Just diagnosed, 2 young children- I need hope
Hello all -
My ultrasound last week showed 8 suspicious lumps in my left breast. The diagnosis from the ultrasound was multicentral and with lymph involvement. They biopsied 2 of the lumps as well as the lymph node. My oncological surgeon just telephoned to give me the bad news that both the lumps and the node were all malignant. Further testing to be done to determine the type of cancer and how many lymph nodes are affected.
I am devastated to say the least. I have two little children - 2 years old and 8 months and like all of us mothers these children are the light of my life. I am so so scared to leave them behind. Is there anyone out there that has had multicentric cancer and lymph node involvement that can give me some kind of hope to hold on to. I am normally strong and will fight as hard as I can but I am having a really hard time getting all the bad thoughts out of my mind. Please give me the hope and the success stories I need to hear to get me geared up to fight.
THANK YOU SOOO much in advance.
Comments
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Not me, but I have a friend who was diagnosed with multi-focal breast cancer and had multiple positive nodes about 6 years ago (she was in her late 30's at the time). Her kids were a little older than yours, but not much (3 and 5). She had a mastectomy with DIEP flap reconstruction done a year later, chemo, rads, ovarian suppression (lupron) and tamoxifen, so they pretty much threw the book at it but now, 6 years later she is doing GREAT.
The battle you are facing won't be easy, that's for sure, but you can do this - just think of your kids and that will keep you fighting. (((HUGS))) -
Annette it right,. try not to let the cat before horse...it seems like you are at the nasty start stage and do not yet have all the info.
get the best docs in your area, best hospital as well
when they give you more info , ask away till you understand the stage and diagnosis
and for now, do stay busy. best of luck....me 5 years out from all the dang stuff and doing well, hope you to be there as well -
I had two multicentric tumors and 7 cancerous nodes, and I truly understand the shock and fear you're feeling. Like Annette's friend, they pretty much threw the book at it. It wasn't easy, but with the support of great doctors, nurses, and technologists working not only to treat my cancer but also to help me get through the treatments, I made it through.
It's been a year and a half since my diagnosis and 10 months since my last radiation treatment, and I'm doing great and no sign of cancer so far.
You've got a battle ahead of you, but you can do it! My daughter is school aged and as much as it's hard to go trough so many months when you physically can't devote the energy to them that you'd like, it also gives you a constant focus for your determination to do what needs to be done.
(((hugs))) to you, JMB2013 you can get through his. Praying for you and your family. -
Also, talk with your oncologist, but I was told the number of tumors didn't actually change the prognosis, it was the size of the largest tumor that determined the stage and treatment plan. It seems strange, but as I understand it, as tumors get larger they are more likely to shed cells into the lymphatic and blood systems (which is where the chemo comes in), so even multiple small tumors are more likely to have stayed in the breast than one larger one. -
I can't speak to your specific dx but I was dx young with young kids (3 & 5). Those kids will get you through all of this. I was a crazy mess at first and the fear was borderline debilitating - all i thought about was my kids. I starting taking depression meds and it helped me be more level. It won't be easy but you will push through it. Once you are in treatment you will feel more in control. As your dx unfolds we will be here to help you.
Here for you,
Jen -
hi there
I'm so sorry you have to go through this. I was just diagnosed Nov 1st I have a 4 year old and 5 month old.
I only have one lump but my lymph nodes are involved as well. I'm having a mastectomy in a couple weeks then moving onto chemo.
If you ever want to send me a MSG to chat you can.
We can get through this together!!! -
Hi everyone -
Thank you so much, this is exactly what I need to hear. It is so true, my two little babies and the best husband one could ask for are going to be my fighting inspiration everyday. This is exactly what I needed to hear tonight, so thank you all so much for taking the time out of your Friday night to help me.
Question for you guys, did your tumors end up being around the same size as projected in ultrasound or bigger/smaller?
Mommy13 I will probably message you down the road thanks for the offer. Was just diagnosed a few hours ago, so not quite ready yet, but will do once I get my treatment plan in place. I have an appointment with surgical oncologist on Monday.
THank you all again so much -
JMB, I really don't know--my tumors didn't show on mammograms and barely on ultrasound. On the MRI, they couldn't tell for sure if it was 3 smaller tumors or if some or all of them were connected, so we didn't get a full sense of what was really going on until after the surgery. Here's hoping you get good news about the size of yours!
