In shock

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  • websister
    websister Member Posts: 1,092
    edited October 2013


    adagio - I've had one haircut - curls still there if not more than ever


    Morwenna - great pics


    Edi - that was really thoughtful re: cake - appreciated whether it came through or not


    Liefie - so exciting that wedding is getting closer :)

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Websister, good to hear from you. Hope you've had some time to catch your breath after last week, and that you are doing okay.


    Walked far today, and I'm really tired tonight, the dog too. The pedometer is a great help in motivating me to walk more, and I feel guilty if I don't do it - lol! Never thought I would say that about exercise. Will be going to bed early, and hope for a good night's sleep. Lately have not been sleeping as well as before for no specific reason. So I bid all you ladies a good night, and sweet dreams.

  • adagio
    adagio Member Posts: 982
    edited October 2013


    liefie - good for you doing a nice long walk - take advantage of the dry weather as we will be entering our rainy season soon! May I ask what kind of pedometer you have and where did you get it? I have had one in the past, but never found it worked so well and I just found it and it is broken, so I definitely want to get another one. 10,000 steps is a lot further than one would think if I recall correctly. However, considering the research says that getting out and walking every day reduces our rate of recurrence by 55% - it's a no brainer (providing we are able, of course).

  • adagio
    adagio Member Posts: 982
    edited October 2013


    websister - did you go to your usual hairdresser? I wonder if they cut the hair any differently when it has a chemo curl in there? I have heard someone say that if the hair is correctly cut (cutting into the curl, whatever that means) the curls will stay longer. Mine is getting a bit unruly, but dreading the first cut!

  • carlads
    carlads Member Posts: 241
    edited October 2013


    Hi ladies, I will never be able to catch up.. Edi, my head is still spinning over the TN. I saw my BS last week and took her a copy of my new path report.. She wasn't happy. She said this changes my treatment meaning no Tamoxifen. So she had two more pathologist look into it, plus the original place they sent it. She is also taking it to a cancer board. I'm just over it!!! I've been out of chemo for almost 6 months! Plus my BP still hasn't gone down. It had been raising for the past 2 years but I was never put on meds.. Well guess what I'm on them now. I'm not overweight in fact they want me to gain weight. I exercise and eat right. It may have even been the reason my TM was high. Adagio, anymore info you can give me on TM and TN I would really appreciate.


    Websister, you and your family will continue to be in my prayers.


    Maria, I'm so happy for you!!!


    I'm going to try and post some pictures. Wish me luck..


    Love you all,


    Carla

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Adagio, I have a Nike fuel band that is a cool bracelet you wear on your arm. I'm sure you can get it at any sport store that sells Nike products. We got it at the Apple store in the Pacific Mall in downtown Vancouver. Got it from DH for my birthday, and what a good investment it has been so far. Have now lost 9 lbs where before I had an epic months long struggle to lose anything. It measures your steps, calories, Nike 'fuel consumption", and it is a wristwatch at the same time. I love it.

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Just an FYI.....I have just sent my photo, info and quote to Melissa. I hope many of you do the same. This site has been so helpful for so many of us.....I believe in "paying it forward"....To me....this has more meaning, awareness and actual "support" than anything else in "Pinktober". (nihahi)


    Oct 8, 2013 10:55am Moderators wrote:


    Excuse me breaking in here, but we are looking to show your faces, names and quotes at our fundraising event in October (www.rockforbreastcancer.org), and would love your help. This event is one of our largest fundraisers of the year and we'll be joined by hundreds of generous donors.


    Specifically, we will have two projector screens up during the event, and want to show the people attending the event YOUR faces--- the women of our community, the women who use and rely on BCO ! Having the opportunity to share your photos and quotes that night will reinforce to our donors, in a meaningful and personal way, just how vitally important their contributions are to our community.


    For this, we are looking for people willing to share a photo of themselves (either alone or with family, friends, pets, other BCO members, etc.), allow us to use your first name, say where you are from (it can be from anywhere in the world!), and give us a quote on how important BCO is to you. We are looking to have at least 40 people and have (only) a few weeks to work on this.


