August 2013 Surgeries

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  • ndgrrl
    ndgrrl Member Posts: 741
    edited November 2013


    LIL, Glad you still remembered my story and you got a laugh out of my shamoo gown!! I have decided never to go to that clinic again for a pap. LOL--- to many bad memories and I am most certain they think I am insane!!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited November 2013


    Jo6202


    thanks! Yeah I had a seroma too & was like "wow my little boobette looks better & bigger than before the lumpectomy!" But alas when I got the swelling down I really saw how badly my breast had caved. Masses were at 6 oclock so there's really nothing there now below the pointed down nipple.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited November 2013


    Lisa


    thanks I ordered the Blood Builder from Amazon. I tried liver this week but know there is no way I can cook & eat it 2-3x a week!

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    Lisa


    The fill went better than I thought-another 50cc. We are going real slow and small due to the radiation on my left side. I might stop here and just have the other side made smaller. I really don't want to push things since my left side is sooooo tight. Right now the skin is very shiny. I think I'm probably an A now -was going for a B but oh well!


    Yes, my daughter returned home 2 weeks ago-actually she will now be based here and in Milan. After my fill yesterday we spent the day-lunch and shopping. Although I was very uncomfortable, it was a great day. My daughter is just the best person to be with-she lifts me up like no other person can.


    KBDayton-


    Looks like you're doing your treatments in the same order that I did. I waited a year from my BC dx and UMX to do the reconstruction. I think it gives one more time to breath and to make a more informed decision. If I had done a BMX and immediate recon in the beginning when my world had just been turned upside down and I had to do something quickly, I might have done things differently. Do all your research, meet with lots of PS's and you'll then be able to pick wisely. Let me know if you have any questions along the way!!!


    Vintage Gal


    I would have jumped right to the Blood Builde-liver makes me gag!!! Always has!!!!!


    Ndgrrl


    See, even a bad experience has an upside-it makes all of us laugh! So thank you for sharing that!


    Good weekend to all


    Babs

  • honeybair
    honeybair Member Posts: 746
    edited November 2013


    Lili, If you can keep it down, try Fage yogurt, It is very high in protein. I blended it with organic frozen fruit to make smoothies. At one point while undergoing chemo, all I could eat was vanilla Bruster's ice cream and Ensure shakes. My MO told me to eat whatever I could, no matter what it was. For me it was cold and bland only.


    Undergoing chemo is a special kind of hell for most people.


    Thanks for sharing about Blood Booster. I am still anemic and my white blood count is still on the low side. I so appreciate all the shared info from everyone.


    I am having a rough day, am now half-way through radiation and feeling lousy. Glad there is a two day break on week-ends.

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    I wonder if gelato or sherbet would be less creamy in a smoothie?

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    honeybair


    I found radiation more tiring and annoying than chemo- maybe it's because it's 5 days per week or because you're already weaker from the chemo. I had to have a 6 session boost on top of the regular treatment. Just hang in and Aquafor like crazy!


    Babs

  • jbdayton
    jbdayton Member Posts: 700
    edited November 2013


    Thanks Babs but I already have my PS . Glad I did chemo first to did give me several months to talk with both BS and PS and prepare for surgery and reconstruction. Originally I was going to do reconstruction day of mastectomy. Then the BS and PS decided since my tumor was originally against the chest wall we should do delayed recon (DIEP) in case we did not get clear margins. Good decision DCIS was found in the tumor bed and did not get a good enough margin so rads were needed. Too much risk in flap failure with radiation.


    PS is hoping tissue is good enough for surgery in the next 4 or 5 months.


    Good luck with your fills and I assume Implants in the future?

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    Yes, implants in the future-4 mos after my last fill. Boy this is a really long journey!

  • poodle_mum
    poodle_mum Member Posts: 83
    edited November 2013

    Babs - congrats on the news :-)

    I'm doing my best not to think about time frames anymore.  I just want to get better.  I was talking to my girlfriend this afternoon and she said don't think in months.  It's at least 3 months away and we won't know until then if I'll need another surgery so I'm trying to keep my mind on now. 

