Fall 2013 Rads

1131416181956

Comments

  • vwbordelon
    vwbordelon Member Posts: 58
    edited October 2013


    LisaSp,


    I had 6 rounds of taxotere and cytoxan every 3 weeks. I had a 3 week break between ending chemo and starting rads. Some of the se's did go away. My taste buds came back about 4-5 weeks later, my hair started "sprouting" 3 weeks. The only se that lingered for awhile was the aching bones in my thighs, back and arms. I finish my last rad TODAY!!! The aching bones stopped about 1-2 weeks ago. I can't say that rads has exhausted me. I have been fortunate to stay with my daugher during the week so I am not driving so much. I encourage you to stay "greased up" during rads, drink LOTS of water, and rest when you need to rest. Best of luck to you!!

  • canuck46
    canuck46 Member Posts: 93
    edited October 2013


    vwbordelon- Doing a happy dance for you. Congrats on end of rads!! Swift recuperation and gentle hugs, M

  • vwbordelon
    vwbordelon Member Posts: 58
    edited October 2013


    Thank You Canuck46,


    Big celebration tonight with the family! Trying to find a new normal and new boobs!!!


    Have a great day!

  • LisaSp
    LisaSp Member Posts: 253
    edited October 2013


    vwbordelen: hooray you finished! Spectacular! Thank you so much for yours answers too. Just another question: how much hair do you have now?


    Bounce: Ah well, so much for my sense of humor. I tend to be rather sassy by nature so my daughter and my husband understand. :) Well, gentle reminders of your need for help may be best because after all, we deserve all the help our loved ones can manage reasonably,I think.

  • Bounce
    Bounce Member Posts: 574
    edited October 2013


    Hi LisaSp


    Glad to know your poster would be recognized with the humor it was meant in your house. Humour helps a lot with cancer - especially where kids are concerned.


    And I loved the way you said "all the help our loved ones can manage reasonably."


    Hugs

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    Bounce I've gotten pretty good at saying "you'll have to help me". I figure if a teenager can't help me make breakfast then they can eat cereal!


    Cider maybe a few weeks without you makes the heart grow fonder and realize how much you do. I did wish however that someone had done some chores for my husband when he was busy taking care of me.


    Lisa rads has been a breeze compared to chemo. I was feeling pretty good when rads started and around treatment 20 or so I'm starting to get some pain and I'm quite tired. So the overlap is not too bad.


    I finished 23 today and I am so so red. Is everyone else bright red at this stage? I did get switched to Aquaphor only because he thought the cream might be causing a reaction.

  • kirklandgal
    kirklandgal Member Posts: 63
    edited October 2013


    RainyDay - Yes, we live very close. I am having my treatment at Evergreen - had number 3/26 today. Which hospital are you at? I also have a left sided cancer and am holding my breath during the treatments to move my heart away from the treatment field. It's been going well so far - the breath holds aren't as long as I had originally been told so it's very doable! You can do it!!!


    MsP - Thanks for the overview of what to expect. It's nice to have a general idea of when to expect the discomfort and redness to begin.


    Cakes and VWbordelen - Congrats on being done!


    Imamom - Thanks for the information! Since we're having the same fields done, I'll probably follow your progress as to what I should expect. It looks like you're a couple of weeks ahead of me. I hope things continue to go smoothly for you!

  • cakes
    cakes Member Posts: 157
    edited October 2013


    Thanks for the good wishes Beautiful Glowing Ladies. Rosé champagne tonight! Note because it is pink, I just like it.


    I LOVE the story about the "boob flasher"! What a day brightener.


    Has anyone been advised to have reclast or prolia? I had a reclast infusion and a flu shot today. I had a bone density test done and was told I have osteopenia.


    For those receiving radiation on their left side, I did the special breathing during the radiation treatment to prevent lung and heart issues. It wasn't difficult and made me feel better about the treatments being so close to my heart. I wasn't aware they are more expensive than regular rads. Interesting.


    Take care Ladies.

  • SophiaMarie
    SophiaMarie Member Posts: 352
    edited October 2013


    you guys make me smile! Congrats to all those who are finished, a welcome to those beginning - and a special hug to those that have to do chemo AND rads!


    Just did day 11 - getting darker under my arm but only a light pinkness everywhere else. What I see changing really is the soreness!

