September 2013 Chemo Group

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  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited October 2013


    positive negative...I'm so sorry. Stay strong, we are here for you.

  • positivenegative
    positivenegative Member Posts: 106
    edited October 2013

    lighthouse  taxol takes 4 hrs the first time 1  hour wait then 3 hour drip.  it goes throughh a filter so it is not a straight dripp.  send round willl only  be 3 hrs due tono wait (as long as you dont  hhave  an adverse reactiiion.....SEs dont count :)  hope thaat helps..jjust  my experience.

  • KBeee
    KBeee Member Posts: 5,109
    edited October 2013


    mankato- So very happy for you!!!!!!! I hope your side effects are few!


    positivenegative- I am so sorry to hear about your scan results. We are here for you. Damn breast cancer.


    hockeymommy- I laughed too :). I laughed with you though because I often forget I am bald and it is only a matter of time before I do the same thing.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    Thanks for posting this positvenegative,


    I have one more AC then will start weekly taxol and herceptin. Wondering how long my treatment day will be....

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    Positivenegative


    I am so sad reading your post...hang in there Honey.

  • knightzoo
    knightzoo Member Posts: 171
    edited October 2013


    Mankato- Congrats to you! Hope you are back to yourself in no time!


    LHL - my taxol is usually right around 2 hours including premeds - last Friday was 1.5, the nurse was super on the ball and had my pre-meds done within 10 min after I sat down! Sometimes it's more like 30. The first time was more like 3.5 hours with the slower drip.


    positivenegative- I'm so sorry, stay positive and keep up the fight! We can beat this!


    Neuropathy- my MO ok'ed for me to take glutamine and B6, and he's said no to a lot of things I've asked to take! It's worth a shot to ask mamastewart!


    I'm laughing at the hot flash images, I'm sure it's not funny at the time though. I'm like you KBeee, cold all the time, sometimes with 3 blankets! I think I wouldn't mind a hot flash, but people say be careful what you wish for :)


    I'm doing a little better on the hair thing. I'm still tweaking my wig - I've had it trimmed once and still don't love it. Going to go back today. I love the back, but from the front it seems too perfect and a little "old" for me. I let my kids see me with no hat last night and guess what, the world didn't stop! At first the 3 year old was kinda freaked and asked me to put my hair back on, but within 10 minutes she was rubbing my head and saying that it sparkles. Funny. Other than that, I'm doing good - plugging along!

  • BabyRuth
    BabyRuth Member Posts: 264
    edited October 2013


    positivenegative - sending you peaceful and healing thoughts today. I was so sorry to read of your scan results. It is the news none of us ever wants to hear. I see where you have started perjeta. How is that going? I was supposed to start perjeta in August but had to hold off on it due to a low EF heart rate.


    Mankato- time to celebrate! So glad you have finished!


    My weekly taxol is about 2 hours with the premeds and everything. It really goes by very quickly!


    Knightzoo-have you lost your eyelashes or eyebrows yet? I still have mine and keep thinking one day I will look in the mirror and those will be gone also. Heading in for number 7 on Thursday. My taste buds have been really off this week. Having a hard time finding any food that makes my mouth happy!

  • knightzoo
    knightzoo Member Posts: 171
    edited October 2013


    Yes BabeRuth, I still have eyelashes and eyebrows. I don't really notice any thinning. And I don't have to shave my armpits anymore but still shaving my legs about twice a week. So random!

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    Mankatostate: Hooray for joining me in the finished chemo corner!! I am so glad it's over. There truly is light at the end of the tunnel. I am feeling more like myself daily. As more of you cross the end of chemo line, I will be so happy for you too!


    Hockeymommy: Thank you for sharing that story about your hot flash emergency! I'm definitely in chemopause and definitely having hot flashes. It is weird since I've been cold my whole life. Sudden sweats then cold now is weird. Dressing in layers is the best option. But there is nothing like a wig to trap heat! And you can't exactly rip that off without causing a panic, at least in the grocery store.


