For those starting chemo in June
Comments
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I slept GREAT because I took an AmbienCR. The heck with all the wandering thoughts and worries. I took that little blue pill and can't even remember falling asleep, but I slept for 8.5 uninterrupted hours---heaven. I've got everything ready to take off for the relay. That means I've only forgotten half the stuff I meant to take. But I'm heading out anyway. Have a great Friday, ladies. I'll give you a relay recount when I get back tomorrow. Some silliness is bound to occur around me--I'm a silliness magnet, you all know. Life is Good Smiles NancyLee
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Hey Girls, son's surgery went well and hope it works. He is in a lot of pain. He has to go back to Chi. on Wed. so guess I have to drive. Boy is that a mistake!!!! We have to go through downtown to get get there too. Well my grandaughter wants to go to Springfield today and get neat invitations for her birthday so guess I will take her. We will go out for lunch, she likes that and we usually go to her choice, Steak and Shake. I will probably take her to Old Navy and let ger get something. I am wanting to get away to Phoenix soooo bad but can't. I have to stick around with son so laid up and needing to go to Chi. so often. I hate that drive it is almost 4 hours to get to the Dr. and the train is full and a flight which is 45 mins. long is anywhere from $400.00 to $600.00. what a rip off. I could go to phoenix 3 times on that! Well I have to get another cup of coffee in me and get a shower. Everyone have a great wk. end. Hugs, Mary
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Good Morning Junebugs,
I just returned from my seminar in Atlanta last night. I do despise to drive in Atlanta. The traffic was heavy coming home. I don't know which is worst driving in the flow of traffic where people think it is the Indy 500 or stalled on a exit ramp going about 5 miles an hour -- I experienced both. However, most drivers were unusally polite, letting me over when I needed to change lanes and I reciprocated, and everything was hunky dory until the truck ran me off of the road --- I went into a little tirade that fortunately nobody else heard when that happened. My suitcase is still in the hall where I left it. I have ran into it 3 times this morning and still have not unpacked -- and it is with the foot where I had the broken bones not that long ago. Real smart Janie. I go back to the dentist Monday to have this temporary bridge switched to the permanent one. Thank you for reminding me to take the antibiotics beforehand Nancy. I tend to forget that sometimes. Taxol did such a number on my teeth. I guess the next project is the one that broke.
Nancy, You are probably almost done with your rockin' and rollin' by now. I hope you all raised a wad of cash for a good cause. How about bottling up some of that energy and sending it this way before I go back to work Wednesday.
The blue pill reminds me. I am on Inderol for the tremor and it does little good for that, but I told the doc that I like it because of the anti-anxiety effect. She said to go ahead and take it if I want to, but the neuro guy may want to switch to something else when I see him. Anyway, I found that it helped tremendously yesterday when I was driving in Atlanta. I like my little blue pills.
Mary, I do hope you get to Phoenix soon and get to feeling better, and your son gets better too. Happy Birthday to your grandaughter. The 22nd?
PJ - it is sweltering here too, as usual. How are you feeling after your second TX regimens? Any residuals?
Have a great day ladies. -
Just got home from the Relay--Stayed for the whole 12 hours plus the fact that I got there 4 hours ahead of time to set up the tent, etc. I walked most of the time and logged 69 laps for 17.25 miles. My feet are pretty tired and my brain is really tired. Think I'll go take a nap. Talk to you when I wake up. Life is Great Smiles NancyLee
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Gosh Nancy, 17 miles? What a day!!!! I still have bad feet from the neuropathy so I don't walk a long time at once. Your amazing!!!! Janie I too am trying to hold onto what real teeth I have left on bottom. The top are false and they were pulled back in my late 30's. I now have just front bottom and a couple side bottom and they are crumbling and really bad. I have to get a filling replaced soon and a cavity filled. I hate to let go of what I have left because they say bottom false teeth are hard to get use to. My Dr. never called about an apt. for the gallbladder sono so guess when I get in a lot of pain I will get it done. I am fine now except a little upset stomach sometimes but nothing keeping me down. I guess the gallbladder trouble can come and go for some time so I am not worried unless I get really sick. It feels good to feel good again. My little toe nail just up and popped almost off for no reason. I taped it as it is hanging on by a piece of skin and it hurts. I don't think the intestines have made it unscaved either. It seems things just are not as thay were pre treatment. Well girls, have a good night sleep. Hugs, Mary
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Good Morning Ladies,
Mary, Tx was so hard on us. My neuropathy is still in the feet but I have sort of gotten used to it. I have had the sculptured nails put on the fingers as I was tired of looking at the ones that were growing ever so slowly and funny looking. The toenails are a lost cause, even covered with polish. But the real aggravation is the hair. My hair was thin before TX, and now it is even thinner. I keep waiting for it to at least get back to where it was. I am afraid to have a perm because I think it would separate even worse revealing my bald spots and looking like a really old woman's thinning hair. I am at a loss as to what to do with it. It does a little better for a couple of days when I have it shaped, but I cannot afford to do that every few days at the price of a haircut these days. I guess if this is the worst problem I have, I should be thankful....but it is still aggravating....especially now that I am going back to work and cannot wear the caps etc.