    In the meantime tmw is the survivors' High Tea and I've been excited about it since I got my invite in September.  This morning I woke up with what might be another cold.  If it was anything else I'd go anyway,  but I don't know if there are others who are still in treatment and I can't give them a cold!   So I'm hoping to wake up tmw nice and "healthy" so I can go.

  • jbdayton
    jbdayton Member Posts: 700
    edited November 2013


    Poodle mum. I hope the cold disappears overnight so you can attend the function.


    Wrenn are you still on for chemo later this month? Hope your wounds are healing better now.


    To those still in treatment enjoy the rest of the weekend and have a good week.

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    So bummed and nervous. Last night my left breast was all red, hot and itchy so I put myself on antibiotics . Called my PS and he's upping the antibiotics and discussed with me the possibility that the TE might have to come out if the antibiotics don't work-Please keep your fingers crossed for me! The next 48 hours are critical.

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    Oh Babs......my heart goes out to you.  Nothing worse than having been moving forward then facing the possibility of such a huge set-back!

    I'm crossing my fingers/legs/toes and winging many prayers skyward for you!  Let us know how things are proceeding.

    Lisa

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2013


    Babs, I hope you heal quickly. That's so frustrating to have setbacks!


    Lisa, I make smoothies with ice, bananas, frozen pineapple, a little frozen spinach, oranges or mandarin oranges, apples, and some ice. No dairy...very soothing on the mouth and throat.



    I have had better weekends. Yesterday I had the chills all day, and generally felt rotten. My temp gradually rose all day, and Ibuprofen did not make me feel better as it had all other days. In the evening, my temp rose beyond the point where you "call anytime, anywhere, no ifs, ands, or buts." The on call doctor called me back in about 30 seconds, and had me go to the ER. My white counts were critically low, so they admitted me for some IV antibiotics. I will be here for a few days.


    I feel much better today and my fever is gone. There is no infection anywhere, which is great...no sinus infection, no pneumonia, no nothing. They just have to wait for my white counts to go up before they will send me home. They will give me Neupogen today. They have not given it or Neulasta at all; MO wanted to see how I would do without it. I think he may reevaluate that now! So for now I just wait for my bone marrow to kick it into high gear. Go marrow go!!!



    Enjoy the rest of your weekend! I feel really good today. I am just bored!


  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    kbee


    So sorry you ended up in the hospital but glad there's no infection. Hoping the WBC rises so you can get the hell out of there!!!!


    Babs

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    Sorry to hear about the setbacks KBeee and Babs. I hope I can be as resilient as you women are. I don't think I would be doing chemo if I hadn't met you women and saw that you soldiered on no matter the setbacks. xo

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    KBeee - so sorry you ended up in the hospital!  But better that you be there and getting cared for instead of being out and about with all the germy people opening yourself up to anything and everything that could infect you.  I know it's hard, but better safe than sorry.

    If you need the 6 treatments, will you now be getting the Neulasta after each chemo?  I would think it necessary given this little bump in the road - your body obviously is not rebounding in the WBC area the way it needs to.  That's just my opinion.

    Not a good weekend for the Aug 2013 ladies!  Everyone - take good care of yourselves and know that many thoughts and prayers are with you!

    Lisa

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2013


    Getting Neulasta in the future is discussion topic number 1 when I see MO again. He should be the one to see me in the hospital tomorrow, so we will probably chat about it then too.


    Lisa, How are you feeling???

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    I feel like I've been hit with a horrible nasty flu again; just like last time.  Timing is the same as well, which means tomorrow I will likely feel even worse but then I get on the upswing.

    My nausea is well controlled this time w/Lorazepam; which has the added benefit of allowing me to sleep.  So that takes care of the 2 major issues I had right off w/treatment one. 

