In shock

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  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Benny, Benny, Benny, this time around they found it wa-a-a-a-y earlier than the first time. The chances are excellent that if it is bc indeed, it will be very small, they will be able to remove it completely with a lumpectomy, and that will be the end of treatment. I am praying and hoping that for you, dear Benny! Big, big hugs to you!

  • Jo6202
    Jo6202 Member Posts: 372
    edited October 2013


    Benny- OH NO! I can't imagine. I would be distraught too. We will be here for you so rant, scream, cry and know we care. So so sorry.

  • Traii
    Traii Member Posts: 1,138
    edited October 2013


    sending hugs Benny ♥


    Dido what Liefie said x

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2013

    (Hey, I see icons in the reply wndow?)

    Liefie and Jo, yes, pretty upset this afternoon. I asked the radiologist if this has spread from the first one and he said no, think of it as a brand new thing. I asked him why the chemo didn't get it, he didn't know. He could not find it on the ultrasound, only the mammogram(s). He said it was very small. I asked if I'd have to do chemo again and he said I'd have to discuss that with doctor (I have no veins left). I meant to ask him if they'll biopsy the nodes again even tho' he checked my armpit and couldn't find anything, but I forgot. I see the breast surgeon tomorrow morning. :(  I so desperately needed to hear some good news today but didn't get it. It feels like I used up all my good luck in the first 54 years of my life, and now all that's left is bad luck. I know 'just' lumpectomy should make me feel beter, but it doesn't. Another painful biopsy with needles, another 'needle marker' prior to surgery, another effin surgery (which made me so incredible sick the first time, more recovery time, another drain, no horse, etc etc. Not good. Still waiting on that 'quality of life' thing. This is never going to go away. I am going to be one of those obituaries that says 'she fought a brave battle to the end'. Except I don't want to fight, I just want my life    

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Oh God, Benny...there are no words to make this go away....I am so very sorry to hear this news. It might not seem like it helps at this time, but I agree with Liefie....this has been caught so much earlier than your previous go round. It is a good thing that you don't have to wait to see your BS, no need to go down the "waiting road" this time around.


    I can tell you, that you are not alone this time around. I am here, as are many others. You did a lot of "braving things out alone" last time, I hope this time you accept my genuine offer of help, companionship, rides, housekeeping help, etc. I AM HERE FOR YOU!!!!! Do you want a ride/company to the appointment tomorrow.....I am going directly to the pm's, and am going to send you my cell and home phone number and personal email address. I honestly, truly hope you take me up on my desire to help you.

  • scouser47
    scouser47 Member Posts: 963
    edited October 2013

    Benny, been thinking about you ALL day. You poor love !! what a horrible experience for you.Praying that biopsy is clear. Wish you were near enough for a hug. X

  • scouser47
    scouser47 Member Posts: 963
    edited October 2013
  • adagio
    adagio Member Posts: 982
    edited October 2013


    benny - so sorry to hear about your mammo result - big hug to you. I totally appreciate and understand every sentiment you wrote in your post. This is so awful and very discouraging. We are all here for you - so rant as much as you like. Warm thoughts and prayers coming your way. Please accept Nihahi's offer of help - don't go it alone. Everyone needs somebody. Hugs!!!

  • momof2doxies
    momof2doxies Member Posts: 342
    edited October 2013


    Oh Benny....I wish I could come hold your hand. I truly know how you feel. You need someone to be with you and be able to talk. I went through the same thing and my husband was MIA, so I drove home like a Zombie, took a handful of pills, and went to bed.


    But take a deep breath and look at it this way. If it is malignant, and you still do not know for sure, it is small. Most likely nothing like the previous tumor, and it has been caught early. My surgeon did my biopsy this time, and it was not painful at all. I took liefie's advice an took 2 Ativan before hand. This time I knew what to expect and it was no where as scary as the first time. I know you feel like the earth has been pulled from beneath your feet. Another tidbit that someone told me is, this is not mets.