Have a good one.
janie -
Hi--I know where you are coming from in the feet department. I just kinda choose to put mind over matter when it comes to walking because I'm not going to let the fact that part of my toenails are missing and both feet alternately either burn, ache or feel like they're not really on the bottoms of my legs at all keep me from doing something I love. That Miracle Hand Creme and the cotton gloves have just about totally healed up my hands. I've been doing that for the last 6 months and don't care if I look goofy sleeping with gloves on. I do notice that if I forget and go a few days w/o doing this, the skin around the nails starts to get funky again and I start over. It's something I can't ignore, but it's also something I've learned to live with. From 3am to 6:45am I walked with one of my infusion nurses from the hospital. She's my second favorite Chemoangel and the one who literally has held my hand during CT scans and other tests. She's a sweetheart. Anyhow, we spent lots of laps discussing the neuropathy, anemia, digestive problems, weight loss and other little gifts that I've received from TX. She said that she doesn't understand why different courses of chemo affect everyone so differently. She said that she knows some people who walk away with absolutely no problems with their feet and hands, some who have our types of problems with the pain and nail damage, and some who end up in wheelchairs because their entire legs become too painful or numb to walk. She told me about one lady who had to get a catheter because she lost feeling in her entire lower portion of her body. We spent the next few laps talking about how lucky we both are to be walking and enjoying the morning with a beautiful sunrise. She has MS and possibly the beginnings of lupus and has been in TX for her chronic illness during the entire time I've known her. Even during this she is a surgical nurse working full time. I told her that I really admire her for her courage. She's one of my heroes. Well, I'm housecleaning today because I have to leave early in the morning for Billings. I will be visiting my oncologist at 11:15 tomorrow. Hope it's not as hot tomorrow as today--It's 99 and smoky here. Lots of wildfires nearby and the smoke is carried here by the winds. Hope you are all having a wonderful Sunday afternoon. Life is Good Smiles NancyLee
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Nancy, dang but you're hard to keep up with.... Hope the trip to Billings goes well. Let us know.
I got absolutely nothing of any consequence done this weekend. And my mom rolls into town next weekend, so really I should have been cleaning. Now I've decided I'm only going to clean her bedroom, the main living area, the bathroom she'll share with Nathan (THAT's the priority) and the kitchen, which will be ripped up next week as we remodel it. So really, maybe I'll blow that room off....
This damn Femara (I don't really mean that. I think it gives me much piece of mind and will keep the nasties at bay) causes me sleeping problems. A smart person might just start taking it earlier....
Hey, hey, hey, Janie and Mary! And Renee if you're out there.
Keep it cool, girls,
Paual -
Nancy, Nancy, Nancy,
I have been off for a few weeks and go back to work Wednesday. Did I get even half of what I had planned to do done? NOT.
PJ -- Isn't it a drag for the meds to keep you awake. Amanadine (not going to look up correct sp) worked half-way for my tremor but I was awake 24/7 on it.
Hello Mary and Renee!
I am off to the dentist. Good thing. I think my temporary bridge is missing. This happened after dinner last night. I am wondering if I swallowed it!?!?