    Everyone, please wish me well because on Friday this poet is coming out! Funny, I pretty much forget now its there. Let you all know how that goes.

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    Positivenegative: Sorry to hear your news. We are always here for you. Many hugs.

  • Lengbong
    Lengbong Member Posts: 10
    edited October 2013


    2nd session done oct17!! Nuelesta kickin my butt!! It's crazy joint pain!! I didn't get nuelesta the first time.. So now I know how it feels like- I have tingly fingers n tongue. I hope everyone is doing well- I attended the walk and it was a special n meaningful event of this journey!!


    I've been home to stay away from germs- avoiding to get sick-


    I use salese for dry mouth. I'm on taxotere- I still have my tube to drain gall bladder and will be changed this Thursday


    At least I'm home and not at the hospital this time.


    I'm curios about everyone's diet? What are you eating? Have you changed anything? I'm still torn about what to eat and what not to eat?;-)

  • KBeee
    KBeee Member Posts: 5,109
    edited October 2013


    Today's revelation: The hair on my toes is holding strong. Since I am icing my toes during the taxotere, it must be acting like coldcaps for my toes. That hair is going nowhere fast. Since flipflop season is over, I am going to let them be. Soon they may be the only hairs on my body! So you can all rest better tonight knowing I have toe hair. I huess since toe hair is the only thing on my mind, it's been a good day!

  • 70charger
    70charger Member Posts: 963
    edited October 2013


    Lengbong - my main staples have been poached egg on toast, chicken noodle soup on icky days. On good days anything goes.


    Had lab today, white cells still high. Don't know why.


    Chemo #3 tomorrow 8:45am. Will have to leave @ 7:15. Hate early morning as I have to force feed myself breakfast to take meds.

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    I am definitely resting easier now that I know KBee has toe hair. LOL!


    Speaking of LOL, you all must have wondered why I have a poet implanted that I have to have out Fri. It's a port! I swear! Crazy autocorrect on the $&@! iPhone!


    Lengbong, sorry so much has been happening glad you're out of the hospital. Food I avoided: anything at all spicy or even too salty. On bad days, coffee and sodas. All salads. Now that chemo's over, everything's back on the menu, thankfully.

  • knightzoo
    knightzoo Member Posts: 171
    edited October 2013


    Haha, I totally thought my chemo brain missed a post about poetry?!


    And yes, let's please keep up the toe hair experiment KBee, no shaving for you! ;)

  • millsy1
    millsy1 Member Posts: 20
    edited October 2013


    Hi Everyone, well im 6 days out from fusion #2 and im feeling pretty good. I learned a hard lesson yesterday though. Got up and got the kids ready and off to school and didn't have a drink or anything to eat. Went and had a shower and collapsed. Have big bruises on my arms and on my back. What an idiot!! now I make sure I eat regularly and drink juice or soft drink to keep my sugar levels up.


    Im really enjoying reading the hot flashes stories. LOL. when I relay them to my husband he politely laughs. I guess they don't get it because they aren't going through it.


    Congratulations to all who have finished chemo. I still have 2 to go but it feels like a long time. To keep up the poll, mine is on the right and I am on taxol and cytoxin. C takes about an hour but the T takes about 2.5-3hrs because I keep having allergic reactions to it. They pump me so full of steroids but at least I feel good for the next 3 days.


    My friends organized a fundraising event on the weekend for me and my family. We raised $4000 for Cancer Council and some for us. It was a beautiful day with so much love and support. A group of my close friends and I wore "Save the Hooters" tshirts which have pink owls over your boobs. Lots of fun.


    My hair is driving me nuts. I look like a balding man as its mostly gone through the top. I lost lots in the shower but now that seems to have almost stopped. I still have enough to have a fringe and side burns stick out from my hat so people probably wouldnr really notice what was happening unless they knew. My onc was surprised at how much hair I still had when I saw him last week. STill have eyebrows, eye lashes, nose hair, leg hair, arm hair, and toe hair (LOL KBee).


    Have a good night everyone and good luck anyone heading to the chemo bar.


