DIEP 2013

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  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited October 2013


    I'm so glad to hear about healing! I am thrilled for you! I had a large area of necrosis at the very top of one boob soon after DIEP. It was somewhat painful. PS said he couldn't get rid of all of it in stage II but he did break it up and it is much better. We'll see what happens when my swelling goes down. I didn't have that area US'd beforehand.


    10,000 posts coming up! That is a lot of support, shared experiences and heartaches, laughter, tears. I am so grateful to be a part of this group! Love you ladies, oldies and newbies!

  • lahela
    lahela Member Posts: 515
    edited October 2013


    I'll echo Jeannie's comment. This thread has made this whole process not just do-able but has given me so much strength. More than I ever knew I had. Love you all so much!

  • butterfleyez
    butterfleyez Member Posts: 116
    edited October 2013


    hey ladies.. I remember reading on here benefits of massaging your belly after surgery. Was that right after? Should I be massaging my stomach? Are there any things you did to help w mobility of your arms? Or is time it?


    Today my help went back home and I really felt emotional about it. You need sooo much intimate help these first few weeks that you really get closer than u already are. My aunt comes today to take over but I really long for the days of doing for myself

  • lahela
    lahela Member Posts: 515
    edited October 2013


    Butterfleyez, don't rush to do things for yourself. I know it's hard to have to rely so much on other people, but if you have someone with you that you can trust to see you through those intimate things, it will make it easier emotionally.


    You could probably start gentle exercises, but you'll have to get your PS's okay first - they all have their own protocols and it depends very much on your own situation and physical readiness. Rest really is your best friend, along with a bit of walking to get things moving.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited October 2013


    Hi flapper gals.....jumping on to say "Hello" to the "oldies, but goodies" and you "Newbies"...... This is such a phenomenal thread! So much help, love and support here.....not to mention dear friends....just waiting to be found!


    So very happy to hear about all the healing that has taken place among us lately......a milestone! It has been a long, long year for some of us, for sure!


    To you newbies.....stay tuned...you can find lots of help and information from the veterans on here.....one thing is for sure.....they know how it feels! :)


    Butter....it is too soon to start massaging your incisions.....I didn't start until the PS told me to start putting Mederma on the scars.......and I use several different products (alternating) on my scars. Done at the right time, I believe that massage in conjunction with a scar-reducing product can really help the overall appearance of the scar in the end......but you are flat-out too early in the healing process right now. Patience, grasshopper! :)


    I have my pre-op for stage 2b on November 4th.......surgery tentatively scheduled for December 4th.....we shall see.....will be a fun Christmas..... "Walking in Compression Wonderland"...... :\


    Here's to all of you sisters going for surgery this week.....May Wilbur keep you safe in his arms.......


    TOWANDA!!!!!!


    XO. Jackie

  • butterfleyez
    butterfleyez Member Posts: 116
    edited October 2013


    thanks ladies.. I will work on my patience and be grateful for the small milestones. Patience is a virtue I've yet to master. In my mind I can put my clothes on by myself but in reality.. Maybe next week

  • christina0001
    christina0001 Member Posts: 1,491
    edited October 2013


    butterflyeyez, cancer free, what happy news!!!


    mommalou - sorry your date got bumped back. Argh that is frustrating!


    Just got back from a weekend trip with DH, stepson and dtr-in-law, and their two kiddos...I feel so relaxed and wonderfully reconnected with family. It was W-A-Y overdue.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited October 2013


    Lahela! RING-DING, holy cow, YOU are our 10,000th poster!

  • SheriCola
    SheriCola Member Posts: 21
    edited October 2013


    I'm sure this question has been asked a million times before so please if anyone knows previous posts feel free to link them. I have no one to talk to about this because most people I know have had implants.


