August 2013 Chemo Sisters
Comments
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FMG & Lisa - YAY for the last one!!! That must be such a good feeling.
Candi - That would make me nervous, too. I have my last AC Thurs, and then Taxol in two weeks, so I don't know about the steroids for me yet. I know there is a big concern regarding allergic reaction to Taxol, so that's probably why. I won't sleep for a week if I have to take that much, though. Yikes. -
Lisasp- I brought up the radiation issue st my appointment today...thanks for the suggestion cause I now have an appointment scheduled for Nov.1. Good to know by next month, Lord willing, I will have moved on past chemo. How is your last day? Thinking of you and Fmgd today...congratulations on basically being done...I know it doesn't quite count until you get past the SE stage.
My counts are low again this week so I get two shots, antibiotics, and something for my thrush. Doc said avoid crowds/sick people for next 48 hrs. Hard to do with a sick husband. Also, trying to decide if that means my sons soccer playoff game today. Probably last game of season. Humm. -
mankatostate, I'm usually the one who says if you feel good, do it; however, if your counts are low + your doctor recomments avoiding crowds + sick people for 48 hours, I suggest you follow his instruction . . . including banning your husband to the sofa and avoiding your son's soccer game.
You have to put your health first. It's only 48 hours! Your son will have more soccer games + your husband can fend for himself for a day or two . . . especially if it means you getting better soon! -
FMG- I probably should of but I went to the game. :-0...It was outdoors and I sat far from all. I figured it was probably safer than going to the clinic to get my shot which he requested I do today. I am glad I did as it was a playoff game and they won in overtime so it was an exciting game. The next game is an away game so I am sure I won't be able to go and it will most likely be the last game of the season. I just needed to get out too. I did banish my husband to the other room though. :-) -
Just to update all of u, I'm in the hospital cause I have not had a lot if energy, am nauseous, have low appetite, difficulty getting around without shortness of breath and coughing. I came into the ER per my onc and family request. Dr thinks I might have pneumonia. What next? -
Naan, have they checked your blood counts? How long since your last chemo? I have been in the hospital twice in the last three weeks with very low blood counts and fevers. They did all kinds of cultures but never found anything. Had to get IV antibiotics and wait for the counts to come up. I assume the did/will do a chest Xray if you are having shortness of breath and coughing? That will show if you might have a pneumonia brewing, something they can treat with antibiotics. It would be good for you to do some deep breathing exercises to try to open up your lungs. I hope you feel better soon, and I hope they figure out the problem so they can fix it!
Martha -
Feel better soon Julie! -
Thinking of you Julie. Keep us updated. Hope they get you on the right track soon! -
praying for you naan! I hope you are feeling better soon! -
So sorry to hear about everyone's hospital battles!! I'm praying for you guys and hoping it gets better!!
As for me I got my first taxol last Tuesday and it didn't seem that bad until all the really bad bone aches came, I'm only 29 and I felt like I was 89, I could barely walk! I feel like I can finally see the end to chemo and I'm so excited about that. If my counts stay good and I can keep doing the biweekly treatments my last treatment will be on November 12th so a month and a couples days to go! Then my surgeon and oncologist said 4-6 weeks then radiation begins for 28 days!
As to the question someone said about steroids prior to chemo I take 5 at 10pm the night before chemo and 5 at 6 am the day of chemo then they give me more steroids when I get there! It sure does seen like a lot of pills but i know it's better than having a reaction to the taxol!
Have a good rest of the week everyone, good luck with the side effects and treatments to come!! -
SaltyJack and Sewstrong...I am praying for you with your bone pain...Hoping that you Sharon can do well at the reunion! Salty I am praying that your counts come up. I have been following you both (and the others) on the other thread you are both on, but haven 't posted as I worry I maybe too young to join. Do you know if they are still keeping it older women or are their women in their 40's posting. Either way know I am thinking (and praying for you both) this weekend. -
I'm at AC #4 right now. So glad that after today I will be halfway done - and ALL done with the red devil!!!!! Knocking on wood that I tolerate this last round as well as the first three. -
LHL-So glad for you too...Great feeling isn't it! So stupid that we have to go thru this all! This week has been hard for me. I have one more and I just want to quit...so sick of being sick and tired! And tired of having everyone say "you can do it" or you are so strong...nope not strong...just have no other choice if I want to kick cancer's butt. You are half way there...you can do it...(there I said it too!) -
Hannariggs: thanks for that update! I opted for 12-week Taxol and had my first round (with Herceptin) yesterday. Can't believe how much better day after is opposed to the A/C!!!
