Pink October - Vent Here if You Are Sick Of the Nonsense!!

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  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited November 2013


    thanks MaryLW xx. You are right, it is disgraceful to tell someone to protect others from her baldness. I never had the courage to go out in public without a wig or a headscarfe. I didnt even like to walk around in my home without a head cover. I just didnt want to - but I know that a big part of it was I didnt want the stares and the shocked looks from others. I mostly wore a head scarf as it was late spring / summertime when I had to cover my head and I found wigs too hot. I also had never had to buy a wig, so due to my lack of experience, I had selected styles that didnt suit me and looked pretty silly. I was quite comfortable wearing a head scraf. My mother however couldnt wait for me to stop wearing it when my hair started growing back. Yes, it was the height of summer by then and it would mean I was cooler but she really pushed for me to stop wearing it. It seems looking back that for her I would at least appear "normal" with bristly very short hair, but I was the "cancer" person with the headscarf. Does this seem again like other womens need to push out the ugliness of BC and make it all seem better than it is? Or was it just a protective mother wanting me to get less stares, and feel cooler? I'm not sure.


    Also, thank you so much for your comments regarding that disgusting article. Thanks for clarifying the myth regarding the statement "no breast no cancer" xx. Hugs. If you dont mind I would like to quote you if I write an angry letter to this magazine in regard to this article. I of course would not name you or in any way refer to this forum, merely quote what you've said in relation to the statement that was made in the magazine.


    But then we are told that anger and stress arent good for us. I feel so much anger at how we are treated, how we are lied to and this whole October crap. I wasnt angry (again) until the shit of the last week or so!!

  • MaryLW
    MaryLW Member Posts: 2,172
    edited November 2013


    RubyRed, I'd be honored if you quote me.

  • ktym
    ktym Member Posts: 2,637
    edited November 2013


    I think pinktober brings it up because it brings out the stupid remarks again. The free boob job, cancer will make you a better person, type of remarks. Otherwise we can go through times where it doesn't come up and even times where it is no longer the center of your life. I can't remember what it was like to wake up and have my hands work normal and walk across the floor without neuropathy pain. Then sometimes I'll stop and think, wow, in the old days I'd have gone out and run for an hour right about now.


    So, what bothers me about that article, is really, it is beyond self centered. Now maybe the reporter spun it as look everybody look how cool this is, maybe the breast cancer patient involved meant to be inspiring? But ugh. So, say, I got lucky I wasn't in the 33% that had complications after reconstruction, or worse, lost their breast and the tissue associated with the reconstruction and now have poor options for reconstruction, and I never cared about nipple sensation for sex anyway so I'm happy with my bolted on fake boob. My experience is not everyone else's. I'm doing great, don't forget many others in my shoes are wondering how many years they'll have left with their loved ones. I evaluated my life and made changes, other people won't get that time or the changes they had to make meant going into bankruptcy, or the neuropathy and lymphedema meant they gave up their careers, they ended up with cardiac damage, ended up divorced etc. This disease means your life changes forever and I count myself fortunate in the fact that some of those changes have been good. I could have stood an article like that better, but the article as it stands comes off so terrible I'm almost speechless. (hah, obviously not completely speechless).

  • MaryLW
    MaryLW Member Posts: 2,172
    edited November 2013


    kmmd, very well put. I think the thing that bothers me the most is when somebody says something like, "My cancer was a blessing." Oh, my, in what universe is illness a blessing?

  • ktym
    ktym Member Posts: 2,637
    edited November 2013


    Totally not a blessing.

  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited November 2013


    Thanks MaryLW and kmmd. That's right Mary, in what universe is this wretched cancer a blessing? Not ours. kmmd I would like to use what you've just said about your breast reconstruction in my letter if that is ok? I am definately writing this letter now after reading what you two ladies have said. I'm thinking of writing a letter to the paper too about the special night in..but hesitate as I know that they will NEVER get it and are pinkwashed into thinking that their way is the best way to try to 'cure' BC...so wonder if it's the usual banging my head against a brick wall and alienating people. These women will NEVER get it will they? Unless it happens to them. And like pretty much everyone until it happens to them "it wont happen to me" so I'm just doing my kind fabulous best to help and heck, it's a lot of fun too. Isnt that their attitude? They just seem to close their minds off to the reality! Not sure what to do.

