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cathy1955
cathy1955 Member Posts: 30
edited June 2014 in Just Diagnosed

Got my diagnosis yesterday....well preliminary.  They sent my biopsy out for more tests and they are hoping to have it back next Tuesday.  Dcis, but I have no idea beyond that.   This week of waiting won't be as bad as the last ten days.  I now know I will be starting a new journey in my life.  I'm scared but for minutes I feel real brave.  Must not have been brave in my sleep because I woke up crying though I don't remember dreaming about anything....

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  • blissful
    blissful Member Posts: 100
    edited October 2013


    so sorry Cathy. I am just moving to this forum also..the ladies on here are great..I understand being scared I find myself with so many emotions..everyone on here has been so positive and encouraging .i wish the best for you on your journey..hugs to you. Bobbie

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  • mdg
    mdg Member Posts: 3,571
    edited October 2013


    Sorry you are joining us. The beginning is really the hardest part. Take it one step at a time. You have found a great place to come for support. Hugs!

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited October 2013

    So very very sorry to hear this news.  I know you are anxious, overwhelmed and feel rather lost.  Keep breathing..... keep taking those deep calming breaths in.  Just remember that you are not alone.  Many have come before you down this road and are here to give you support and help.  No one is left behind here to go this alone.  As your situation reveals itself, you will learn how important it is to be patient.  Patience is hard to come by when one wants to know yesterday and to get treatment plan in place.  You will know what you need to know all in due time.  Just hold on and hold on tight.  We are here for you.  Sending you many (((HUGS))) and positive healing and calming prayers, thoughts and energy.  You will get through this..... 

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  • cathy1955
    cathy1955 Member Posts: 30
    edited October 2013

    Ahh blissful my hugs go out to you too.   Thank you Melrose and mdg.  :-[ 

    Today was kind of tough becauseI told my immediate family.   I wanted to wait but they would have been so angry.  I just hope I sleep better tonight.  How are you holding up blissful?  Thank you all so much for being there.  I'm sure glad I found this place.

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  • Beesie
    Beesie Member Posts: 12,240
    edited October 2013


    Cathy, I'm sorry that you've been diagnosed but hopefully the final diagnosis will remain DCIS. DCIS is a pre-invasive cancer which means there is no risk of mets - and that's really significant. The main objective of DCIS treatment is to avoid the development of an invasive cancer down the road. Because of that, and because of the nature of DCIS, some of the treatment issues are different (chemo is never needed for pure DCIS, for example) and some of the things that factor into treatment decisions are different (as an example, HER2 status doesn't change the treatment plan).


    There is a DCIS forum on this discussion board. Why don't you come down and visit us there:

    DCIS (Ductal Carcinoma In Situ)

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  • blissful
    blissful Member Posts: 100
    edited October 2013


    cathy...I'm hanging in there..good and bad days..been dx but still waiting on a call from bs as they want another biopsy ..looks like I might have two bc..the waiting is so hard. I stress as it is and this is getting the best of me. I just wish they would at least call me. I understand they have lots of patients but my referral was put in on the 22 nd and they haven't even reviewed it yet as of yesterday . Hoping for that call today for consultation ..wishing you the best on your final results...hugs.....Bobbie

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  • cathy1955
    cathy1955 Member Posts: 30
    edited October 2013

    Oh bobby hang in there.  The waiting is terrible.  I'm hoping I can get to the planning stage soon but I know, like you after the second path report I may have to have a surgical biopsy.  I'd like to say I'm strong and handling this well but it would be a lie.  Today I went to my pain management session that I go to for my lupus.  As soon as the facilitator said something to me I lost it.  I mean true meltdown.   I left the room and they called for one ,of their techs to catch me before I left the va facility.   They brought me back to a social workers office who wanted to know what was going on with me.  I told her and she was nice enough to say that if it was her she'd probably lose it too.   Long story short they think I should take an antidepressant for a while.  I've never taken anything like that and instantly said no.   They told me to go home and think about it.   They just called me and made an appointment for Monday and they gave me some websites to read about how some of them are now being used to help anxiety.  I may end up trying it to see ifit helps because that meltdown was embarrassing.  Please be sure to post when you find out something.

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  • blissful
    blissful Member Posts: 100
    edited October 2013


    well I got my call. I have a consultation on the 7 th. nurse nav called me yesterday to welcome me to the Moore cancer center . I totally understand the meltdown. I was given anxiety meds to help me cope. Hopefully you will try them and they will help you get thru this part of the journey. Keep me updated on how your doing and feel free to pm if you want. I cry everyday and try to be strong but it's hard. I really can't cry in front of family as they don't understand what I'm feeling ( the men ) . My kids have been great but they stress so I try not to tell them to much...wishing you the best..Bobbie

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  • cathy1955
    cathy1955 Member Posts: 30
    edited October 2013

    Oh no!   I'm so sorry.   What did they give you?  I just got klonopin aka clonazepam.  I try not to cry in front of my husband and sons as well.  My husband is a great guy but he's like...you'll just do what you need to do and everything will be alright and why are you crying....you haven't heard the final path report yet so it may be really early cancer??????   Geez, I guess you have to be there to have the thoughts and feelings we have.....please pm me too anytime.   

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  • blissful
    blissful Member Posts: 100
    edited October 2013


    my boyfriend is worse lol..I have Xanax right now...klonopin is also good I took that when my mom passed away it really did help. When I mentioned to my boyfriend of 16 yrs that it could be cancer he said at least it's only breast cancer..I was floored by the comment and he doesn't understand why I'm not sleeping and stressed. He says I do to much research on breast cancer and it annoys him...I hope the meds help you ..I will keep you in my thoughts and prayers. ((( hugs))) bobbie

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  • blissful
    blissful Member Posts: 100
    edited November 2013


    hi Cathy was wondering how you are doing today. Have the meds helped?

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  • cathy1955
    cathy1955 Member Posts: 30
    edited November 2013


    HI,


    Makes me kind of sleepy but I'd say yes. I have felt calm all day. How about you?

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  • blissful
    blissful Member Posts: 100
    edited November 2013


    I have 1mg tablets and I cut them in half during the day and take a full tablet at bed...I feel better today. Was just checking out my dr online..very impressed I must say. Guess it was worth the wait. I see her next week and I guess I will know for sure if another biopsy. He'll I already know I have cancer so maybe she will just remove all of it. They want to remove the whole mass for a biopsy ? Sounds like a lumpectomy to me .

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  • cathy1955
    cathy1955 Member Posts: 30
    edited November 2013

    I'm glad you felt better today.   So did I.  My appointment is on Tuesday to get the final path report and start making a plan.  I'm like you....if you know I have the cancer, why another biopsy (and that does sound like a lumpectomy).  I just want a double mastectomy and any follow up treatment that I need.  I am not into surgeries and pain.  We must be right in the same place regarding this crap.  I hope you have a good weekend.  Please keep me posted.  Cathy

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