    Hope I have not overstepped in my advise. I am really pulling for you. We all have come so far; please hold on...we are with you.


    ((HUGS))


    Jenifer

  • adagio
    adagio Member Posts: 982
    edited October 2013


    morwenna - those little pineapple cards are awesome! Where in Hawaii is your competition?


    edi - do look after that hip of yours. Sure hope it feels better real soon. So sad about Naan, and now with Benny's mammo news - it is all a bit discouraging, isn't it?


    liefie - so glad that you are coming to Marian's - it will be so nice to meet many new friends - I am looking forward to it a lot.


    websister - I too am intrigued by the quiet book for kids - did you get the idea from the internet or do you have a pattern of some kind? Sounds like fun and would make a great gift especially if it is made from something as special as great grandma's clothes.


    nihahi - wondeful photos and good for you with all that hiking!


    mom of 2 - congrats on the negative BRCA - what a relief.

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Benny, I want to seriously urge you to take Nihahi's offer, and contact her. Don't think about it, just do it. Close your eyes and jump. Just the fact that she will be there with you will help you feel better, I'm 100% sure. If I was closer, I would have come too just for company. My heart goes out to you, and you are in my thoughts and prayers tonight.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited October 2013


    Oh, Benny... We will all be holding your hand, in spirit. I know exactly how you feel. Three weeks after my surgery I was back in there having another biopsy on a suspicious spot on the other side. It turned out to be a benign fibroadenoma. I believe yours will too. But whatever happens you can do it. We will all be here for you and you will get through it just fine. You are so strong, and such an inspiration to me and all of us. Hang in there!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2013


    Hey, Benny...I'm popping in from another thread, and I just wanted to tell you that you're in my prayers. I'm so sorry you're going through this.


    There are just no words, but we all are forming a huge raft of support and love to keep you afloat. Climb on.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    Oh Benny, I have just come upon your news and I feel so for you! I can only second what the others have said. Whatever transpires, we are all here with you, and the odds are very good that this is caught incredibly early, so the outlook is excellent indeed.


    I was feeling a bit down, myself. I went to the BRA-day, and there met up with the lovely Websister. I hoped to see somebody who had had a DIEP/TRAM, but that didn't work out, then I asked a couple of docs about my chances of reconstruction and one was quite discouraging about my situation, but then the other was fairly upbeat, so no clear answer there.


    I had said that if recon was not possible then I'd rather be symmetrically flat, but actually when I look in the mirror and imagine myself with no breasts at all, it is quite devastating. I also found it harder than I expected returning to the cancer centre, and listening to other people's stories.


    I have to admit, I cried all the way home. Feeling very sad this evening.

  • websister
    websister Member Posts: 1,092
    edited October 2013


    Benny - sending big hugs, you know you have my support - call/email/text - I like the visual of the 'raft of support to keep you afloat' - we are here for you!


    It does seem hopeful that they couldn't see anything on ultrasound, doesn't it?


    Morwenna - I also felt a big letdown from the BRA - day today. For everybody else - BRA stands for Breast Reconstruction Awareness - I think there were many of us who were there that were 'delayed reconstruction' and yet the focus seemed to be on immediate reconstruction, which was not a possibility in either Morwenna's or my circumstance, as well as probably many others who showed up for the presentation. They had a room for 'show and tell' and I was looking forward to seeing/talking to someone who had a DIEP or TRAM flap but all the volunteers in the room were one surgeons patients and all immediate reconstruction implants. Wonderful of them to volunteer but it would have been nice if the person organizing had arranged for all types of reconstructive surgery to be represented.


    There was a big contrast between the general surgeon's discussion with Morwenna vs the plastic surgeon's - the general surgeon did say that the plastic surgeon would have to be the one to help make the decision but he was rather discouraging, it would be disheartening.


    I think the worst moment for me was a video at the beginning of the presentation - one of the people on the film said that they wouldn't have been able to stand taking off a prosthesis and seeing it stare them in the face every night - a few of the volunteers with immediate reconstruction implants standing in the aisle beside us were laughing at that and yet that is our reality - not of our own choosing but out of necessity.