(also, if you haven't yet, you may want to read a bit in the Stage III forum--not that you're necessairly stage III, but lots of us there with positive nodes alive and doing well, including people checking in years after treatment) -
hi. I am new to this forum as well, but not as new to the "club" we did not sign up for! I wanted to reach out to you because we both have young children. Mine not as young as yours, they are three little girls of 3, 5 and 7. Though, very very scary I can deal with my disease, but the slightest thought of leaving my children now or when they are teenagers or when they are mothers is devastating to me and by far the scariest part! I began on this board hunting down moms and reading posts and it does feel slightly better knowing I am not alone and I hope it helps you too. From initial diagnosis I have never been involved with support groups or on-line discussion forums and I wish I had. You are on a good start. The beginning is nerve wracking, but I promise it gets easier once you begin getting answers and starting treatment. I was stage ll with positive nodes axillary and submamillary. My mammogram looked more disease tissue than healthy tissue and the bad news felt like it never ended. If it wasn't for one little recently confirmed spot on my ilium bone that was there even from my very first scan I would probably be cancer free instead of stage IV. Chemo, surgery, and then radiation for all those nasty lymph nodes does amazing things. Take care of your overall health and mental wellness and follow your cancer tx path and chances are you will live a long healthy life. The thought that helped me with dealing with fear for my children was "thankfully they are healthy and don't have to do this". My worst nightmare is them being in my shoes. So then for a time I am happy it's just me, oddly enough. Best of luck to you! It will be a hard road but the prize is so worth it!! -
This is a first for me, and in April I was in your shoes. The beginning is very scary but just as others before you, you can fight through this too. In the beginning I didn't know how I was going to make it, but with the support of family and friends they have made this journey an easier one. I still to this day stay focused on the things I've planned before my diagnosis. Though scary your little ones will give you that extra will and umph to get thorough this journey. I had a good response to chemo and radiation and my pathology now shows no malignancy. Keep the faith. Praying for you and your f
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I found it extremely helpful to have another set of ears in the room when speaking to your oncologist. If not, see if you can record the conversation. It can be difficult to register everything that the doctor is saying, and you may want to refer to the info later. I also went in with a list of questions. That way nothing was forgotten. I was stage 3 with lymph node involvement. Many people didn't know I was sick (I had chemo/rad), I tried to keep active and received a lot of support from my family and friends. -
My first tumor was on ultrasound, 2.5cm.......after surgery, the invasive component was 1 cm. The second tumor was on ultrasound 5mm but after surgery and three "readings" they finally settled on 8mm. So, it can go either way, but with an element of DCIS, sometimes the invasive part can be very small. You definitely need more information about your cancer and this is a scary place to be, but oddly, once you get the facts and treatment is in place, you calm down....well...I did anyway. I am appalled at how many young women with young children are showing up with breast cancer. This is torture. Hope you get the very best prognosis!!!((((hugs)))) -
I'm 37, I had 18 tumors in one breast, 1 sentinel node with micrometastesis, BRCA1 positive. My kids are 13 and almost 2. On MRI my largest tumor was 4+cm, but after surgery it ended up 2.1cm. I had 6 large tumors the rest were small. I'm 40 days out of double mastectomy and reconstruction, I spent less than 24 hours in the hospital, I'm doing great, even joined the gym again. I will start chemo next week, I can't wait to kill my roque cancer cells.
Get an anxiety medication from your primary care doctor so you can sleep and function for your kids. Once your treatment plan is in place and you have had your surgery wean off the medicine and find other ways to cope.
Sending hugs your way and I will be thinking about you. Please message me if you have any questions or are just feeling low. -
JMB-I was diagnosed in 2006-multicentric (lump in one quarter of breast and mircrocalcifications in another area), 6+ lymph nodes and 1 or 2 of those nodes had cancer spilling out of the nodes. At the time my daughters were 8, 6 and 4. That was almost 8 years ago!!!!!!!!!!! I would write more but I am busy with non-cancer stuff. -
hi there. I know you feel you have rec the worst news possible but try not to look at it that way. look at it as God is about to create a better you and taking you on a world wind journey. There will be some bumps along the way and some places you will not want to go( chemo treatments) but know that when you reach your final place called (healed) it will well worth the ride. You don't need inspiration from us, you have it already those precious babies, will give you all the will power in the world. I remember each time I thought about giving up, one of them would walk in my room and I knew that was my sign from God. I have no doubt aboutwhat God can do. Your new life is just beginning because God has some work for you to do. He knows your babies and husband needs you. I will pray for you and can't wait to hear your testimony. Hit me up if you want to ask question, chat or vent. I am into my reconstructive phase, and 1 1/2 year cancer free and you will get there too. Much love and stay strong. -
I totally understand your concern about your kids.. I have 2. A 4 years old and a baby that was 12weeks inside me when I was diagnosed.. I have a 7 cm IDC with nodes positive.. My little ones give me the courage to keep going... I think the worst part was getting the news and finding the right plan.. After that , you just get through it and it's much easier than it seems from the outside...
Take care.. -
Just love and big hugs your way.
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I was diagnosed 3 years ago at the age of 37 with IDC. When it was all said and done there ended up being 3 tumors (largest 2.2cm) and 2 positive nodes on my right side. I opted for a bilateral MX with immediate TE placement. I went on to do chemo and radiation. I take Tamoxifen every day. That was three years ago. Today if you saw me you would never know.
