Call back for more mammo views

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I'm 14 years past Stage II breast cancer, chemo, radiation, etc. & I just got a registered letter from my doc's office (I had my mammogram just two days ago. They must have mailed that letter right after I left the office) that said to contact my doc's office to schedule more images.


The report says there is "focal asymmetry" by the original tumor site. I'm not a newbie to mammograms, so I knew when the tech took 7 pictures of my left breast that something was not as it should be (or maybe she wasn't the best x-ray tech at catching the perfect picture). Now, I'm waiting for a call-back to schedule the additional images.


Now, "focal asymmetry" usually just means they want a closer look at a spot (in this case, a compression view). but, as we all know, nothing seems to happen quickly in medicine unless they think something is wrong. I'm not rattled by the "focal asymmetry" tag as much as I am by the quick notification to come back in --- I guess, they could have called instead of sending a registered letter if it were really urgent.


I'm trying to not worry, but, darn it! I am worried.


So, here I sit, (I already walked a mile while waiting for the call-back) waiting to hear from the doctor's office about going back in for more views.


I've read that focal asymmetry has about a 1% chance of being something bad. I just worry that, 1. it's by the original cancer site and 2. I've had how many mammograms of that breast over the past 14 years that came back OK


Any words of wisdom or tales of favorite relaxation techniques to use while I wait?

Comments

  • jenlee
    jenlee Member Posts: 504
    edited October 2013


    Groucho,


    I just had biopsies today, almost 1.5 yrs after bilateral BMX. They wanted me to wait a few days for biopsy, but I begged very nicely, so I'm now waiting for pathology results. I thought I was going to fall apart as this was all going on today, but I'm surprised that I'm calm now. Enormous dinner of an entire spaghetti squash, so I'm in a bit of a food coma, which is surprisingly peaceful. I am trained in Transcendental Meditation, but am too full and would fall asleep. I don't normally drink, but perhaps a glass of wine, some relaxing music, etc. would help you. If all else fails, some junky television or a novel normally help me escape. This afternoon, I watched TV and worked on a craft project, even though I should have been doing other things. Indulge yourself with a massage or get someone to give you one. I just checked on line and found some free guided meditations that you could try: http://www.fragrantheart.com/cms/free-audio-meditations#relax. In fact, google "guided meditations" and you'll be able to choose from many. I hope that perhaps one of these suggestions might help you. I'm not familiar with focal asymmetry, but your 1% statistic is very encouraging, so if you do start thinking negative thoughts, remind yourself of the 1%.


    Sending positive thoughts and hugs,


    Jenifer

  • groucho2
    groucho2 Member Posts: 51
    edited October 2013


    Thanks for the suggestions, jenlee. I walked my dogs a couple of miles, held my purring cat for awhile, and will do a stretching routine and listen to a relaxation meditation tonight.


    Best wishes and positive thoughts on your biopsies. Thanks for taking time to respond to my stesses when you're in the middle of some big stresses yourself!

  • jenlee
    jenlee Member Posts: 504
    edited October 2013


    Groucho, got the call today and pathology is negative. Will be checking back and hoping for the same need for you.

  • groucho2
    groucho2 Member Posts: 51
    edited October 2013


    That's great news! I'm so happy for you, jenlee!


    I called my doctor's office again today about scheduling images. Unfortunately, the office is "backed up" and they hadn't even looked at my report. This information came only after I called 3X (in two days; I thought I was very restrained!) and told the person who answered the phones that, if I could leave work to pick up a registered letter that told me to call the doctor's office, they could take the time to tell me what was going on.


    So, it looks like I'll have to wait until I actually see my doctor on Monday before I have any clue about what is going on. If my oncologist had actually looked at the radiology report and done nothing, I'd feel more relaxed about this. Since the radiologist sent the registered letter immediately (and the tech took about 7 different pictures of my L breast, focusing on one particular area), I'm feeling nervous about my results again. I've learned that the techs are usually good at spotting abnormalities.


    I'm feeling very frustrated with the doctor's office right now. He is the head of the Cancer Center at a local hospital. Seems like he is always behind, and the using the Cancer Center is like being on a long waiting list. I used to go to a free-standing radiology clinic for my mammograms. There, I would wait for my results and get an on the spot ultrasound if the radiologist thought it was necessary. The hospital tore it down to build a new office building.

  • jenlee
    jenlee Member Posts: 504
    edited October 2013


    So sorry that you have to wait. It's unacceptable to treat "customers" this way. Sometimes I ask for favors or even beg. But I think that sometimes we're all afraid of getting doctors and staff angry. I hope that you find something very distracting to do over the weekend. Sending positive thoughts

  • groucho2
    groucho2 Member Posts: 51
    edited October 2013


    First, the doctor was very apologetic that they did not respond to my messages. She said she never got any messages (Later, I heard her talking to some clerical workers. I heard, "She kept talking about a registered letter. What's a registered letter? We don't send those!"). It appears someone didn't pass the messages on...