    Nihahi - re: my back - it is still sore, worse if I walk too much but I seem to be getting used to it - I was thinking more of my husband riding and me watching if we went out to the farm ;).


    Traii - so good to hear that DH's results were clear. So sweet that you have a new nephew - enjoy!


    Liefie/Adagio - I don't know if you are on Pinterest but I have found lots of ideas for Quiet Books on there - search 'Quiet Books' if you do use Pinterest. Now I need to narrow down what kind of pages I want in each - for the oldest grandson I think I will go with roads/cars/construction machine type theme, not sure about the other two yet.


    Past time that I should be in bed - Benny - thinking/hoping that you took something to help you sleep tonight and that Benny is cuddling in nice and close to bring comfort to you. ((()))


    Take care everyone

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Morwenna, which docs were you talking to about recon???? Sorry to hear it was a tough day for you too, but very glad you stayed connected to us during "down time"...it's better than tackling the blues on your own. Sounds like it's a perfect weekend to spend some time with hubby in the mountains. Trail conditions are changing daily, with the snowline slowly coming lower. Not sure where to recommend...best to check at the visitor centre for current conditions. Hope tomorrow brings a happier day for you.


    sbe...you are a special lady!


    Benny....glad we talked today...!!!!!


    websister...I would have been a "show and tell" if I'd known about the event. I am so far removed from tx days, that I have no contact with TBCC anymore, and the BCSupport Centre wasn't even invented at my time of tx. I can very much identify with the person in the video, re: finding it hard to remove their prosthesis every night, and unfortunately, I think some of the implant ladies might be singing a different tune in future years. If you local ladies ever want to have a private "showing"....let me know...I would do anything to help my friends here.


    Off to bed now...hoping for peaceful sleeps for all of us.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2013


    Morwenna, do you know why the surgeon was so discouraging about a DIEP for you?


    As you can see from my signature, I have a similar journey to yours, and I had a DIEP last April.


    Websister, I think I would have been moved to walk out when the recon film got to that part and the immediate recon ladies were chuckling. Yes, had I been given a choice, I would have chosen immediate recon. But my circumstances were such that it would have compromised my treatment at the time, and frankly, I'd choose my life over an instant boob replacement.


    And when I was wearing it, my prosthetic breast didn't "stare me in the face" at night. It was tucked away in my dresser drawer, with the lights out. I was happy when I had the DIEP surgery, but before then, I was happy that I had a foob I could put in my bra that was specifically designed to help me look and feel normal.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    Yeah, I wasn't sure about the purpose of the video. Many people were moved to tears at seeing people describing their fears and sorrow at time of diagnosis, but mostly because those emotions are a barely covered wound at best for most of us. I just didn't get it. If the purpose of the video was to tell people how distressing losing a breast is, and how much better they feel once "restored", then surely they were "preaching to the choir"!


    My issue is my history of polycythemia and blood clots during treatment. The general surgeon appeared to think that the risks of surgery would be too high, but then again the plastics guy seemed to feel it not a huge problem so long as my blood counts are controlled. I actually got a call this morning with an appointment to see Dr Lin (PS) in January. I'm partly pleased, and partly dismayed that I have to wait so long. I want to hear that he can "fix" me, and there's nothing to worry about, but I am also afraid he will give me bad news.


    I'm just wishing none of us ever got this bastard disease in the first place. (If I wrote that on the British board it'd be censored!!) ;)


    Bed time!

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Websister and Morwenna, as a person who had delayed DIEP flap surgery in May this ear, I am mortified that you came away from that presentation so discouraged, and it also saddens me that fun was made of prostheses. It was certainly not a balanced view that was put forth. Morwenna, please don't take that one surgeon's word for it. If you go to the DIEP 2013 thread, you will read there about many women who had delayed DIEP. It is not all plastic surgeons who are qualified or willing to do it, but I am sure the right one for you is out there.


