Starting Chemo July 2013
Comments
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Donna, I'm really having a difficult time deciding if I should do radiation, or not. I'd rather not do rads than get lymphedema. How did you decide? You had a dissection as well. The onc told me that back in the day, women got lymphedema more because they would routinely take out 30-40 nodes. These days they're more conservative and they don't see it as much, but it's still a possibility. I've always said I'd rather live a shorter comfortable life than a longer uncomfortable one. I'm really struggling with this decision! Any words of wisdom to help me figure it out?? Thanks -
Congrats to all who are finishing up chemo.. Today I finished rads. For those taking that step it was much easier than chemo. The last two weeks I got quite tired and red and sore and don't get me wrong, I'm glad to be done. I don't see how my skin could take another week. They gave me a certificate and everyone signed it which I thought was really sweet. I did have a little bit of a cry and I'm not sure why because I didn't cry at the end of chemo. Maybe because the techs made it all so pleasant overall and I've been seeing them every day. It's nice to have a crew that cares about you to start off every morning. I'm sure it's also relief that I'm officially done with treatment except for medication. Wow how weird is that. -
My cold was mostly a stuffy, bloody nose and a cough here and there. My throat was sore, but my cough was non-productive, so it really didn't affect my chemo tx. I was the last one in the infusion suite with two nurses, so when I was finished and cheered," My last chemo, baby!" The next day my attitude was a thousand times better. I'm not sure how I made it through the last three tx's, but I did, which means the rest of you strong women will get through it, as well. We all have a strength in us that wasn't tested before and it's coming through for us now. We're all going to make it! -
Yay, TwoHobbies!!!! How many radiation tx's did you have? Is your skin tough? I'm trying to decide if I should do it or not. -
Congrats KTLE and shout it out! I had 28 rads. I can't tell if my skin is tough but it is bright red. The worst of the pain is in my armpit. Let the healing begin. -
Congrats to all that have finished chemo! I have my last chemo tomorrow - yippee! I'm so glad that portion will be done. I've had an allergic reaction at my last two T treatments so I won't be surprised if I have another again tomorrow. The last one was so much better just because I knew what was happening and what to expect. I'm taking treats and cards for the chemo nurses - they've been great. My twin sister is going with me tomorrow - she's been just an angel through this! I hope it doesn't take too long to get rads going - sure would like to be completely done by Christmas! Kick some cancer butt gals! -
Hi everyone! Congrats to everyone finishing up their treatments. I have my last chemo tomorrow. I'm excited/happy and sad/scared. As much I do not like chemo, I'm so scared to stop, weird I know. :-) I'll be in treatment limbo for 4 wks, well 5 weeks actually because of the Thanksgiving holiday. Having my dmx on Dec. 3rd. I'll start rads sometime in January. Was so hoping to have everything done this year so I wouldn't have to meet more insurance deductibles. -
hi all, I am down with 4 more chemos to go. I have been crying daily now, its strange but the "wait" seems so far and unbearbale now. Some of my nails are going to fall too, I think. I can see them detaching and the white bubbles as some of you have mentioned
The numbness and pain are terrible, I can hardly type and even touching things are painful.
day 4 is the worst day, bones aching, head pounding... I know about remain positive, smile and blar blar... but crying comforts me so I will do whatever I can or want, to just make living a bit more bearable. I will cry...so be it.
Congrats and big hugs to those whom have finished chemo! I wonder how I will feel when I have my last chemo. Chemo is such a terrible thing although it saves our life.
Thanks Angela, you take good care. healing starts now! hugs! I couldn't take much care of my one year old, my hubby or my mum are doing it. I am just too weak for those crawling and standing up. I tried as much as I could though. -
Congrats to all that finsished chemo n all treatments. 2bluestar I kno what you mean. I feel the same way when chemo is almost done. Look like i will have surgery around Dec also but dont kno the date yet. Cheeri, so sorry that you alway in so much pain. Yes if cry make you feel better go ahead and cry. You're almost there.
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Congratulations to all who have finished chemo and thanks for sharing your stories. I have definitely pulled strengh from you awesome ladies. I have 3 more Taxol treatments left...can't wait for this to be over.
Hugs and kisses to all. -
Hi Lana and Ktl.so happy for you both. Getting my port out next week,fun times. My husband 's pushing me toward going back to work(i'm a nurse )want to be so far from nursing,medical,anything that reminds me of the torture i've been through.I don't want to be reminded of chemo and the horrors of it.I've felt my hair fall out in clumps,been in so much pain,vomiting,being through hell,fear,I just don't want to be a nurse anymore.That's my education,and i' good at it.I'm clinically strong and compassionate.Now what? My world has been rocked to the core,can i help people or do i need help for myself first? -
Well I did it! I'm all done with chemo. I can't believe it. It seems like yesterday I was freaking out that 1) I have cancer and 2) HAD to do chemo and do it first. Still struggling with the 1.
