August 2013 Chemo Sisters

Martie...Yes to the vision problems! Not sure if it's because I have high blood sugar with the steroids. All I know is it's a lot harder to keep myself occupied with the tv as I can't focus too well.

Just took a short walk and I am worn out. Still feeling blown up from the steroids. I hate the fact that once again I got thrush in my mouth so even if I didn't have that yucky metal taste I have that to deal with. It's a bummer that everyone brings good meals to share when I can't enjoy them. I wish I had more room in the freezer to keep them frozen for when I could enjoy it too. Hoping to start feeling normal soon as it's now day 6 after chemo.

Lisa I ended up ordering a bluff when I checked the site out. My family and I have become big fans of the tv show survivor and it was fun to see they had them there. 

While we are on the topic of head coverings, just a shout out to Surburban Turbans - I bit the bullet and ordered two of their caps (Lizzie and Carrie) and just adore them! Yes, they are very pricey, and they are coming from the UK, but I wanted to try them because I just find their styles to be so darn cute and not screaming "chemo." I ended up receiving mine in five days - not too shabby!! The quality is amazing, the material is so soft and stretchy, I'm glad I made the purchase. I have amassed quite a collection of scarves and caps (several free!) which is interesting since pre-dx I owned one hat and wore it once every several years. Between my wigs and head coverings, I'm learning I don't miss my hair as much as I thought I would (don't get me wrong, I still wish I had my hair, but the loss is definitely manageable).



Anyways here's the Surburban Turbans link if anyone is interested: http://www.suburbanturban.co.uk/

SaltyJack, tomorrow afternoon, I am going to try a hairband with glue that is very strong and clear. That might be easier. I will have to put a small bead on and drop the hair on it or I'll have hair glued to my fingers. I'll let you know how it goes.

I am claiming a good week next week after my second chemo. I will not call into being any SE's. I will not have a headache or nausea. It will be a great week. I have to do that because SaltyJack will have her second chemo three days later and I have to set the trend.

God bless you folks here on the thread. Have a great evening.

Martie: Yes, I have had vision problems, my eyes have been very weepy but my prescription glasses don't feel like they are even my glasses and I don't know if its wise to get new glasses now or if this will correct itself after chemo. My first 8 days after infusion my eyesight kind of jumps all over the place when i'm trying to read. So yes definately eye problems.

Love, Rayna

Hello ladies...I am up North visiting my folks for awhile before my next treatment.  I am not able to spend a lot of time online but I am reading and checking in.  I noticed after my first chemo my vision was much blurrier.  It seems to be getting a little better and Praise God at 12 days I feel almost 100 % phyically better, but still facing some emtional issues I need to get worked out.  I am thinking about talking with someone maybe a life coach or something..has anyone here opted to do this?  Wishing you all the best sending healing thoughts and prayers your way...M

HVV yay for completing AC!!!!



Lovewins - I felt the best on days 12-14 too... almost 100%. Just in time to start all over again since I'm doing dose dense.



Well, day 4 after TX #2 and I'm feeling pretty good. Good enough that I'm able to go to Dallas to see my son play football in Cowboys Stadium. I'm so happy I don't have to miss it. We are on our way now (3 hr drive each way).

Cougar-those turbans/hats on that site are so cute! If I had not already spent so much money on headgear I would probably order. Who knows-maybe for Christmas. They could be worn with hair. They remind me of the 1920s.

It's Day 4 after treatment 3. I am surprised that it has not been worse. I have been swishing with Sharon's peroxide/water mix and my mouth does not feel quite as bad. I do have a little more aches and pains, but my head is better. The constipation is a little worse.

I hope everyone has a great finish to the weekend. God bless.

Sharonanne: You are ingenious, truly. I love the hair band idea, I only wish I had done that myself. Particularly when I had long hair in May when I was first diagnosed.



Oh well. I actually enjoy my wigs now, oddly enough. I get a lot of compliments on my 'hair' particularly when I wear the punky one. Last night I got four compliments (all from people under 30), which shows what a wig with blue, pink and purple in the back can do for you.



Martha, good to hear from you again. V, congrats on finishing A/C. FMG, you have been busy! Tanya, glad things aren't too bad. Everyone, wish I could get to you all but it's amazing how many of us there are now.



