August 2013 Surgeries
Comments
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So sorry you're at the hospital as well, Babs. Hang in there......we're all thinking of you!
KBeee - any idea when docs coming in to get your issue looked at?
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Doc came in at 0500, looked at the computer and said, "your neutrophils have not come up at all." I said look again because they have not drawn labs yet today. "Oh...those were yesterday's," is what he said. They draw labs, but now I wait for results. Neutrophils have to be over 500 (0.5) for them to think of letting me go home. Think lots of neutrophils!!!!!!!!! -
Thinking lots of neutrophilis for you knee!!! -
neutrophilis,neutrophilis,neutrophilis,neutrophilis,neutrophilis,neutrophilis,neutrophilis,neutrophilis,neutrophilis.........
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KBeee - have the docs been in at all since 5? I know when they do my draw prior to chemo, the results are ready in 40 minutes.....
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Boooooooooooo!!!!!! My neutrophils rose from 0.27 to 0.29. They need to be 0.5. Come on bone marrow. Get to work and do your job!!!!! Babs, I wish we were in the same hospitl so we could hang out! -
KBeee - did they give you a shot of Neulasta?
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me too kbee-We could hold hands! Now I'm totally panic stricken. They found a spot that's an enlarged lymph node in my chest and something on my pancreas. Doing pet scans to determine what it is.
This really sucks. I am trying to stay positive but its just so scarey -
Dear Lord, Babs.......I'm praying for you!
We all seemed to be moving forward rather well (well, besides Poodle-mum and Wrenn's very long recoveries) and to now have you 2 in the hospital is very upsetting!
Keep us informed as you get info, please.
Lisa
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Oh no, Babs!!!!! I do wish I were there to give you a hug and hold your hand. I will say some prayers for you today. Please update how things go.
Lisa, They did not give me Neulasta. They wanted to see how I would do without it. It is #1 on my discussion list at my next appt on chemo day!!! They are giving me neupogen in the hospital each day. -
So sorry to hear about you two being in hospital. Babs. I am hoping for clear scans for you. What a worry. I hope you both improve quickly. You are both so strong. I hate seeing this happen.
Sorry for the others suffering side effects. It is good for me to see that you are all hanging in there no matter how difficult it is. Not sure I will be so brave. xo -
KBeee - I wonder why they opted for Neupogen daily instead of giving you Neulasta given how low your counts were. I guess it was my understanding Neulasta is more fast acting (which might be why it is so damn painful in the days the follow) but when it comes down to it, what do I know compared to the doctors?
So are you on day 2 of Neupogen now? And does that mean you could be in the hospital another couple days?
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Apparently Neulasta is not given inpatient. It sounds like insurance companies will only cover Neulasta outpatient, so theynhave to use neupogen inpatient. Frustrating!!!!! -
How stupid is that!?!? Jeez.....insurance companies!
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Babs - it's been a while...just wondering if you're back in your room and if you've gotten any further info and gotten results from PET Scan. I'm worried about you!
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No news yet. The pet scan isn't until late this afternoon. Don't know why. Waiting and not knowing is torture cause your mind goes to some crazy places! Trying to stay positive. Good part is my daughter was here again this am and my son came and brought me lunch. of course my dtr left before he came since they don't talk at all. My dtr will be back later. I Made my husband go back to work after he brought me breakfast Hell come back for dinner. Can you tell I hate hospital food????? -
LOL Babs on the hospital food :-)
When I was in the hospital as a kid after my accident, my Dad would go down to the cafeteria to get sandwiches for me. He said "I don't get it, it's a kosher pastrami sandwich, how hard can that be to put on a plate!?!" (He always wrote pastrami - while Mum said corned beef would do or chicken was a good thing - nope, if his kid was going to be in the hospital, she was getting a pastrami sandwich!) Sick Kids in Toronto would get their kosher food from Mt Sinai Hospital across the street (underground tunnels connect all the hospitals in those blocks), so as far as my Dad was concerned the food should be the same as what he got at the cafeteria. I think he just used the excuse to go through the tunnels! :-) I loved it though because I got whatever it was that they had put on the plate, plus the pastrami sandwich from Mt Sinai. Of course Dad would always "forget" to buy two so he'd have to go back to get another one for himself.
On the serious side - hope you get that test done and I'm praying for you for clear results.
