posts: 259
    edited November 2013


    paulette23, I agree: let's split. Where do you want to go? Me, maybe A small French Polynesian island. Let's pack our bikinis and sarongs and leave, today! Lay on the beach and drink fun cocktails. Okay, maybe just a mental voyage. Any of you other "starters for this week" want to check out?


    I was always so turned off by the whole "pink warrior" stuff. Now, I'm getting it. My poor body has wounds already, and I have to march up to the front lines on Wednesday and take a bullet.





  • audra67
    audra67 Member Posts: 521
    edited November 2013


    Paulette23, inks, dellanok, patalameda ~


    I want to run away too!! I have been waking up with horrible dreams every night about the cancer - today my liver was coated with it in my dream woke up at 0500 -as usual...took 2 Xanax and went back to sleep to dream of more cancer things...so MENTALLY drained and tired of this, and it really hasn't even started...I think the anticipation is AWFUL! AND I thought the waiting for tests to come back was hard...this is like a countdown and knowing it's coming....


    The island with the drinks sounds so so good to me! I wish...


    I am going to try to stay busy today with appts., groceries, get my toenails done one last time, getting dental trays to use as my dentist recommended I wear them with fluoride in them nightly during chemotherapy as it can destroy your teeth.


    Still haven't gotten my online ordered wig and cannot wait to see it..but want it in case I look like a martian bald...or a conehead~ either one sounds scary...


    Also worried/dreading the side effects of chemo. I did buy the book I think Melrose recommended on what to eat day of chemo and during to help with diarrhea or constipation etc....so might have my husband whip some of those up this next week.


    Praying for us all and we WILL get through this and come out better and live many many years as a new stronger, wiser, woman!

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    I have been dreading chemo but now that it is two weeks away I am having problems from my wound (the wound is what delayed my chemo) and now I am worried that I won't get to do chemo at all. I am grade 3 triple negative and the MO wanted chemo right away but there keep being complications and I am now 3 months post op. It is a strange feeling to be hoping that I still qualify for something that I am terrified to do.


    Coming here to vent and listen to other experiences helps.

  • inks
    inks Member Posts: 746
    edited November 2013


    Wrenn - hang in there, your chemo prince will come riding on a white horse pretty soon. If you look at PatAlameda your surgery was about 3 weeks after her, she is just starting chemo now, you will be barely two weeks behind her. Your wound will heal and you will be ready for chemo in no time.

  • Palameda
    Palameda Member Posts: 259
    edited November 2013


    Wrenn, I've had the same worries as you about the delayed chemo. I finally gave up and stopped worrying about the chemo/cancer and realized we were focused on saving my life in the here and now from the threat of the infection, not some distant possible future threat. You don't know if you'll get a cancer recurrence, but you do know now that you've got a wound, and that has to heal. I know full well how disheartening the delays are. We just want to get this stupid train moving and get to our end of treatment destination as soon as possible. Hang in there!

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    Thanks Patalameda, My wound had stopped draining but bled a bit yesterday. Home care nurse is coming this morning to change the dressing. The MO wanted to start chemo last week in spite of it still being open 4cms but I refused. He gave me the appointment on the 25th and expects me to go ahead whether it is closed or not. I am reluctant to do that but fear putting it off any longer will do more harm than good. It is a dilemma for sure. I almost want to just say "No chemo" and trust the gods that the cancer is gone and stays gone but I know I will worry if I don't do everything offered. Thanks for your reply and your rational take on things. :-)

  • inks
    inks Member Posts: 746
    edited November 2013


    Trying to show you what I got for $40. My wig has not arrived yet, so can not vouch for quality or comfort. I just hope it looks halfway decent with a hat on. I still can not believe that you can get a full head of hair for 40. I will get a decent wig once I am sure I can put up with the itchiness.


    image

  • Palameda
    Palameda Member Posts: 259
    edited November 2013


    Inks: yours looks a lot like mine. Here I am posing in my "cranial prosthesis" that cost a whole lot more than mine! Insurance is picking up the bill on this. I've also got a couple cheap wigs, but supposedly this one will be comfortable. We shall see!


    image

  • inks
    inks Member Posts: 746
    edited November 2013


    PatAlameda - your cranial prosthesis looks really great! So do blondes really have more fun? I have not checked with my insurance yet, but they are supposed to pay something for it. I went to the wig shop and the stuff I liked there was $700, so it would be really nice if insurance would pick up even $200.