Julie: So sorry for all the problems you've been having. Wish I could give you a big hug!!!
Ashley: You are doing great!!! How's hubby holding up? -
Hello everyone! Yes, Monday was my last round of T/C and Tuesday was my last Neulasta. Hooray!!!!
No bad symptoms to speak of outside of more fatigue, and it seemed that the Ativan made me sleepy for the first time. I think I should go through this last round ok.
I return in 2 weeks to the MO for the post chemo check and a flu shot. Then a couple days later-- the port comes out! Ugh. It's basically the same thing all over, no food after midnight, get there at 6:30 am, they take it out w local sedation and Versed (amnesia drug) and I'm out of there by 10. Good.
Rads start October 28. I'll be outside with the pumpkins glowing in the dark for Halloween.
Looking forward to seeing some of you join me at the end of this road. And for those of you in the midst of it all, all my best to you.
Julie, especially take care and I hope they beat that pneumonia right away! Much love. -
Mankatostate, you hit the nail right on the head with being so tired of people saying "you can do it" or "you are so strong." I hate it too. I keep the front up for everyone I see, but lately I find myself a little less cheery around everyone. And of course they all have their stories about their friend or relative who went through it too. You are right, we don't have a choice. Actually we do, but the alternative is not an option in my mind. I will do whatever treatment they recommend. I do feel bad, one of the housekeepers at work just lost her sister to breast cancer last week, and now that she is back at work I think that whenever she sees me it's a fresh reminder for her. But she is being very sweet.
We are all WARRIORS, and we will SURVIVE! Just keep looking at the end of the process, it gets a little closer each day.
Martha -
Hello - I have my last chemo treatment tomorrow and I am really dreading going. Just like mankatostate said I just want to quit. My muscles in my legs hurt so bad I can barely walk. I definitely have to get that under control or will be in a wheelchair soon. I have had so many issues just like everyone else and it just doesn't seem fair that we all have to go through this. Today was the first day without side effects of migraine headache, diahrea or naseau and now I have to go back through this all again. I just need to do this one more time so I can move on and get on with my implant surgery and back to work ad my new normal life. This has been a journey I hope none of us have to repeat!! Oh I forgot I have been diagnosed with lymphodem as well arm swelled double in size ..... What else can happen.... Really!! I just want my life back. Starting to give up and feel negative. Wishing everyone well!! -
Togetherness - {hugs} You can do it! Just one more. I know dealing with all of these SEs is horrible... but you are almost there! I'm sorry about the lymphodema. My friend has it in her leg (they nicked something when they removed her ovaries) and she has to wear a compression garment on her leg from now on. Frustrating to be sure.
LisaSP - Congrats on being able to say LAST ROUND!!! Woohoooooo!
I had round 4 of AC today. Start taxol in two weeks. I came home and slept for four hours. I think I could have slept more, but it was past time for more nausea meds so I got up. Probably a good thing, so maybe I'll sleep tonight. -
I pray that everyone is well.
My last nfusion is tomorrow and I feel very strange about it. I have what seems like a period so maybe I'm just emotional. I feel anxious, aggravated, nervous, concerned, stressed + uneasy . . . when I thought I would be excited, ready to party + so through with it (chemo). I wonder why I feel this way. I even have my "last chemo" sign + camera to take the picture of my last treatment . . . complete with bald head.
Tonight, for the first time, I have slight feelings of pins + needles in my hands + I have light spasms in the strangest of places.
I guess over the last 2-1/2 months I gotten used to chemo (in a strange way) and after tomorrow I'm going back into the unknown . . . Tamoxifen. My body will have to detoxify, readjust + reset . . . just to get used to a newer norm, that will last for 5 years.
I can almost say that I feel . . . a little down!
God is great + this, too, will pass. In the meantime, I will allow myself to feel however I feel. I will copy this post + add it to my journal.
May you rest in perfect peace on the wings of angels! -
togetherness and fmgd- hope all goes well for you tomorrow! Hope I didn't miss anyone else! Yay for the last one! Fmgd my fingers are tingling too. Mine started before last chemo so I hope I can make it one more time without permanent damage...I will say a prayer for you with that.
Lisa glad all seems to be going as expected...yay for being done. I will be following you soon to radiation. One more and my consult appointment is Nov. 1.
