August 2013 Chemo Sisters

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  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    My declaration for the day: I will praise God for all that he has done for me in my life and for the healing that he has in store for my body and for those of my friends on this thread. Praise God from whom all blessings flow.

    Watch out folks. I took my first steroid pill at 8 a.m. I take my second at noon. I've mopped the kitchen, cleaned one toilet, did two loads of laundry, washed my sheets and put them back on, vacuumed three rooms and the hall, bleached one tub, doctored Jackson for ear mites, walked 30 minutes, ...that's all I guess. I had better speed it up. This one pill isn't doing the trick. I guess after the second one I'll get a move on. I'm going to bottle up all of that energy and put it on eBay. I can pay my copays with the proceeds.

    Well now Cougar, that's an idea. They are easy to make. Send me a half yard of fabric, 4" of elastic (take some out of an old pair of undies), and I'll make you one. I'll PM my address.

    Lisa, maybe you can go with someone you know who is getting a haircut and use some of their hair. I wouldn't be afraid to use hair from a friend. Sit behind someone with long hair in church and see if they will let you snip off a couple of inches. Tell them it's for a good cause...................'cause you want to make a hairband.

    Gotta' get to work. Drinking a gallon of water is a job in itself.

    Let not your heart be troubled. Shawn Hannety

  • LisaSp
    LisaSp Member Posts: 253
    edited September 2013

    Great idea, Sharonanne. My daughter needs a trim and she definitely doesn't need the excess hair. How long would be good?



    Hi Tonya, like the new avatar.



    Well today I had infusion #3. No problems. Ate a nice lunch while I was hooked up and had a HUGE sugar free Slurpee to keep my mouth cold during infusion.



    Drinking like a fiend again. Just took steroid, Ativan and Zofran. Will take Ativan and Zofran before bed.



    I asked my MO about a big party I'm going to on Sat. She said it will be fine as long as I use plenty of hand sanitizer and keep my hands away from nose and eyes and mouth.



    Everything should be fine today. I don't expect SEs until later in the week. Have a great rest of today everyone!

  • Brillantina
    Brillantina Member Posts: 1
    edited September 2013

    To all those who are starting chemo:

    Sisters,  I was diagnosed on February 5, 2013 with ILC, left breast.  Stage IA.  My oncotype was 22 and my onco recommended CMF.  Nothing scared me more than chemo.  I promised myself that if my Oncotype was less than 34 I will not do any chemo.  However, I read the chats on breastcancer.org and one message jumped at me immediately: "you do not want to regret not doing it."  So, I did it.  I expected the worst and the chat room had mixed reviews of what to expect.  This is my experience.  CMF is very doable.  I worked through it.  The first two days are the toughest.  Your brain is heavy and slow.  It is like you are immersed in a muddy substance, but after two days, it is clear and by the third week, you have no idea why you were complaining.  I ride horses and I did not miss one ride while on chemo.  Actually it helped me tremendously to live in the moment and forget the chemo experience.  I lasted 6 rounds without major issues.  After the 6th round I had an episode of vomiting and diarrhea (at the same time).  It was interesting because just before my 6th chemo, I spoke with my onco and asked him if I can skip my last 2 treatments.  He was not against it since based on my pathology/oncotype results, I did not derive any huge benefit from chemo.  I took the 6th round, had my episode and decided not to finish. 

    Ladies beware, after my chemo I had a lot of pains and aches all over my body.  Literally from my toes to my head.  I freaked out.  The pain subsided after a week or two.  I also took Calcium + Vitamin D to relieve the body pain.

    I hope it helps all of you who are starting CMF and are scared of it.  Trust me--you can do it!!!!!

    Good luck!

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    Brillintina, I, too, am doing chemo when I didn't have to because I have Triple Negative Breast Cancer for which no targeting medicine has been discovered yet. All I have it chemo, radiation, and surgery. I am stage Ia too, and went to a specialist who said the same thing. I am only having 4 rounds of T/C every 3 weeks and 5-6 weeks of radiation after that. I don't want to have it come back in my brain and regret not wanting to lose my hair. Thanks for your post. It gave me assurance that I'm doing the right thing.
    Sharon

    My dad fell tonight and broke his hip. Thank God my brother just moved here to hel-p me with him. He's going to the hospital as I write. I cannot go into the hospital since my chemo is tomorrow. I will ride up there with my brother to take his things and stay in the car. My brother can handle it without me. My famiy is going to have to take over the jobs I usually do for the family. We think it's a fracture since he fell outside and was alone, yet at age 91, crawled up onto his golf cart and went to the neighbor's house. If he had a break, we don't think he could have done that. Maybe if in shock, he could have. We'll find out soon enough.