    Jan

  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited October 2013


    LisaSP, hahaha. I too thought "poet" was a metaphor for something else. Like you were going to go wigless and just let your baldness hang out. It didn't occur to me it was a port.... and I too can't WAIT for the day that thing comes out. I detest it. Bring it on January!


    Kbee- you made me look. Yep. I've still go toe hair too. LOL! And for what its worth, my eyebrows and lashes are holding strong.


    Charger-I'm with you. On days I feel good? Anything I can put in my mouth is perfect. I've given up the war on the weight gain. I can tell my metabolism is literally in the trash can. I've never put on belly fat this quickly before in my life. Good thing I wear yoga pants to work.

  • alfranco
    alfranco Member Posts: 200
    edited October 2013

    Positivenegative-I am sorry, sending prayers your way.


  • mankatostate
    mankatostate Member Posts: 231
    edited October 2013


    Lol Lisa I was waiting for some special poem about surviving chemo. I can relate to you getting your port out. Thst was one of my questions for the doc when I saw him for my last chemo session on Monday. I was told they may want me to wait until after radiation because it will heal slower and could delay radiation.


    I can't sleep well tonight. I have hives up and down my arms and some on legs. Went to the ER today for a couple of breathing treatments. Told to keep taking benadryl. Right about the 4 hr mark I start itching for an hour or so. Then they go away only yo come back in a few hours. I am so glad this is my last cheno, my allergic reaction seems worse each time.

  • SyrMom
    SyrMom Member Posts: 862
    edited October 2013

    positive/negative ... hugs to you, so sorry to hear of your progression.  I  truly understand.  I've been stage IV from the get go and the last 18 mo has been nothing but more progression and tx failures.  I understand the fear and frustration.  Hang in there.  I'm still holding out for something to get a positive response.  Found out yesterday the reason my foot has been hurting is that I have a stress fx!  The scary part is, I didn't do anything to cause it.  :(

  • batcatlady19
    batcatlady19 Member Posts: 138
    edited October 2013


    Since a couple ppl are done with chemo & bec. I'm in a strangely positive mood, how about a little poll of SEs we *didn't* get? (Or haven't gotten yet, fingers crossed ;) Of all the ones you expected or heard about, what have you not experienced, no matter how small?


    I'll start -- I haven't had any nail problems (& no icing) & no mouth sores (again, no ice). And I haven't really had hot flashes yet (maybe a little warmer when I sleep), I'm mostly a bit cold from not having hair so I'm always wearing sweaters even tho fall temps haven't much started around here. Got a lot of other SEs that suck, but I'm counting myself lucky not to have every last one, LOL.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    batcatlady


    I have a long way to go still..2 months of A&C (one treatment left of that) then 3 months of weekly T&H then to round out a full year another remaining 9 months of Herceptin.


    So the side effects I have had are from the A&C. I haven't had dry cotton mouth but have had the sores. No nausea to speak of but some acid reflux/heart burn. Hair is just about gone, but not all body hair. Nails are ok. Big time fatigue & flu like symptoms day or two starting after infusion. No bone pain from Neulast shot (taking Claritan) but not sure what SEs are from chemo or shot.


    I also had a big issue with constipation. I have a rectocele so it made things much worse since nothing could get past the impacted kink in my plumbing. (sigh) ER visit.


    I suspect Taxol & Herceptin SEs may be different. ? I'll let you know next month!


    VintageGal

  • lighthouselady
    lighthouselady Member Posts: 752
    edited October 2013


    LisaSP - LOL at the "poet". That's a much nicer word for something that's really annoying! I call mine "the alien". Good luck on Friday getting it out!


    Kbeee - Thanks for the laugh. Good to know your toe hairs are staying strong in the face of chemo!


    Lengbong - Are you taking Claritin? When you get Neulasta, you should take Claritin every day starting on chemo day for the next 5-7 at least. It helps immensely with the bone pain.


