And I was dx'd on 9-11-13 with mets to the lining of my left lung.  Lots of tiny spots outside my left lung, causing malignant pleural effusion.  But you probably stopped counting?

Hi,

I'm a 6 year survivor of Triple Negative BC. Diagnosed originally with Stage III IBC, now have stage IV mets to spine and lymph.

I've been lurking here almost from the beginning of this whole experience. I get hope from seeing how many of us there are.

I was recently diagnosed with stage IV. I am scared, confused, angry and definetly uneducated. I keep reading that woman are in treatment with chemo or they have had surgery. I just get one shot of xgeva and one of lupron a month. I don't go to any great cancer hospital. Should I stick with my local oncologist or go to a special cancer hospital? I feel like I am just sitting around waiting to die. I cant find any statistics on stage IV. What are readers opinions on different hospitals? Do I just live every day as if I have another 40 years? I don't know what to expect.

Are you anywhere near New Brunswick NJ? There is a large oncology group there.

Hello. I am new here. I am stage IV with 2 liver mets.

I was diagnosed with LCIS in 2008 after biopsy of benign lump. Was on Tamoxifin for almost 5 years before finding thickening of breast tissue. Did not show on mammograms. Diligent radiologist found shadow on sonogram and recommended biopsy.

Even though I thought I was doing everything right, and was being carefully watched, this thing snuck up on me. I feel foolish for not following my original surgeon's recommendation for more radical treatment of the LCIS, but it was contrary to everything I read, and my oncologist's recommendation. I waited til I had a cancer dx to get the mastectomy, but the cancer had already metastisized

Currently on chemo with Taxol and Avastin (clinical trial) since April. The liver mets have shrunk from over 3cm each to 8mm and just above 1cm, so the chemo is working. Before bilateral mastectomy in Jan, bone scan showed no mets, did not have abdominal CT til March (medicaid would not fund a second scan, but clinical trial did) when liver mets were found. Recent scans show 4 calcifications on spine and pelvis, indicating mets not detected by CT, but eliminated by chemo.

Now I'm just hoping for a few years of NED til better treatments arrive.

I am a very happy, upbeat person, even through all of this. Life is still good. Joining this forum is part of my acceptance of having a terminal disease, with which I hope to live for many years or until there is a cure.

Me. I am now stage IV with one lesion on my spine. Started chemo and doing good so far. Will start with radiation in January. I'm not ready to quit

I found out this June that I had breast cancer. In August, after my mastectomy and a PET/CT, I was informed it was Stave IV, with mets to bone

Yesterday I had commented on an article that someone had posted on FB and Dr Susan Love herself responded. It gives me a boost of hope, so I wanted to share.

"

Susan Love- I think you can be encouraged...our treatments for metastatic disease are better and more targeted than ever. And the one that really works is just around the corner! The research on treating mets is robust and the answer is likely to be one of the targeted treatments or immune modulators. I will be at all the meetings this year and will keep all of you abreast but I am more encouraged than ever!"

I was diagnosed as Stage III in March 2013 and had a mastectomy and chemo. In June, I found out that I had several bone mets in spine and pelvis that were there before the surgery. I am mainly a "lurker" and have been inspired and learned a great deal, too.

Hi I was wandering if you can tell me if the xeloda treatment worked for you?

My onc just started me on this treatment..... I have metastatic breast cancer to the bone.

it seams like you have use many treatments??? what is working for you.

Go to a cancer treatment center I wish I did sooner, my local oncologist pretty much did away with me

give me 6 months to live and said call me if you need pain killer.

I was like you just waiting to die, I have stage IV breast cancer.

I went to MDAnderson clinic not only they said "you are not going anywhere in

6 months but they made me feel like I matter the have

several options, I just stated Xeloda I am not sure if it will work but please don't give up......

I haven't logged in in a while, so I didn't see your message. I thought I'd add myself to the list of stage four friends.

karebear. I agree there is LIFE after this dx. ..the Lord is with us.

Hi I am 36 and have stage iv mets to bone. I was dx in may of 2012. Doing great. I am on herceptin and zometa treatment every 3 weeks.

I'm new, so count me too. Maybe you will update your list in the future, thanks for doing this. There may be 150,000 of us in the world or in the US, not sure.