    Sbe, thanks for your input here. Come visit us again anytime!


    Websister, thanks for the tips re: Quiet books. Will look into that.

  • scouser47
    scouser47 Member Posts: 963
    edited October 2013

    True #quotes

    We ARE here for you Benny, we love you, and admire your courage. As has been said whatever it is they have found it early. Nihahi has made you a wonderful offer PLEASE take her up on it. X

    Mods have messaged me today, as you can see paragraphs and some icons back on. Face ones work in progress and you can now copy and paste again.

    Liefie, will look out for you later maybe on skype ? Hava a wonderful time with Movie and her DH. X

    Nihahi, lovely offer for Benny, no one should face any of this on their own.My hip started weeks ago, nothing to do with dancing. Rubbing gel on a few times a day and NO heat, that and cold bag really helping. Dancing tonight so here goes.X

    Mom, sure you are right, tests not as bad second time as you know what to expect. X

    Websister, you are a saint, I would have let rip at the " laughing ladies " with some REAL anglo saxon language. Sorry you were sad, ((( BIG HUG ))) My GD's had soft books and adored them. X

    Morwenna, advice on here is spot on, search for the help you need, it will be there somewhere.X

    Traii, thrilled DH had good news, if he doesnt slip and slop you MUST slap him from now on.Don't work too hard either. X

    Adagio, (((HUG))) we gotta stay positive X

    Sbe, welcome X

    Sun shining in blighty after rip roaring thunder storm last night. Taking DH to hospital to see if injection in his eye did the job.

    Thinking of you ALL X

  • Kalonis52
    Kalonis52 Member Posts: 134
    edited October 2013


    Hi honey, I am sorry. Remember what I said. Keep your strength, and, keep positive. You will get through this. And, keep coming here for us too help you get through this. You will get there.


    Take Care,


    Kaloni

  • Ridley
    Ridley Member Posts: 634
    edited October 2013


    Benny I'm so sorry that you have to go through a biopsy. My fingers are crossed that it turns out to be nothing. I have had calcifications biopsied that turned out that way. Sending positive thoughts to be with you today.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited October 2013


    Benny - that really stinks !!! But u got this girlfriend. We are all here with you !!! Geez ur pockets must be sooooo heavy !!! Please let's us know!! Use the help if others and keep ur eye on that guy !!! Everything I can cross is crossed !!! Muah !!!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2013


    Morwenna, with your rads just finished in July, you'd need to wait at least six months for surgery anyway, so seeing Dr. Lin in January isn't bad timing. But I know you must be feeling like you want to get into his office, get good news about moving forward, and get on a list for a date!


    Thanks for the welcome here, ladies. I've "lurked" awhile, knowing my sisters from another thread sometimes post here.


    Benny, hope you got some sleep last night. Holding your hand today.

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Good Morning ladies....


    Sitting with my cup of coffee, waiting for the sun to come up (as it always does, right). Benny....hope you're feeling the hugs and prayers. Like I told you yesterday, I have nothing on my schedule today and have no problem with coming into Calgary, so I am available. Also, you better keep that promise and contact me at the very least. I get bored easily and if I don't hear from you, I have NO problem with initiating a Search and Rescue mission!!!!!!


    sbe.....lurk no more....you are a great fit for these ladies! Pull out an English to North America dictionary for Edi's posts, though, She is too funny!