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Gosh, Janie, one time I'm pretty sure I swallowed part of a temporary filling that I had in for a root canal. It went somewhere and I didn't see it leave. Anyhow, have lots of fun at the dentist. PJ--one time I cleaned our whole house cuz my brother and SIL were coming for a visit. She was the one that was all anal about things in the bathroom so I put great emphasis on cleaning in there. After they had been here awhile, we noticed that SIL was AWOL for about an hour. We found her scrubbing the bathroom because she was "afraid to use the facilities in this condition!!"" HMMMM! Needless to say, I was actually in the (rather large) cheering section when they got a divorce a few years later. She was and still is a giant pill but I don't have to even see her because my brother could have written that song "All My Ex's Live in Texas" Well, I'm off to the Oncologist office Hi Ho Hi Ho. Have a wonderful Monday everyone. Life is Good Smiles NancyLee
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A 1/3 of the temporary bridge had broken off, so I guess I only swallowed that much of it if I did, and since I don't know where it went..... I just got back from the dentist (mental note there are not many things I like less than going to the dentist). I thought I was going to get my permanent bridge, but alas, that is not for another couple of weeks. I was told that they were not going to use anesthetics today unless it got unbearable. Well, of course I decided not to be a wuss, and I am sure I left my hand prints in the arms of the chair. I feel like I have been wrung out and hung out to dry.
Nancy what a SIL! I think I would have told her she could do the rest of the house when she got through. That reminds me of my uncle's first wife. My parents do/did not drink at all and my hometown used to be dry. The aunt was Spanish and decided to communicate to my uncle in Spanish (how rude). She did not know that my SIL, who was also there at the time, was a Spanish teacher. She later told us that she was complaining loud and long about not being able to drink while she was there. -
Hey Girls, wow everyone is so busy. I logged on and it feels like I walked into a little diner and had a seat with my dearest friends. Good luck with the onkie Nancy. Janie I have noticed shaking in my hands lately. It isn't bad unless I try to thread a needle or something like that but I have noticed it getting a little worse. I thought it was nerves for a while but no, it is Taxol residue. I got train tickets for my son and I to go to Chicago Wed, for his Dr. apt. We can take a cab in Chi. and take the train back to Springfield and I don't have to mess with the traffic. I hope we can find a nice place to eat by Union Sta. Well I gotta get some food cooking. I hear ya on the peeling nail skin. I look like I have a bad fungus and I thought it would be clearing up by now. I have been told that her 2 gals get stronger doses of chemo but don't know for sure. I think my onkie told me that but I was in a fog so he could of told me just about anything and I couldn't remember for sure. I always have plans to clean but I find better things to do, besides if I go tomorrow why waste today, the next Mrs. Kennedy can clean this place. Well better get. Hey P.J., I am hurt, you are remolding and didn't ask my hubby to help???? Later my little chem-toed buddies. Mary
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Thats Chemo-toed buddies. Have to hurry before I expire my time.
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Hey Mary,
I am sure Taxol made my tremor worse, but it started right after surgery and has steadily gotten worse. Little kids are great..."why do you wear that? why does your arm shake?" Actually, a lot of adults ask the same thing come to think about it. Except they usually say "What happened to your arm?" I am not sure about the AC, but my Taxol wss weekly in smaller doses but equalled more overall. The onc nurse told me I got the biggest dosage of Herceptin she had ever seen. She kept going on about it. I told her it was weight-related. She said a lot of people were bigger than me and received less. I don't know what that was all about.
Enjoy all the food. I am off to try to get my hair and nails to looking like something before going back to work tomorrow. -
Good morning ladies. Thought I best check in to make sure you are all behaving yourselves. I think it is time for some margarita's .. before Nancy Lee's surgery. It might help ease the neurapathy for a bit too.
same old stuff around here. Our latest venture is riding bikes downtown to state st. and eating at some of the yummy resturants there. Its fun, but I'm usually hot and sweaty walking in there, then freeze with in a few minutes. Guess I just need to take a jacket in with me.
Our Relay for Life was a week ago. Friday night was especially sad as the young 32 yr old. high school math teacher lost her battle with BC on Tuesday and her visitation was Friday night, but it was in a town about 2 hours away so many kids came to the relay.
Take care.