  • ktym
    ktym Member Posts: 2,637
    edited November 2013


    I consider that quite a complement rubyredslippers, you are free to use as much as you want. You know, all we can do is try, and for each person we do get through to, they'll get to someone else.

  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited November 2013


    It just dawned on me in what universe cancer is a blessing - the pink ribbons industry. The people in October who "take the opportunity to promote their business"...that's what universe!

  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited November 2013


    thanks kmmd. I will PM you ladies a copy of my letter...and any response I get.

  • MaryLW
    MaryLW Member Posts: 2,172
    edited November 2013


    You're right, RubyRed, cancer IS a blessing for the Pink Businesses! It's also a blessing for the pharmaceutical companies. A cure is probably the last thing they want to see.

  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited November 2013


    That's exactly right Mary. They hide the real facts and the truth and pink wash this cancer to make money. And why breast cancer? Because it's breasts. Sexy - a good marketing opportunity.

  • mpetago
    mpetago Member Posts: 92
    edited November 2013


    Just been thinking these past few days, I think if people understood the ugly truths about this disease, we would have a lot more of the kind of righteous indignation that leads to action. Women would demand better diagnosis options at younger ages, most of the money raised would go toward research into causes and for a cure, and the awareness would be that anyone can get it, self exams are neither prevention nor a good option for early diagnosis and that, as good as many of our treatment options and outcomes are these days, treatment is still hell and a lot of us are still dying from breast cancer. Like the rest of you, I am going to start letting people know the truth.

  • JennH8
    JennH8 Member Posts: 65
    edited November 2013


    I think it's all in how it's presented. Personally, I don't mind Pinktober. I feel if it makes someone go get a mammogram or remember to do their self exams, etc. then it's doing the job. I do agree that some places go overboard, but I do feel for most people they feel like they're doing a good thing. I can completely empathize with those who don't like it as well. When you're going through something as frightening as a cancer diagnosis, plus surgery, plus chemo and the side effects and changes that will be long lasting, the anger towards all the pink is understandable. My thought is this, if it bothers you, take the opportunity to help make a change. If your workplace is dressing in pink and eating cupcakes, ask them to donate whatever they're putting out to buy the pink stuff to a charity/group that will actually help towards a cure or one that helps those going through it get what they need, etc. Do something so Pinktober becomes what it should be and not a gimmick.

  • GrammyR
    GrammyR Member Posts: 702
    edited November 2013

    Yiou are so right. BC is a blesing for the drug companies who claim to be our saviors. Just give me one drug without SE. Nope can't think of ANY.

  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited November 2013


    Okay, I despise the color pink. Never liked the color pink. Now that I got diagnosed I really hate the color pink. This October just made me hate pink more. I run my own business and newspapers were contacting me to donate for the pink page, after I told him I have BC and I feel offended by that request since I give to other organizations and women support groups where I know the money actually goes to go use. My “so called friends” thought doing the pink stuff would be cute it isn’t cute. Instead drive me to chemo, take me wig shopping, maybe asks me for some grocery stuff. Since most of the people I know think BC=pink I have gotten a ton of pink shit for gifts. So my plan is after all the treatments I’m having a burning party of all things pink!

  • BlueFox
    BlueFox Member Posts: 99
    edited November 2013


    I'm sure glad we don't have Pinktober in the UK! Sounds appalling and offensive. Can't anyone stop it?


    I'm all in favour of fundraising for cancer research and helping sufferers, sponsored, walks, runs, cycle rides, that sort of thing. But fundraising for Breast Cancer Awareness? What does that actually mean?


    Breast cancer is a common cancer and everyone knows someone who has had it, so why should lots of money be spent on awareness (as opposed to research and help for sufferers)?


