Starting Chemo July 2013

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  • m1970
    m1970 Member Posts: 337
    edited October 2013


    hello ladies. I wonder who is on the home stretch like me. My last carbo/taxotere treatment is in 2 weeks.


    I returned to work a few weeks ago and I am so much happier. 5 months out of work was hard. I was so worried I would be too tired and have no motivation, but in reality I jumped right back in and I've already completed a major deliverable. I took off time for my appointments and chemo and worked from home for 3 days, with the worst of the side effects hitting me over the weekend.

  • 2bluestars
    2bluestars Member Posts: 89
    edited October 2013


    Hi Marsha...I'm on the home stretch! I'm heading out for #7 today, then last one in 2 weeks! I'm super excited, also a little scared to stop the chemo. Wish I they would do the surgery the following Monday after my last chemo, but the bs says I have to wait 4 weeks to heal from the chemo. So that is 4 weeks of no treatment with the cancer tumor, though I had a complete pathological response, its still in there, the "shell" of it anyway. So scared it will start growing again.

  • momx2
    momx2 Member Posts: 109
    edited October 2013


    Marsha , congrats on goingnback to work and almost being done you sound really happy


    2bluestars , you'll be fine enjoy the 4 wks before your surgery . Congrats n good luck to you


    Hope all are doing well , all my best !

  • lark
    lark Member Posts: 61
    edited October 2013


    marsha - i'm almost done. Thursday 10/17 is my last taxol. Glad you're back at work and feeling good about it.


    Donna - thank you for your wise words. I think there were just a few things that built up this week and made me start freaking out. So glad there are women here who can understand and offer encouragement. No one else can fully get it and it gets frustrating to have to try to explain or justify my feelings to them. I have to keep remembering not to let fear rule my life like you said.


    Hugs to all of you.

  • lark
    lark Member Posts: 61
    edited October 2013


    Hannarigs - I forgot to tell you I'm going to the look good, feel better program on Tuesday. You motivated me to give it a try, and what the heck, a little free make up sounds like a good deal too. My eyebrows and lashes are pretty sparse so I could use some help. Hope you're feeling good.

  • angelanature
    angelanature Member Posts: 179
    edited October 2013


    Hi All,my last chemo is this tuesday,yah but ... I still feel conflicted,happy and excited,then wait a minute I'm done with chemo? My brother had lymphoma 15 yrs ago and went through a year of chemo then had a big party after he was done,1 month later went for a scan and the tumor had come back twice as big. He then went through a stem cell transplant with massive chemo and whole body radiation. Good news he has been cancer free since. I'm scared to celebrate or feel a sigh of relief. Change of subject,Lark,I am addicted to my "natural"glue on lashes.After alittle practice I have better lashes than ever,it really looks amazing,and makes me feel beautiful,Arden natural lashes with waterproof glue,lasts 4 to 5 days. My brows I use wax brush on instead of pencil,true cosmetics,llc. Whatever makes us look "normal" and makes us feel good is worth it. For me,no matter how horrible i feel if i look better i feel better. That's not for everyone just i my case it helps.Hugs to all my friends,Angela

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited October 2013


    I'm happy to report some good news today. Because of my anxiety my MO ordered a CT scan just to put my mind at ease. So happy to report that it was completely negative of cancer. So in this moment I am happy to say I am cancer free. Yay!!!! Will that always be the case...only time will tell. I realize my war with cancer may not be over, but I won this battle and I am happy to celebrate the victory!!

  • soriya123
    soriya123 Member Posts: 662
    edited October 2013


    Donna, yay on your negetive scan, so happy for you.

  • momx2
    momx2 Member Posts: 109
    edited October 2013


    Yay Donna , enjoy your victory !


    Angelanata , congrats to you and good luck

  • lark
    lark Member Posts: 61
    edited October 2013


    Donna - So happy that you got good news!!! What a relief that must have been.


    Angela - thanks for your tips on both products. I always thought the lashes would look too long and unnatural, but it might be fun to give them a try.


    Hope everyone is well enough to get out and do something fun this weekend. Hugs to all.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    Woo hoo Donna. That is good news and try to assume it will stay that way. I know it's hard as I still have moments of shear panic despite my big talk. But you are right. If we dwell and worry then that's some precious moments lost.


    Angela thanks for the cosmetics recommendations. I think I'm going to check out the eyelashes as mine are so sparse they look kind of funny with mascara because there are spaces. If eyelashes will last four or five days it's worth it. It seems lashes are later to come back. I have quite a head of 1/4 inch hair but lashes continue to fall and brows still sparse.