I cried about my ending chemo all night, then again this morning, then again and the doctor's office....nuts I know. These aren't tear of joy but fear, anyhow, after talking to my MO and him helping put things in to perspective; I dried my tears headed down stairs for the chemo, and didn't cry at all. In fact my two boys showed up and my oldest who turns the most mundane things into a funny story had us laughing loudly for most of the day. The place is usually packed but today, there were hardly any patients and the staff wasn't full. So we didn't disturb anyone. By the time my chemo was done, only my nurse was left and one other patient. I just walked out without any fanfare or bell ringing..nothing but PEACE! Yay!
I read about the troubles you gals are going through and my heart goes out to you. The nails, that must be so painful, I can't imagine. The bone pain, muscle etc...I hope all of you ladies are rid of your se's very quickly.
I feel VERY blessed and so grateful that I didn't have a very difficult time with chemo. I had a few mild se's over the entire 8 treatments. I'm curious to see if my eyebrows fall completely out now. I read that they do, my MO says no, so we'll see. I do have very tiny hair stubble's growing. How weird that some hairs are falling out, while others are coming in.
Are y'all going to continue to post here now that you are done, or for those almost there, when you're done? I'm thinking about also joining the tns board, made one post, got scared and haven't been back yet, but thinking I might give it another try. First, I think I'm going to take these next 5 weeks and not think about cancer, just live a normal life. Once I get past the next 5 days or so, I'll start feeling better and this time, it'll be for good and that's exciting! I can't wait to clean my house...MY way. LOL....ahh the simple things in life. :-)
Just want to thank each of you for being here. I don't post much, but read every post, everyday and your stories and experiences have really, really helped through this first stage of my cancer journey. Thank you for taking the time to share. -
2bluestars, I'm so happy for you congratulations. -
Hugs to Cherri and anyone else who needs them. Cherri its perfectly OK to cry and sometimes you just need to. I hope in between the bad days you have some better days. If not, do not be afraid to ask for antidepressants. A good many are taking them. I lost part of a second nail today. At least it doesn't hurt as much as I feared. Try to be extra gentle with them, but alas I failed at keeping them attached. This one broke putting on my jeans.
Angela, I suspect you just need healing time as far as going back to nursing. But there are always nursing jobs in the business world too. Maybe you can try to find something outside the clinical world.
2Bluestars, someone on another thread mentioned they put a private facebook group together after chemo was done. That would be a good way for us firecrackers to remain friends but "move on" from the reminders and other threads that can put you in a bad mood. I'm not exactly familiar with setting that up, but I'd be happy to figure it out if others are interested. I would love to keep in touch with the group but I'm not sure if I do want to be on this board for a long time. You can "accidentally" run into stuff that ruins your day!
And I second the "thanks" to everyone for hanging with me through this ordeal. BC is a very lonely disease because even if you have family and friends, its you alone on that table, alone in the chemo pain, etc. Its been great to have buddies who understand and lift each other up as we need it.
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TwoHobbies, that is my rub with the tns board, the ladies seem so caring, funny, knowledgeable and ready to help, BUT and it's a big one for me, I keep "accidentally running into stuff that ruins my day", I'm just not ready. I think instead I'll just check the new starting chemo threads to offer help where I can, till I'm stronger mentally.
I have a question about the port. When I met with the bs this week, I asked if he would be taking the port out when he does the dmx. He said no, that it still has some use and recommends leaving it in till I'm through recon, if I go that route. His reasoning: he'll use the port for my anesthesia during the dmx. The MO will being doing bloods draws often, 1st one in 10 days, then I think he said every 3 weeks, then 6 weeks, 3 months, etc. But doesn't all those equal one stick each? To me, accessing the port for chemo was the way to go, but for simple blood draws I'm not sure, a "regular" needle for blood draw doesn't hurt. Accessing the port requires numbing and that equals two sticks. Well, I guess I got my answer, but would like to hear from anyone that decided to wait a bit.
Cheri, reading your post breaks my heart. I hope and pray you feel better soon. I'm really sorry you are hurting so badly. Sending you gentle cyber hugs and lots of prayers and good wishes. Hang in there! Cry away, I do too, almost daily.
