Another biopsy

azlisa · October 2013

I have not posted in a couple of months and so far this year I have had 7 biospies including the 2 I had last week (open excisional biopsies on both left and right breast). The pathology report states the following;

A. Leftbreastneedle-localizedbiopsy:

• Lobularneoplasia,rangingfromatypicallobularhyperplasiatolowgradelobularcarcinomainsitu.

• Proliferativefibrocysticchange.

• Atypicalductalhyperplasia.

• Fibroadenomatoidmastopathy.

• Radialscar.

• Microcalcifications.

• Woundhealingconsistentwithpriorbiopsysite.

• Lobularneoplasialessthan0.5mm fromsuperficialmargin.

B. Rightbreastneedle-localizedbiopsy:

• Lobularcarcinomainsitu

• grade2.

• 0.5cmgreatestdimension.

• 0.5cmfromthedeepmargin

• Extensivelobularneoplasiarangingfromatypicallobularhyperplasiato

lowgradelobularcarcinomainsitu.

• Fibrocysticchange.

• Atypicalductalhyperplasia.

• Sclerosingadenosis.

• Microcalcifications.

• Chronicwoundhealingconsistentwithpriorbiopsycavity.

• Lobularneoplasialessthan0.5mmfromsuperficialmargin.

Right now I have a break from it all and dont have to go back for 6 months when I have to have another MRI. I have seen 2 oncologists, one who I was referred to for a second opinion and one my dr sent me too. The one I was referred to is a radiology oncologist and he stated since I still have my uterus I should go on raloxifene since Tamoxifene is higher risk for me for uterus cancer. The second oncologist who is a medicine oncologist dismissed what the other doctor and put me on Tamoxifene. I think I am going to check into another oncologist on the matter since I dont want any more problems. Also surgeon and primary doctor keep asking about me having both removed. I feel that is totally radical to do at this point. As my surgeon stated on yesterday it is not a matter of if I will get cancer but when! she also stated the pathologist told her why am I not getting them removed since LCIS and atypia is all over both breasts. I really dont know what to think and this is way overwhelming. Any thoughts??

Thanks for listening, Liss

MelissaDallas · October 2013

LCIS usually IS diffusely through both breasts so that is to be expected, but the majority of women do NOT go on to develop breast cancer. I have pretty much the same going on and am having another biopsy next month but I have no intention of having a mastectomy either at this point. Ask the onc about Aromasin. The newest research shows it to be a more effective preventative med.

MelissaDallas · October 2013

I will add that the comments you will get here are not a very representative cross-section of the population as a whole who have LCIS. Most of the handful of us who have stuck around here are women who chose prophy bmx. Without additional risk factors the literature does not recommend it, although I can understand why some choose this.

Anonymous · October 2013

azlisa----LCIS is generally thought to be a bilateral disease; meaning if you have it in one breast, you most likely have it in the other breast as well. While it does increase your risk for invasive bc in the future, it does not mean you will definitely get bc. But since it is not invasive, there is no rush to make any hasty decisions; you can and should take whatever time you need to research, get 2nd opinions, or to just let it sink it. I was diagnosed over 10 years ago and I am still doing close monitoring and preventative meds. (even with a greater elevated risk (mom had ILC), all my docs still feel bilateral mastectomies not medically necessary for me). That's the thing, bilat masts are not medically necessary for LCIS, it's a personal choice for dealing with the risk, so we all have to decide for ourselves.

Anne

Another biopsy

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