Triple Negative Stage IV

Brenda, you know, Ive been venting here alot, but I do know that you do get used to the idea and can live a pretty normal life. This past year has been basically a really good year despite progression. I dont care what people say but your life outlook does have alot to do with how you feel.  Some days are worse than others. These boards are my lifeline.This is basically my social life now, other than my family, because everybody understands what youre going through. I have met some wonderful people who I can tell anything and everything to. I felt like a pariah going to sapport groups cause I was the only stage IV person there.

Adnerb - I am the type of person that is able to accept things. Once you get to that place, life just goes on. Meals to cook, laundry to do, celebrations and spending time with those you love best. On bad days, you learn to appreciate the good minutes, a hummingbird at the window, a card from a friend. Give yourself time love and stop in here, whenever you get frightened, or angry or just need us to pull up a chair at your pity party.





MRI is Thursday. Results Monday. I hope this doesn't bump me out of my drug trial.

Fingers and toes crossed for your mri, Karen

Brenda - here's a link to some info:



http://m.seekingalpha.com/news-article/6923292-medivation-and-astellas-initiate-phase-2-study-of-enzalutamide-in-breast-cancer-patients



It is Xtandi, it is used to treat prostate cancer. I go for my first appointment since starting it, next Monday. SEs so far are fatigue and muscle/bone pain. Doable. I started it on 8/26.

Oh my, have you seen this article?  Sounds very promising!!

http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/2157

I start Gemzar Monday will do it continuously for 6 weeks, if my body can stand it. Hope it can. This is the first time in 6 years I really feel like I have cancer. Ive been off chemo for too long. Hope everybody else is doing ok.

Surfdreams for some reason I didnt realize you were tn. I start the Gemzar tomorrow as a single agent, six weeks on. Keep your fingers crossed, next step might be clinical trials.

No that was a typo on my part, I wasnt stage four until a year ago august. I started as stage 2b.

Hey everybody, Im sure glad this thread is picking up a little.Karen didnt you have your mri thurs? Hope everything went well. I start Gemzar tomorrow, I always get nervous starting new treatment. Im praying this one at least gets everything under control...

Mary - I hope the gemzar isn't too bad for you. I think the worst part for me was muscle spasms. I like Skalaxin for those as it doesn't make me tired or depressed.



MRI showed progression of spine mets. T3 - 12. They also have not causd cord damage. So far it has not knocked me out of the Xtandi trial.



Wishing everyone the best day possible.

Karen....sorry to hear of your progression but so pleased you can continue on the trial.

Big, warm hugs being sent your way...(((hugs)))



Marywh......I did 3 cycles of Gemzar....didn't tolerate it too well & had progression! That's not to say it won't be good for you. I'm having success on Xeloda with very few side effects whereas other woman don't have success & have loads of side effects...I think it's a lottery really as what will work for one won't work for another....it sure does all suck!!

Good luck with the Gemzar & here's to kicking cancers big fat butt.....:)



Have a good day lovely ladies.



(((Hugs)))



Karen xxx

Good luck with the Gemzar, Mary, hope you tolerate it well & that it'll get those mets.



Karen, so sorry to hear of tour progression, I hope the trial will kick the life out of those mets!!



Sherbab, I went from Stage II to IV in 9 months, so I understand how overwhelmed you must feel. Hang in, I hate it, but this does become our new normal.



And hear, hear Karen/Kazzie - let's kick cancer's big fat, ugly butt!!



So I'm in Israel visiting my son and landed up in the local hospital's ER yesterday - inflamed nerve in my lower back AND Shingles. The stupid part is that I did something to my back during yoga before I left but just ignored it (was so scared it was mets to the bones). Anyway they did an X-ray and said no mets visible. Whew! Am having a bone scan in November anyway.

Bad, bad timing, doc told me to have bed rest till I go home. Am so disappointed, but my son says he's quite happy to just hang out with me while I'm flat on my back. It was so painful, no sleep for 3 nights & agony, just cried & cried. And, like all of you, I'm pretty tough!!



So, once again, our paragliding plans must be put off, dammit!



It's horrible to be so far away from my medical team, just wanted to go home, at first.



Ben (my son) is so amazing, cooking for me, waiting on me hand & foot, not letting me do anything. Gosh I love him so much, am so blessed!

Surfdreams, really happy you're dancing with the stable boy - big, big YAY!! Have heard of NED & the stable boy, but who is Reggie? Hope this keeps up and you can dance with stable boy for a long, long time

xxx

Carolben - I am so sorry you were in such pain, I hope it has lessened. Nothing worse than feeling bad, when you are away from home. But, I'm glad you stayed on with your son, I'm sure he'll be a stronger man for it.



I've been reading up on TN mets. From what I am reading, it seems the basal cell subtype, goes to lungs and brain, another like mine, liver, bones. Chemo that is designed to change the DNA, is less likely to work, on non - basal subtypes.

I am not doing another harsh chemo. For me the quality of my life, is worth more than quantity. I have a very difficult time on chemo and I don't want my 14 year old to watch anymore of that. This trial drug has reduced my quality of life, but is doable.



Wishing everyone a great weekend!

Karen - and here I am eating an ice cream sundae!