    If people donate believing that money will go to practical charities when it is actually spent on "awareness", then cancer research losing funding they would otherwise be getting.


    On the other hand there is some point to raising awareness of rare diseases as this may encourage research or funding for support for sufferers or their families.


    But breast cancer is doesn't need awareness it needs research!





  • GrammyR
    GrammyR Member Posts: 702
    edited November 2013


    FairyDogMo- totally agree. This whole pink month irritates the hell out of me. BC incidence are up every year world wide so we ARE aware. So send the donations only to organizations who help women w/BC directly. I got tired of being asked at the grocery store if I wanted to donate. ( No- but could I pass around my purse to them to help me out right now as I was going thru RADS ) Did not say that but tempted. Struggling to pay the bills on SS. Susan B Komen- sorry but who knows where that money goes.

  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited November 2013


    GrammyR. I have gotten more help from the American Cancer Society for a gas card and hotel then Susan B. Komen. Also, CancerCare is good for help too. I asked my husband if I can post on Facebook a gofundme site, but he doesn’t want to ask for help.

  • mema4
    mema4 Member Posts: 574
    edited January 2014

    Well, it's early in the year yet but this will be my first pink year as a BC victim. I was recently diagnosed and am trying to recuperate from the mastectomy I knew little about. I'm also an Epileptic who is colored purple.  Most of those awareness activities are in the spring so I guess I'll have a lot of Easter egg colors in the closet this year. I never understood how colors get picked to be a symbol for such diseases. Does the color matter, does the slogan? Of course all of this is nonsense. It is all for marketing, marketing brings money, and money buys marketing. It's a cycle. I found myself buying purple and now I have a pantry full of purple dust rags. I don't know why it was important for me to be purple. I just know I didn't want to be ashamed of being an epileptic and that I could stand with others and walk for a few pennies. I was so darn resentful of those that wore pink because that's who had all the attention! I felt it was unfair that purples just don't have the research funds that pinks have.  I don't plan on buying pink. It's a death color. I can do without those stupid color thoughts. Ironic that in this country, our colors are still battling it out.  I think I'll look at other things that don't have colors. Like starving children, homeless families and people that I can help without marketing myself.

  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited January 2014

    pelively

    Welcome. My favorite color is blue. I have no idea how the colors got started. I'm counting the days down to my burning all things pink party.  

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited January 2014

    You can actually get a rainbow of ribbons t shirt or sweatshirt THAT Says Some THING Like " Cure ALL Cancers! I like that. And I would live if October morphed into CANCER Awareness Month. 

  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited January 2014

    FairyDogMother - the 'pink' got started thanks to Estee Lauder decided that there was money to be made. Apparently some lady created a peach coloured ribbon as a symbol for her talking about the issues women who've been through breast cancer face..or something along those lines (?? but you can read about that on wikipedia I think it is). She was approached by Estee Lauder and asked to allow them to use her peach coloured ribbon to market products - off the back of breast cancer. She refused, as she did not want breast cancer commercialised and exploited. To get around this - as they had a whiff of all the money to be made - Estee Lauder changed the colour to pink. As far as I know (correct me someone if I am wrong) that is how the whole pink washing crap started. It all started by a huge company out to make money.

  • mema4
    mema4 Member Posts: 574
    edited January 2014

    Hi there, I was born in OK and spent most of my adult life there. My important family is still there and I still love the state. I noticed they are not big on pink!

  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited January 2014

    rubyredslippers Any way to make a buck! 

    Moonflwr912 I like the one that has cure all cancer. I post it during the "cancer months" to raise awareness of the other cancers. 

    pelively I have lived all over the US, moved back to Oklahoma from Argentina to take care of my mother. She died 6 months after we moved back. The funny thing about my mother was at the age of 33 she was the first case study in Oklahoma for her breast cancer. Ironic that I"m 36 and have the same cancer she had back in the early days.  I miss her.  I hope all goes well. I will post pictures of my "burning man of pink" when I finally get the all clear.  Heading now from chemo to rads. 

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