August 2013 Chemo Sisters

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  • babs6287
    babs6287 Member Posts: 2,021
    edited October 2013


    I worked throughout chemo. I had my treatments Friday afternoons and was back at work Monday mornings. For me, work was my escape from thinking and worrying and dwelling on my diagnosis.


    Babs

  • mankatostate
    mankatostate Member Posts: 231
    edited October 2013


    I am not working. I had stayed home with my kids for a number of years and just returned back to work very part time before we moved last March. Within 2 months of our move I had found my lump and got my diagnosis. Now I don't know how soon it would be before someone would even think of hiring me. But that is OK I do some volunteer work st my sons school and can have the summers off with my family.

  • Togetherness
    Togetherness Member Posts: 202
    edited October 2013


    I wish I could say I have been working. I have not been working due to many setbacks and side effects from the chemo treatments.. I just got out of the hospital on Saturday after my last chemo treatment did a number on me. Come to find out it was cellulitis in my right breast. Going in this am to the ps to have fluid drained off righ breast. Looks like the TE has been saved so will be able to move forward with implant exchange on nov 5th. I may have to give myself another week to gain some strength. I want to be strong going into the surgery to try to avoid any issues. Currently on antibiotics which is causing diahrea. It is a fiscious cycle with me. As far as weight goes I have lost 20 lbs. I look like a walking Skelton. Definitely do not like what I see when I look in the mirror. What a journey this has been for me. Just want off this roller coaster and to live cancer free.

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    Togetherness; I'm so sorry to hear all the difficult times you've had. I hope everything goes better for you, very soon. I particularly hope you can gain more weight and that your upcoming surgery goes well.


    Mankatostate: As FMG said, welcome to the end of chemo club! I'm so glad to be there. As LHL said, every day gets better. What a relief it is to know my digestive system is getting back to its old self, my mouth is no longer so sensitive, that nasty chemo taste is gone! Little micro hairs are beginning to sprout. I even did well walking all over NYC this weekend, feeling normal.


    Gashgold, I am so glad to see you again. As far as working through chemo, I was working a small part time job prior to chemo and was gearing up to go back to school to start a new career, but stopped to focus on getting through and being present for my family. After rads, I'll probably go back to school in January and may begin part time work.


    My next step is getting this port out this Friday at 8 am (whoosh have to be at hospital at 6:30!). I hope it goes smoothly, same drill as when they put it in Versed and local anesthetic. I'm sure I will be out for it like last time. Then rads next Monday. Ugh that worries me some...

  • TanyaF
    TanyaF Member Posts: 54
    edited October 2013


    I just got back from my MO and it looks like tomorrow may be my last treatment. It seems like those of you on TC 4 infusions and were done? I was scheduled for 6. When I told him that I have had some neuropathy issues he was concerned because like some of you had said-it can have lingering effects. He then talked about the difference between 4 infusions and 5 or 6 and how the studies don't really show the difference if more is better. So confusing. I just want to make sure I do what I can so the decision was to do the infusion tomorrow, but with an 80% dose of taxotere. If there is any increase in neuropathy then that will be my final infusion.

  • candi07
    candi07 Member Posts: 188
    edited October 2013


    I worked through A/C, treatment day was Friday so I took Friday and Monday off. Just started Taxol on Firday so will probably take the same days off. Not sure if I will need Mondays as I seemed to have minimal SE's the worst part so far is bone pain, pelvic pain is the worst. Seems like most of you are done with your treatments moving on to Rads, congratulations to you all.

  • mankatostate
    mankatostate Member Posts: 231
    edited October 2013


    Tanya- I hope tomorrow is the last for you...though I don't wish you any more neuropathy issues! I won't feel fished until this yucky SE week is over. I seem to have an allergic reaction to some thing in the chemo...this time it was worse and I visited the ER this afternoon. After a couple of breathing treatments I am doing better. Still not all clear but much better. I am home now, took a benadryl and going to rest.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited October 2013


    I've been having a cough for the last week in a half or so. This cough was so disruptive that I couldn't finish a sentence without coughing! I thought it was just change of the weather. To my surprise the doctor gave me an antibiotic + an inhaler. She also said I had a low grade fever 99.8.


    Today is the 12th day post last nfusion.


    TanyaF, was yesterday your last day?


    Togetherness, this too shall pass!

  • TanyaF
    TanyaF Member Posts: 54
    edited October 2013


    FMG- I had my infusion this morning. I'm kind of hoping that it is my my 5/last. I will track how my fingers are feeling since that is what my MO seemed to be concerned about. The pads of my fingers have been tingly for some days. It is not painful for the most part, but if it was permanent that would not be good.