    If you are interested, could you please email Melissa at mjenkins@breastcancer.org, with your photo, first name, where you live, and your quote? Also, PM us if you have any questions!


    Thank you, thank you, thank you for helping us!!


    Melissa

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited October 2013


    Hi my dearest ladies......


    I know I have been MIA for the past week.....PINKTOBER just happens to coincide with my first cancer anniversary, and I was taken completely off-guard by the intensity of my reaction to everything.....very surprised, as I thought I was dealing with everything so well.....also had drama with #4DD (did she still have a job to go back to after her illness/surgery this summer?)and some emotional issues she has been plagued with for a few years........I love my kids, a LOT, but would sometimes prefer to do it from a long distance! :/


    I hope you are doing okay, Websister. You have been in my thoughts and prayers. I am SOglad that Nihahi was able to get to the service for your mother, to represent us all. Sending a big (((hug))) your way. (And congrats for finishing up the chemo!)


    I believe that Maria is also closing in on the finish line, right?


    I just want you all to know how much I enjoy this thread, and all those who participate in it.....you are such strong, wonderful women.


    Love to all, (and I will try to do better at posting more) Jackie

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited October 2013


    I sure understand, Jackie. Last year I started chemo in October... Probably the scariest thing in my life... and everywhere I looked all that pink just reminded me that I had to go through this awful thing... Ugh. I never liked the whole idea even before BC touched our family, frankly I think the majority of the time it's just a marketing ploy and little to none of the $ actually goes to anything helpful. And I've never liked the color pink anyway! So, yeah. Not fun. Safe to say October is my least favorite month.

  • scouser47
    scouser47 Member Posts: 963
    edited October 2013
    Hi gorgeous girls X

    Did a big long post this morning and vanished into cyber space ARGH !!

    So agree over the pink and October posts.As they say what is cute and pink about this sxxt ? Can think of far better colours but obviously we don't want to offend anyone DO WE ?
    Have just watched our Pride of Britain awards and stunned by the comment that all being well cancer is on its way out in the next ten to fifteen years.How wonderful if our daughters and GD's never have to face this.

    Carla have PM you ((( HUGS ))) X

    Jackie, glad you are back, sorry things not too good hope they improve VERY soon. X

    Maria, with you tomorrow X

    Adagio, know we are supposed to walk flippin miles, eat organic etc etc. What about those of us who had done all this and still got BC ? Sometimes I think they tell us to do all this just to keep us busy. I also gave up alcohol which is supposed to make us 80 percent more likely for it to come back. Enough to make you scream with frustration.

    Off to bed to punch the freakin pillow which isn't pink by the way.
  • adagio
    adagio Member Posts: 982
    edited October 2013


    Edi - I didn't know that about the avoidance of alcohol helping by 80% - that 's huge. Wow, I am in trouble, since I really do love my glass of a nice red wine!!! I had tons of it while in South Africa because it was so good and very cheap.. - oh well , the damage has been done. I really do hate feeling deprived. Surely everything is OK in moderation! LOL

  • Ridley
    Ridley Member Posts: 634
    edited October 2013


    Hi Ladies,


    I have been reading along, but not posting for a while. I'm thinking of all of you and your anniversaries, struggles and just the day to day.


    I finally have some clarity on next steps, which is helpful, but scary at the same time. My oncotype came back at 8, so no chemo. My pathology review came back with fewer tumours, but larger in size. My radiation oncologist took the lead and talked to my medical oncologist and surgeon, and all have agreed my best next step in reducing my risk of recurrence is to have a mastectomy. I have already seen a plastic surgeon to discuss reconstruction and now have an appointment with a new breast surgeon who works with that PS. I'm planning on DIEP recon, so I will delurk on that thread soon (have learned most of what I know about the procedure from that thread and recognize some of you from there.). And finally, tamoxifen.


    Focusing at work is still a struggle, but I'm hoping now that I have a plan, I will be able to settle down. I just got back from my first yoga class in years, and the instructor is very focused on mindfulness, so I'm thinking that will also help.


    I have not noticed too much pinktober around, but certainly see what I do see in a whole new light. This experience is a good lesson in sensitivity training.