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited October 2013


    hi Ladies: congrats to all who have completed rads! I finished one week ago today! I took the past week off from work...I am tired and my skin is shedding its layers. I am realizing that since we have completed another step in this marathon....friends and family might not get the fact that we have been running for awhile...and still trying to get our strength and emotions in check again...tamoxifen for me starts Nov 4th.....this whole process has drained me...but we need to communicate our needs and focus on ourselves for a bit. I am here to listen. Lisa

  • jbdayton
    jbdayton Member Posts: 700
    edited October 2013


    I am doing left breast but I got lucky and they were able to radiate mine without holding my breath and still avoid the heart and esophagus. My tumor was at 5 o'clock near the chest wall. I have completed 6/25 and so far no pink. I saw my PS yesterday and he likes the looks so far. I did chemo then my BMX and now rads.


    Someone asked about hair regrowth; finished chemo June 23rd and My hair is about 3/4 inch long and very thick. My hair was light brown and grey before chemo but it is growing in a very dark brown and grey.


    I am praying for good tissue response so I can have my DIEP early next year instead of 9 months out.


    I hope everyone else has good responses with little to no SE's we deserve a break.


    A young man got to ring the bell this morning. He must have had 10 family members with him in the waiting room. So much fun to watch that family celebrate the end of his rads with him. I just love family affairs.

  • vwbordelon
    vwbordelon Member Posts: 58
    edited October 2013


    LisaSp, my last chemo was Aug 13 and my had started to sprout a couple of weeks before that. It is about 1/2 inch long now. I do have a few pencil eraser size bald spots scattered about my head - may have had them before? I was dark haired and some grays (that I colored) - it looks like it is coming back about the same.


    I too am very worried about my skin. I started with one spot peeling at 24/28 treatments. I currently am scheduled for DIEP in NOLA on Dec 18th. I hope everything heals up for that to happen. How long has others had to wait?


    Going out to eat to celebrate with my family tonight! Thank you Jesus for getting me through this!!!


    Many hugs and best wishes to all!!

  • Lav
    Lav Member Posts: 65
    edited October 2013


    Hi there sisters. 4 down 26 to go. Wow sounds a lot but I guess tom will mark a week out 6 I hope it breezes by and I dont get worst. Basically its fatigue that hits me adter radiation so im conked out by 9 or so. My vitamins really help. Thanks to my cousin that recommended it to me. Advantage of sleeping early is atleast Im able to be up by 6 and go to the gym MsPharaoh! I keep thinking of what u tell me about d lifting of d weights n exercising that beats d fatigue and so far it helps alot along with the vitamins that Im taking.


    IMAMOM thank God I live in a country where labor is cheap. Well not as expensive as the US atleast. Since my husband cant leave our business and and has to cover for me he found me someone who drives me for these 6 weeks atleast. I have my sister and sister in law and really they did come with me the first two days but I felt like such a burden Ive always been so independent so I told them that till d fatigues not too bad Id like to go on my own. My sister has small kids and works as well. But I take my inspirational books and it helps pass my time. The doctor and d radiation technician were so kind that they switched me to a new timing so Im first up and I get to beat the traffic of d city too.


    SophiaMarie see I told u! And you were stressing and getting yourself worked up. Im sure our family n friends will surely understand us and be extra sympathetic too.


    Canuck46 thank you I believe that if there were no problems or struggles in life then there is no life. I just tell my friends n family that God loves me too much and he just goes on throwing different tests my way as a challenge and do you know what I tell him? I shall pass this test also and climb that one step closer to you.


    My friends always tell me I should write a book or a soap opera on my life because its never quiet always something happening. But its ok God loves me toooooo much and if he has given me this sickness this problem then he will help me win this over too. So when Im on d rad table I just close my eyes and speak to him and have a conversation with him and before I know it, its over:))


    Dont give up hope ladies he will guide and help all of us thru this! Lots of loves to all of you.

  • springheart
    springheart Member Posts: 8
    edited October 2013


    ffranny - I will be starting the hypo fractionation protocol next week. I think it is becoming more common practice at the large teaching/research facilities . Do ask questions. My RO says no difference in outcomes compared to the longer protocols. Meanwhile. - my husband and I just cancelled non refundable tixs. If you have to go there, call your airline and ask for a supervisor. They waived my nonrefundable for a year to rebook (had to give them my RO address and phone number a sort of a doctor's note). My husband has asked for a waiver and no decision on that yet, but it is being considered. Worth a shot, if you have to reschedule, but I really hope you are able to keep those plans!

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited October 2013


    Vwbordelon...woo hoo! Congratulations on fulfilling your radiant duties! I hope you have a wonderful dinner with your family. Will you miss the "pajama parties" with your daughter? Being with her was comforting, I'm sure.


    Lav....you are awesome. Love your attitude and insight.


    Cider8 so nice that you were able to be with your family for the weekend. It makes a big difference.


    I don't have children at home and so I am not experiencing problems with getting the help I need. My husband is a true hero. But many times I think the adults who report to me at work are the biggest babies. I have several employees who are so argumentative and helpless. Ever since I told them that my medication could make me SNAP at any time, they have been so cooperative. So if you can't reason with people, scare the bejeezus out of them!