  • Palameda
    Palameda Member Posts: 259
    edited November 2013


    Inks: I haven't actually submitted to the insurance...this one was 500, but I've got a couple $40 ones too, one of which is really cuter, I just don't know how it will feel. I REALLY liked one wig which was long and very blonde with roots. I called it Malibu Barbie, and it made me look very Hollywood. It was 1500, and my friend who had come with me thought I shouldn't spend so much money to change my appearance that drastically,


    So I've got this blondish one that matches my existing highlights. It's longer and a little more glamorous than my usual. Why shouldn't we find SOME fun out of this experience?

  • denise4603
    denise4603 Member Posts: 132
    edited November 2013


    Hi November Chemo group!


    I wish you all a very good week, free from anxiety, pain, and SE.


    This is my first time posting here. My name is Denise and my BMX was 9/13.


    Due to complications with my drains, infection, and a second surgery. my chemo has been postponed 5 times. My newest date is November 26, but I still have 2 drains and stitches, so I am not banking on that.


    Wrenn, sounds like we are in the same boat.

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    Welcome and sorry to hear about your complications Denise. It is frustrating. What is your diagnosis? Are they pushing to get chemo or is it ok to hold off with your type?

  • inks
    inks Member Posts: 746
    edited November 2013


    Welcome Denise! So sorry that you have had complications. You must be sick of drains by now.


    I was never much into primping and prepping, but it looks like I will have to start now. My 13yo sons first question after hearing about the BC was - will you really loose your hair (followed by - will I still get breakfast). So I will give the wig a try because of him. I want to try to get to the "Look good, feel good" class just to learn how to draw on the eyebrows. I have seen how some ladies do a really nice dramatic eye make up and a bold lip color and a bald noggin.


    PatAlameda -Boo for your friend who would not let you be Malibu Barbie, we need some fun in our misery. Can you get a cheap Malibu Barbie wig just to mess with her?

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited November 2013


    Hi Everyone,


    I've been benignly lurking until I got a chemo start day - which I'm thrilled to say will be the 19th. I had wound complications (sounds like a theme on this board) and I will begin on week 13 post-op. My would is 99% closed but my oncologist wanted to give it another week as she said my chemo and the steroids could break it back down and we'd then have to stop chemo and that would be that. Having struggled so long to get the wound treated and then grow scar tissue, there was a real possibility I'd miss my chemo window. I'm thrilled that hasn't happened and excited that I'll be able to get it after all. Today is my birthday and finding I can have it next week has been the best part of a great day. The wound was an open ended ordeal, at least chemo has a finite beginning and end! I got a gorgeous free human hair wig from the American Cancer Society and am ready to go. I'm not thrilled treatment will put me into menopause but my estrogen has got to go. Hope everyone is having the best day you can. We can do this.

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    Welcome and congratulations. Finally some good news. I hope it goes well. You sound determined so I'm sure it will. :-)

  • Palameda
    Palameda Member Posts: 259
    edited November 2013


    Hi Denise & Quirky! There is something incredibly strange with our November group- complication city...I've lurked on the September and October boards since I was supposed to be starting long ago, and there are hardly any of us infectious types. Now, powee, look at us all congregating here. What's good is we won't feel like odd ducks here. People think I'm daft to be excited to start chemo. They don't understand that: What is worse than having chemo? Not getting it when you need it.

  • inks
    inks Member Posts: 746
    edited November 2013


    Welcome quirkyGirl, I hope your wound will heal completely and that you can start chemo as planned. I'll be right there with you with the menopause and hot flashes.