I finally got a nap in today. Haven't napped since chemo started. Just feel asleep reading, how cool is that! However, it was just an hour ago... :-0 so now I will probably be up all night! ;-) -
TanyaF: After the steroids wore off after my first TC treatment, I developed a spreading rash too...started in hands and neck and spread all over by the third night. Took lots of Benadryl & Hydrocortisone 1% cream, but I couldnt keep up with the rash. Saw my MO and they prescribed a better med & cream for me to use and it worked great! Also Aveeno Oatmeal bath helped.
They say it was a drug reaction to the taxotere. -
To those of you getting your last treatment today......CONGRATULATIONS!!!! You made it! It does take you into a new unknown. I wish you well. I still have a ways to go.....round 3 of A/C next Thursday. SO tired of this, but know I have to do it.
I hope everyone has a restful weekend!
Martha -
Today I had my last nfusion!!! My MO was really pleased with how my chemo went; according to her I sailed through it without any significant incidents or challenges. I asked if I would receive a "certificate of completion" she laughed and check to see if they had anything, they didn't.
Neulasta shot tomorrow. Then I will have a month off before the next round: Tamoxafin + replacement of tissue expander
In November I plan to start detoxing and adding raw foods to my diet . I am also joining an organic co-op (I got the info from this site).
My body is craving roughage; I think I'm going to eat a salad including raw spinach, carrots, peeled cucumber, mixed greens, red onion + pine nuts. I don't think it will hurt, do you?
Togetherness, how did you make out today? What's next for you? -
Formygrandaughter - I made it well through the treatment. My veins cooperated and did not collapse. It took four pokes to get a vein, that is a plus for me.... Yipeeeee!! I go in for my Neulasta shot tomorrow as well. We discussed not doing it due to the muscle pain, but chose to go ahead with it to keep my blood counts up. My implant surgery is scheduled for nov. 5th so about four weeks since my last chemo treatment as well. He said after my surgery we will discuss hormone treatment. Since I am post menopausal they mention another drug that started with an "a" instead of tamoxafin. I need to google it to find more about it. I have the name written down!! I am hoping for minimal or at least more manageable side effects this weekend and next week. I am elated to have the chemo portion done. I am like you I can't wait to start eating raw vegetables. I will wait a few weeks and then look out...... Yum!!! I am going to check out the organic coop you mentioned and see if there is one in my area.
Hope everyone has a good weekend with lots of rest and minimal issues!!! God is good!!! -
I'm glad so many of us are done with the chemo; I have two more left. The side effects are staying minimal although I might be redeveloping a post mammogram abscess, but it's moving slowly if that's what's happening. Now I'm starting to worry about Rads.
I'm starting to have another emotional weekend and this time, instead of waving a flag on FaceBook, which worked but for which I am also sort of ashamed to have done. It bothers me that my supposed best friend hasn't seen me since early July and only called that emotional weekend. I know she hates dealing with other people's problems and things she can't control, but gimme a break. I guess giving a "Hey, I'm lonely and need some company" shame is from my family, I was always accused of doing things for attention. I say accused because years later I found out a lot of those times I had major injuries that went untreated (thanks mom...). A hamstring avulsion, two broken arms, knees the size of volleyballs (she also forced me to dance). So I am loathe to ask for any soothing, my remaining family kind of still treats me this way, as though I got cancer on purpose so I'd get more attention. It's nuts, I know, but it's a nutty family.
So I'll stay quiet on Facebook, get what I can where I can. Pet the dogs. Make banana bread.
So who's already had Rads and what can I expect? -
I just had my last Neulasta shot! I hoping for all of the benefits + none of the side effects! -
Just a quick question to all. Has anyone on the t/c treatment received a rash like a sunburn face, chest and arms. It looks like I have third degree burns. I went this am to get the Neulasta shot and the nurse said to use topical benadryl. Just want to know if anyone as experienced this side effect? The nurse said if it is not better by Monday to call the nurses station. She said I may need to take steroids. I hate those steroids I can't sleep and that is what gives me the restless leg syndrome. Up for any suggestions.
Hope everyone is having a restful weekend!! -
I thought the red, sunburn face and chest was because of the steroid. At least that's what I was told. Had my third Taxotere and Cytoxan Thursday and was very flushed yesterday.
Good luck! I hope that is all it is!
Kate W -
Today is day 2 after my last treatment + I had the Neulasta shot today; I feel great.
With the other three nfusions, I already felt strange by this time.
I'm hoping to end chemo without side effects or bone pain.
Be Well! -
Katew - thanks I have never had this before so not sure what it is from. Do you know how long it lasts? I just hope it doesn't spread anywhere else..... Ugh !!
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