Is There A September 2011 Chemo Group?

Pinkshirt ,thinking of you today. Hope you are doing good with treatments. In my thoughts and prayers...

Mags,hope you get good news today. In my thoughts and prayers,too.

Hope all you ladies are doing great!

great news Maggie!!! And thank you.

I think often of the ladies on this board who got me through a time in my life when no one else could help or understand. I just wanted to check back in and say hello. I am happy to see so many familiar names still on here and my heart goes out to those dealing with continuing stuff! It's been over 2 years and even though it seems normal has returned like many others I never returned to who I was before BC! I had a double mastectomy nipple reconstruction that ended up on one breast being a nightmare with several trips a week for months to a wound care specialist. I have neuropathy in my hands and feet that never went away. Other than that I have grown hair back out and gone back to teaching.

I can't thank all of you enough for all the love support and warmth.

Prayers to Pinkshirt, CJRT, Mags, Belle and anyone I missed. I tried to read back and catch up several pages. I will try and pop in more often.

I am hoping that silly wig picture doesn't pop up I forgot how to get pictures on and off of here. Hugs to all!! Raebob (Rhonda)

Hey all, never thought I'd hear from Pink or Rae again, but it's good to hear from any of the old ladies on the site. About the same time I was released from my job I started developing headaches behind one eye. I thought I had a small stroke from cleaning house and moving big furniture. Then I thought maybe I had sinus disease. I do have sinus problems lifelong. No headaches. Headaches were off and on for 5 weeks and I reported it to oncologist. Brain MRI tonight. Results probably available tomorrow from oncologist. I was hoping for sinus disease. When I looked at the MRI tech, I didn't get good vibe, like all clear. It looked to me like a nice young woman who was praying, please don't ask me. Like I said earlier to Pink and CJRT, don't be afraid of coming back and saying what is going on, this is probably the best place to let it out.

Kimberly

Ugh, Kim, so sorry to hear about your headaches, and I obviously know about the anxiety of the waiting game and where your mind takes you. Hopefully you get good news soon. Please update us and know that we are here for you. Obviously my mets diagnosis has shown me not to minimize anything; however, the neuropsych testing that I do as part of my work has shown me that there are many less frightening explanations for your symptoms. One common one is what is called a cluster headache. Praying for you.

Also thinking of pink shirt.

Thanks for being our rock, Belle.

Sending good thoughts your way, Kimberly and Pink. CJRT... I'm so glad your doing well and no new spots! That is fantastic. You are all an inspiration. Rae... I like the wig.

Ugh! Belle, I will be praying for your daughter-in-law and son's family. I hate the wait and see club, but hopefully she just visits the club briefly before getting some good news. Praying for you too, as I can only imagine how hard this is on you, as well. Hugs...

A dear friend of mine (whom I have known since I was 15) was diagnosed last week. It's bringing back the memories of two years ago, but I at least can help her navigate this stage. I'll be traveling for a second opinion in two weeks to make sure we are hitting this with all that we've got!

Kim- Sending out prayers for you that you have gotten some good news and that they have been able to provide some pain relief for you.

ccjj- thank you for your kind words! hope that you are doing well!

Belle... Sending pos thoughts your way for b9 results for your daughter in law. Sounds like looking good so far. Good luck with your parents also. It's tough. I'm praying for you.

I'm doing well for the most part. My twins are now 8, 3rd grade. We had a fun Halloween. I'm still dealing with some reconstruction issues. I had a revision done in spring. They are much better, but the symmetry is now off. I'm scheduled for another revision 11/13. However, I had a second opinion on what needs to be done to correct it, and the 2nd ps said what is planned for the 13th won't correct it. So, I have a pre op appt Monday. I'll have to determine which way to go on this and which surgeon to trust. These plastic surgeons are driving me crazy. Right now one sits higher than the other. I don't expect perfection but its fairly noticeable in a swimsuit, or workout clothing.