Thanks all for the Buff compliments. Martie, a Buff is basically a tube of stretchy cotton knit that can be worn lots of different ways. They are the official 'Survivor' TV show outfitter. Mankato, my husband just ordered me the Survivor China Buff, which can be my official 'I am a survivor and kicked cancer's butt' cap. Woot!



Cougar, looking forward to seeing that site. Sounds great!

Haven't had a chance to read everything, but wanted to comment on the mouth stuff. I chewed ice during my infusion this time and my mouth is SO much better! After my first treatment my taste buds went wacko, my tongue was white and I had the overall "yuck" mouth for over a week. This time I have a little bit of a bad taste, especially after I eat, but it is way better.

Watch out, Martie, tomorrow is my steroid day. I have lots of jobs laid out to do. Send me your laundry. I'll wash, dry, an fold it and send it airmail to your door.

I checked out the turban website and saw a wrap that I copied with a black T-shirt. I put the bottom hem around my head and pinched it in the back, then sewed it there. I put it back on my head, twisted the rest of the shirt around my head and down one side and tucked the end under the edge by my ear. It looked like a black turban with a black fabric rose. My husband said he liked it. Actually, it looks better than some of the hats I made. Check it out. I think it was $45 but I made if for free.

Have a good week everyone. Don't have any SE's to speak of. God bless all of you. I'm still praying.

I stand on the Word of God + Believe His Promises.

I made it known to God that my heart's desire was to keep my hair, brows + lashes.  I knew without a shadow of doubt that God could allow me to keep my hair.  I just knew He was going to do that for me.

I want to share a story with you on the power of God.

A few weeks ago I went to a restaurant, I was invited by a woman that goes to my church (it's her restaurant).  At the desk was a man (the woman's father).  I overheard him saying that his finger tips were bandaged because due to chemo his nails cracked down the middle with his skin still attached to his nails.

I looked at this man in total shock and almost fell off my chair!  Because of the man's appearance I had to hear the entire story.  So to get the conversation starte, I asked if he cut his fingers while helping his daughter cook.  He said, "no, I just finished 6 months of chemo" then he reiterated what happened to his nails.  THIS MAN NOT ONLY HAD A FULL HEAD OF HAIR, HE HAD EYEBROWS, LASHES, A MUSTACHE + A FULL BEARD!!! He said that everyone, including the doctors were suprised that he did not lose any hair!  He didn't even experience thinning or shedding!?!?!?

I went to the restaurant NOT for food.  I went so that God could show me first hand that He can allow someone with chemo to keep all their hair.  He wanted me to see for myself that HE can do all things + that I was right to trust + believe Him.

He also revealed to me that keeping my hair should not be my heart's desire + that my request was vanity, small + that I was praying amiss.  He gave me the definition of a "heart's desire" and told me that I need to desire bigger, like having every cancer cell killed + not having a recurrance, or receiving total + complete healing + restoration. . . that's more of a heart's desire!

He also revealed to me that if He allowed me to keep my hair that He would not get ALL the glory because I would think my handmade products (that I still apply everyday) were so great and because of them, I kept my hair!!!

After this revelation, I released + surrendered my hair, lashes + brows!  Don't get me wrong, I want to keep my lashes, brows + the 15% or so hair left on my head, but I'm OK if I don't.

God is soooo good!  Thank you God for revealing your TRUTH to me.

I hope this story inspires someone to Believe in God!

Ooh Sharonanne - I'm so jealous you're such a good seamstress! I can barely sew on a button. I bet your hat looks great, maybe you should indeed start selling them on here to us.

Good Morning Ladies...I declare that God will continue to strengthen me and provide for me what I need and help me to be  blessing to people I come into contact for His Glory because these are promises He has already made for all of us.  In Jesus name.

Love reading these declarations!

Tonya, nice to see you back, I hope you are feeling better😄you and I are on the same track I get my 3rd A/C and cytoxin on Thursday. We will be 3/4/ done with with this round, yea, looks like you will do a taxol, I Weill do taxotere. 12 treatments total, once a week for 3weeks then a week off for 4 cycles. You look great in your picture, not that I want to be bald forever but it sure is easy😛I hope everyone that is dealing with SE'S this week will be feeling better and I pray for safe treatment for all of us going this week.



Shary🍂