  • jarris77
    jarris77 Member Posts: 100
    edited September 2013

    Sharonannbaker,  I was also diagnosed with tnbc. Stage 1, grade 2, 0/3 nodes. I wasn't given a choice, they said I would need to do 4 treatments of taxatere and cytoxan. I had a bilateral mastectomy on 6/4/13 and just finished my chemo. No one ever said anything to me about radiation. Is the need for radiation determined by the location of the bc? Just wondering. Thanks.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited September 2013

    sharonannebaker, I pray your dad is OK + on the mend!

    I have to get ready for another vending opportunity tomorrow!  I don't have to really do anything except rap a few soaps + pack the car.

    Then I have chemo on Friday, 9/20.  I took the following Monday off, just in case.

    I pray a good nights rest for all.

    Does any one know scripture that talks about sleep or rest?

  • RhodyMMM
    RhodyMMM Member Posts: 455
    edited September 2013

    Sharonanne, so sorry to hear about your father! I wish him all the best. It doesn't take much to break a hip...they actually say that frequently the person breaks a hip and falls...if that makes any sense. I hope he does well. They can do amazing things in rehab. You are absolutely right to defer to the rest of the family to tend to his needs right now.

    I am also triple negative, undergoing A/C x 4 rounds and then Taxol x 12. They tell me I don't need radiation because of the margns. But I have two different cancers....one is ER+/PR+ and the other is triple negative (it actually took 3 months from the original biopsy to find out abot the 3x-, long story). The doctors like to say that miy case is "interesting..." haha. The ER+ is grade 2, the triple negative is grade 3.

    Jarris, i believe the need for radiation is related to the size of the tumor and the location....what size is the margin from the tumor to the chest wall/nipple, etc., and of course any lymph node involvement. In my case the margins from the tumors to anything else were large enough that they felt they got everything by doing the BMX.

    Martha

  • lovewins
    lovewins Member Posts: 881
    edited September 2013

    FMG...this is the one I like.

    ~Psalms 23:1-6~

    The LORD is my Shepherd, I shall not  want.He makes me lie down in green pastures,He leads me beside quiet waters, He restores my soul.He guides me in paths of righteousness for His name's sake.Even though I walk through the valley of the shadow of death,I will fear no evil, for You are with me;Your rod and Your staff, they comfort me.You prepare a table before me in the presence of my enemies.You anoint my head with oil; my cup overflows.Surely goodness and love will follow me all the days of my life,And I will dwell in the house of the LORD forever.Amen.  

  • SaltyJack
    SaltyJack Member Posts: 420
    edited September 2013

    Sharon - praying for you and your dad. Satan sure knows how to attack when we're distracted and vulnerable - be strong because God is with you.

    FMGD - I have chemo Friday too. We're a team - and will have a great day!

    Lovewins - I love Psalm 23 - great!

    Also: Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Phil. 4:6-7

    Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light. Matt. 11:28-30.

    Those who wait on the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary, they shall walk and not faint. Isaiah 40:31.

    Praying we all have a restful, sleep-filled night!

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

     SaltyJack, The verse you posted is the reason I have peace right now. I need to copy this for my refrigerator door:

    Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Phil. 4:6-7  That book goes on to Phil. 4:13 to say "I can do all things through Christ who strengthens me."

    Rody, we thought the same thing about the bone breaking and then he fell, because he said he bent over and didn't fall very far to the ground. I think that's exactly what happened. It's the femur at the base of his hip. About TNBC, my tumor was 6mm only, clear margins, no nodes found in the sentinel node biopsy so the first report said no node involvement!!!!! My first question to the MO was: If there were no lymph nodes found in the underarm area during surgery, then how do they know it's not in the lymph nodes that supposedly were too deep to access w/o making my whole side numb for life? He said, "We don't". The SO said I didn't require chemo, just radiation, even though margins were clear. My next question was: If the tumor was invasive when found and my surgery wasn't until one whole month later, and who knows how long it was invasive and spreading to my bloodstream before the mammogram, then how do you know it didn't travel to my bloodstream?  He said, "We don't." I said, I think I need chemotherapy because all I have read (which was everything on the web and from others who have TNBC) no matter what the size of tumor, all TNBC patients need chemotherapy. I was told that I would have whole breast radiation for 6-7 weeks to get anything that might have escaped during surgery. I had adjuvant surgery. The SO had told me I would just have local radiation to the place where the tumor was removed, but the MO said I'd have total breast radiation to take in the deeper lymph nodes, which no one  knows about to this day. I am having my second chemo today. I will have 4 T/C total with radiation but not the other chemo you will have. I guess that's for your positive status. I'm praying for you Rhody, that all cancer cells will disappear and you will be cancer free soon. I'm praying that for all of us. Gotta' go get ready.