    I gained 40 lbs (125 to 165lbs) during chemo, and I had a single mx with no recon yet. I'm top heavy: so weight goes to arms/tummy, and I have "no hips". My goal was to do bilateral DIEP in 2013, but insurance/job issues got in the way. I've been carrying this weight around for a year now, and I'm tired of being fat!! But I'm scared that if I lose weight, then I would lose surgical options. I don't want the TRAM or LAT because from my understanding those remove a portion of muscle tissue. I'm skeptical about that because I'm still not fully recovered from the lack in ROM and nerve pain after the sentinel node biopsy. I have a couple of friends who chose the LAT flap and pain has been an issue. My PS is a man of few words, so the only thing he says is "do what I feel is healthy", and over the summer he did give me the go ahead to schedule a TRAM/DIEP. I feel like losing 20lbs will be ok since I had a muffin top when I weighed 145 lbs.


    I guess it all comes down to: Do I really want to carry excess weight until I'm financially ready to have surgery, who knows how long that can take??

  • MartyJ
    MartyJ Member Posts: 1,859
    edited October 2013


    SheriCola - lose the weight, your doc will find the tissue for the flap. Better now than after the surgery as your new flaps are made of fatty tissue and they will lose weight too. Even at 125, unless you have a totally tight and toned tummy, they will probably find what they need.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited October 2013


    Movie,


    I have my exchange surgery on Dec 3. We can commiserate together when the time comes.


    Welcome new people. You have found the best place on the planet for info on DIEP.


    Lahela, you win the prize!!!! What is it? Let's think of a prize girls!!


    Christina, glad you had a nice weekend.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2013

    Thinking of this week's ladies:

    10/29/13 Mrtw43 (stage 2 nipple recon)

    10/31/13 Mabel62 Diep

    11/2/13 Christina001 (stage 2)......Christina....on Saturday??? Or do we need a correction?

    Hugs!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2013

    Shericola - I put on 40 during chemo, too. I lost 30 before DIEP. I had plenty to give (I've had two kids by c-section, too, so carried a belly. I am unilateral recon so I had plenty to give. Actually, will have to have the noob reduced in stage II. 

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Hey Flappers.....trying desperately to play catch up....it's a lost cause I think! 10,000+ posts is pretty darn amazing!!!!!!!!!


    bailey.....thanks for posting the weekly list....typos are a definitely possibility...so Christina.....let me know if I got your date wrong!


    some new dates have just been sent to the mods...If I missed anyone...just let me know.


    Shericola.....we all have different priorities, but my take is health over boob size, hands down!!!! There is a big difference between an extra few pounds to donate to a flap breast, and many extra pounds of "over weight" baggage. Do you feel healthy at a heavier weight??? Are you within a healthy BMI??? Those are the questions to ask yourself. Like many other women, I worried I didn't have enough tummy to get a proportionately sized breast.....not a problem at all. The biggest gift you can give yourself, in getting ready for this surgery, and in recovering from chemo, is to be as healthy as you can.


    sweetpickle.....I haven't seen a post from you in waaaayyy tooooooo loooong....!!!!!!!!


    Take care ladies.......love to you all......HAVE GOOD DAYS!!!!!

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    I'm also beginning to wonder what happened to Sweetpickle. She's way too quiet.

  • GwennyMD
    GwennyMD Member Posts: 147
    edited October 2013

    Hey ladies......................I have second appt tomorrow with PS.  I hope he will take out the drains.  They are starting to hurt.   My breasts are still swollen but I am happy that they are still warm.  I think that I may end up with a larger noobs than the C cup I originally requested.  ...............Butterfleyez - I am glad that you are doing fine.  Congrats on your good news.  I too wish that I were home alone but I also appreciate the support of my sisters.  Nurse sister went home on Friday and another sister arrived on Saturday.  Its weired to have people asking me if I need anything or what do I want to eat.   I am still waiting for my final path report. .....................I can't wait til I can take a shower standing up without saran wrap .

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Gwenny..hope the drains are ready to come out...it is wonderful when that happens. Don't judge the "size" of your new breasts yet.....you have a whole lot of swelling yet to resolve. Hoping for good path report news for you.