Renee -
Hey girls, I am off at 5 a.m. to catch the amtrack to Chi. town. I am going to go gas up tonight as I forgot and I will be too tired in the a.m. and I have to get some cash at the ATM so I think I should go tonight while I am thinking about it or I will forget it all in the morning. Everyone stay cool tomorrow. Hey Janie, my hair grew in thicker and it is just....like a bomb went off in my head. It is not a pretty sight. I am trying to let it grow out and hope the length pulls it down or out or something. Later girls, Mary
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Mary, that bomb comment makes for very funny mental pictures. Thanks. I'm chuckling because it's such an apt description!! For three days I've had a fever now and they believe it's the "bad tooth" so now I have an appointment with an oral surgeon to just have it removed on Friday afternoon. Of course we don't have oral surgeons in this area so I will be going back to Billings where I just saw the onc on Monday. I don't know how my body is going to handle 2 days in the big city. I REALLY don't like it very much. Especially since I totalled my jeep out in a traffic accident on Monday about one block away from the oncologist's office. It's a long, sad story and now I have to get someone to drive me up there on Friday as well as next week for my other surgery. SIGH!! You know how people have "one of those days"--well, I have "one of those lives" I believe!! At least there's never a dull moment around me. I called one of my cousins who lives near Billings after the accident on Monday and when he saw my jeep--He just stood there and shook his head and said, "NancyLee, NancyLee, what are we going to do with you?" After the accident and after the police had left--I told myself--"Cry yourself a river. Build yourself a bridge. And GET OVER IT" So I'm not hurt and except for jeep withdrawal symptoms, I'm over it. Hope you all had a great middle of the week day. Life is Good Smiles NancyLee
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Nancy! Glad you are ok? Are you sore and roughed up? Mary -- bomb going off -- perfect description, except my hair is also thin. The beautician had it looking decent yesterday, but could I duplicate it this morning? NOT.
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Hey Girls, What a way to go to Chicago and leave the driving to the engineer. We got there in 31/2 hours which is very good time considering we would have had to pull off 55 to go to the bathroom etc. so it was great. We took a cab and all in all it wasn't much more than gas and miles on my car. We got in and out but had a 2 1/2 hour wait at Union Sta. to get our train home and son was not up to going anywhere so we sat out by the riverside and ate and relaxed until time to go home. I wanted to go to the American Girl Doll Store and get grandaughter a set of twins for her birthday but I stayed with son so now I have to order them on line. I want to take grandaughter to the store sometime soon. Yea, I do spoil her a bit as the boys. With them it is video games. Well, she calls me 3 or 4 times a day just to see how I am feeling and see if I need her to help me and she is only 7. I am so grateful all the grandkids have helped me the last 2 years. Well better get going. You know what I call my hair? Monkey hair; because it looks like one of those little monkeys you see on the discovery channel with the long black hunk of hair on top of thier head and it just sticks up like they stuck their monkey toe in a power outlet. Mary Monkey Hair. Speaking of monkey, my monkey butt has shrunk a bit after being sick. I can tell by the jeans I wore today. I ain't excited cause it will return, it Always does.... Mary
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Mary, you are a hoot and a half--you're just rounding out my mental picture with each post. Monkey Hair!!!!!!!! I'm glad you had a good time in Chicago. I'd probably have a heart attack if I had to go to a place that big. I'd have a major panic attack for sure. Janie--my hip has started to ache and ache this afternoon for no reason so I guess maybe it's from the accident? If it persists, I'll go back to the clinic on Friday after my tooth extraction. Yay!! It's always something as Rosanne Rosadana used to say on SNL. Does anyone EVER get their hair to look as good the next day as it did when you left the beauty parlor? I know that I never can. It is HOT here. Gonna type daycare sign-in sheets onto the computer so better get busy. Nite--Life is Good Smiles NancyLee
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Girls, Girls, Girls,I ask them not to fix my hair cause it is such a let down when I awake the next day with "day after hair". Hubby always says "it's a shame your hair won't look that good tomorrow, can't you fix it like that?" (I am saying this in my winney mocking voice, just so you get the whole picture) Yea, with a freeking bullgozer and you under it!!!!! I can't "fix" hair, I can't curl hair, I have to have free hanging hair cuts because I can't "do a do." I can hang sheetrock, plaster, build shelves and cabinets, sand and refinish, change oil in my car, fix a flat, and even lay concrete, but.....I can't do hair!!!!! Oh God knows I have tried but I can't and I hate that. I burn myself with the curling iron and the curls go every wich way. I look like "Annie". I got