DIEP 2013
Comments
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SBE, sorry you are back in the hospital, but glad things are under control. Did they have to take you back into the OR to fix your incision? Keep us posted.
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Sbe, so sorry to hear this, but it did not come as a total surprise when you so suddenly went off the air. I sincerely hope they can fix you up for good this time, and figure out what the cause is so that you NEVER have to deal with this again. BIG HUGS to you!
As far as the grandma babysitting debate, I guess I will find out next year when my first grandchild is born. Not sure how I feel about it, but then again I will have the Rockies between me and the baby. Don't know if that is a good or a bad thing - LOL.
Damiana, nice photo, and everybody looks so relaxed and happy. Vegas is a wonderful place for a meeting like this.
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Katy.......OMG - a wound vac???? Sounds like things went south in a hurry!!!!
. So sorry you ended up being kept in Jail.......but if they could just figure out (wait, my tiny brain remembers you mentioning your open wound).....Get better.......I am coming in November!
DebD. I never had chemo, but will join the pocket party......you ARE a strong woman, and Liefie had some wonderful advice based on her chemo experience....there are many others who really know what it is like to walk in your shoes......you CAN do this, and if this is what you do to give yourself the best shot at killing the b&$t@rd$.......you will do it!
Sending you a (((hug)))
Kuka.....if you can find suitable childcare, I say go for it! You would be a real positive in that office! They must think so, too, if they called YOU!
I am also one who will help DD out with kids in an emergency.....but when I was young and raising my kids, my mother did not live nearby, and I survived. I found other alternatives.....I don't want to be a full-time baby sitter......been there, done that! Love my GC, but.......
Damiana.....what a wonderful vacation for you! Sounds like something WE need to do here on the DIEP board! So glad you got to go!
DorK.....forgot to welcome you yesterday.....and so sorry for all of your trials.....please come here and vent, anytime.....we're good listeners!
Love you all! XO -
Damianna, so nice to hear from you! Looks like a great trip! Maybe us flappers should plan something. I'm willing to research and get a deal. Just tell me where u want to go and for how long!
Deb Dylan, u got this! I was scared shitless my first chemo but I did it and you will be fine? We are all in your pocket!
Nihahi, I've been off vac for 2 weeks because ccac didn't order me one after I moved. My " little f&$@er" might just be visiting katy!
Katy, so sorry you are in jail and on vac! All the best to you for a speedy recover!
Goldie, hope you get your results soon! Waiting is the worst!
I see my PS tomorrow morning. Everything is healing really well except my belly button hole. It's the only thing that gives me any pain or discomfort and is my deepest area of packing at 5cm. Did anyone else have trouble with their button?
Happy Thursday to all! -
DebD, you have a lot of support here. I add mine too. You will get through it, and it will reduce your risk. I've done chemo twice now with no lasting side effects. Not fun, but doable. My eyebrows are just coming in as my boobs are about to come off, LOL. Well, I'll be happy to see my eyebrows again. Katy, so sorry you are in the hospital. I hope you heal quickly and get to go home quickly. Goldie, I hope you get some good news soon. I appreciate the input on the delayed DIEP and I'm feeling more confident about it now. Damianna, loved the picture. Wow, there are a lot of us out there. And it's great to see everyone looking so good. Sherry, I like the idea of a flappers trip. I know that I'm new here, but I hope that I can belong. Don't know where else I fit in.
I've come to terms with my delayed DIEP. Have realized from you ladies, that this is a process that can't really be rushed, and I need to go with the flow a little, and trust my doctors. Kuka, congrats on the job offer. That sounds like it will be really meaningful work, given your experience. Please keep me in your thoughts next Tuesday as I go in for my DM and TE, prior to my DIEP.
Deb
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Just saying hello...thanks for the terrific photo of strong women by the pool!
Katy, best wishes for quick improvements; I'm in if you need us to break you out of jail.
I'm dealing off and on with waking up with the sudden feeling of total TERROR. It's so weird for me that I've been through all I've been through, perhaps finished with this last revision surgery, and NOW I get the emotions? Maybe it's kind of like going through a totally traumatic event and having to act normal and nonemotional to get through it, and then later feeling the emotions?? It's not a lingering fear, just a wake-up moment, like those dreams where you dream you are falling and wake up abruptly. Anyway, accepting it and going on...
I have had memory problems with the multiple surgeries, and I think the anesthesia affected my thinking for quite some time after each surgery. I'm just grateful I seem to be dealing with it ok. I just tell my family and friends I'm not thinking clearly, and go on...
Again, the going on is the key for me - regardless of thoughts and emotions, keep going on, keep going on....
Sending Love and Light to all of us
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Katy, good to hear from you but bad that you are back in "jail". Hope they can get things cleared up quickly and make you feel as good as new. In the meantime, sending gentle (((hugs)))
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I only have one minute but wanted to say hugs to all, especially our dear Debdylan and Katy!