    Congrats to all who are finishing up. Celebrate that you made it and will be feeling better soon. I know it seems impossible now but you really will.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    One of my facebook friends posted an article about preventing breast cancer and I can barely hold my tongue. You know breast cancer can be prevented if you stay a healthy weight(check), exercise (check ) and drink less than three drinks per week (how about three drinks per year). I'm so aggravated. Would you ignore it or comment?

  • GraceB1
    GraceB1 Member Posts: 213
    edited October 2013


    I haven't checked in for a while because I've been stuck in the hospital since Monday. My first taxotere hit me so hard. First it was nonstop diareaha and then the vomiting started. Everything is just going straight through me. The Dr. says my WBC is finally starting to edge up but I still may need a transfusion. I'm looking at another two days at least before they let me out. I'm also having bone pain and numbing in my fingers. I'm so discouraged. I don't know how I can handle another 3 treatments.

  • JeriGrace
    JeriGrace Member Posts: 128
    edited October 2013


    GraceB1, so sorry that you're having such a bad experience. I also landed in the hospital after my first Taxotere, although my reaction was not as severe as yours. My doctor reduced the Taxotere by 25% for the next 3 infusions and although they weren't easy, I didn't have to be hospitalized again. Just wanted to let you know that there are options that your doctor will consider and you will make it. I wanted to quit many times but now I am 3 weeks post final chemo and proud to have made it through. Keep fighting!

  • angelanature
    angelanature Member Posts: 179
    edited October 2013


    Hi All,Grace that's terrible I really feel for you being in the hospital its the pits, hang in there girl. Donna,finally some great news! Good for your doctor for ordering it.Twohobbies,I'm with you,how annoying,smoking causes lung cancer,drinking causes liver cancer,breast cancer happens to 1 out of 8 women and all the women I know were healthy,some say not having a child by 35 well i had 2 by 30 and breast fed both of them so there.Marsha so happy we r finishing up and so many others of us,hard to process.Hugs to everyone Angela

  • Girlstrong
    Girlstrong Member Posts: 438
    edited October 2013


    I just had my last dose of AC. I start weekly injections if taxol and Herceptin October 31. I feel like this is never going to end ....... Any words of encouragement are welcome :)

  • soriya123
    soriya123 Member Posts: 662
    edited October 2013


    Girlstrong, Hang in there. You will get injection of taxol n herceptin?

  • gavinsgrandma
    gavinsgrandma Member Posts: 407
    edited October 2013


    Hi Ladies, I started chemo in August and last week I had my last Red Devil and cyclophosphamide infusion, I have 3 weeks off and then I start a 12 treatment protocol of Taxotere. I was just curious how those of you that have had the same protocol tolerated the Taxotere vs A/C?


    Thanks,


    Shary

  • Girlstrong
    Girlstrong Member Posts: 438
    edited October 2013
    Hi Soriya123..yes I am starting taxol with herceptin on October 31st. My doc is still on the fence about perjeta and so she is supposed to call me today to discuss. Hmmmmmmm.....

    How is Taxol compared to AC? Anyone....
  • Hannariggs
    Hannariggs Member Posts: 137
    edited October 2013


    Hi Sisters,


    On week six of 12 taxol's, and although Taxol is easier(in my opinion) than AC, it presents its own problems. I have iced since the first infusion of Taxol, and I still ended up with neuropothy. Numbness and loss of feeling in toes and hands. I have been fighting fatigue, and now fighting strep throat AGAIN! On the positive side, I still work 32-40 hours per week. So very much doable. Even though it sucks going in each week, the weeks seem to be flying by. My daughter and I have done one fund raiser and have a concert planned at the end of the month. With the proceeds we plan on buying gas/grocery cards and handing them out during Thanksgiving to the patients. I have looked in the eyes, and met so many of the patients in the waiting room and we felt it was time to do something for just for them. Its bad enough to have this damn disease let alone being depleted of any/all your savings to receive treatment and then to try and have enough gas to get to weekly or daily treatments. I wont even mention the costs of prescriptions. It may not be a lot, but every little bit helps. I also took up knitting when I was first diagnosed. I have made over 30 scarves and hats that I am taking to the patients. Knitting has been so therapeutic for me and may bring comfort to those that cant afford a hat/scarf.