    Millsy - I'm with you on the hair thing. I'm not totally bald, which really surprises me after four AC treatments. I still have some in the back, a tiny bit of banks, wisps all over... I look ridiculous. It's nice, though, to be able to wear my scarf or bandana and have a little bit of hair poking out beneath it, though. CONGRATS on the fundraiser! That's amazing.


    Peacockgirl - I'm with you on the weight thing. I try to walk when I can, but don't really have energy to exercise more than that, and between the nausea days and the yucky chemo mouth, I pretty much eat whatever I can find that tastes good. Not exactly watching my diet these days.


    Well, tomorrow is my first of four taxol treatments. I feel like a chemo rookie all over again since I have no clue how my body will react. I pretty much had the routine down after each AC because it was the same every time. Now it's a whole new ball game. My MO was on vacation last week, so they schedule me for an office visit tomorrow before chemo. Aren't I lucky. I get to spend the whole day there probably. I'm bringing a small cooler with frozen peas so I can ice my fingers and toes.... I don't know what I'm more afraid of, neuropathy or my nails turning black and falling off!!!!! Neither one sounds fun. LOL

  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited October 2013


    Mankato, ask your MO about taking Zyrtec for the hives. I suffered with chronic hives for almost 8 years (they suspected an autoimmune issue but they eventually went away). At any rate, there was no antihistamine on this earth that would quell my skin itching except Zyrtec and I tried most of them. Bendryl, Claritin, Allegra....nope. Zyrtec worked like a charm but it did make me sleepy so I could only take at night when I went to bed.

  • KBeee
    KBeee Member Posts: 5,109
    edited October 2013


    LisaSP, I was waiting for a poem too!!!!! I did not even think port. But now you got me thinking...maybe we need a few poems about this stuff...ok...here goes....



    It started with a lump,


    the biopsy made me jump,


    they took my boobs, replaced them with foobs,


    in the road of life....just a bump.


    This chemo really blows,


    I guess that's just how it goes,


    it makes me wired,


    then makes me tired,


    and gives me a drippy nose.


    That chemo sucks is not a lie,


    Constipation and diarrhea, oh my!


    without a doubt,


    my hair fell out,


    but it'll be worth it if the cancer cells die.


    OK...I'm not a poet, but I am sure some of you are, so post some of your own. I will stop procrastinating now, and go domlaundry.

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    KBeee: Perfect! You nailed it! I will be thinking on my poem; maybe it should be about the damn port.


    Batcatlady: My list of SE nevers: no nail problems (never iced), no mouth sores (iced), no nausea, no drop in WBC count, no dehydration, no neuropathy, no lymphedema, no allergic reactions, no vision problems. I have been very fortunate.

  • alfranco
    alfranco Member Posts: 200
    edited October 2013

    Lol Kbee. Thanks for the laugh.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2013


    lisa - I figured you had an autocorrect for port - but it was funny thinking you were have your poet removed!


    On the subject of stubborn body hair - I had to shave my legs all through chemo - not as often, but I still grew leg hair for some odd reason!


    Congrats to all who have finished!


    kbeee - love the poem - you clearly have not had your poet removed yet!

  • millsy1
    millsy1 Member Posts: 20
    edited October 2013


    I'd like to join the poll - SE I haven't had.


    No diahorrea, limb pain, finger nail issues, chemo brain, chemopause, neuropathy, vision issues, dehydration. Actually ive been lucky and this time round have only had 1 day of SE. Gosh I hope I don't jinx myself. I also don't have a port and ive been back at work a few hours each day.


    I also don't have a poet but i'll give it a go


    My husband found a dimple


    it started that simple


    so off to the doc


    the surgeon and onc


    for a poke, a cut, and a jab.


    We sit at the chemo bar


    with our cocktails and ice


    our side effects and no hair,


    its really not nice.


    But we have each other


    for support and a laugh


    for now and forever


    no matter where we are.


    Have a good day/evening with minimal side effects everyone

  • Miss_Mama_Bear
    Miss_Mama_Bear Member Posts: 252
    edited October 2013


    Postivenegative: I am so very sorry for your news. My heart goes out to you.

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