    Ellen - I just looked up the distance between Denver and Pueblo, is it really 1hr 45min? I know getting the best care is worth the long drive but that is a long drive for one shot. I wish there was someone closer who could give you the shot (a friend or primary care office). I should not be complaining at all with my 1 hr drive, but I will have to deal with snow here by the lake Ontario.


    Yogagal will start her treatment tomorrow, wishing her minimal SE.

  • Veronica37
    Veronica37 Member Posts: 71
    edited November 2013


    Inks: That's funny what your son said. I have 5 boys, 3 of my own and 2 step boys ages 9 to 22. They all had the same reaction about the hair so that is why I am getting a wig, going to look at them tomorrow. Its nice to know someone with the same surgery date and chemo date! So many of us here are starting soon and we are all getting anxiety. When I was first diagnosed I wrote a letter for my friends and would like to share:

  • Veronica37
    Veronica37 Member Posts: 71
    edited November 2013


    In the past few weeks I have learned how precious life is! A person always thinks they know that life is precious but until they hear their doctor speak those three words, “you have cancer”, you truly don’t know.I feel truly blessed for all the people I have in my life supporting me.There is no good time to hear the news but I feel like I am in such a great place in my life, I am complete.People are always asking, how are you doing?How do you answer that question? I have thought long and hard.Imagine you are at the gym. You are on the tread mill running and when you look around the whole gym is running on the treadmill and slowly one by one they are pushing their “stop” buttons because they have reached their limit. I am starting to feel tired, the stress is unbelievable and as I look down to push my “stop” button so that I can catch my breath I realize that it is not there, I don’t have a “stop” button. My only choice is to keep running!I realize that I can do this, I have no choice. So instead of pushing a “stop” button, I hit the increase speed button and push forward.As I look up again I realize that I am in a marathon that is full of obstacles, my journey is difficult but I see a finish line ahead! There is no time to be weak, no time to feel sorry for myself. I will literally pour all of my blood sweat and tears into this obstacle.So the next time you ask how I am, believe me when I say I am good. Failure is not an option!



  • ellenkc
    ellenkc Member Posts: 173
    edited November 2013


    Inks: I will make the trip, about 2 hours each way , for the lab tests, doc visit and infusion on one day (11/19 -- sounds like a popular day!). Spent much of today getting doc to order the Neulasta shot for "home administration", and we even got insurance company approval for that. So I will pick up a filled syringe from the pharmacy in Denver but get the shot in Pueblo on 11/20. I guess some people self-administer the shot, but I am chicken on that. Just talked my primary's office into letting a nurse administer it.


    Another thought: I had made great preparations on my hair -- an initial cut and outrageous dye job, then a shorter cut, then an agreement that when the time came my hairdresser would do the shave either at her house or mine. My hair started coming out yesterday -- mainly if I run my fingers through I get a bunch of hairs, not yet big clumps. For all the preparation ahead, I find myself not ready to make that phone call to get the shaving done. We'll see how tomorrow goes.


    Ellen

  • Paulette23
    Paulette23 Member Posts: 499
    edited November 2013


    hi everyone! I am so far behind any of you in knowledge of preparation to be getting this thing on Wednesday . I didn't find out until last week the certainty that I would even receive chemo. My surgeon waited until well after my surgery to even set up an appointment for me. I feel lost and petrified and I will not be able do you get anything done. Sorry to hear of problems healing. My biggest situation was a seroma the size of a baseball under my armpit. They did not answer any trains for me so we had to manually compress it multiple times daily for about 6 weeks before it finally subsided and didn't reoccur. it was very painful! I have finally gotten to the point that my incisions have totally healed! Now I have to play catch up as I start chemo! Fun times! And yes I would love to go to the island and lay in a hammock drinks all day long!

  • Paulette23
    Paulette23 Member Posts: 499
    edited November 2013


    what onco dx scores did yall have?

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