    Sweet dreams everyone, and to those celebrating Thanksgiving this weekend, Happy Thanksgiving!


    Ridley

  • websister
    websister Member Posts: 1,092
    edited October 2013


    adagio - I went to a different hairdresser, my usual is on maternity leave, this place was recommended to me for their expertise with curly hair; re: alcohol - I never drank alcohol - here I am anyway, I say enjoy in moderation


    Nihahi - sent my picture in :)


    Liefie - you sound like you are really doing well with weight and exercise :)


    Movie - good to hear from you, anniversaries are tough and having it in Pinktober even tougher; hope troubles with DD over soon


    Jennie - seems like lots of companies jump on the pink bandwagon, also saw a photo a friend posted on Facebook last evening - provocatively posed woman from behind, only underwear on, arms up in air holding up sexy bra - caption was - save the tatas, support the fight against breast cancer by going unsupported on October 13th - to me this is also insulting to all of us and all we have gone through and not sure how doing that helps


    Carla - you've had quite a lot of confusion amongst docs - glad there are lots of triple negative ladies on here to help


    Gradually working my way through the paperwork etc to do with my Mom's death/estate - worked today but off tomorrow so I can tackle some more


    Take care everyone

  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    I guess my cancerversary is October too, if you count from your diagnosis date. I would say it doesn't mean much to me actually, ..... but I did have a rather strange reaction at drum circle this week.


    They do this thing called a "drum cradle", or healing circle: four people sit on chairs in the centre of the room, facing out, and the rest of the group walk around them, drumming AT them. We also had a lady performing healing on us from the inside of the circle.


    Well I had been perfectly happy all of Monday morning, singing away, and wasn't feeling especially in need of healing, but there was a spare chair in the centre, so I sat. I closed my eyes and presently felt the cool firm hands of the healer on my neck and shoulders, and as the vibrations from the drumming resonated through my body, I suddenly felt tears well up. Initially I thought, "Oh no, I'm going to cry in front of all these people!", but then a voice inside me kinda said, "And that's ok, relax!"


    So I sat and allowed myself to feel, while the tears rolled down my cheeks and dripped all down me! I was quite astonished.


    When everyone quieted down I slowly opened my eyes and went back to my seat. Nobody spoke to me, or asked me if I was OK, or why I was crying, and I couldn't have told them if they had! I just felt extraordinarily cleansed and peaceful.


    Weird! But wonderful!


    Namaste :)

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Sounds like an incredibly healing experience for you Morwenna....so glad you got to be part of that.


    Ridley....you can hop on the Diep thread at any time....you will be warmly welcomed and supported. There are some Toronto area ladies...you might find someone with the same surgical team, which you might find helpful.


    Theoretically, I am also an October cancerversary as like some of you, I was also dx in October. Years ago, I decided I was NOT going to go through life focussing on the day I was diagnosed as a special date. I instead chose to acknowledge the date the cancer was removed from my body....so I mark my mx surgery date as my "special date". It puts a better mental spin on it for me.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited October 2013


    Your experience sound very cathartic, Morwenna.......I am a crier, so I get it... :)


    Nihahi, I totally get what you are saying about important dates in our lives, and I think that is a wonderful idea......will start implementing right now.....Heaven knows I need no more stress right now!


    Thank you for all the strength and support you ALL share with me on a daily basis, whether you realize it, or not.


    XO

  • adagio
    adagio Member Posts: 982
    edited October 2013


    nihahi - my oncologist also told me to count from the day the tumour was removed from my body.


    Morwenna - that healing must have been a very special time for you - how cool that you have healers at your drumming circle. I go to a relaxation class and we have 2 reiki healers who go around the room just simply touching us while the facilitator does a guided imagery with us - it is very special indeed. We need all the help we can get!

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Websister...... your hair is lovely .....very chic looking style!!!!

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Hi girls, had a lovely skype with Edi this afternoon. It was the middle of the night in England, and she could not sleep, so we visited till she started yawning - hope you are still sleeping soundly, Edi!