    Feeling pretty much the same on an infusion day. Steroids have not really affected me at all this cycle so far. I'm not complaining about that!

  • beeve
    beeve Member Posts: 71
    edited October 2013


    Today I hit the 'when the heck do I ever feel normal again?' wall, most likely because that dental abscess really knocked me flat. I was able to get back on my exercise bank and do more than I have done since I started getting back on it last week. The distance I went is so embarrassingly small when I look at where I was up to before I stopped for this cancer nonsense. It felt good, gave me some energy so my husband and I ran an errand and out for lunch, a little walking. I'm pretty whipped now but in a good way. It tells me I'll get a better night's sleep - the past week or so I wake up a few times, mostly for the bathroom.


    Tomorrow I have the second half of the root canal and then next week my 5 of 6 infusion. Please let this one go more smoothly. I'm somewhat envious that some of y'all are matriculating to the next stage, but my time will come. Selah.

  • Shalimar630
    Shalimar630 Member Posts: 100
    edited October 2013


    Had my last infusion yesterday. Side effects started earlier than usual, not too severe as of yet. Already tired, icky mouth, tingling hands and feet. Had Neulasta shot today. I have worked through most of treatment, but my manager is really understanding and when I say I have to stop, she lets me clock out.


    Beeve, I'm with you on the dental abscess. I had one right when I was suppose to start treatment and it pushed me out a couple weeks. It was so frustrating and the pain was worse than treatment. Just one more thing to deal with. Hope yours improves rapidly.

  • beeve
    beeve Member Posts: 71
    edited October 2013


    Looks like it's just the "strays and losers" left. Sigh. Two to go.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited October 2013


    We're not strays and losers! LOL


    I had my first taxol yesterday. It went ok, but was LONG. My AC infusions only lasted 2 hours total. The taxol + premeds was 4 hours. We closed the place down - I was the last patient there at 5pm. I had severe restless legs during the first hour or so. The nurse said it was most likely from the benadryl premeds.... I brought ice & frozen peas to ice my hands & feet, but I couldn't even sit still to do it. I ended up taking my i.v. pole for a walk. LOL After that it calmed down and I dozed for the last two hours.


    Today I'm feeling pretty good.... but I'm scared that I'm just waiting for the other shoe to drop. I hate not knowing. With AC, it hit me 3 hours later and after the first infusion I knew what to expect. Waking up feeling good the day after chemo has me a little freaked. I hope I don't get up tomorrow or Sunday feeling like I was hit by a truck!


    My MO told me I'm very anemic, and if my numbers drop much more I'll be looking at a blood transfusion. Boooo. I don't see him again until two weeks when I have my next treatment, so I guess we'll see what happens between now & then.

  • candi07
    candi07 Member Posts: 188
    edited October 2013


    Lighthouselady, I had my first infusion of Taxol last Friday wasn't sure what to expect either. To my surprise the only SE I've experienced is a little fatigue and bone pain (pelvic and shoulders). My taste buds are slightly off, no metallic taste and food taste somewhat normal. So far for me its a lot easier than A/C. Not sure if more SEs develop with more tx...so far so good.

  • TanyaF
    TanyaF Member Posts: 54
    edited October 2013


    LHL-I hope the SE go well.


    Today after #5 of TC I had my first SE of blood in stool. It's not dark or anything so I don't think I should be worried. I do not have a fever and I feel pretty decent so I'm not worrying about it. I'll just monitor it. I was kind of hoping it was a period because I have not had one since August. I'm not ready for any kind of menopause!!


    I went out with my sisters last night. One of them shaved her head back in August to help me on this journey. It's growing back and it is so cute. She does work in a salon so she gets free style cut/color. She has it light pink right now. I am hoping mine looks that good when it grows back.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited October 2013


    I hope all is well. Today is 2 weeks after my last infusion. I feel really good. My brows look like their thinning.


    What's going on with your lashes + brows?

  • Cougarlicious
    Cougarlicious Member Posts: 114
    edited October 2013


    My brows have stayed put so far (and it's bugging me because they are growing all wild and weird), but my lashes are definitely more sparse. I'm afraid to put mascara on because I'm afraid they'll wipe away completely. I'm hoping they both mostly stay put at least through the tail end of Taxol, I can handle a couple weeks of ghost face but not months. :( If they disappear soon I will probably invest in some glue-on eyebrows!