Angela, why not split the difference? Give yourself a couple of months to heal and recuperate and go back to work the first of the year...start the new you and new year off with a bang? That would give you time to heal and explore other passions for employment. I don't blame you a bit for not wanting to return to nursing right now...but maybe in the future when you are stronger. Your experience as a patient would be an asset to your patients.
Candi...thank you! -
Hi All,thanks twohobbies and bluestars,really good advice.Congrats to all finishing chemo,yah!Cherri,I wish I could jump through my computer and hug you.I can't imagine how you manage at all. I'm sure your probably feeling guilt on top of everything else you're dealing with.Thanks God for good husbands,and your Mom probably feels good that she can do something to help. My Mom said she would do anything(even trade places with me). I know with my daughter i'd want to do the same. Hang tight,it will be over and this will prove you can do ANYTHING.How proud your daughter will be of you when she is old enough to understand. My thoughts are with you,know that,Hugs Angela xo -
Thanks for the info Donna. I still want to tough it out and take the last Taxols for four weeks. But my family and dr think I should make the switch to taxotere. Not really sure what to do. The Taxol has not made me nauseous, no diarrhea or side effects other than neurpothy and fatigue. Sounds like Taxotere has more side effects. Will have to decide by wednesday. I just want to get these last four finished and to decide the lesser but most effective of two evils. Have a great sunday all..... -
Angela- please let me know how port removal goes. My surgeon said he could do it in the office. I cringe to think of how that must feel as accessing my port has always been painful. I am glad I had it, but hated the access. I thought the worst part of the chemo. Keep me posted. Thanks. -
On port removal, when I had cancer the first time I really wanted my port out right after chemo. The standard was to leave it in a year, but my baby's head was always hitting it and it was painful so I emailed my doctor and he said sure. When I asked the nurses they said, oh no, you HAVE to wait a year. I said flatly, let me talk to the doctor. We proceeded with the surgery to remove.
I think they want to leave it in in case you have a recurrence. I was like, moving on baby. OK so I did have cancer again but it was 6 years later and I'm glad that I had that sucker out.
Then when I had to have a new one put in, they said it HAD to be opposite the cancer. I was like, but I am getting a BMX, why does that even matter? I don't want matching port scars on both sides of my chest. Can you use the same site? He said he would try and that's where it is. And the scar is a big nasty keloid. I can't wait to get this thing cut out and revise this scar.
Bottom line it is your body. -
today I went for a dexa scan in preparation for my anastrazole. The scan was in the center where I had my biopsies and cancer notification. Wow I tried not to let that creep me out but it did. Sitting with my baldish head among three gowned women waiting on their mammograms. I started to think will they all be negative or will one be getting bad news. And then my mind started down that bad path I know I shouldn't go-wish I had been the one sitting here where this is just part of the routine and going back to work blissfully ignorant of the cancer thing. Sigh. -
Marsha- Was the port removal painful? My surgeon said he does it in the office. I know in the scheme of things we have been through alot, and this should be the least of my worries. But was just wondering.......Thanks -
Hi Hannariggs,I'm having my port out on the 4th,it always should be removed under interventional radiology.Mine is in my upper arm,which is alittle easier than a chest port,but,their are major vessels involved so not only will it be removed with cat scan "eyes"but with a crash cart and nurses with code experience.I wouldn't worry about the pain(just a few numbing shots)but you want it done as safe as possible,in a hospital or same day surgery suite with crash cart under radiology.Hugs Angela -
Hi All!!!
Posting from the chemo suite - my LAST infusion! WooHoo
. Commencement day baby!
Soriya, good luck with yours too!!!
To jump in on the port conversation, I'll have mine out in December with my prophylactic mx - under anesthesia thank God!
Spoke to my mo about scans - said not right now. The rads in a CT aren't worth it at this point. I'm set to start an aromatase inhibitor in 3 weeks - vs Tamixafen (T isn't the best choice for post- menopausal and I'm having my ovaries out anyway). Won't need to see him for months.
Going tomorrow to be fitted for a lymph edema sleeve and glove. Anyone with knowledge???
Hugs to everyone and my best for a great week
~Lynn -
Who Hoooo Rambo and Soriya!!!!!! Thank God you did it!!!Hugs Angela XO -
Thanks Ladies! Yes my last chemo is today Yay to Rambo and me. Nervous with first chemo and nervous with my last chemo
. Cant have my port remove yet since i will be on Herceptin till July 2014. -
Rambo and Soriya CONGRATS. It is awesome to get those visits out of the way. Well done ladies.