    I've also been wondering when the cancerversary is supposed to be, and agree that the surgery date has a much happier connotation than the date of diagnosis. Don't want to remember that at all.


    Movie, glad to see you back here!


    Morwenna, sounds like you had an amazing healing experience. So necessary for us. . .


    Websister, was doing so well yesterday with the exercise, but fell a bit flat today. Had two friends visiting me, and we chatted, laughed, drank coffee and tea, and visited from 1 till 5. By then it was cold and overcast, so decided to ditch the walk I was going to do. Will do better tomorrow. Agree re: going unsupported on Oct. 13. Just don't see the connection - bc is defo not sexy at all!!!??? This whole Pink business rubs me the wrong way, period.


    Adagio, same as Websister. Could never drink alcohol because it makes me sick, and still got bc. To me there is no rhyme or reason as to who gets it and who doesn't.


    Ridley, glad you feel a little bit more relaxed.


    Good night, sisters, and sweet dreams.

  • scouser47
    scouser47 Member Posts: 963
    edited October 2013
    Hi girls X

    Slept like a log after skype with lovely Liefie, sun shining today, DH out for the day YAY. Edi pottering and then off to shops and my solitary latte when I people watch, so interesting. ( weird old lady ha ha ).
    Yesterday baked a yummy choc cake for a friends anniversary present, guess what the oven cremated it !! has been playing up for a while but now flippin ridiculous. Black on top and still uncooked in the middle, YUK. That one is a NO NO so off to find a present instead.
    Would have sent to moderators but don't know how to do pic :-((
    Ridley, lovely that you are all sorted so happy for you, the Diep thread will really help.
    Websister, getting a hair trim today, very carefully lol. just back and sides if she touches curls on top she will be flying across the salon.
    Saw that pic of glam lady with bra on f/b WHO in their right mind thinks these things up ?? Dam insulting, someone needs to wrap said bra around their necks and tie it tightly.
    Hope paperwork goes easily, I still have box file from parents just in case.
    Dad's will went missing, we still think solicitor had lost it so probate needed. A friend told me I could do it myself, I did, it took a good few days but saved thousands of pounds.
    Movie,
    big ((( HUG )))
    Morwenna, healing experience sounds really wonderful. I went to our local church on the healing night when I was really depressed recently and it helped so much. Tears are normal during these sessions and no one ever comments or judges.Better than chemicals, think we have had enough of them !
    Nihahi, removal date is a great anniversary time. DX defo not a good memory. My surgeon said to me as they wheeled me in to theatre " When you wake up, your cancer will be gone " I still find this a comfort. The belt and braces treatment after was just to make sure.
    Adagio, Reiki is a lovely non invasive form of healing, enjoy.
    Liefie, Skype was lovely, even at this time of year the view from your window is heavenly. Putting on walking shoes today for a good workout to warm up for dancing tonight. Have everything ready, think DH will have an excuse again but I AM going anyway !
    Second choir on Tuesday night was fantastic ! I didn't realise how much singing could lift your spirits so much.

    Better get my ass moving love and hugs to all you inspirational ladies. The ones reading and the ones posting. XXXXXXXXXXXXXXXXX
  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    Sing, dance, play! - thought for today :D

  • momof2doxies
    momof2doxies Member Posts: 342
    edited October 2013


    Movie...glad to hear form you. So sorry about DD situation. I also, have the pinktober cancerversary....lucky me I get to have it again this year with a new tumor. I will NEVER be able to tolerate the color pink again without thinking about my cancer. I instructed my DD that she could have any colors in her wedding with the exception of PINK. I even had 2 tshirts made for me. PINK STINKS...the only Pink in Breast Cancer are the scars. When I go out to a store that I know will be pinkwashed I wear it as my statement.


    Ridley...I have been anxiously waiting to hear your onco score. So happy that it was low...that is great news. Mine was the high borderline, but I did not get chemo either. I am sorry you have to go through what I will be going through in 2 weeks. However, at this point, I just want to be done with this part of my body that fails me. I am ignorant as to what DIEP means...I could look it up, but just not wanting to know. I am having the BMX with TE put in by the PS. Then go through all the fills and later go back in for the implants. Seems so silly for a 60 yr getting implants, however the BC nurse thinks it is better because women are used to carrying a certain amount of weight in their upper torso. Without that weight our bodies tend to slouch and begin to have a hunch back. I hope you can have some piece of mind now that you have a plan in place. I will keep you in my thoughts.