frankly a little tired of making up excuses for the burn spots on my neck that everyone thought was hickies. I would wind my hair up in the curling iron and when it smoked it was done. I would have a curl so tight you couldn't get it out. I just gave up. Now, you couldn't curl it with a road paver! It is straight here and curly there and goes to the left and right, what a mess. All and all, I am just so happy to have it I don't care. I wear it with pride, and sometimes a ball cap when it's really wicked because the only way to lay it down is shower and gel,lots of gel. It is soo dry, it looks like wheat...and feels like it. My hip has been pretty good lately but my low back is bad. Dr. called today wanting me to get a colonoscopy, I said why? I am fine now. I said I will think about it. I know,I am missing out on all the fun but why rush it....Well I better get going, Later Girls, hope everyone has a good night. Hugs, Mary
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Hey girls,
Mary, I can do other people's hair and used to be able to do my own hair, and I could do a fair job on the wigs before plopping on my head, but this stuff?!?!? One thing I have found that does help the dryness -- the new Pantene products in Black and Gold bottles and tubes. Called something like Retain Moisture and Restoratives. All beauticians tell me to use Nioxin. I have many times, cannot tell any difference.
Well they moved my office (hope I have not already told you all this) and the new room does not have internet/phone connections yet and most of what I do is on the computer. Parts have been ordered. The shrinks are being shuffled around and I only know that I still have my elementary school and possibly a primary school. One of the others who has had the school he loves for 21 years told me that he has no idea where he will be and all the others (8 of us) are in the same boat. People are under the mistaken assumption that we have nothing to do until the kids come and we have referrals. I have bushel of organizational stuff I wanted to do to make for an easier year. I am not operational at the one school and do not know which other one I will have so I cannot do that much anywhere. So much for good intentions. Have a good weekend. janie -
Hope you get everything straightened out before school starts Janie. I came in to get on my puter to look something up that I needed to look up and by the time it got my screen pulled up which isn't long I forgot what I was doing. I still don't know. What a waste of a half a mind. Thats getting bad....Guess it will come to me eventually...or not. Grandson Bailey is staying and we rented Failure to Launch. We are calling to get Bench Warmers but they are all out so maybe one will come in later. Have a good wk. end girls, Mary
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Mary I do that all the time. I saw Failure to Launch. It was cute. However, I could have gone te rest of my life without seeing Terry Bradshaw's naked butt. Now I know where the term "butt ugly" came from.
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Hi girls. Mary, have you seen Nacho Libre with the kids? It was pretty funny.
Made 42 bucks at a garage sale this morning. Nots lots of money, but I got rid of lots of crap. The kitchen stuff starts in a few days, so I'm glad to be rid of some stuff.
I just read a study on here that 58 percent of postiives on PET scans are false. 58 percent! Makes me wonder if I went through all that a second time and ended up with no ovaries and lymphedema for nothing. I guess I just have to put that kind of thinking behind me. Too late now, either way.
Mom's coming in a few hours, so I'd better go clean Nathan's stinky bathroom Oh joy! -
Hey Girls, Hope you and your Mom have a great visit P.J. Janie, Terry's but was a little wrinkled. He is a crazy guy. Hubby is going through Springfield tomorrow morn. so I am going up and meet him and go with him to Chicago to take a load due on Mon. We are going to come home Mon. after we deliver it I guess or pick up another load then come home. I hope I don't get stuck for a few days. Ya know, I have a hard time ridding with him in the car because he does wrong crap and I will be yelling at him a lot in the truck. This is kinda scary. I am going to need some good nerve crap. I think we are going to come home for a little while then head up late afternoon and stay near where he has to deliver. I think we will go to Kohler WI. cause he usually gets a load of bathroom stuff from there to take down south on his way home but maybe not. Oh Lord, the 2 of us crammed in the cab of a truck for 36 hours.....Who will die first? He does such stupid man stuff ya know? Stuff that doesn't make sense except to a man like doing every thing the hard way. The poor man, he is so clueless in the fact he has no brain. I don't tell him because it is more fun to watch him pretend he knows what he is doing. Well, I better get to bed so I can awake and go trucking. Man this should just about end a 37 year marriage. Hugs, Mary
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PJ, 58% false positives! That is wild. If I am not mistaking, the PET is the one where they give you "sugar" beforehand. The TECH told me that cancer likes sugar and adheres to it and lights up and that is how they spot it. It is a wonder I didn't illuminate the entire Mayo Clinic!