KBee, hope they get things better for you so you can head home - that insurance thing is ridiculous - inpatient/outpatient what they will pay. For heaven's sake! Keep positive and those numbers will come back different tmw.
Thinking of all you ladies and hope the week gets better for all of us. -
Babs, I hope they give you an answer right away to ease your fears. God it is endless isn't it?
Did or does anyone feel heat under the skin post mastectomy? I have been feeling hot near my armpit (not the node side) and not really near my wound and it is making me nervous. Home care said the wound doesn't look infected and skin doesn't feel warm on the surface so she doesn't know what it is from. I worry that the damn hematoma is still there festering up again but the surgeon had said last visit that it is unlikely. Since I have only 2 weeks before I finally have chemo I don't want another infection. They will do chemo with an open wound but not if there is an infection.
I am just wondering if this heat is a normal sensation from muscles or nerves regenerating 3 months post op. I posted this in another spot too but wanted to ask my pals. :-) I don't see the surgeon again until thursday to ask. Nurse just said to monitor temp. -
Just found out they're not doing any tests til tomorrow am. Really not happy about that but nothing I can do! -
Babs - that SUCKS!!!! Try to keep your spirits up......we're all here praying for you!
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Babs, I hope you can just rest the rest of the day and fantasize about what you will get for dinner. That is great that you get meals brought in. I hope you can sleep ok. It is hard to rest but I hope you will be able to do it. xo -
Wrenn, did you call the surgeon and ask? I don't know anything about what sensation you are having but I'd call my BS and not rely on the nurse (not that I don't trust nurses - sometimes they're smarter than some docs but......)
You've had a hard time and I'd hate to see anything fester while you wait to see surgeon. Perhaps he'd like to see you sooner.
KBeee - how are you holding up?
Babs - how did they find something on the pancreas? I've been wondering all day......
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they saw something on the lowest portion of a chest scan on the top of the pancreas
Wren you should call the surgeon to ask. And there is NO way I will be able to rest until I get the results of the pet scan.
I have the nurses calling the drs to try to get me the pet scan tonight. I can be VEry pushy when I want something but we'll see what they say -
Babs, I am so sorry they put your scan off. These people have no idea of the anxiety that creates. I am thinking about you, and praying for good results.
I had a rough night. The neupogen made my heart race, then made me very nauseas, then spiked my temp and gave me horrible back pain. Luckily I feel much better today, and just had labs drawn. I am really hoping my neutrophils have come up. -
kbee. So sorry you had a rough night. Lets just hope your neutrophils have come up so it will be worth all the discomfort.
I had them give me sleeping / anxiety meds last night so I was able to sleep. Now I'm waiting again for the pet scan ! -
Babs, Keep us updated on the PET scan. My numbers were just high enough, so I do get to go home. I am so happy! I sure hope your infection clears, and that your scans are all clear so that you can break out of there too. I will be thinking about you. -
just had the pet scan. Ill get the results later today!! Slept last night with the help of Benadryl and ambien. Now the wait for results is on!
Yeah kbee so glad you're going home!!! Happy dance time!!!' -
Babs, So glad to hear that you will get the results today! Any word on how long you have to stick around the hospital? Are things looking better? -
KBeee - So glad your numbers came up and you were able to get home!! (Did your DH clean the kitchen for you?)
Babs-Praying your PET Scan comes back looking OK and you get some good news. I'm so happy they gave you something to sleep last night.....without a little aid in that area you know doubt would have been up all night.
Keeping you in my prayers!
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Prayers are going out to my very strong and brave August2013 ladies who are currently having a rough go of it. I read these posts every day on my Iphone but I am not able to respond since the upgrade a month or so ago. I am only able to log in to post when on the computer. I had to pull it up to let you know many prayers are going out to my brave BC warriors who are having a rough patch. Kbeee so so glad you are able to go home. Babs, we now need the same for you. And Lisa, bless you girl, you remind me so much of myself. Meds don't seem to agree with you just like me. You are so brave to take the chemo. And Wrenn, you have shown patience and grace in a way I can only admire. I don't think I could handle the slow healing like you have done. I hold on to what you women say as I go through my own struggles with other health issues. Breast cancer is on the back burner for me this week, but it is always doing a slow burn in my body in some way. Waiting for Babs to get the information you need. The waiting seems cruel but is a norm in the medical industry it seems. Soft, gentle hugs to my brave ladies.
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