brca1 positive

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ashley27
ashley27 Member Posts: 2
edited June 2014 in Genetic Testing

Hi I know this isn't a overian cancer site, but I can't find anywhere else. I was diagnosed with stage 2 breast cancer this year, I was 26 when I found out. My tumor is 3 neg.I have a double mastectomy and I have reconstructive surgery at the same time. I found out I'm also Brca1+ I'm not sure what to do. I'm stuck on the choice of having my ovaries removed but not sure what to do. If I wait I have a higher risk of ovarien cancer but getting them out early and I'm thrown into menapose. If anyone has some advice I would really appreciate it. 

Thank you

Ashley

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  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited November 2013


    Be sure to check out the FORCE website, www.facingourrisk.org. It has lots of info for those of us that are BRCA +. I am so sorry you are facing all of this at such a young age. Sending you cyber hugs and strength as you figure things out.

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  • Beesie
    Beesie Member Posts: 12,240
    edited November 2013


    Ashley, I'm so sorry that you have to deal with all this... especially at such a young age.


    This is a breast cancer site, but there is forum on this site specifically for women who are BRCA positive. You'll find other women there who have had to deal with the same issues you are facing: http://community.breastcancer.org/forum/112


    And are you familiar with the FORCE website for women with hereditary cancer? http://www.facingourrisk.org/

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  • inks
    inks Member Posts: 746
    edited November 2013


    Ashley, so sorry that you have to deal with all this at a such young age.


    My understanding was that they don't recommend ovary removal until you are 35. That's because the risks such as bone loss would be too big. But you should check with your doctor. Does your family have a strong history of ovarian cancer? There was also a study that maybe only removing fallopian tubes and leaving the ovaries would be the answer (because most ovarian cancers start in the fallopian tubes). But they figured out that some ovarian cancers do start in the ovaries. But you could discuss with your doctor if only removing fallopian tubes would be an option and give you some protection and peace of mind.


    I'm 37 and getting my ovaries and fallopian tubes out after chemo. Nobody in my family has done the genetic testing yet.

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