    The big test will be how my mind functions once back at work.  My intentions are to switch over to Zofran in the morning and see if I feel well enough to get myself to work.  I won't push it...but I do want to work if I can even if for just a part of the day. 

    I had major GI issues immediately following chemo on Thurs.  Ran to PS for expansion and explained I just came from chemo and even though my appointment w/PS wasn't for another hour, I explained how I was feeling and if they could possibly squeeze me in so I could get home before anything kicked in too badly, I'd appreciate it.  Within a minute my nurse was out to get me, PS was in to see me a few minutes later, expansion done and I was out the door in 30 minutes.  The Big D hit Friday night and lasted until this morning.  Strangely enough even with all that, with my diet of bread, cheese, apples I only lost 1 pound between Thurs and today.  I'll be moving on to mashed potatoes this evening.  And I like your recipe for smoothies and will be trying that as well.

    All in all, I cannot complain.   I feel like crap; feeling like a major flu is never pleasant but knowing how bad things could be and now seeing what's happened w/you and Babs.....I will not complain.  My issues will pass in a couple days and are being managed very well.  I actually felt that way after my first chemo - yes, it was very unpleasant and at times upsetting (the whole "my mind feels like it has been erased") but I knew how bad things could be and I felt I never came close to how bad they could be so felt fortunate then as well.  I do find it worrisome, though, to see how we can manage a couple of chemo treatments and/or expansions with little issue and then see what has happened to you and Babs after that.....

    I know for someone like you being in the hospital must be frustrating!  How are your children handling it?  And the hubby?  And are you bored out of your mind by now?

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2013


    Lisa, I hope the Big D stays away, and I hope you start to feel better and better each day. I hope you can get back to work. It is such a good distraction from all the cancer stuff. When I am at work doing this project or that, I don't even remember I have cancer! It just is not on my mind.


    My kids are handling it great. They all came in this morning. Apparently they woke DH up this morning by pummeling him with stuffed animals. They. then all made "party" pancakes. They made pancakes and could put whatever they want on them...sprinkles, chips, anything goes. I cannot imagine what the kitchen looks like. DH is a great cook, but not a good picker upper!!!! The girls have a swim meet this afternoon...just time trials, so they are texting me their times. :)


    I am thankful to feel good. I just need some neutrophils so I can go home. Hopefully Neupogen will do the trick!

  • poodle_mum
    poodle_mum Member Posts: 83
    edited November 2013


    Sorry to hear about the setbacks some of you ladies have had the past few weeks.


    I went to the Tea today. I was the only one "recent" - one other girl went through it last year. And others are survivors of many years - the woman in charge is a 12 year survivor. I'm getting so used to seeing people in our position when I have my appts, I've sort of forgotten what life is like without it - if that makes any sense. It was nice to look around the room and see all these ladies who have walked in our shoes and where they are now.


    The other girl who just went through it last year looks quite a bit younger than me (I'm 40 and look like I'm 30). She also had to go through the massage therapy and she said it was hell for her too. I felt bad that she had to go through it but felt good that someone there knew what I was feeling. That probably sounds strange.


    BUT I'm proud to say I was able to eat one of those fancy sandwiches, a baby carrot, a slice of celery and a small slice of watermelon!!! And 2 cups of tea.


    It was nice. I couldn't understand the speakers but that was ok. It just felt nice to be there and seeing these ladies and thinking - you'd never know they went through this. Some day soon I'll be one of those ladies.


    Word has spread around my apt building and when people see me they always ask the same question - how are you doing? But you can see them walking on eggshells, you know? And people are so used to seeing me outdoors and with Dayton - then these past 2.5 months I've almost disappeared. They don't know what to say to me and I've known them for years.


    I suppose on the opposite side, I'd be the same way.


    Well, heading out with Dayton soon and another early night. I'm wiped out!


    Thinking of all you ladies and keeping you in my prayers. We're fighters, nothing can get us down, no matter how hard it might try! Big hugs to everyone

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    Poodle mum


    It must have been great seeing so many women who've gone through this and are normal now! Glad you were able to eat some food too!!!!


