Calling all TNs

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  • PeggySull
    PeggySull Member Posts: 686
    edited October 2013


    oh naan,


    So hoping that they care gently for you and that they fix you up quick in the hospital so you can get on with things. Sending you hope.


    Hugs,


    Peggy

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  • DorMac
    DorMac Member Posts: 155
    edited October 2013


    naan - so very sorry to hear of yet another bump in the road - enough already! Hoping this can be dealt with quickly and you can return home to your family soon. {{HUGS}}


    Doreen

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  • Angstapp
    Angstapp Member Posts: 121
    edited October 2013


    Oh Naan, this is just a speed hump hunny, rest up and get better, sending lots of love and healing to you xoxoxoxo

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  • kathyrnn
    kathyrnn Member Posts: 393
    edited October 2013


    Naan-I hope that by the time you read this you will be well on the way to feeling better.


    TifJ - HAPPY BIRTHDAY!!!

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2013
    Oh Naan. So sorry to hear of yet another thing to make you feel bad. Wish I lived closer....I'd come to visit and bring some juicy cheeseburgers! Get better soon and get home.


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  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2013
    Happy Birthday, Tifj. Celebrate, celebrate and celebrate some more.
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  • Titan
    Titan Member Posts: 2,956
    edited October 2013


    Naan..thinking of of you lady!


    Mags..thinking of you too,,,,for your Thursday appt.....

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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2013


    Thanks for the birthday wishes! It has been a very nice day!


    Sending good thoughts and hugs to all!

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  • bak94
    bak94 Member Posts: 1,846
    edited October 2013


    Kathy-Thank you for speaking up for us.


    Happy Bday Tif! I used to hate bdays now I really appreciate them!


    Any news mags?


    I think I am losing my mind. I made 3 mortgage payments this month and overdrew my account over a thousand dollars! It's a long story, I won't bore everyone, but it is going to take a few days for the bank to correct, meanwhile account is overdrawn and I haven't told hubby. Hope he doesn't need to go buy anything.


    I have been having severe pain in my calf and no one can figure out why. It is really affecting me and I don't know what to do. They did an ultrasound to rule out a clot. I am terrified of having a scan, because it could be something bad pressing on my sciatic, but I can not continue living like this. I told my doc how much pain I was in and she had the ultrasound done and then just said go do some physical therapy! I have to toughen up and just get a scan, my mo appointment is coming up soon so I will tell her again about my pain. Not one doc will give me any pain medicine. I have not had pain medicine since my hysterectomy a year ago and I feel like they think I am addicted. I just want this pain to stop! I can't imagine what others go through with this pain crap. It also could be neuropathy, which I have really bad and it is getting worse. I am so close to be diabetic which probably is making that worse. I feel like I should be appreciative of being alive and I am but I just want to feel good for at least one day. OK I will take a half day! Another rant by me, Im sorry. I am just miserable.

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  • BanR
    BanR Member Posts: 289
    edited October 2013


    Hi ladies..


    Firstly, i love this really active thread started by Titan 3 years ago! so so happy to see her still participating.


    I have been recently diagnosed with triple negative, i will turn 35 this month.


    Lumpectomy done, 1.2 cm tumor, margins clear and nodes negative.


    Will begin dose sense FEC (4) follwed by Taxol( 3 weeks, 4 times), then radiation.


    I have heard that there is high chance of recurrence/ metastases in 5 years... and I desperately want the next 5 years to fly fast..I have a 5 year old daughter and its a wrong time to get this.


    no family history of cancer( know of past 5 gens), had baby at 30, breastfed her for really long, never took any hormonal pills, never took cigarrates and alcohol, had my cycles at the right time ( not early).. spent almost my entire life in a pollution free small town, a normal healthy life was what i was living... and still i got it.


    Lets hold each others hands and sail through together.


    all my love!!

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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2013


    Thanks Bak! I'm sorry you are having a rough time right now. If you need meds- I would find another doctor. You shouldn't ever have to be in pain. I hope you get some answers soon and that the pain is nothing serious.


