oh goody!my uncle score is 25, boo hiss
like always I fall into the greyzone....
Comments
-
onco not uncle!!!!! crazy voice thingie! anyway, suggestions or comments for others who have been classified in the same zone! Like always I'm in the grey -
Is that your tumor marker? I'm not sure what we want it to be but I do know that it's all personal and depends on the weight, height,... of the person. You can't compare yours to someone else. Sorry I might not be of any help. -
Hi Paulette! Sorry that you landed in the gray zone. Me too! Talk to your oncologist and find out what the recommendation is and what the benefits are versus the risks. Only them can you decide about doing chemo or not. Then get a second opinion because that can be very helpful. My oncotype DX was 24, 16% recurrence rate without chemo and about 12.5% with chemo. I decided to do chemo and had 6 cycles of TC. It was tough, but I did it. I am now doing radiation, growing some hair and getting my mojo back.
None of the treatment choices are easy to make, but with the right information, you will do what is right for you.
Love, MsP -
thanks....I don't know too much just was told it is dead center in grey zone...one point up chemo one down no -
Paulette, your oncologist should give you a recommendation and tell you why. You should not spin a roulette wheel. Let the science and your gut instinct about what is right for you guide.
MsP -
its just frustrating. ...such lack of communication and delays. When I called to set and apologized appointment the other day, they remarked that generally you are scheduled to see the oncologist approx 2wks after surgery. Its been a month and I've had two surgeries and then I had to call myself to set appt. they can't see me till oct 31....mre delays.... -
Paulette, I am so sorry. I experienced delays too. I was diagnosed right before Christmas holidays last year...lots of doctors and test sites were closed, my insurance initially denied my BRCA test and if you can believe it.....the lab didn't send enough carcinoma to Genomics the first time. I was 6 weeks from surgery before I got my onco score and 7 weeks before I started chemo. My nurse navigator told me to figure a year for treatment and she was right....it will be 11 months when I finish radiation. I know that isn't what you want to hear. Keep advocating for your health and ask them to put you on the cancellation list!
MsP -
Hi Paullette,
I had a 2 no's 3 yes's for chemo at my facility. I went for a second opinion at one of the best breast cancer research hospitals and got a no so, I went with that. It was a tough choice as I had a positive node and LVI but she said a 1-2% benefit with chemo..my oncotype was 17. She was confident that radiation would take care of the LVI.
Good luck with your decision. Take your time and get ALL the information you need to feel comfortable with it.
-
mcgis - The Oncotype test is not a tumor market but a test on your particular tumor(s)that Oncologists recommend when they are ambivalent about what treatment plan you should have. It tells them whether chemo, for example, would be of benefit to you based on your score. Genomic Labs did mine; the tests was expensive but luckily BCBS paid for mine. My score came back@11 and an 8% chance of recurrence. That percentile included taking Tamoxifen following my RADS treatments which I did. Most oncologists recommend the test because they admitted women were overtreated in the past. Not sure what I would have done if my score was 25. -
I have so many comorblities....which complicates the whole process. my surgeon said 25 is dead center of the gey zone. another concern I have is why don't they check your whole body? its like they focus on one part and don't think it could be elsewhere! !this whole system is messed up. I have PTSD because of past situations. LONG STORY...but it was not over a simple situation. They almost killed me and it is a miracle I am alive....my MDs actually said that! now I need to try to trust the medical community...!? I am a former medical professional, as is my husband! So this whole situation is becoming more and more frustrating. It is made it very hard to seek any medical care, though I know I do not have a choice at this point. They just keep giving me more double talk! Thank you for everyones input! I'm praying for the best outcome and have learned to trust my heart more than anything! -
I also don't kn what reatments are taken into acct. I had IORT single dose high rad. unable to have long slow dose rad.....they say I need some kind of antihormone med....unsure yet what...soooooo many blanks.... -
not sure of anything at this point.....thanks for your input.....I'm just left hanging w little explaining of what's going on.....had IORT ON FIRST SURG ...told ill need antihormone something...had to set my own oncologist appt...that won't b till oct 31. just a lot of nothing! -
Paulette- it looks like you started radiation. My Mo says no chemo after rads anyways. I hear what you are saying about trust. Both my husband and I were another almost done in by medical screw ups and he is well connected in the field. I keep two MO's and act as a medical consumer. I appreciate All the input but, I don't totally trust any of them. Too many different approaches and answers.
You will probably be put on Tamoxifin or an aromatase inhibitor.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team