LE sleeve/gauntlet
I had one fitted for flights to UK They look real sexy (not). Pretty straight forward really. I haven't worn or looked at mine since. It got a bit tight/sore at elbow after 20hrs on from rubbing Couldn't wait to get if off after first journey but didn't really notice it on return home - after my H reminded me from the other side of the world about 5 minutes after I had checked my bags in for return flight home with them PACKED. OOPPs. Had to get airline to retrieve bag from cargo area to put it on ,... They were very understanding about it
Well done again ladies and anyone else finishing up it is a great feeling xx -
Sitting here starting my 6th/last chemo treatment. So glad. Will make my MRI appointment after since my breast surgeon is just 2 floors up. Can't wait to get to the next step. Am really glad I did the chemo first.
Two weeks ago during my last exam, my onc said if I had come in just for a breast exam, it would be normal. Good to hear. And of course today's exam was the same.
I was on 6 treatments of ACT with T being Taxotere. During my 4th treatment, my fingers and toes started tingling. That hadn't happened before during previous treatments...at least not during. When I went to the week after visit I asked my onc what I could do. She said Texas Oncology had just put out a supplement list that doesn't interfere with chemo treatments. One for neuropathy was AlamaxCR, along with some vitamins. She said the studies showed this to be more effective. It helps protect the outside layer of the nerves. I really think that has helped. I will see today. I still have a little tingling but not all the time and more annoying than painful. It's expensive though...almost $60 for a month's supply. Since it's a supplement, it's not covered by insurance.
I am more of a lurker, but read the posts when I can. Can't stay on here too long because some of the recurrances some have had. It makes think negative thoughts about my own future sometimes.
And congrats to all those who have finished and to those that are close. Before all this, I thought I'd never make it. I didn't think I was strong enough. I saw someone's signature today (can't remember who's) saying you don't know how strong you are until being strong is your only choice. How true is that??
Well, I am now done with my treatment and am home and had a nap. This has become an all day post.
Texas Oncology gives balloons and a t-shirt after your last treatment. All the nurses come in clapping to present it. Those nearby congragulated me. The man sitting acriss from me has had 8 treatments and still had until late December for colon cancer. Thankful for my 6.
The Alamax must have worked since I didn't get tingly during the treatment. The benadryl affects are strong and then my sister came up from Waco to surprise me. She caught me right in the middle of getting the benadryl and my drowsey self. Didn't recognize her at first because 'she was at work and a 100+ miles away'. :-) Nice surprise and got to have lunch with my husband mother and sister today. Wish she lived here. Not considering the chemo and the affects over the next 10 days, I had a good day.
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Rambo and Soriya, so happy for my firecracker friends! You made it! In a couple of weeks, chemo will be a thing of the past for you. Rambo, after I'm done with radiation in December I'll be starting on an AI also. My MO said either Arimidex or Femara. I'll be interested to see how it goes for you. Angela, good luck with your port removal. Sounds like you'll be in good hands!
Had my 2nd of 30 rads tx today. It is so different from chemo, it's kind of hard to get used to. Laying on a table all alone in a big room with a machine traveling around you. Going every day is weird too, but at least it's over quickly. Friday is my last day of work for awhile. I'm taking off until school starts again in January. I feel like I'm slowly regaining my energy but I know that it won't be long until this tx saps my strength. It has been a challenging 4 weeks being back in the classroom. The first two weeks were totally exhausting and then I got a really bad cold and sore throat. I love being back with the kids but the stress is just too much right now. Can't wait for 2014! -
hannariggs, I had my port removed under anesthesia. It did not take long and I don't remember it hurting but it was 6 years ago. -
Angela- Thanks for the information. I will have to call and make an appointment with my surgeon once my onco okeys it. surgeon is across the street from a same day surgery center, so maybe he will do it there. Not sure. I just remember him saying it was no big deal and he can do it in his office. I guess I will find out. I would like to be on the road to recovery by Jan 1. Plan on a mini vacation to vegas to ring in the new year with the fireworks. Can't wait.
Decided to stay on the taxol for my remaining 4 weeks. 3 weeks after today, but who's counting. I figured the "recipe" called for 12 weekly taxols, and even though I did get 1 "free" week. Thought I would continue. Hope and pray the neuropothy doesnt continue. Just didnt want to go on steroids again and start all over with the taxotere when they both carry the same side effects. I guess I will see what happens,
Going for treatment today as a chia pet. I hope the patients have a sense of humor, but at our cancer center not so sure. Doesnt matter, if I don't laugh and have a good time there I dont think I could make it. Laughter is the best medicine. Praying for all of us still receiving treatment for minimal side effects and for the sisters finished.
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