Convinced I have IBC, Help!

Hello, 

I'm not in the US but you can contact a IBC clinic, there's one in Texas, MA Anderson. It might be far from where you are, but don't wait. Meanwhile, stand in the middle and remember you can have all the symptomes of something, and it can be something else.

I'm going in for a second biopsy tomorrow (at my insistence), I have slight skin thickening, slight breast enlargement and very slight edema, classical signs too, but I have had two negative MRIs, 6 negative ultrasounds, 1 negative biopsy, one C-15-3 test (which I had done directly at a lab) 5 clinical examinations and 1 very top notch Breast oncologist doctor (the 5th best in the UK, and 25th in the world) telling me it's not that but a episode of mastits  with inflammation of lymphatic channels(I was in pain for 5 weeks, not treated with antibiotics) and redness (now gone). 

I'm telling you all this because, you are 100% right to get this checked out, but give yourself the possibility to stand in the middle, it can be other things too. 

And just so you don't get more worried, when they do the biopsy, your lymph nodes in your armpit will swell and so will your breast, just so you know and don't freak out like I did.

So, since you seem to be in the US; (I don't have that luck), go the IBC clinic or a clinic they know what they are looking for and get it checked. Or do like me, ask your dermatologist.

Let us know what happens.

Best to you,

Alicki

Hello kicks,



That is 100% correct, my apologies for the over generalization



Thanks for pointing that out

Alicki

coyotedesert, all those symptoms appeared in one day?



Have you completed your antibiotics course? What did the prescribing doc say s/he think it might be? Infection from bug bite, allergy? Has anything changed since you've been on them? Are you doing better? Hope so.



Diagnostic processes vary over the country (are you in the U.S.?), but I wonder why you were granted an appointment with a breast surgeon the day after your mammo and ultrasound, before you have a diagnosis - which we all hope you don't.



I'm not an IBC patient, just responsive to this flavor of anxiety and write if I think it might help.

 Hi I  was just wondering how your appointments went?  And  kudos 

to you for advocating for yourself.  We should always trust our instincts !  My daughter was diagnosed with ibc oct 2012  at age 29 .  Over the past year we have heard many stories  of women who went against their  gut feelings and believed in their drs .... some who turned out not to have ibc  thankfully,  but many who did have it.  Good luck and  prayers to you!