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velle
velle Member Posts: 24


I'm not new here, but it's my first time posting. Been lurking since I was diagnosed with DCIS on the left on 1/29/13. Had a biopsy on the right that came back benign. I had a lumpectomy on 3/7. Path report said clear margins. 7 Weeks of radiation ended on 5/31. Everything was fine. Did my 6 month mammo on 10/7 and more calcification was found on the left. After another biopsy path report cam back with DCIS. I am in complete disbelief. Clear margins and radiation. Why is this happening? Now I need to start heading down the mastectomy path. I just can't deal with this crap. Thanks for letting me vent. *sigh*

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  • Beesie
    Beesie Member Posts: 12,240
    edited October 2013


    Oh, velle, that does stink! I'm so sorry. There's not much I can say. I had two areas of DCIS and I needed a MX too - definitely not what I wanted. But I was lucky that both my areas of DCIS were discovered at the same time. I'd be venting too (well that's the polite word for it) if the second area had been discovered just after I finished treatment.


    The best I can do is send lots of ((((HUGS)))). You will get though this. But for now you have every right to vent and every reason to be ticked!

  • velle
    velle Member Posts: 24
    edited October 2013


    Thanks Beesie, How could that area be missed? Radation should have zapped it. I was so upset when rude radiologist came in the room after my mammo and said "didn't your surgeon tell you a mastectomy would have been the best option? in her condescending tone!

  • ballet12
    ballet12 Member Posts: 981
    edited October 2013


    Wow Velle, what an awful thing for her to say, and on top of that, you hadn't even had the biopsy yet. You were probably in shock that you had to have another biopsy on that side, and that's what she said! So sorry that you are headed to mx. I don't have any answer either, as to how the area either could have been missed or how it could have developed so rapidly (from June to October). The only thing I can say is that sometimes DCIS doesn't show up on imaging, and you are right, the purpose of the radiation is to zap the remaining stray cells, so there shouldn't have been such an early recurrence/new primary.


    Hugs to you!!

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2013


    That really stinks! I had two lumpectomies before my mastectomy, and in between the lumpectomies I had an MRI. The MRI determined that the DCIS was more extensive than the mammogram had indicated, so my surgeon took a much larger area the next time including portions that had originally come back with clear margins. One of those clear margins came back as involved after the 2nd lumpectomy. It seems that there can be "skips" in the ducts where the DCIS is. Maybe your new DCIS was there before but didn't show up on the mammo? I don't know why the radiation wouldn't have taken care of it. I'm so sorry that you are dealing with this.

  • gtgirl
    gtgirl Member Posts: 129
    edited October 2013


    Hang in there. We are all hear to support you.

  • velle
    velle Member Posts: 24
    edited October 2013


    I was VERY shocked when radiologist told me I still had calcifications. She walked right into that room and said “I’m sure that’s still DCIS”. I was so confused I told her I didn’t understand. That’s when she said “Didn’t your surgeon tell you a mastectomy would have been your best option?” I became so angry and told her I was given options and chose a lumpectomy and rads and my margins were clear. She says “Yeah, but your margins were CLOSE”.


    I was so infuriated I got on the phone with my surgeon. He had to calm me down and emailed a copy of the path report from surgery. It showed the first specimen he removed had close margins, he went back in and took more, then I had clear margins. He was annoyed that she spoke to me that way and had to give her a call. I like all my doctors, but I refuse to see that radiologist again. They had to schedule my biopsy so that she was NOT the one that would be doing it.


    I’m practically a zombie now…

  • momof2doxies
    momof2doxies Member Posts: 342
    edited October 2013


    Velle, I am so sorry that you have experienced such crass "professionals", I am currently sitting here recovering from a BMX because on my one year cancerversary, another cancer was found in the other breast. I am depressed, tired of looking at drains, and angry that I did all the things I was supposed to do an still developed cancer again. The nurse navigator at our breast health clinic is a very nice person, but I so badly wanted to correct her when she told me..."that cancer is now gone...it has been removed and you are free of it". No, I believe I will have this demon around for the rest of my life. It may not have my breasts any more, but I am certain that it will find somewhere else to surprise me next year.


    Yes, you should complain all the way to the top about the radiologist. He/she was way out of line to make a comment like that. One thing cancer has done is bring out the angry fighter.


    I wish you positive energy and hope you can make a decision that you are comfortable with. ((HUGS))

  • corky60
    corky60 Member Posts: 726
    edited October 2013


    Velle, I am so sorry that you are going through this again. Since you have calcifications maybe you can answer this for me--Are there different types of calcifications? I had calcifications for 25 years prior to the IDC diagnosis. It was never suggested that I might have DCIS.

  • Annette47
    Annette47 Member Posts: 957
    edited October 2013


    Corky - not Velle, but I can answer your question. Yes, there are different types of calcifications and what makes them suspicious or not is size, shape, and pattern. Most concerning are tiny ones that branch in lines (following ducts), clusters can be a problem too (what I had). Larger ones scattered evenly throughout the breast are not usually cause for concern.


    My mother too had calcifications for >20 some years before being diagnosed at age 75 (a month before I was!). They saw a shadowed area that turned out to be IDC, but while they were doing the biopsy, they decided to check a different area of calcifications that were very mildly suspicious (without the other concern they might have waited and watched with those) and that turned out to be DCIS.

  • corky60
    corky60 Member Posts: 726
    edited October 2013


    Thanks Annette. At my surgery there were two spots of concern. One was IDC and the other turned out to be atypical cells.

  • LAstar
    LAstar Member Posts: 1,574
    edited November 2013


    velle, I'm glad that your doctor is had a talk with the radiologist. She overstepped in a big way and made matters worse. Very unprofessional. I wish you the best on the next leg of this journey.

  • velle
    velle Member Posts: 24
    edited November 2013


    Thank you for the kind responses. After dealing with a stupid radiologist and having friends say the dumbest things to me, this is just what I need.

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