    Welcome BanR. From what I understand the biggest chance of recurrence for TN is in the first 3 years then it rapidly declines. Hormone positive recurrences don't start going down until 5 years. Unfortunately, it can happen with any cancer at any time. Cancer doesn't seem to want to follow any rules. it's a sad fact that we all live with this fear, but it does diminish some as time goes on. I am 3 years past and do still think about it in some way everyday, though I am not fearful for my life, but I also have every ache and pain that lasts longer than 2 weeks checked out. I hope you have an easy time with treatment.

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  • lizlori
    lizlori Member Posts: 148
    edited October 2013


    bak94- It frustrates me when I hear Dr.s not listen to their patients about pain. I think some Docs lose their common sense when it comes to pain meds. If pain meds are monitored, there should not be any reason to not have them, providing they do not interact with other meds. If they are so concerned about addiction, you could do whats called a contract, basically you agree to take them as scheduled. Where I use to live, the Doc would do that. My primary wanted to do that, but it pissed me off, and I didn't want to go that route, cuz I didn't feel I was addicted. So I stopped taking the pain med and took over the counter meds...


    As a nurse, I am a stickler about pain issues....Docs just have to be smart about this issue...I encourage you to be persistent with this, cuz you SHOULD NOT be in pain. Again I am sorry you are going through this.

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  • adagio
    adagio Member Posts: 982
    edited October 2013


    banR - welcome to the site, but sorry you have to be here. But you will learn so much from the wonderful ladies on here - this site is a life-line for many of us. I hear you when you say you did all the right things and still got cancer - same with me - breast fed all my babies for extended periods, lived a healthy lifestyle, no history of cancer in the family at all and still got it. From going to various groups and reading lots, I am beginning to see a connection between stress and cancer - but who knows?


    Glad you have a treatment plan all lined up - it will be difficult for you some days, but in the main, chemo is do-able - just remember the most important thing is to look after yourself and rest when you need to - this could be a challenge for you with a 5 year old. Accept help when it is offered - do no try to go it alone! When is your first chemo?

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  • BanR
    BanR Member Posts: 289
    edited October 2013


    Thanks TifJ and adagio! I am mentally prepared for chemo and i willl take it one step at a time..i have 8 rounds lined up!


    the first one begins probably nov 1st week, supposed to begin october 28th but my stitches have not yet healed and the surgeon asks the onco for more time.


    even i feel stress could be a cause.. i strongly feel in fact.


    hence i have decided to practise some stress management, music, meditation etc during the treatment. but to be honest, the scare for the next 5 to 8 years will be there..but now i have just decided to accept it.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2013


    BanR...welcome to the wonderful family here.


    MRI results are in ....it appears to be related to surgery and NOT malignant in nature....woot woot....happy happy dance dance


    Maggie

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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2013


    WOO HOO MAGGIE!!! That is awesome news!! Dancing with you!!

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  • jenjenl
    jenjenl Member Posts: 948
    edited October 2013


    Mags - wonderful news....so happy for you!

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  • jenjenl
    jenjenl Member Posts: 948
    edited October 2013


    BanR - we are here for you! My kids were the hardest part of my dx.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2013


    On lunch break so not got a lot of time but Mags wonderful, wonderful news. Its raining here and you have just brightened my day. Such Great news. xxoox

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  • lizlori
    lizlori Member Posts: 148
    edited October 2013


    So so happy for you mags...such awesome news......

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  • adagio
    adagio Member Posts: 982
    edited October 2013


    mags - what a relief!!! Now simply relax and embrace LIFE!

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  • Angstapp
    Angstapp Member Posts: 121
    edited October 2013


    Good stuff Mags xox

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  • Titan
    Titan Member Posts: 2,956
    edited October 2013


    ha ha MAGGIE...F** U CANCER....(sorry to swear..but not really)

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited October 2013


    Ban, a very warm welcome to the forum. I like how you have such a great head on your shoulder and have an action plan in place. You can do this!!