    So happy that we are nearing that finish line, and so great to hear how everyone is doing. Bring on 2014. We are the firecrackers, and I personally can't wait for that 2014 fireworks display to ring in the new year.....HUGZZZ to all

  • angelanature
    angelanature Member Posts: 179
    edited October 2013


    Hi All,Hannariggs wow,how amazing are you,so glad we are at the end of this chemo rollercoaster.Girlstrong,I know how you feel you just want to get back to your life and be done but that day will come faster than you think. Especially with the holidays,hopefully it will fly by for you.Tomorrow my last Taxol,thank God,it's been so much worse than ac ever was for me.I've never been in so much pain and discomfort,ever! That's very rare though so nobody go by my experience(i'm still icing my swollen knees on day 13 and waking in the night in agony needing painkillers).If i could do it over i would have done the weekly taxol,hindsight's a bitch. Hugs to everyone,Angela

  • JeriGrace
    JeriGrace Member Posts: 128
    edited October 2013


    Hannariggs, thanks to you (and your daughter) for your thoughtfulness toward your fellow chemo warriors. So proud of you, Firecracker!

  • Hannariggs
    Hannariggs Member Posts: 137
    edited October 2013


    Congrats on your last Taxol Angela. I still have 6 weeks to go. I would probably have been just like you if I took the treatments like you did. My poison is gradual. LOL. If I could just get rid of the damn sore throats. Had it on AC and now on Taxol. Grrrrrrrrr Could also be the weather. Its turning cold here in Iowa. One day warm the next cold and rainy. Gotta love fall. Actually for the first time looking forward to winter. Let it snow, let it snow, let it snow. Ok, well maybe after my treatments. Looking back its been a long hard summer. I remember how SCARED I was starting the treatments, and although I look like I have been through a war(and feel like it too), I will emerge the winner. I can't say I would ever want to go through this again, but I have a whole new appreciation for myself and other people that I never had before. I also could never had made it without all of you. It helped so much to know that we are not alone. So "thank you" everyone for just being someone I could vent with.....God Bless

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited October 2013


    congratulations to all the ladies that have finished or are finishing your treatments. It is such a good feeling. I start radiation tomorrow. I hope everything goes well. Hang in there ladies.the finish line is in site. We got this!!!

  • Mellie289
    Mellie289 Member Posts: 156
    edited October 2013


    Hannariggs - that is so amazing what you and your daughter are doing! I'm sure your generosity will be truly appreciated by the people receiving your hats and scarves or benefiting from your fundraiser! I had a bit of a sore throat at the start and some dry mouth. I found that the Oasis dry mouth moisturizing spray helped to alleviate some of the discomfort. Have you tried that? It didn't make it go away entirely, but gave me a little bit of relief.


    Good luck tomorrow on your final taxol, Angela. You've had such a rough go of it - I hope this round will be gentle on you.


    Grace - how horrible for you! I know we will either end up fighting constipation or diarrhea with taxotere, but I hope your MO is now giving you meds to fight nausea and vomiting better! I threw up once my first cycle because I was waiting on some queasiness to go away (nibbled some crackers) 1 week after my infusion - by the time I realized I was going into full blown nausea, I took my anti-emetic too late. My MO told me to just take my Zofran throughout the first week without waiting for nausea to hit since I seem to be sensitive. I usually end up taking that first thing in the morning without waiting for nausea. I have a problem that my insurance company won't fill my whole Zofran prescription (only 12 pills every 15 days) so I also have Compazine and switch to that when I'm running out (and further away from infusion), but I'm still taking it preemptively until day 8 or 9. The downside is those cause constipation, although it sounds like that might not be an issue for you. I hope you and your MO get something sorted for the next cycle to prevent that from happening.

  • lark
    lark Member Posts: 61
    edited October 2013


    So many things to respond to. If I run out of time I'll finish tomorrow.


    Twohobbies - so did you respond to the facebook post? I think its fine to respond so people aren't misled into thinking that it wont happen to them if they follow these simple rules. Its just not so. Just provide information in the right tone so people will take it seriously and not shrug it off and think its just you having an issue with it.


    Grace - sorry to hear how hard the past week has been for you. I hope you're home and doing better. Definitely talk with your dr about your options. Cutting the dose has to be better than stopping completely. Hang in there.


    Girlstrong - what is your schedule now for taxol & herceptin? I haven't heard of doing taxol as an injection I thought it was always an infusion. I know it's so hard to continue, but our best chance to knock these cells out permanently is to force ourselves to do the full treatment. Switching drugs is kind of scary, like starting all over again and not knowing what to expect. For some taxol is easier so give it time and just keep going. For me the fatigue has been the worst part, but thats because my rbc's took such a hit with AC and haven't come up at all on taxol. I've had bone and muscle aches and some nights I've needed a pain killer to get to sleep, but I've been able to tolerate it with just advil during the day. I've had some neuropathy, but not too bad.