I have 5 children - the oldest was 10 at that time - and I work as an elementary principal. The next several months will be tough, but I found my children to be extraordinary motivation during treatment. I also tried to keep in perspective that treatment was going to be temporary. You will get through. You are at the hardest part right now - the waiting for a treatment plan. Once you get that in place you can throw all your energy into that. A little Ativan helps with the worrying, too
Feel free to PM me. You have found a great place to come for information and emotional support. -
I too was just diagnosed and I have 2 babies, ages 5 and 9. The team of doctors I am using are going to do neoadjuvant chemotherapy prior to double mastectomy as I'm triple positive. They are planning on using a newly approved drug called Perjeta in addition to Herceptin and another chemo drug. I have had my moments of weakness, but have decided it is best to proceed with confidence that God is guiding the doctors and He will heal me as he sees fit. I'm an administrator in the school district I work in and have always gone above and beyond the call of duty per se. I feel that I am now cherishing every moment of my life! Two weeks ago, my life was busy with worrying about the small stuff and quite honestly, I felt like I was on top of the world. Whew! How quickly life changes! We each have a story to tell and I'm using my diagnosis to share with others and bring awareness to this horrible disease! As mothers, we are strong! This is just a valley we have come to! Keep your head up and let's fight this thing! My first chemo treatment is next week, less than a month after finding my lump. Look up the song, "God will make this trial a blessing". It is my inspiration when I am weak. -
I am so sorry you find yourself here. It sucks! (no nicer way to put it!). My son was only 4 when I was diagnosed almost three years ago. All I could do was think of him and cry. I know how that fear lurks within you. I did not have the same diagnosis as you, but I was shaken to the core and could not believe this was actually happening to me. I can tell you that the year after my diagnosis was long and hard. Now that I am almost three years out from my diagnosis, life has returned to normal. I feel good and my son is doing great. He still does not know I had breast cancer, but I will tell him about it when the time is right. (He was too young to notice me looking different during reconstruction and I used cold caps and kept my hair through chemo). I wish I had words to take away your fear and all that lies ahead, but there are no words. Continue to come to this site and find hope, faith and encouragement from those of us walking beside you and those of us that have walked before you. You are not alone and your fears, thoughts and questions will always be heard here. Sending hugs.....
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JMB, you are going to do great! You are in the hardest part now -- the not knowing. It's terrible for all of us. My two were eighteen months and two years old when I was first diagnosed. Now they are eight and nine. You are going to get through it!
Try not to think about 'staging' right now -- and stay away from Dr. Google. Each bc is different, and each treatment plan is different. People in your town might be talking to you a lot about the bc experiences of friends or relatives, but that may not have anything to do with you.
The women on these boards are lifesavers -- knowledgable, caring, and supportive. We are all here for you! -
JMB, you read my mind. I too have multicentric tumors with 3/12 lymph nodes involved. I have a daughter who is 7. I was working in a very competitive environment non-stop. She used to tell me sometimes that she wishes that I did not work so that I would spend more time with her. Every time I think about that I burst into tears, I am supposed to start chemo next week and from the looks of things I will be offered radiation therapy as well. The thought of "wasting" all that precious time instead of spending it with my daughter and feeling that I am literally living on "borrowed time" feels like a knife going through my heart. I am terrified of leaving my child behind...she is so innocent and naive...how will she ever manage?
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mindovermatter, we must have started about the same time. First chemo was Dec 19th, was diagnosed on Dec 2nd. I am also triple positive. Have been through 2 chemo treatments so far. Just before the second one the dr examined me and my 4.8cm tumor was non palpable. I have a 4 year old adopted son who has been with me a year....he lights up my life. God is keeping me and enabling me to face each day. Though not near family or close friends due to needing to be where insurance will cover expenses, He is bringing new friends into my life and they are helping me as needed with my son. I came down with H1N1 and pneumonia right after my first treatment so this second one is going much better. I appreciate the encouragement here on this site.
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Hello,
I am a newly diagnosed 39 year mother of two young girls and I was wondering if you found out the answer to your question about the size on ultrasound versus after surgery. I have 3 tumors in my right breast and have surgery in 10 days. Just starting to get anxious.
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Hello ammj! I am sorry that I don't have an answer to your question, but I saw that this was your first post and wanted to say hi!
I am not sure that the person who posted is still around on the boards to answer you, the last activity on this thread was back on the 20th Jan.
I am so glad you found us, but I am so sorry that you have to be here. It is the club that no one wants to join!
In saying that, there are women from all over the world who will be there if you need answers, or if you just need some support, or even a place to vent. We have lots of time and patience and understand how awful the waiting is and how scary it can be. There will also be others who are in the same situation who will come and pass on tips and ideas that may help.
If you post again in the just Diagnosed area, in a current, active thread there will be some one who can help.
Take care!
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I haven. the same diagnosis BUT, I want to give you HOPE,I was in the process of making wedding plans to the man I had prayed for after a divorce from a momma,s boy, so I got up after he left for work, I left after him, took a shower and then I felt the lump, I was diagnoosed with, idc,stage 2, 3 nodes involved,3 months, chemo before mast, L mast, then 3 months chemo after, then we were married, and then I completed the rads. and 5 yrs on tamoxifen, I thought about getting just lumpectomy cause of the marriage, but went for total radical mast, and Praise GOD,I am a 20 yr SURVIVOR, this year, so keep HOPE and POSITIVE thinking, I did. Hugs!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! msphil
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Just checking in with you to see how you are getting along now. Wondering if you've had a glimmer of hope yet.
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