  • christina0001
    christina0001 Member Posts: 1,491
    edited October 2013


    bailey and nihahi, my stage II is on November 1st. I very well might have sent the date to you incorrectly. Can't wait until Friday!


    Gwenny, I hope you get your drains out tomorrow...and I hope your path report comes back totally boring.

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    christina....likely the error was mine....I'll message the mods asap. Hope no one minds that I asked them to "bold" the tattoo mention for sharon1942....thought it would be nice to celebrate the FINAL STEP IN THE JOURNEY!!!!!!!

  • hrf
    hrf Member Posts: 3,225
    edited October 2013


    mammalou and bailey, I also have a large hard area but today I also found small hard round lump. That is a bigger concern. I see PS tomorrow. I hope she can tell me it's only fat necrosis.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2013

    Hrf....saying prayers for fat necrosis! Hugs!

  • mammalou
    mammalou Member Posts: 823
    edited October 2013


    Hrf... Mine is also small and round. I will be anxious to hear what your PS says. I go in on Thursday to see mine.

  • kimdy
    kimdy Member Posts: 66
    edited October 2013


    I have a large hard place on the inner area - sternum side of my left breast and a smaller area same place on my right breast. Have been worried a little about it....but am thinking after readying these posts maybe it is fat necrosis. Seems like it would leave quite a dent if my PS removed it all in stage 2? Not due to see him again until March for stage 2. Should I be concerned about having anyone look at it? No discoloration.


    Thanks ladies....always so grateful you all are there!

  • SheriCola
    SheriCola Member Posts: 21
    edited October 2013


    Thanks for all the input. Everyone's experience is so different. I'm not actively staying fat. I'm just wondering what other people's experience have been.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited October 2013


    I have been thinking about Sweetpickle too. The last we heard she was feeling a lot better. I hope that is still the case.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited October 2013


    Hoping it's fat necrosis for everyone who needs it to be! I'm still swollen so it's hard to evaluate my area post-Stage II.

  • lahela
    lahela Member Posts: 515
    edited October 2013


    I don't know that I deserve a prize for posting, but can I have one for the slowest healing abscess?! The drainage incision closed on Friday, no more oozing, then started to get painful again yesterday. Saw the PS who said it was healing and was fine. Then in the middle of the night I woke up and it was really sore so I lifted it to look and *gloop*! More ooze! Back to dressings and will call the PS nurses today to see if they want to do more.



    So frustrating! I thought I had turned another corner just in time for a big weekend away (DH and I are flying to Madrid on Friday to see my dad and stepmum who are flying in from Australia and we're having a three day weekend celebrating my birthday before they travel to other places) but now I'm back on the worry-wagon.


    And my PS is not at all happy about the salpingo-oopherectomy just yet. She's going to speak to the gyno-onc about postponing it a couple of months, until my tummy is softer.



    hrf and mammalou - my fingers and toes are all crossed for your lumps!



    Sweetpickle, it would be great to hear from you.



    Jeannie - how are you holding up?



    Love and hugs to all.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited October 2013


    Lahela, no! How frustrating! I hope you can wing your way to Spain anyway and have a great birthday celebration-family time. Sorry about the ooph. postponent. I'm sure you just want to be DONE!


    I am fine. The pain is really easing except for when I stand up after being folded up in a sitting position for awhile. Then my abdomen feels really tight and needs to stretch, which it does. I just hate the compression. I don't like to wear tight clothes, let alone this. But I know it's for my own good. One boob is still noticeably bigger than the other but I tend to think I'll just live with that. I'm curious to see what the "ab sculpting" ends up looking like...


    Okay, it's approaching midnight here on the west coast. I think you and I are the only ones up! 'Night. Good morning!

  • mrtw43
    mrtw43 Member Posts: 198
    edited October 2013


    Good morning all, today is the day, I am going in for stage 2 I am nervous and excited all at the same time.

  • lahela
    lahela Member Posts: 515
    edited October 2013


    Jeannie - hope you got a good night's sleep! And I hope the pain and discomfort eases soon.


    mrtw - best of luck today - we'll be in your pocket!

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