xtandi

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OBXK
OBXK Member Posts: 791
edited June 2014 in Clinical Trials, Research News, Podcasts, and Study Results

I am a week into a trial for xtandi. It has been used for prostate cancer. I had to have my tumor checked to see if I was AR positive. I hAve TNBC. So far the SE's are fatigue and back pain. It'll try to keep an update here, since so few women have been on it.

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  • leggo
    leggo Member Posts: 3,293
    edited September 2013

    Looking forward to hearing how you're doing on it. Good luck!

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  • OBXK
    OBXK Member Posts: 791
    edited September 2013

    Day 11 - having a hard time with muscle spasms. Saw my PCP and was given a script for Skalaxin. It does not make you drowsy like some others can. I had it approved by trial nurse. Also had flu shot approved.

    Cognitive dysfunction big time. I think I would now be afraid to drive.

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  • OBXK
    OBXK Member Posts: 791
    edited September 2013

    Turns out not all days are bad. Some I awaken confused and it doesn't clear until early afternoon.

    Having an MRI, due to the back pain. Bone scan showed lesions concerning for mets.

    I meet with the trial doctor on 9/23 to dicuss MRI results and find out if I can stay in the trial, pending results.

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  • OBXK
    OBXK Member Posts: 791
    edited October 2013


    Mets from T3 - T12. It did not effect my being in the trial. I will have a CT scan next week, to see if the drug is working. A progression of over 5% - means I would be out of the trial. I see the MO and research team in a week.

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  • OBXK
    OBXK Member Posts: 791
    edited October 2013

    CT showed progression. I'm out of the trial. 

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited October 2013


    That sucks. I hope the next treatment will slow down this train.

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