ER-, PR-, Her2+ Roll call

Six Month Mammo was good!! No problems. I even made them do an ultrasound cuz I was nervous! But no problems. I am thankful!

Hi All, just dropping in to say hi! Now 11 years on since diagnosis in 2002 xxx hope all is going well for you Her2 girls.

Yes, Ausiie-Sharon, congrats. And thanks for posting. I am still in treatment but looking forward to being 11 years out. It is good to hear it actually works for some! What an inspiration that is!

Hello Everyone, I have been lurking the boards for many, many, many months. I have learned a lot here. I have also found hope that I may remain NED, and that even if I don't remain NED, there is hope. I am so glad to have found this site. I am grateful that it exists and to all the people that have posted here. This is my first post on BREASTCANCER.ORG.

I am writing in response to StacieRae's inquiry posted October 14 about radiation following a pCR.

StacieRae, it seems that we share many common things related to our diagnosis and treatment. I also had pCR, and I had radiation. Due to the fact that I had neoadjuvant chemotherapy, I do not have any facts as to whether I had any lymph node involvement prior to beginning treatment. I am a little frustrated by this fact as I know that prognosis is partially determined by lymph node involvement.

With that said, after 16 rounds of chemo I had surgery. I had sentinel nodes(3) removed and a mastectomy. The nodes were "clean." The post-surgery pathological report concluded that there was no evidence of cancer found in my breast tissue. YES!!! Both tumors (4.2 cm & 2.5 cm) were completely gone!! NED!! Initially, my RO said I could go either way; get the rads or pass on rads. Within days, he reconsidered my case and strongly recommended rads. He told me that due to my initial presentation with multifocal disease, I should have rads. Therefore, I had the radiation. I recently completed 25 treatments of Proton Radiation.

well my ladies my last herceptin treatment is this Thursday .... So scare bittersweet .. I can only eat healthy workout and stay positive ... I'm so scare... I still have reconstruction to go but I have no TE on radiated side ... Is reconstruction an option at this point not feel happy any more

Hi Tchr316..so glad you have joined us and it looks like you are doing great in your treatment journey.  Your posting was very encouraging to read..."thank you".  Every little bit helps as we all carry through this.  The feelings that we all have of being scared are so common and well founded.  So easy to say we need to be positive but much harder to do.  Hang in there everyone and do what it takes to keep looking forward and finding all of the good things that surround.  One step at a time and well get there.  Hugs and Love to all  

Annika12, what is the cut off #?  Is it 50%? That one thing that i also scared  of "my heart".  

Annika, Do you go to the same place for your MUGA'S? I always went to the same place and towards the end of my tx they changed the way they did them which resulted in a decrease in my number. Mine bounced back after tx ended. I was told 50 was the number they watch. My onc was happy with anything above that.

annika -- I had a 9% drop between my A/C and 2nd Herceptin (I'm down to 52%). My MO sent me to a cardiologist. He said that a 10% variance is possible due to differences in machines and technicians (and that the variance is common). The cardiologist emphasized the importance of the same technician doing all my ECHO's (my doc doesn't do MUGA's). Thankfully I'm holding steady... You might want a referral to a cardiologist (he was much more reassuring than my MO). Also see if you can get the rest of your MUGA's by the same technician, etc. I think you will have a more consistent result that way. Good Luck!

Hi Sduch.. yes I remember reading that er negative BC recur earlier, around 2-3 years the er positive tumors. That was over 8 years ago. My advice is don't look at the different scales, they are ALL off!

Hi, I've been lurking here for quite a while and decided to go ahead and jump on board; so to speak!

Anyway, I am with you Sduch, its hard not to constantly worry about recurrence. I finished my Chemotherapy on April 28 of this year and all of my subsequent PET and CT Scans have shown that I had a 100% response to treatment. I had a Unilateral Mastectomy after that, but I still cannot help but worry that it will come back. I had ER-/PR-/HER2+++ Invavsive Ductal Carcinoma that grew from 2mm at initial diagnosis to 4.7 mm by the time I started treatment. I have no family History and tested negative for BRCA1 and BRCA2, so my cancer was a complete anomaly. That almost makes me more nervous! I look at recurrence #'s all the time.

Welcome stellina, I am new here too and agree with everything you say. How many chemo treatments are you having? I finished my 2nd TC two weeks ago and have 2 more to go.

All the best to you...

Stellina, I understand how you feel. I am also so impatient for this whole experience to be over! You will find that only the ladies on these threads really understand what we are going through.

Yes I have read the herceptin side effects and they sound just as bad as chemo and I am worried about that too. But in this game, we have to take one day at a time.

I am coping all right but am still worried about the next two treatments because I have paid for a Europe/America trip 4 weeks after the last treatment. It is a 35 day trip in the middle of winter but I am telling myself that I have to get on the plane. Something to look forward to.

Heading for the chemo bar on Tuesday next week. All the best to you.

ok.....Im a little mad...ok a lot mad!! Went for a follow up muga after after missing 2 herceptins and worrying about my heart. The technician said wait a minute let me get someone to run the numbers of your last muga before the test....something isn't right. So come to find out the doctor didn't read it right...didn't double check, my heart is fine a 68% . They did do the test again after talking to mt onc. And she said a 68%69% this time too. Grrrr like I dont have enough worry and tests!!!

hi all..

there is a small query i have.

for er negative pr negative and hr poistive what is the standard protocol these days.

1> dose dense chemo with ac followed by dose dense taxol with herceptin

or

2> tch given in 3 week interval

waiting for your responses..

thanks!