Other than that, I recently graduated to seeing my onc every 6 months instead of 3 which is exciting. Not sure how well Im tolerating the tamoxifen. It's fine for the most part but I'm still sort of sluggish and just dont feel as sharp as I used to prior to bc and having a hard time losing the chemo weight. I had lost about 15 lbs 2 years prior to bc dx. It's all back now. My onc swears its not the tamoxifen. I wonder if I lost the weight back then because I had undiagnosed bc and my body was working hard to try and fight it thereby burning more calories. Who knows. I just keep trying to exercise and get used to it all.

CJRT- good luck with your 2nd opinion appt. I got 2nd opinions for all areas of my treatment, and found them all to be very helpful. Even if they recommended the same course, I would learn a little more and feel more confident about the direction I was headed. The only area I didn't initially get a 2nd opinion, was the plastic surgeon, and now really wishing I had put more thought into all that up front versus all these revisions.

Kimberly - fingers crossed for good news.

great news belle! now you can breathe a great big sigh of relief for both! xo

belle...hooray on you dil...that is superfantastic.

ccjj...I understand recon issues all too well....next up for me is Dec 4th...think she is working on my behind where leftie came from...gotta restuff the cheek. Also have a suspicious lump in leftie that needs to be taken out and sent to path. 3 docs are saying that it is just a cyst...perhaps necrosis from fat grafting...but I want it checked yesterday...sigh....hope that you get it figured out....go with your gut when it comes to doc choice...that is my philosophy....gotta like who is in charge of keeping you alive while under !

cjrt...you sound so upbeat all the time....thank you for you fabulous attitude...it really is inspiring.

Maggie

Good news,DIL biopsy Benign,she is having the fibroadenoma removed the 25th! So happy for her:))

Cjrt, that is so frustrating,I'd be ranting and raving!!! I am sorry for their lack of professionalism and compassion!! (((Hugs)))

On another note,went to a Halloween party at my daughter and SIL a couple wks ago. Saw a pic of me,my head was turned.OMG my hair is so THIN in back,I knew it was thin in one area but it looks like the area has gotten way bigger !!!! CRAP CRAP CRAP!!!!!!!

thanks, belle! you too!

very grateful for all of you ladies. you've truly helped me get through the most difficult times of my life, and i will think of all of you on thanksgiving! hopefully you have many things this year to be thankful for.

kim- thinking of you and praying things are going well.

Happy New Year to all of the Sept gals,may it be a happy,healthy,prosperous one for all of us!!!

Belle- congrats on "graduating"!! Sorry to hear about the other medical issues but hoping the cardiologist appointment brings good news and a nonconcerning diagnosis or plan. Congrats on the impending new arrivals! So glad to hear such happy news

I think of you ladies often. I recently had two friends diagnosed who started the same chemo regimen i was on back in 2011. It reminded me of how you ladies helped me through those very tough, dark days. I am "fighting the fight," as they say. I've fully recovered from my hip replacement, and my current treatments are very manageable. Recent scans were optimistic, and I am loving my life. At this point, I am back to working out, and no one would guess my diagnosis. However, cancer and fear have a way of permeating even the good minutes, and it is so unfair of what this disease takes from so many. It's very hard living from scan to scan, but I am making the best of things, getting involved with a foundation for cancer patients and using my psych education and work to apply to people facing medical challenges.  I'm praying that treatment continues to allow me to function well and be around for my kiddos and hubby.  Wishing you all health and happiness.

Cjrt,my pulmonoligist says he believes my lung and heart problems will clear up when I quit smoking. Hopefully,cardiologist agrees! I'm planning on getting an e-cigarette (vapor) to help me quit,one with no nicotine !

I originally went to pulmonoligist because a cat scan showed scarring/fibrosis from radiation. Thankfully,2nd more detailed cat scan showed no fibrosis,no emphysema,etc! Just air trapping suggesting small airways disease,lung functioning is good/normal!

Sorry to hear about your friends,cancer sucks!!

Glad to hear,you are doing well! As you have probably noticed on FB,I and my family have gotten involved with Relay for Life Lol 

I am glad to have reached the 6 month check ups,esp having to go to the other Drs. Hopefully,I will only have to go to them a couple of times.

Every once in a while,the fear of the cancer returning freaks me out! But thank god,it doesn't last long. No use worrying about it until if and when it happens! 

I hope we hear from some of the others,esp Pinkshirt,I think of her often!