    I will read everyone else's posts later. Hopefully, I'll feel well enough tonigt when we get home.

    Sharon

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    Constipation: I have been using Benefiber, Sinecot, Metimucil, and have been constipated for three weeks. Last night, I used Mirilax and finally am no longer constipated. That's a miracle drug. I will never buy anything else but Mirilax. Buy stock in the company because their stocks will soar.

    Going to chemo. Glad that mirilax didn't wait until I was all hooked up. That could get ugly.

    God bless everyone today, including me.

  • LisaSp
    LisaSp Member Posts: 253
    edited September 2013

    Sharonanne: Best wishes today on chemo. Mine yesterday was uneventful and I felt pretty good afterwards but really tired.



    Today is day 2 after chemo 3. I am a bit tired. I took a huge boatload of drugs this AM, steroid, Zofran, Ativan. OTC drugs: Claritin, Pepcid AC, Eleve, iron. I also have my first consult with a radiation oncologist today. That will be interesting and I suspect that will set up the simulation soon. Wish me good thoughts and prayers!

  • tonya845
    tonya845 Member Posts: 25
    edited September 2013

    Thanks Shary.. you look great as well!! It does look like we are on the same schedule! I will be doing Taxol for 12 weeks, 1x a week, then surgery in February, then radiation. Hope you and everyone else going thru tx this week feels well. xoxo

  • SaltyJack
    SaltyJack Member Posts: 420
    edited September 2013

    Good morning all! I'm praying for Sharon and us all that the SE this round will be much less than last time. God is so much more powerful than either those little cancer cells or the chemo drops!

    For constipation - anybody ever try magnesium pills? I get them at Costco in a big bottle because my nurse practitioner suggested taking them just for overall benefits - bone, muscle, etc. She reminded me of our moms giving us milk of magnesium when we were kids - soaking feet in it, etc. and said she takes 6 a day - 3 in the morning and 3 at night. She suggested taking as many as I could without causing diarrhea. I'd been taking one and tried taking 2 that night. Well, I heard my stomach talking to me all night then the next morning had almost-diarrhea. I backed it down to one a day - don't know if it would work for you but you may want to check with your MO or research it on-line.

    Can't resist adding one more verse because it's a good one for me:

    Be still in the presence of the Lord and wait patiently for Him to act. Don't worry. Ps. 37:3-4. 

    Praying for us all - especially Sharon and Lisa today!

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2013
    Hi All, 

    We are so pleased about how supportive this thread is, however ask that members remember that not all share the religious/spiritual beliefs.

     

    We are saying this out of respect to All, and reminding you that we have a unique forum for this, and for those members who find hope, support and inspiration in religious sayings and words of prayer (Prayers and Spiritual Inspiration).

     

    Thanks for your understanding,

    The Mods

     
  • wing48
    wing48 Member Posts: 42
    edited September 2013

    I am a week past my 2nd treatment - is anyone STILL hungry that far out? I still could eat my own weight in, well, ANYTHING!

    I'm really tired as well. I've been trying to eat food to boost my red blood cells. Anyone have any magic information?

  • tonya845
    tonya845 Member Posts: 25
    edited September 2013

    Hi Ladies....went to se MO today and my tumor has shrunk from 8cm to 5cm. YAY!!! I guess chemo is working. He changed the taxol tx though. I have two more A/C tx's and then I will be doing the taxol every 2 weeks for 8 weeks, instead of every week for 12. Anyone have advice on the taxol tx, not really sure what to except.

    Hi wing48...i'm with you on the eating. That's one thing I haven't lost is my appetite. MO says eat whatever I want as long as it doesn't make me sick. I'm pretty tired as well, but when I do the neupogen shots it seems to help with that. Good luck with everything :)

  • RhodyMMM
    RhodyMMM Member Posts: 455
    edited September 2013

    Thank you Sharon!

    Best wishes to all of you having chemo this week. My next round of A/C is next Thursday 9/26.

    Martha

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited September 2013

    tonya845, I'm so happy that the tumor shrunk.  May it continue to shrink down to nothing!!!

    I guess we overloaded the sytem with too much Scripture . . . we went above the radar.  We can still be inspirational, though.  I think this thread is the most encouraging one.  We'll just have to find another way to keep the positivity + uplifting going.

    Today's event went pretty well.  I'm thankful + grateful for all my new customers!!!  I really hope they like the products.

    I posted a Small Business Pay it Forward Movement.  Does anyone on this forum have a small business that I can support.  I'm more interested in supporting something that you created yourself rather than someone else's product (Mary Kay, Avon, OrganoGold, etc.).  Please let me know, I have loving help to grow the businesses of others!!!