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Debwarrior, this is a perfect fit for you, and you belong here of course! In case I forget (which is totally possible - lol) I want to wish you well on your surgery this coming Tuesday. I had a UMX with TE placed. Those TE's do feel weird for a while, but I consoled myself that the cancer was gone, and that the TE was sparing my skin for the DIEP. It also looked good when I had clothes on, and nobody could tell the difference. So focusing on the positives always helps, and after a while I 'forgot' about having a TE (for 15 months), and just got on with life, yoga, exercise etc. Best wishes that your surgery goes very well, and that you come out victorious on the other side.
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SBE-I am so sorry you are going through all of this!
Goldie- I am in the back row, right side, next to last. There was one other that had DIEP done a few years ago- (this time was a recurrence) It looked amazing, but she also did not have a flap of skin- the dr just shoved the fat in there without any belly skin- you would never know she had surgery. One girl had an implant and honestly I was shocked at how real it looked and felt. NOTHING like a TE!!! Only one of our group has had a recurrence so far- the one wearing the pink scarf -
Someone mentioned valerian root to help sleeping. Super Snooze has valerian root, too. Yes, they do stink. You can check it out on the Puritan's Pride website.
Also for scars, a lady came to our last BC support group meeting. She raises goats. She has this cream that is supposed to be great for scars. Her website is www.bassfarms.com. The triple B cream is supposed to be really good. I started using it a week or so ago. She said there are like 200 hospitals on her waiting list. Oh, she developed this after the problems her mother and brother had after radiation. Both of them lost their battle with cancer.
If you enter "BEATCANCER" as the promo code at the end, it cuts the price in half. She asked that we only use that for products for ourselves.
So sorry for the problems that every one is having. You are in my thoughts and prayers. ...Julie
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DebDylan, I had 4 chemo treatments of T&C. They made me nauseous, as about every type of medicine does. But I had acupuncture right before the last 2 treatments, as a friend had recommended, & I didn't throw up after those or feel nearly as nauseous. Insurance didn't cover it but it was worth every penny of the $70! Hair came out, but it grows back quickly & I didn't mind losing it because I know the chemo was also knocking out any lingering bad guys. Paulayoung.com has cute, inexpensive wigs. This, too, shall pass. Good luck!
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Damiana, I thought that was you, but I wanted to be sure. You look awesome. I am sorry about the women with the recurrence. Did she have a bmx, or an umx? I know several people with implants, and they are thrilled with them. And, yes...those immediate dieps can look like nothing ever happened.
I know Nihani dislikes bio oil, but I just have to say that I went to my PS today for a fill, and I usually only see the nurse, but I saw him today. We have plans to make...lol. Anyway, he is blown away by my chest skin. He asked me what I have been doing. Just massage, and the bio oil twice a day. He couldn't believe how the scars were almost gone. Also, I had issues with the skin being thin, and fragile, and he said that has totally resolved. He had the expander's filled again while he stood there and watched. He couldn't believe it. No issues. I am getting close...yes!!!!!
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Yay, Goldie! I need to be more religious about using my bio oil. And to think you got that compliment from the same PS that told me nothing helped scars - ha!
When you get an all clear for reconstruction, when do you think you can do your exchange? -
Sbe, not again!! But I'm glad it's resolving itself. Just take it easy and do as they say.
Goldie, I'm so happy for you! You ARE getting closer, and before you know it you will be on the other side with us;)
About grand babies...., I talked to MIL last night and told her about the job and offered her to keep the two kids I currently babysitt and also offered to pay her for my 3 year old and she said yes! She will be making more than me, but hey! I get to get out if the house and start a career. There's so many benefits to this. Besides what I've already mentioned I get to help other women and to do that I need to look my best. Who wants to see someone that had done essentially two tummy tucks with fat rolls? So, no more cookies or icecream for me;). I'm going on Wednesday to spend the day there and see if I like it and talk to ps in person. I'm excited and scared at the same time. I don't want to let anybody down, so I really hope this works out.
Going out for pizza for a fundraiser for Cub Scouts. I guess I'll just be drinking water:) -
Sharon, it could be that because my scars are being stretched by these expander's it makes them less obvious. I don't know. He was most amazed by the condition of the skin itself. He said it was visibly thicker. Hmmm. But, you know he drives me crazy, and he doesn't you...lol.
It wants me to expand two more times. I was hoping to be done today, but he thinks I will be happier, and he will have more skin to work with.
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Yeah, Kuka. That is great. Can't wait to hear how it goes.
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Hi all, I think I am four or five pages behind but I wanted to just check in and send out well wishes to everyone. Even though I don't post much, since I don't seem to have any major complications, I do try to keep up and i think of you ladies often. I am seeing my PS tomorrow and I know it's early, I am hoping we can schedule stage 2 or at least get a ballpark of when I can move forward with the next step.