Mary, another sit com in the making. A hilarious couple traveling in a truck across America. The possibilities are endless. I think we may be on to something here.
Everybody have a good day! -
Hi from HOT Montana--It was 104 here today for the umteenth day in a row. There is very little breeze so it feels extra warm. Yuck!! A friend drove me to Billings on Friday and I had the "bad" tooth pulled out. That was interesting. Then we went to the lingerie place and I got a Softee that has a little pocket to hold my drain after the surgery. I'm smarter this time around. I got a prescription for a pain killer for the tooth and I spent most of yesterday in a fog because it hurt so much that I actually took the drugs this time. I decided that narcotics are a really scary thing for me because I apparently talked to my sister for 45 minutes on the phone last night and I don't even remember her calling me!!!!! I saw it on the caller ID when I got up this morning so I called her and asked her if I had even answered the phone. She said that I not only answered, but I had talked to her. She did think I was a little "vague" however. God, I don't EVEN remember talking to her. YIKES! Well, I've been cleaning my bedroom and moving all the heavy things that I wanted moved in the house while I can still lift things. I gotta get all this done before Thursday. You know me--I've left everything til the last minute. Hope everyone had a Blessed Sabbath. Life is Good Smiles NancyLee
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Nancy, I hope all is well by now. You do not do things half way in Montana, do you? It is like below zero in the winter and above 100 in the summer! Teeth problems are the worst. My second temporary bridge feels like it will come loose before I get the permanent one next week.
I was in meetings all day today. My calendar is rapidly filling up. I ran into someone today who says, "You look so good. You do not look sickly anymore." Well, you know, I didn't realize I ever looked sickly. But if I did, I am glad I do not any longer. OF course, the bomb that went off on my head is another matter. I did get some root lifter and some gel that helps a little bit. I am seriously considering the hair extensions. I have just about decided that my hair is not going to get any thicker.
later ladies,
janie -
I thought about hair extensions too but it is finally growing slowly. It is so thick I look like I have bear fur. Well may I comment on the fact I don't have any idea how hubby drives without me saying, get over, slow down, stay on the road, stop messing around with things and keep your eyes on the road, What the he## you looking for now? I was scared to death at first as I have driven with him before and I know how he doesn't drive like I do so I was edgy. Well he did good with my help and I have decided to put an end to our 37 years of marriage and go with him. Now I don't know how long I will be gone it could be a wk. or 2 or 3 but it could be like 10 hours too if he gets on my nerves right off the bat. I don't know if I have to have service for my wireless laptop to get it to work but I am going to check that out and if I get it to work I will check in and if not I will be back in a wk. or 2. I can't see me being crammed in with him for 3 wks. Thats just a little cruel for both of us to handle. Oh Lord, when he gets in a tight place or lots of traffic I will hide in the bunk. I seem to get worked up over such things anymore. It must old age or something, maybe wisdom, I know his capabilities. When he comes home I look at him and think "gosh he is looking old" and then I think CRAP, I must look old too, that bites! I just don't get too close to the mirror so I look good in my head. They started Mom-in-law on Avastin because the Tarceba wasn't working. Don't know how they are spelled. (I may some day). She is doing good on it. She is doing good period. She has no caugh and gets around unless she needs me to baby her, yea I just love that. Well I better get things ready to head out Thurs. morning unless he gets on my nerves before we even get going then I will stay home. Hubby hurt his shoulder and has been moaning to the point I called and said get him in or I will kill him. He is at the Dr. now. He is in a lot of pain and I just hate him hurting (unless I am mad at him). Later girls, Mary
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