    Since others might come across this post, I just want to clarify what you wrote. The fact is that actually the majority of TNBC women will not have a recurrence. Of those that do recur, data shows that about half happen between 3 mo and 12 months and the other half about 2 - 3 years, and it might have a higher risk of mets over other types of bc, because TNBC can recur either locally, local regional, or a distant part. However after 3 years, survival stats increase significantly. However, remember, that the majority will not occur. And a recurrence doesn't mean it will be systemic, it could be a local recurrence. I know someone who had a local recurrence 6 months after original, and she is now 5 years cancer free. But in the first 5 years there is not a high risk of mets. There is a high chance that you will not have a recurrence. However, if a recurrence does occur, it can be a higher risk of mets over other types of bc, but the key here is that the majority of women will not have a recurrence.


    I have a PDF from the TNBC foundation that states the majority of TNBC women will not have a recurrence. If you PM me your e-mail address, I'd be happy to e-mail it to you, and I do this quite often for anyone who wants it.


    The thing to remember is that the majority of TNBC will not recur.


    Also, this article references something about survival rate at 10 years they think is very high, and if you had a tumor smaller than 1.0 cm. With yours being so close to that size, you might find comfort and strength with these stats and this information:


    http://www.ascopost.com/issues/december-15-2012/current-perspectives-on-triple-negative-breast-cancers.aspx


    Another important thing is diet and exercise, so I'm including a link for you as well.


    http://nosurrenderbreastcancerhelp.org/page93/page100/page100.html


    What a lot of TNBC women do is concentrate as well on reducing sugar and fat grams. Fat grams to about 20-30 day max. So eating healthy, but should still avoid too much fat, even too much of the good fat, such as nuts and avocado, but it's okay to have some of course.


    If you e-mail me I'll send you a nutrition information from a BC nutritionist who specializes in TNBC diets. Another forum member went to this specialty bc nutritionist and she shared the information with us.


    We are all here for you - holding your hand and please tell us how we can help you!

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited October 2013


    MAGGIE!!!!!!! I'm thrilled with your news! :)

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  • Ka-cey
    Ka-cey Member Posts: 18
    edited October 2013


    Hello Ladies


    I received the results of my biopsy, and it was fat necrosis, what a relief.


    Mags, congrats on the good news.


    Naan, I am thinking of you, and I hope that you will be home with your family very soon.


    Kathy, thank you for speaking for all of us. I feel I have a lot in common with Michelle. My middle name is Michelle and we plan to travel in our RV when my hubby retires, just like Michelle said she and her husband were planning.


    Inspired by D, thank you for your note a few weeks ago when I had my mammogram and ultrasound, resulting in the need for a core biopsy.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2013
    Happy dance for mags and Ka-cey!!!

    Hows things going, Naan?

    Guilty pleasures today...made homemade chocolate chip cookies. Ate 4 of them.

    Navyson coming home tomorrow. The cookies are for him, but couldn't I help myself!
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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited October 2013


    Ka-cey - so wonderful to hear your news!!!!!!


    This is the way to rock the forums ladies - keep posting with all your fabulous news. Our group needed to hear all of this! Wonderful. :)

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  • Stupidboob
    Stupidboob Member Posts: 345
    edited October 2013


    I just wanted to say hi to everyone..............:)


    I am sorry for all the sad and selfishly that is why I stay away. I can't deal......:( :(:( Hubby and I are sick with something and that has my emotions all over everywhere and just dealing with the "new" after radiation and the pain. I am hurting where the tumor was but hoping it is still from the radiation.


    My thoughts and prayers are with EACH person on this group...........I am only sorry that I can not be here like I would like to be to offer support but when you are a mess yourself, you can't be of much help....(well I feel like I can't)


    God Bless you all

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited October 2013


    Kathy- thank you!! Not good news at all. Hope all is well with everyone else. Definitely not good news to receive.

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