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Katy- It was nice to hear your "voice". Sorry you are in jail. Hope you are much better!
Bailey- Yes, I go to ARTPRIZE every year. Now that I am retired, it was so nice to go during the week. It was still crowded. What great weather we are having. I probably walked 4-5 miles today and I had surgery one week ago. That amazes me.
Thinking of you all! -
Hey Katy.....just saying "hi"....hope you're feeling ok.
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Katy- So glad to hear from you and sorry you are stuck in the hospital! I hope everything clears up quickly for you!
Deb- Hang in there, chemo isnt as scary as you think its going to be and it will be over quicker than you think.
I saw my PS today to get a referral for a lymph specialist. He doesnt think its lymphedema but he has no clue what it is so I just said thank you for the referral. I am sooooo sick and freaking tirec of hurting and hwving this big fat belly! I jave gainec five pounds since Monday inspite of being on a 1200 calories a day diet and waling twenty minutes on the treadmill. Something is just not right with my body and I know it! It was embarrassing that I am so freaking fat that I couldnt even sit up on the exam table! I have to roll on my side and push myself up. Stupid doctor tells me to do more situps. I spent almost my entire life as a thin person so this is really hard on my ego on top of being physically hard. I am freaking done, done, done with this crap and at this point I dont even care about getting stage two and the ooph. Im just done.
Thanks for listening to my whine and Im sorry to those who are struggling right now, my problems ar so miniscule co pared to what some of ya'll have been through. -
oh sweet....so sorry... I agree..you know your body, and obviously, things are not what they should be by this point. I'm glad you got the referral...there is an answer out there for you, hang on!
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Cherrie--4-5 miles?? Wow, that is great.
Sweetpickle, so sorry! What did your doc say about the weight gain??? Hope you love the LE therapist and if she can't help you maybe she can guide you to someone who can. I hate that you are suffering so. I'm virtually HUGGING you! -
Mrtw43, hope you get your appt.! I hope I get mine next Tues.
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Deb.....hope things went ok for you yesterday, and you have minimal se's. You now have that "first one" over and done with, and are one time closer to the finish line.
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Oh, Sweet....I am so sorry. Sometime's it feels like nobody is listening to you, I get it. There has to be a reason for your bloating, and somebody is going to figure it out. I know it has probably been suggested before, but have you tried an extremely low carb diet? Or, at least just protein, veggies, and some fruit. No bread,potato, pasta, rice, cereal, etc. Usually that kind of diet will help you shed excess fluid.
SBE...hope you get home for the weekend. Rest, and pamper yourself.
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Good morning, gloobsters! It's a beautiful day in So Cal...not that I'm out in it (YET) but I'm getting sprung this morning. I'll go home with a PICC line for IV antibiotics and a wound vac to schlepp around, but getting out of here is great news.
I'm so sorry I worried everyone with my sudden disappearance from the thread--I got sucked up into the tornado of admission, PICC line placement, treatment, rounds, etc. I didn't have time to turn my computer on. We didn't have to go to the OR for debridement; my PS did it all at the bedside, and it wasn't painful, since most of that tissue is numb, anyway.
Our small group from church normally meets on Thursday nights and I was lying here feeling lonely and missing them, when guess who walks through the door--all twelve members of our small group!!! With a cheesecake! So we're having a small, quiet party, and THEN my PS shows up for rounds. He joined the party, had a piece of cheesecake, gave a short lecture on cancer prevention and nutrution, and led the whole group in prayer. What an amazing blessing.
Sweetpickle, listen to your body, don't listen to the doctors. If your body's telling you something's off, then it is. I'm sorry, dear sister, that you're discouraged and frustrated.
Gotta go pack up. Going home.
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Katy, so very sorry to read about your set-back. As a nurse, like you, I know that it can be difficult for us to be on the other side of the bed, so to speak.
Praying for your quick recovery.
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Yes, listen to your body! Better to have a false alarm than a missed alarm! My EX-internist said my 7cm palpable lump I had him feel that pulled on my breast & dented it in said I only had dense breast tissue! Wrong! Plus I had just received a letter from the radiologist saying my mammogram was normal - wrong! I was my only advocate or I would probably not be here today! Better to be safe than sorry!
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sbe....so glad to hear you're about to be "released from jail"....., even if you're bringing with you a few "accoutrements" you didn't arrive with!!! Behave yourself at home..please...geez you had us worried! Reading your last message, I did start laughing though....was the cancer prevention/nutrition lecture by your PS "for or against" cheesecake????
ironmag and sharon....now that they are a bit "older", how are the new nipples looking????
bailey....have you got that elephant snivelling in the corner yet?????
Hoping to start getting updates soon from this weeks ladies. Praying for them that they are safely through and starting the journey of recovery.
Have good days, ladies.
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