    I have to ask + believe for a great night's sleep. 

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    Tonya, what fantastic news. I'm so happy for you.

    Wing, eat beef liver and onions a couple of days before your test. I did and mine were fantastic. I love it, but most people don't. I fry it with lots of onions and make milk gravy to go with it. I ate the whole thing other than a little piece my  husband ate. He doesn't like it but will eat a little. I ate if for two days. I can eat it for breakfast. It is loaded with iron.

    I do not like the idea of being told not to talk about our religion ANYWHERE. This country provided Muslims in New York City a place to kneel down to Allah 5 times a day. I will get off of this site before I quit talking about Jesus Christ. That is crazy. If people don't like it, let them start their own thread to talk about devil worship or something. I hate politiical correctness. It's ruining this country. Jesus Christ is the only way to heaven, so people who hate this may just learn something about salvation. I'm urked.

  • SewStrong
    SewStrong Member Posts: 399
    edited September 2013

    I got out of chemo today at 5. It is 8:44 and I AM NOT SICK AT ALL!!! Thanks for the prayers.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited September 2013

    Sharonannebaker (I love your name), I agree.  All should be able to discuss the religious/spiritual beliefs.  Even more so if it is a source of encouragement + strength to others.

    I think we have something great in this thread and would not want to leave it, though.  Various stories were told to illustrate Scripture (like reaping + sowing, the prodigal son, etc.).  Maybe we're being challenged to be creative!  I'm up for it.  You have to be able to discuss your views in multiple ways.

  • SaltyJack
    SaltyJack Member Posts: 420
    edited September 2013

    I love this thread and have been thanking God for you ladies. I certainly agree FMGD, this is one of the most positive, uplifting ones - and I got involved here because of it! With the utmost respect to the moderators and anyone who believes differently, I believe that we are entitled to speak our opinions and beliefs freely - here or anywhere else in America. Before I start ranting about the difference about freedom OF religion and the freedom FROM religion, I'll stop....

    To switch to a positive note - YAY for Sharon's good chemo day and Tonya's shrinking, soon-to-be-gone tumor!

    How did you make out with the radiation oncologist, Lisa? I meet with the reconstruction/plastic surgeon next week but don't know anything about the radiation part of this exciting journey.....yet.

  • batcatlady19
    batcatlady19 Member Posts: 138
    edited September 2013

    FYI to anyone who's uncomfortable posting here - the September chemo thread is (so far) religiously neutral & is very supportive. I bet they wouldn't mind people joining even if you started chemo in August. I've been posting there more often & find everyone to be quite nice.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited September 2013

    Everyone should be free to post regardless of their religious affiliation.  That's what freedom of religion means.  

    I believe we all genuinely care about + want the best for each other.  This trumps my religion; however, it is because of my faith + relationship with God that I can love everyone.

  • SaltyJack
    SaltyJack Member Posts: 420
    edited September 2013

    Good suggestion, BCL. There certainly is a big overlap with August/September chemo. Perhaps the moderators would allow the thread to be based on a majority rules type of spiritual emphasis??????

  • batcatlady19
    batcatlady19 Member Posts: 138
    edited September 2013

    I don't know if this system allows a thread to be renamed, but it would be a good idea to have a specific, separate thread such as "August chemo religious support group" so everyone knows what it is. Then people who just want a normal chemo support thread could still have the usual place.



    It seems like this particular thread has taken more of a turn than other ones have. Several people have commented on it elsewhere.

  • LisaSp
    LisaSp Member Posts: 253
    edited September 2013

    I agree batcatlady and I think the moderators are good to point it out. There is room for all types of diversity and having a specific prayerful thread is certainly good. Also FMG I think you're right in being generally uplifting.



    My RO appt went swimmingly, thanks for asking Salty Jack. She was very reassuring, said I could probably not expect too many side effects, and that I could use whatever moisturizer on my skin I want. I have my simulation appt Nov.1 and start rads 2 weeks after. I'll be through with it all before Christmas!

  • Cutiekool
    Cutiekool Member Posts: 50
    edited September 2013

    Hello ladies,



    I love reading everyone posts. I agree with Shannon, we should be able to talk about Jesus Christ, and god, if people would still talk and believe,I think our country would be better off. I just did my 3rd round of t /c. I'm feeling pretty good . Are a nice dinner. The nurse told me today to do the baking soda salt rinse to keep mouth sore at bay. Trying hope it works. Good luck and God Bless, Jesus Christ saves. Keep the faith.



    God is great!!!!!! Sue

  • wing48
    wing48 Member Posts: 42
    edited September 2013

    Thanks batcatlady. I'll be checking out the Sept support group. I am definitely not feeling very comfortable over here.

    Take care everyone.

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