    Now the red, itchy and hot to the touch has moved down to my left arm=it's so itchy I'm going nuts but I'm being good and keeping myself from scratching. Tomorrow I think I'll ask one of the derms in my practice to give me something for that too. This blows!!!

  • poodle_mum
    poodle_mum Member Posts: 83
    edited November 2013


    Babs - what is causing the reaction on your arm? You probably said it earlier, but my brain is mush some days. I feel like I'm 100 years old and can't remember some things. They've got me on drugs for pain, nausea and a few other things related to this thing. I want off them so at least I can remember stuff. There are nights when I can't remember if I've taken my pills so now I have a system. I've always put them in this one little pill bottle I have so I can take them all at once. So after I've taken them, I turn the bottle upside down. So I know if the lid is down, then I've taken them and then before bed I put it back in the kitchen with the lid side up. Hey, if it works! LOL


    KBee - so glad to hear your kids are doing well. Now's the time for a nanny-cam to see what the mess is like before you walk into the house, eh? Hope they get you on the meds and you can head home. Don't overdo it though.


    Lisa - hope you get through things without the same effects as last time. Glad to hear you didn't have the same weight loss as last time, I know that is one of your fears. I know what the Lorazepam is like. I'm on that and Diazepam at the same time as well as two sleeping pills but I'm still not sleeping well. I find the Lorazepam has a very short effect for me. It makes me want to sleep almost immediately but then it wears off too fast.


    It was very nice seeing those ladies today. It gives you hope when you've spent the past 3 months in this cycle and not knowing what the ultrasound is going to show when he finally gets it done. If I need more surgery, so be it. At least I'll know what I'm dealing with whereas this time I was going in blind.


    Heading to bed soon - hope Dayton decides he's going to bed too. Last night I had the heat on in the bedroom and he decided he wasn't ready for bed so he opened the door to come out and play. OY! He was not impressed when I told him he had to go back to bed. I'll bring some of his toys in with us tonight. That's the only thing about a service dog, he knows how to open everything and makes himself busy when he's bored - then I come and find out how's been entertaining himself. :-D

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    They think I may have an infection from the fill on Friday-possibly MRSA. If the antibiotics don't work w/i the next 48 hours, the TE's might have to come out and that will mean that I'll go back to being a uni-boober again. But, this time for good! If the TE's do have to come out, the PS said that he could try TE's later on or the latissimus dorsi flap but, I'm not going to do anything else. I just want to move forward-with or without a left foob. As long as I'm cancer free I don't care about my foobs.


    Babs

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    Good Attitude, Babs.  I second you!  Anything goes wrong w/my TE's....they are out and I'll deal w/prosthesis. 

    Hoping that's not the route you end up going and I'm still winging prayers skyward on your behalf!

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    KBeee - hoping you get the Nuelasta shot quick so you can get yourself better and get back home.  I'm sending prayers skyward on your behalf as well.

    You 2 ladies take care of yourselves!!!!!!!!

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    PS just called. He and BS decided they want me in the hospital for IV antibiotics I'm on my way now.

  • KBeee
    KBeee Member Posts: 5,109
    edited November 2013


    Babs, I am so sorry. I do feel you pain. I hope those antibiotics kick in and get the job done. Please update how things are going as you are able.

  • Jo6202
    Jo6202 Member Posts: 372
    edited November 2013


    Babs, so sorry you have to deal with this infection. Always something! Prayers going up for you.

  • babs6287
    babs6287 Member Posts: 2,021
    edited November 2013


    Thank you all. Good thing is I don't feel any pain. Just itch like crazy. Drs really aren't sure whats going on. They're calling in infectious disease to help them figure it out I'm on Iv antibiotics and really do feel fine. Well see what happens. Worse case scenario is that the TE s will have to come out but I'm not jumping there yet! Hope everyone has a good day with no issues

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