    A sweatshirt that says DON'T MESS WITH ME might be all it takes. Had 31/34 today. Soon I will be fully radiant. Love and hugs.


    MsP

  • rrefresca
    rrefresca Member Posts: 9
    edited October 2013


    Close to the end...I had my second of 7 boosts today. RO decided to skip my last two whole breast rads and add 2 boosts because my skin is not doing great. The skin in my armpit and under my breast is literally black. The whole area is bright red and angry. My skin is hot and itchy. RO came in today to check my fields before treatment and asked if I needed more pain meds (he JUST prescribed me Percocet two days ago). He wanted to be sure I'd be set for the weekend- I'm not a big fan of pain pills and will probably only take one or two a day. Can't afford to be a zombie...although it does help me sleep comfortably at night. I guess its nice to know he wants to make sure I'm comfortable.


    I've hit a new level of fatigue. Took the day off work and slept ALL morning, went to rads and came back home and slept more. Haven't had many days like that, hope not to have too many more... anyone else have crazy fatigue towards the end??

  • cakes
    cakes Member Posts: 157
    edited October 2013


    rrefresca - so sorry you are suffering. Can't your RO do better than just pain meds? If your body is telling you to rest, listen to it. Remember to eat protein and drink LOTS of water. Please take care.

  • Bounce
    Bounce Member Posts: 574
    edited October 2013


    MsP - you light up this discussion board.


    rrefresca - I hope you can take more time off work to rest if you need it. Wishing you better.

  • Rainyday13
    Rainyday13 Member Posts: 29
    edited October 2013
    Kirklandgal..I am going to the Providence hospital cancer partnership in Everett. My approval for the breathing part is supposed to be appoved by tomorrow morning.Looks like I will start next week. Thanks for the info on the breathing. We can do this!! Please let me know how you are progressing. Take care!
  • ItIsWhatItIs2013
    ItIsWhatItIs2013 Member Posts: 541
    edited October 2013

    Just checking in..

    Im 20/33 & doing okay... my inside muscles of the boobie hurt a bit... outside skin is so burnt, its almost purple, but still manageabke. Used lavender a coupleoftimes, bu itsmostly been the colendula cream... slathered on 4times a day. Once after am shower, once mid day at work once after rads and again before bed... 

    I have 8 regular zaps, then 5 boosts... I finally feel on like im gonna make it!!!!!!

    Congrats to those who have finished! And to those just starting..... its much easuer than chemo!

    Lorrie

    Sorry if im not keeping upon everyone. Mymom is in the samehospital wherei in get my treatments. her organs are shutting down... weve had a rough relationship for the past decade. ?. Or, I guess no relationship. Butnow I just want to make sure she knows she is loved......I want her to in feel peace even though she has no idea about what ive gine through.... I dont like her, but I love her.. sounds crazy... jeesh

  • Bounce
    Bounce Member Posts: 574
    edited October 2013


    O Heck Itiswhatitis - you have been through so much.


    Hang in there. One day at a time. Sorry to hear about your Mom. Your attitude is amazing and very beautiful. I am not religious but I can't find another way to describe it except to say that your kindness blesses your Mom and it blesses you.


    What a lot to be dealing with all at once.


    Try to get some quality rest time for yourself if possible.


    Sending hugs.

  • anne11595
    anne11595 Member Posts: 101
    edited October 2013

    So happy to hear so many have finished with rads. It must feel so good. I have had 3out of 30. I sure it will go fast.

        I had my herceptin appointment wed.and saw my doc. I've been having a lot of eye's problems. Have double vision when I sit up after laying down and sometimes just out of the blue. When I told him about it with in a half hour I was in having a MRI on my head. He was hoping it was not mets and had the results with in a hour. It came back clean. But it was a very long hour! Now i just need to see a eye doctor. Didn't get the herceptin but I'm so over it.

       I have felt so good after chemo. Really have my mojo back. I don't plan on losing it either!!!  Life is hard enough but put the cancer in with it and it really gets hard. I quess that's why women gets this more then men because we are tougher then any thing you can give us! 

     As for hair mine is almost a inch long. But still wearing a hat. Now I know how grey I really was. Wow. I dont really care just give me my hair back. I may never put a hat on again!

      Once again thank you everyone. I could not have gotten this far as easy as I have if it wasn't for all you beautiful ladys!! We really take care of each other and it helps so much!!!!!

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited October 2013


    Rrefresca. Oh my goodness! I am so happy your doctor is acknowledging your pain and making adjustments. You are having a bad time. I hope that you are able to find the balance between pain relief and zombie avoidance. I am definitely becoming more fatigued but I'm still doing ok. Your radiance will still shine through the bed covers, so rest and care for yourself.


