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CHAMBERS87
CHAMBERS87 Member Posts: 3
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Dear Ladies,

Completely in shock with being here but glad to have someone to speak to, not doing too well emotionally.  I had a question:  I am PR/E neg and HER2 equivalent?  What does that mean?  In the addendum report it states more tests are being done?

So overwhelmed,

Best Regards,

Lisa


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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2013

    Hello Lisa, and welcome to Breastcancer.org, although we're sorry that you've had a need to join us!

    Until more members reply with their own experiences, the main Breastcancer.org site has a section called Your Diagnosis that goes through every line of the pathology report, explaining what all the terms mean. For example, the HER2 Status link talks about what this note on your report describes.

    Best wishes,

    • The Mods

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  • GrammyR
    GrammyR Member Posts: 702
    edited September 2013

    Lisa - unless futher tests prove something more. It likely means that you are what is termed " a triple negative "

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  • CHAMBERS87
    CHAMBERS87 Member Posts: 3
    edited October 2013


    Dear Ladies,


    The final test showed that I am HER positive. 3+. Getting surgery the 21st of Oct to remove 2cm mass right breast. Pet scan show no mets; but during surgery sentinel lymph nodes will be tested. Med oncology said, I will be doing 6 rounds of chemo; round every three weeks along with Herceptin weekly for year. He also said due to my pathology report showed in one test HER borderline he may add ciplatin (sp) along with the cocktail.


    Lots to digest; one day at a time. Wondering how to deal with my change appearance wise to my nine year old daughter; she is sharp and I don't think the excuse menupause meds will cut it, lol. Sometime it cheers me up to joke. Seriously speaking, I am 50 my change of life child whom I had at 40 I am very concerned about and will take one day at a time. So afraid for her.


    Regards,

    Lisa

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  • samijo
    samijo Member Posts: 3
    edited November 2013


    I don't where I am at this point. It's been a huge movement since the first bad mammogram in late August. Since then the stereotactic biopsies (two) and an ultrasound biopsy on a third site. IDC and DCIS. ER and PR positive, HER2 negative. Left mastectomy done due to three spread out cancers, SN clear....am healing and have phantom and sharp shooting pains occasionally and am sore a lot. I can't imagine fitting for a heavy prosthesis at this time. I am awaiting oncotype DX results, further blood tests. Meanwhile, due to a strong family history of colon caner, I have the great privilege of having my 5-year colonoscopy moved up...to next Tuesday. Meanwhile, my Onco has said that I will probably have chemo with the size of the tumor, my age, ER ad PR positive, and my family history, but she wants all the other tests in before sitting down to discuss the treatment. I'm nervous...my PCP kindly gave me a prescription for anxiety to use PRN. Interestingly, I'm not nervous all the time. It seems to come on like this evening. This site seems to be just for me, too. I need to have those who have been there to assure me it's okay to be nervous while awaiting results.

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited November 2013

    samijo, It is okay to be nervous! We all are at some point for sure. Night time is usually the worst for me. Then, the day of appts and the waiting for results....right now I am waiting for onco test results also. Praying that I don't need chemo. I haven't had to take meds for anxiety, but do take OTC sleep aids now and then. I have felt much better mentally, since my surgery. It was hard from the DX to surgery date-one month and a few more tests later. I should have my onco test results back on the 14th or sooner. I think I am in a gray area with chemo. So many decisions! I do have a great medical team and am early stage, so I do have a lot to be thankful for. Good that your SN was clear! Hoping you get good results from your onco test and your colonoscopy. It sounds like your Drs are taking good care of you and quickly. Hang in there and come back often if you need support! Be good to yourself Smile 
    Lisa, I hope all goes well with you too! Kids are so smart. I have a 10 yr old Granddaughter and I think we just have to be honest with them and tell them something without scaring the bajeebies out of them! You will be surprised how much support they can give you. My 6 yr old  Grandson put my name on his prayer list at church. Gotta love 'em!:)

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  • jhawk78
    jhawk78 Member Posts: 17
    edited November 2013


    Welcome samijo...it's perfectly normal to be anxious during this time. Good news that the SN was clear - the Oncotype will help determine whether you need the chemo. Keep reading this forum as your answers are provided by a lot of wonderful, intelligent supportive women who have been through so much. Will send positive thoughts your way for the upcoming test on Tuesday.

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  • SallyS70
    SallyS70 Member Posts: 947
    edited November 2013


    samijo, I don't know where I am either.


    I was diagnosed October 28, 2013. My first surgery appointment is tomorrow, November 5th. I was doing better emotionally before I read some old negative posts on another site that talked about IDC in older people. I am 70. My nurse navigator told me to be careful about which sites I visited; I should have listened to her. My emotions swing wider and I get more afraid with each passing day.


    Hopefully, I will get a plan tomorrow. I am thinking that a plan will help my mental state.

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  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited November 2013


    Sally, I am 75 and was diagnosed just after my 75th birthday. This is my second cancer; first one was in 1982 so am a little better at dealing with it since I've gone thru it before.


    My doctors showed no concern about my age, so don't worry. We heal just as well as the younger ones.


    You'll be fine!

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  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited November 2013


    Meant to say I'm 77--

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  • SallyS70
    SallyS70 Member Posts: 947
    edited November 2013


    Thanks dogsandjogs.


    SallyS

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  • msphil
    msphil Member Posts: 1,536
    edited November 2013

    you have come to the right place for support and others will explain and answer your question, we are here for you. msphil(idc,stage2,0/3 nodes, L mast, chemo and rads and 5 yrs on tamoxifen, am now a lont term Survivor and here to "Inspire".

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