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited October 2013


    Cougaricious, you and me both. We may need to be careful about the glue.


    I think today is my coming out. You ladies (outside my immediate family) know more about my journey that my family + friends do. I'm ready to let people know.


    Make it a great day!

  • TanyaF
    TanyaF Member Posts: 54
    edited October 2013


    Brows and lashes are holding steady! I have lost some, but the majority is still there.

  • mankatostate
    mankatostate Member Posts: 231
    edited October 2013


    fmg- you have to let me know if your brows and eyelashes hold on. I am about a week behind you and mine have thinned but are still there. I read often they go on the last chemo...waiting to hear if your hang around or not.

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    Lashes fine but brows thinned a lot. The LGFB Am. Cancer Society class really helped in making me really confident on how to draw in very good eyebrows. They even gave me two eyebrow pencils.


    Between the fact that I have just enough eyebrow left and I learned how to put fake ones on with pencil, no one can tell the difference. Look up Look Good, Feel Better and ACS on Google, they have a website with instructions. Invaluable.


    LHL, I really hope you won't have to have a transfusion. Mankatostate, how are you doing since that ER visit? Cougar, wishing you the best.


    I am so tired since I had that port removed Friday. It hurt but was done quickly and I'm sore but ok really. Rads Monday.


    Take care everyone. Hugs all around.

  • LeanneF
    LeanneF Member Posts: 60
    edited October 2013

    Hi everyone. I am new here, but started my chemo August 2, 2013. I've had 4 treatments so far (2 delayed due to low platelets). Now, I am scheduled to finish December 2. So far the SEs haven't been too bad for me, but I started Perjeta a week ago and now I am having the strangest back pain. After standing for a few minutes, when I sit I get waves of pain that seems to move up my spine. Sometimes if I stand very long it happens too and feels like my legs will collapse. 

    Anyone else experienced this?

  • LeanneF
    LeanneF Member Posts: 60
    edited October 2013

    I still have my lashes and brows, but the brows seem to be thinning now. Someone mentioned ACS look good feel better. At our local ACS office you can sign up for a short class where they teach you basic skin care and make up tips and they give you a free bag of high quality make up. No charge for the class either. You can call the ACS 800 # to find one in your area.

  • beeve
    beeve Member Posts: 71
    edited October 2013


    I still have some brows and lashes.


    But I'm worried about my tooth again. The Root Canal was finished on Thursday and the antibiotics today, but the affected area is starting to hurt again. I'm scared it's all going to go south but I see my MO on Tuesday before my infusion so if something's up we'll know then, if not before. In prior root canals it gets better after a few days, not worse. I hate being scared, but yes, I am. The first round of the abscess knocked me on my ass and I am scared of what will happen if it gets worse again.


    I'll keep you posted.

  • mankatostate
    mankatostate Member Posts: 231
    edited October 2013


    Oh beeve I am sooo sorry! Mouth issues are no fun! I pray that all turns out well. I have been complaining all day because I have this stupid thrush AGAIN and now I am feeling quit bad about complaining....Let us know how things go!

  • LeanneF
    LeanneF Member Posts: 60
    edited October 2013

    Beeve,

    I have to ask about your profile pic. Did you get your head tattooed or is that Henna? I am curious because I am thinking about getting a survivor tattoo after recovery from my final chemo while I am still bald. Just wondering how bad a head tat hurts. :)

  • beeve
    beeve Member Posts: 71
    edited October 2013


    CFisher - yes, that is a henna tattoo. It didn't hurt at all because it's just a paste, this one had eucalyptus in it so it actually felt pretty nice. We found our henna tattoo kit at Hobby Lobby. It was a delicious afternoon with an artist friend of mine. I highly recommend it. It lasted a bit over a week, as long as I didn't scrub hard. If you do it and hate it, a good scrub will mostly erase it.

  • LeanneF
    LeanneF Member Posts: 60
    edited October 2013

    It looks really cool. I may have to try that. :)

  • LeanneF
    LeanneF Member Posts: 60
    edited October 2013

    I have been reading through past posts in this thread, since I am late to the party. Now I am worried I am eating wrong. I see previous mentions of no raw veggies during chemo. I know I shouldn't eat sushi, but why not raw veggies?

  • RhodyMMM
    RhodyMMM Member Posts: 455
    edited October 2013


    Beeve, to your post about strays and losers left, I'm with you! But I still have one more A/C treatment and then 12 Taxols to go. Guess I'm bringing up the rear!

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