    Itiswhatitis. You ARE gonna make it, Hun! I am sorry to hear about your mom. I know exactly what you mean about your feelings for your mom. (((((hugs))))))


    MsP

  • Imamom
    Imamom Member Posts: 21
    edited October 2013


    Bounce and Lisa, you made me laugh out light with your poster and t-shirt ideas! I'm more or less off work now during rads (except for in emergencies, for an hour or two a day) so it's going to be really hard going from rads right back into work full time and coming home to the kids. I'm gettig so much help now and it's all going to stop as soon as I'm done...


    On the radiation front I finished 15/28 and have switched from aloe Vera (which was sticky and I hated it) to calendula cream (which is a lot more soothing and which I use twice a day). Is anyone out there with a mastectomy and getting boosts? I'm not scheduled for boosts, but I've heard some ladies I go it.


    Today is my 31st birthday and my husband and I are at a spa for two days. I can't describe how heavenly it is!

  • Bounce
    Bounce Member Posts: 574
    edited October 2013


    Imamom - try to reschedule things a bit so you get some help post rads as well - Let people know in advance you will need to take it easy for at least three weeks. That way they will think you are a Rock Star if you recover quicker. :-)


    Also - re the spa for your birthday - Enjoy enjoy enjoy. I hope you allow yourself to take a break from thinking about anything cancer related. Including us. You have a "get out of jail free" card for 2 days.

  • Annie54
    Annie54 Member Posts: 247
    edited October 2013


    Happy Birthday Imamom! Enjoy the spa and time with your husband!


    Annie

  • Annie54
    Annie54 Member Posts: 247
    edited October 2013


    Lorrie,


    So sorry about your mom - and I totally understand your feelings of loving but not liking. Had a similar relationship with my mom and sat with her during her last hours. You'll be glad you did....but boy is it tough! My thoughts are with you.....


    Annie

  • ffranny
    ffranny Member Posts: 16
    edited October 2013


    Springheart: Thanks for the info and suggestions. Good to know about the rescheduling, but we actually want to keep our travel plans if at all possible. We'll see.

  • jbdayton
    jbdayton Member Posts: 700
    edited October 2013


    Wow ladies what can I say everyone is moving along with so many hurdles.


    Lorrie hang in there with your mom. My mom is in a nursing home with later stages of Alzheimer's and no longer recognizes me. When we were diagnosed (yes both of us the same day) I had to make the decision to put her in nursing care while I did the treatments. We are only treating her with an AI because she couldn't handle any treatments mentally. she still could talk and yell at me but had maybe 5 minute memory. We had a different relationship she lived with me the last 7 years and I took care of her. I am so glad you get to let her know you care. I have to just hope mom somehow knows I still love her even though I get no reaction from her. She doesn't talk anymore and doesn't even answer to her name. I thought cancer was bad but I definitely do not want Alzheimer's.


    Lisa I am so sorry to hear about more delays in beginning chemo. I do agree with waiting though, each nick I got took 2 to 3 times longer to heal while I was on chemo. My prayers are with you. Delays are discouraging but sometimes necessary. I got lucky with my infection the PS was able to open me back up on day 10 after surgery and scrape out the infection put in new drains and I was able to have the drains removed 7 days later.


    Imamamom I am getting 25 treatments and no boosts. Happy birthday and enjoy the spa and your husband.


    To everyone else my thoughts are with you as you move along to the finish line.


    Today is #8.

  • kika2013
    kika2013 Member Posts: 101
    edited October 2013


    Hi, all (and Bounce, thanks for checking in!). I haven't been on here much as doing radiation has pretty much taken up all my free time....! But it's nice to know you're all here. I'm doing the short course as well, 16 regular, 5 boosts, for 21 total, and today I have #13 (in about an hour). So far, so good for me. I'm definitely getting pink in the radiation field, but not much else. A little bit itchy, but only off and on, and very occasional pain inside my breast, but again, nothing I've even taken a Tylenol for. They keep telling me not to get my hopes up since I'm not done yet, but it's really not in my nature not to keep them up, so I'm ignoring them. Seems to be working so far.


    As for the shorter course, I was told at Sloan-Kettering, which is where I'm getting my treatment, that everyone gets the same amount of radiation regardless of how long your course is. I think it's higher doses each day for a shorter period. Also they have now apparently learned it is equally effective for women 40 and over (at 42 I just squeaked in!) so that is maybe something to ask about. I'm assuming Sloan-Kettering is at the forefront of all of these research issues, so I trust them.


    I hope everyone is feeling well. Keep it up!

Categories