    Shary - from what I've heard I think taxotere is very similar to taxol so you can see my message to girlstrong. Its seemed like with AC there were so many different side effects..nausea, mouth sores, constipation, loss of appetite, headaches, etc. With taxol those went away almost completely, but were replaced with achiness and neuropathy and of course the fatigue that I mentioned. I hope taxotere will be easy on you. Anyone on taxotere have a better response?


    Hannarigs - you almost made me cry! You could have sat through your tx focused on yourself and you would have had every right to do that. But you looked around and were touched by other peoples needs. I love that you found simple, but effective ways to help and encourage them. Bless you for your caring heart and helping hands! Wish I could hug you.


    Angela - I'm so glad tomorrow is your last tx. This seems to have been harder on you than most of us. I hope you can start healing and feel normal again quickly.


    Hang in there girls. Hugs to all.

  • Rambo50
    Rambo50 Member Posts: 140
    edited October 2013


    Hi All,


    Congrats to you ladies finishing up - especially Angela tomorrow, WOOHOO!!!!!


    I've got 2 more Taxol treatments, my last is October 30. I'm wondering about post-chemo scans/blood tests; have any of you had them, scheduled, them, talked to your MO about them...??? I'm just SO nervous about possible bone mets - history of bone pain, osteoporosis, bursitis (?) and such. Donna - congrats on a clear scan!!!


    Marsha - congrats on going back to work and nearing the end :) Work has kept me somewhat sane through all this, but now that I'm about to pick up a 3rd class on Wednesday I'm getting nervous. Taxol is taking its toll and I can hardly make it through a day without a nap and the occasional pain pill.


    Grace - hate to hear about your hospital visit :( I hope that you're doing better and are home soon!!! Funny how we all react so differently to the same drugs - that said, Taxol has been MUCH harder on me than A/C. Hugs and feel better.


    2bluestars - congrats to you too on nearing the end too!!! I'm not sure what I'll do with myself between the end of Oct and surgeries in December, but 2014 is going to be MY year :) ALL of ours for SURE!!!


    Girlstrong - hang in there!!! After my A/C phase everyone kept telling me, "You're halfway there!!!" but all I felt was, "OMG, I've got ANOTHER WHOLE HALF of this to go!!!" Even now I feel like these next few weeks are going to last forever. One day at at a time... :)


    Hugs,


    Lynn

  • Nocompromises2013
    Nocompromises2013 Member Posts: 292
    edited October 2013


    Hi Ladies


    So much seems to have gone on whilst I have been away. So I am not going to try to comment individually too much


    Rambo in answer to your post chemo bloods etc. I had mine drawn today (32days post final chemo) and will get results Friday. So can let you know more then. Since I am not doing rads I suspect she will just check oestrogen levels and put me straight on tamoxifen. My onc appt is slightly later due to having been in UK but am really interested to see what my bloods, liver and hormone levels are doing. I have no scans planned and don't expect to get anymore done since CT and bone scans were all clear in June They dont like scanning unless there are suspicious symptoms and I have none :)


    To all those finishing up chemo awesome job - Angela and anyone else that finish line is getting closer for all July firecrackers and a month out my stamina is definately back to where it was prior to chemo - after all the walking around disneyland , Paris and London. A mere 18holes of golf this morning felt easy ( and I got my best score for 2013) so the old me is back detoxified and better than ever before and we will all experience that sooner or later


    As Hannariggs (I think) put it - we are all so fortunate to have been able to help, encourage and be there for each other on this crappy journey - this forum has been an absolute lifeline for me - congrats to you and your daughter for being so caring and generous


    Donna - so pleased for you re scans - that's awesome news


    Xx

  • Mellie289
    Mellie289 Member Posts: 156
    edited October 2013


    My last treatment is November 6th - I feel like I'm going to be one of the last in this group to be done. I wish this could have been done DD - I'm jealous of all of you finishing up! Oh well. TC #5 tomorrow. I'm hoping that my peripheral neuropathy doesn't get any worse this time. Just when it seems that all the past pokes are healed on my arms I need to get going to get my blood drawn again. *sigh*

  • Girlstrong
    Girlstrong Member Posts: 438
    edited October 2013
    HI Mellie289; you won't be the last one in this group; I may be :). I start weekly Taxol/herceptin on Halloween. I am glad that this is not dose dense. I had enough of that with AC. AT least you will be done with chemo for the holidays!! My end date is mid January. Anyone else in this group sticking around that long? 6 months of chemo seems like Forever.

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