    Anyway, my "focal asymmetry" appeared last year and appears to be more "prominent' and "dense" this year. The the report also says it likely breast parenchyma (essentially means breast tissue). BIRADS = 0 (the prominent and dense don't sound wonderful).


    So, I should have some answers after an ultrasound and more views on Friday.


    I think the PA was trying to reassure me that I won't have to wait and stress about my results this time, but she said, "They'll either give you the 'all clear' before you leave Radiology on Friday or they'll give you some paperwork. If you get paperwork, bring it over here and we'll get you right in to see the breast surgeon."


    I think she was trying to reassure me they'd be no wait to interpret results this time. However, it came out all wrong! Telling me I could talk to the Breast Surgeon right away does not make me feel all warm and fuzzy inside or give me a sense of security!

  • karensimone
    karensimone Member Posts: 16
    edited October 2013


    Hi: I have not posted in a long time. I was diagnosed in July 2011, had a lumpectomy and chemo and radiation (my onocyote score was 31) Completed all treatment and exactly one year later almost to the day I had a mammogram and they found a different type cancer in same breast. I had a mastectomy on both . My Dr . has assured me I have done everything possible to prevent it from coming back, however how are you monitored if there is no breast to examine. I worry about this. I belong to a support group of women with all different types of cancer, Two of them just had a recurrence , One with ovarian cancer not even 3 mos after she completed treatment and another 5 years after with a recurrence of lung cancer. Anyway anyone out there have suggestions or tests they have had after mastectomy

  • groucho2
    groucho2 Member Posts: 51
    edited October 2013


    Hi karensimone,


    When I was first diagnosed, the wife of a coworker had a recurrence after 15 cancer-free years. In my mind, 15 years is the benchmark I have to get by without a recurrence.


    I did surgery, chemo, radiation, tamoxifen, femara, evista, etc,. just to do everything so it doesn't come back.


    It's all a guess, an educated guess, but still a guess.


    There's so much we don't know/things they know but don't telll us. For 3 years, my doc wanted to do genetic testing since I was 40 when diagnosed. This year, when I mentioned the melanoma I had removed, the magically insurance purse openned up and I was approved for testing. Hmmm, is there a link between Melanoma and Breast Cancer? Yes, there is a big link --- almost 3X as likely to get melanoma after breast cancer compared to someone who never had breast cancer.


    And yes, a positive result on the genetic test would scare me. What difference does it really make if you know? I have no relatives to warn, no kids to worry about.


    I also learned there's many cardiac side effects and problems that show up after having radiation on the left breast side.


    Sometimes it feels like I joined a club I didnt ask to join (no ones to join the cancer club) and then, when I think I've left it behind, I find out it is the gift that keeps on giving in many, strange ways..


    I'd like to give up my membership in the cancer club; Anyone else want to join me? Let's leave the memories, side effects, body and emotional changes and worries about the future behind.


    Wait, where will that leave us? Better?

  • bluepearl
    bluepearl Member Posts: 961
    edited October 2013


    I'd like to jump in here and say that no one is guaranteed anything cancer or no cancer. Since my diagnosis, I've lost several friends to heart attacks and primary bone cancer and leukemia. They were "healthier" than me with one foot in the grave, but look what happened! Grab each day and enjoy it. Do not let cancer rob you of that. We all belong to some club or another. Please be mindful of the hours and the days, enjoy your friends and family, love them and your pets etc. No one is guaranteed anything.

  • koshka1
    koshka1 Member Posts: 678
    edited October 2013


    Groucho, I am going through the exact same thing. I am 5 years out. Had mammo in August , had compression mammo, and u/s. U/S was clear. Radiologist says there was an area this year "slightly" brighter than last year (which means denser) ... Referred to it as a "nodular density." Not a new area..... He says he thinks it is "summation artifact" which is overlapping skin and scar tissue. I am waiting for my breast MRI results as he wants to be thorough. I had a breast MRI 6 months ago that was clear so one would think this was there and picked up. My original cancer was grade1 slow growing.


    I know it is stressful.... Hang in there:)


    Hugs Kosh

  • groucho2
    groucho2 Member Posts: 51
    edited October 2013


    koshka1, I had my compression mammo (ouch!) today and a sonnagram.. I got the ALL CLEAR!


    I hope that your results consist of an "all clear" too.


    Now that my stress has ended on a positive note, I hope that your outcome is also a positve one.

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2013


    groucho, congratulations on your "ALL CLEAR" result!


    😃


    And best wishes for everyone dealing with testing uncertainty.

  • koshka1
    koshka1 Member Posts: 678
    edited October 2013


    Hi Groucho!! Yup! Got my all clear too!!! woot woot for both of us!!!


    Hugs


    Kosh

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