Tykerb SE's???

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I have been on tykerb and Herceptin for about 3 months. Tumor on my adrenal disappeared so I am very happy and will remain on this treatment. Question - my fatigue seems to be getting worse and the bathroom problems as well. Is there a cumulative effect, does it all plateau at some point. I am finding I have to pace my self a bit differently - like I did during my initial rounds of chemo. I can manage, things just don't get done as quickly as previously. How have others faired?


Thanks


Be well


nel

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  • Faith316
    Faith316 Member Posts: 2,431
    edited November 2013


    My side effects from Tykerb include diarrhea, fatigue, problems with my toenails, breakouts on my face and scalp, cracks on fingertips and bottoms of my feet. The diarrhea does seem like it may not be as bad as it was at first but it is still there. I have been on Tykerb for over 4 years and will be on it indefinitely. If it keeps me well, I'll take it forever! So far, NED for over 4 years.


    (My history is noted below.)


    Good luck!

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2013


    Nel, you're likely to hear more personal experiences with Tykerb from other members, and the Breastcancer.org main site includes the section Tykerb Side Effects, with more information.


    • The Mods

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