    Morwenna, Websister...it's sounding more and more like that BRA Day was poorly put together and biased. Seriously, a video that upset everyone.....what on earth was the point of that??? I hope someone makes a point of giving some feedback on the day, or it may happen again next time. As I said, I am not on the radar for any followup/support service, being so long ago, but if you want to give my name as someone willing to offer another "point of view", go ahead. I am not a flasher......in case you now wonder about me, but for a few potato chips....I'll lose the shirt for you guys!!!!! Morwenna....you know that a Jan. appt doesn't mean a recon date is close to follow here in Canada, but, it's a step forward. Haven't heard of Dr. Lin before.........is he a Foothills PS? If he doesn't "click for you" it might be worth the wait to get in with either David McKenzie (my guy) or Vim deHaas. I'm not sure if Robert Lindsay is taking on his own patients anymore, but he teamed with McKenzie for my recon. Those 3 docs are the top in Calgary for both microskills and quality of work. Darren Nickerson also is extremely highly thought of, but, with his commitment to the Burn Unit, I'm not sure how he spreads his time elsewhere. I have never met him, but Abby thinks the world of him, so that means a lot I think.


    Edi....another day of dancing coming up! woohoo!! Hope the news is good re: hubby's eye. "blighty sun".....does that have any connection to "cracking flags"????? You speak a foreign language to me!!! Too funny.


    Watercolour class last night was a bit more productive (again.....snort). At least the instructor recognized my effort as a flower!! I take that as progress!


    coffee now gone, light is showing in the sky....off to start another day. Hugs to all!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    I know that January date means join a wait list for surgery. I'm happy not to have it before June anyway, as I need time to heal and get strong again.


    I was just hoping for an early consult to find out if its a go or not. For me there is nothing worse than uncertainty ..... I guess I'm not alone in that!


    Dr Lin operates out of PLC and is the surgeon my BS works with. She said if I wanted to see one of the FMC guys she could refer me, but it'd also mean changing my BS if I was going for the prophylactic Mx. I realise from the point of view of timing after rads etc, that a January appt is quite timely.


    I just want to know the answer NOW!


    It was Robert Lindsay we were talking to last night btw. He said he remembered us both, but he might have just been being polite! And I'm sure Duncan Nickerson only does burns. He's a lovely guy, and extremely meticulous also.


    image

  • websister
    websister Member Posts: 1,092
    edited October 2013


    Benny - sending more hugs, please keep us updated


    Morwenna - hope you are feeling better today


    Liefie - enjoy your visit with Movie and Skype visit with Edi


    Edi - glad things are improving for you for posting here, progress. Hope visit for DH's eye went well and enjoy dancing tonight - hope hip behaves


    sbelizabeth - welcome


    Nihahi - I can do a few potato chips ;) That is a generous offer. I plan to send my feedback to the organizers. I spent a fir amount of the early night hours reviewing everything in my head. I think that even some of the volunteers may have felt misled. Their cancer experience has been different than many of the people that attended. I believe the lovely volunteer that sat between Morwenna and I began to realize this as the presentation went on. Dr, Lindsay did speak to flap surgery, with pictures of actual surgery and this lady turned to me and said she didn't know why they were talking about 'this' - she seemed quite upset - again not her reality.


    Take care everyone

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Thanks for the skype, Edi - lovely as always! Will be seeing you tomorrow with Movie by my side.


    Benny, thinking of you, and wishing you all the best. BIG HUGS!


    Running for yoga, see everybody later.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    Hey guys, I am not much given to writing "poetry", but this just popped out, so I thought I'd share:


    A club that nobody wants to join; exclusive, selective, we, the lucky ones? I think not!


    Yet out of the darkness a nourishment flowers-


    Human kindness, compassion in the wee small hours.


    "The Three a.m. club"! - it is true what they say:


    Things ARE much worse without light of the day!


    But here, on this website is always on hand


    A woman, a comrade, who WILL understand ...


    Exactly the feelings we strive to explain,


    The fear and the sorrow, the tears and the pain,


    But also the moments of triumph and bliss.


    Where else but on BC.org find we this?


    For some it's a bandaid to help while we heal;


    A place we can rant, swear, express how we feel.


    For others it may become oh, so much more:


    A path paved with friendships to last and endure!


    So to all my dear friends, and to those yet to meet,


    I send love, and a hope for your healing complete.


    xxx

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited October 2013


    mo- that's awesome !!!! Also I have that picture as my screen saver on my phone. I will have that body someday from kickboxing !!!

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