    Yesterday I went for my preop with the PS. I signed about 15 pages of "what ifs and you need to be aware". then I got prescriptions for a bag of meds. I swear, I have enough narcotics to sell on the streets and pay for my DD wedding! LOL


    Movie, I found Dungeness Crab last night at out grocery store...I am getting out my "Newport Fisherman Wives" cookbook and make Crab Fettuccine tonight. I do love dungeness crab!!! Come see me this summer in Yachats, and we can go crabbing in Waldport or Newport.


    That's all the news from the South, today. Hope you dear ladies have a wonderful day.


    Jenifer

  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Ridley, I am 59, and had DIEP recon in May. I feel whole, normal and feminine again, and it is defo not silly to want breasts again. You are never too old for that. I am just amazed/grateful that these procedures are available. Bc takes so much from us, and for me this surgery was like a wonderful reward at the end after all the c--p I went through. At first I just wanted to be done, and could not be bothered with recon, but as time went by, I changed my mind. My two cents. Oh, and I like those T-shirts of yours - good for you! Crab sounds delicious - yum.


    Edi, enjoy the dancing, and yes, choir singing will lift you - can't sing and be sad at the same time, can we? Making music is wonderfully therapeutic. I think I'm going to look into this Reiki healing - sounds so good.


    Off to yoga stretch class this morning, then strength training immediately afterwards, then cardio. Will have to eat a hefty breakfast - LOL. Don't wanna run out of steam halfway through.


    A good day to you all!

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Yikes.....was all ready to start a message about Reiki , then realized I'm waaaay behind schedule and am supposed to meet up with a condo neighbour in the gym in 5 minutes!!!! Gotta dash....more later!

  • Ridley
    Ridley Member Posts: 634
    edited October 2013
    Thanks everyone for your replies.

    Momof2 -- I don't think you are silly at all for getting implants at 60. I just read a new article that said 60 is the new 30!! When I started this journey, a mastectomy was on the table from the get go, because of some early imaging. Just so happened that the areas were in the same quadrant and my surgeon was confident that she could get the known areas with a lumpectomy. It took a couple of months to get all of the imaging done/biopsies/etc., so I had time to sit with whether I wanted recon or not, if I had to pursue a mastecomy. I didn't think I would be comfortable without recon, so I decided to pursue. Now that I need to go that route, I'm still feeling that recon is the right decision for me. I'm 46, but my decision for me was more about putting this process behind me and feeling "whole" again.

    I'm glad to hear you are all set with pain meds, and hope you don't have enough pain to use very many.

    Have a good day everyone!
  • liefie
    liefie Member Posts: 2,440
    edited October 2013


    Ridley, I had you and Momof2 confused there for a while . . . sorry about that!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2013


    It's snowing!!


    But DH and me off to the theatre to see a farce, "Boeing, Boeing!" :)

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Yes, it is. But more rain than snow here. Liefie.....pack a sweater!!!!!

  • nihahi
    nihahi Member Posts: 3,841
    edited October 2013


    Edi.....sure hope you gave those red shoes a good workout tonight!!!!!


    There was an interesting "bit" on the news tonight. A study based on having bc patients use SAD lights, after finishing chemo, to help minimize and recover from the chemo fatigue that so many of us suffer(ed) from. These are the same lights that people use if they suffer from Seasonal Affective Disorder. The theory is that it helps to "reset" things after treatment. Apparently the initial results are very, very promising!!!!!!

  • MariaNL
    MariaNL Member Posts: 118
    edited October 2013


    Good evening all,


    Well today went great. We took a card and doughnuts for everyone, they seemed to enjoy them. I wasn't as emotional as I thought I'd be, just so excited to be done with this part. Now I'm ready to conquer rads.


    I hope everyone has a grand weekend. Love to all

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