Any value in having a "BIRADS 5" sticky somewhere?

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lekker
lekker Member Posts: 594
Any value in having a "BIRADS 5" sticky somewhere?

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  • lekker
    lekker Member Posts: 594
    edited October 2013


    hi Mods,


    Many women come to these boards when they are concerned about a breast lump (that's why we have the not diagnosed forum), but lately there have been several women posting with BIRADS 5 lesions and I feel like they need their own thread. A couple of times people have responded with "most biopsies are negative" comments but that's not true in this case. I have referred several people to the great document here on understanding your path report and I'd love to see it have a prominent and easy to find link for these folks. I'm not looking to scare anyone, and some are benign, but 5's probably need a different level of information than the 4 and unders. Would you agree?

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2013


    Thank you for your suggestion, lekker! The team will consider your idea, and look at what we can do to best meet members' needs.


    • The Mods

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2013


    lekker, I notice the same thing... too often people respond to someone with a BIRADs 5 and say that 80% of biopsies are benign. If I catch those situations, I'll usually post and explain that for BIRADs 5, unfortunately approx. 95% are malignant, but there is still a 5% chance that the biopsy will be benign. Still, be prepared for a diagnosis.


    There is another problem on the other side of this issue, which is with BIRADs 3. So many women come here with a BIRADs 3 rating on their imaging, scared out of their wits and wondering why they should wait 6 months to see what happens. And so often the response from other posters is that they should have the biopsy now, against the recommendation of their radiologist and/or doctor. What is needed instead is an explanation of what a BIRADs 3 means in terms of risk, and why this can be a reasonable approach in low risk situations.


    Perhaps what is needed is a sticky thread that explains the BIRADs ratings. Then we could refer people to this thread or cut and paste the appropriate section into something we are writing. The section on BIRADs on BC.org doesn't meet the criteria for me because it just provides the technical explanation of each rating, with no examples of what sorts of conditions are put into each rating, what the risk levels are associated with each rating, what the follow-up procedure is with each rating, why each rating is appropriate in the right situation, and the things to consider when you get a particular rating or are concerned about your rating (when to push for a biopsy or additional screening or a second opinion, etc..)


    Just as we don't want the women on this board to mislead women who have a BIRADs 5 on their imaging, we also shouldn't be inciting fear and driving women with BIRADs 3s to have unnecessary biopsies (which can end up leading to the need for more biopsies down the road).

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2013


    Thanks, All. We are adding a link about BI-RADS from our site to this page on the topic, Important Links for Newbies Who Are Not Diagnosed but Worried.

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