Juxta fit arm sleeve

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bhd1
bhd1 Member Posts: 3,874
edited June 2014 in Lymphedema

I have a juxtafit sleeve and gauntlet to wear at night. Last week it caused swelling in upper arm. Last night it caused swelling in wrist. What am i doing wrong? Has anyone else had this? I am new to le.

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2013

    barb, good morning!Smile

    I find my Juxtafit garments really hard to adjust correctly. I'm sorry, but I can't remember whether you've been taught to wrap your own arm or not. If so, the Juxtafit needs to be applied with the same kind of care as wrapping, making sure the pressure is lowest near your axilla and very gradually more toward your hand.

    Swelling in the upper arm probably means that EITHER the upper arm was too loose, or the lower arm to tight (or maybe both).

    Swelling in the wrist might result from too tight compression further up on your arm, or too loose lower down.

    You might take the whole arrangement in to your therapist and ask her to watch you put it on, watching for compression errors that could cause you grief and helping you figure out the best way to use it.

    Then again, if you need nighttime compression, you might just want to order a night garment from Solaris or JoviPak--no tricky adjustments needed!Wink (Whew!)

    Big hugs,
    Binney

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  • bhd1
    bhd1 Member Posts: 3,874
    edited September 2013

    Thanks Bonney. It is such a challange

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Ive been lately "introduced" to the Juxtafit but the garment was waaay too long and so couldn't really give it a yay or nay. It was just to see what I made of how it works more than anything. When LEist put it on at my appmt, I had it on only a few minutes and I could see the difference in my swelling below the elbow when we took it off! Surprised . I'd be very interested to see how others have fared with this garment. Success? partial success? or a PITB?

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2013

    Musical, I use it sometimes during the day, especially if I'm driving for a hour or two. It has an elbow strap that is detachable, because wearing it really does limit elbow movement. But if I detach it to do something active with my arm, the area around my elbow swells, so that makes no sense that I can see. One thing I can say for sure about it is that nobody stares at it or asks me questions about it--I think it looks like a normal arm support for tennis elbow or whatever. I rarely use it at night because the Solaris or JoviPak foam-filled are more comfortable for sleep, but I'll use mine in the daytime when I'm dealing with a flare and don't want to wrap. Sometimes it works just fine for that, other times wrapping is necessary. I'm glad I have it as a tool I can use, but I wouldn't be happy with it as my only resource.

    JMHOUndecided,
    Binney

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2013

    barb, you're so right--CHALLENGE is the word for this whole LE business!Tongue Out

    Hugs,
    Binney

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Thanks Binney for your input. Much appreciated. Yes I wondered about that elbow peice. The brief time I had it on (when LEist put it on) it actually didn't feel restricted arounfd the elbow but that would be because it was soooo long that it probably was not where it should have been if you know what I mean. Thats one reason why I'm hesitant to get one (paying out of pocket) without trying on one thats the right length. From looking at the specs, it looks like theres only 2 lengths. There is an option for custom made as well.  On the good side, I think it's a garment that would be great if you were able to consistently get that pressure right.

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  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2013

    Exactly--the beauty of it is that if you're flaring you can adjust it to accomodate new swelling, then change it as your arm reduces. For nighttime the elbow piece is fine. It's when you're active that it gets pesky. Mine are custom (bilateral), which I expect makes adjusting them properly a bit easier, but either way you need to understand the idea of gradient compression and be mindful of that when you're donning it. I also have a knee-high for my LE leg, and I have to say that's really comfortable and functional. (Of course, it doesn't fit into my regular shoesTongue Out, but I have adjustable sandals for days I need it.)

    Nothing about this is easy...Undecided
    Binney

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Oh Binney Im so sorry to hear you have leg LE as well!!! Yell . Easy that would NOT be.

    LEist lent me some brochures of all the garments and I'd have to say the leg ones look pretty comfy. Fortunately for me it doesn't bother me what it looks like. Functionality is what counts, but I imagine it could get very old if I was queried on it all the time. LOL nothing wintertime doesnt fix, Im ALMOST envious that you guys in N.Hemisphere are coming into your winter, but I have neuropathy to add to my reasons that winter is FAR preferable to summer.

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  • KittyDog
    KittyDog Member Posts: 1,079
    edited September 2013

    This is what they are going to try on my legs since the cost is so much cheaper than my custom knee highs.  Just can't afford them every six months since insurance's deductible is way too high.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Kitty I was told they are cheaper than you'd expect, but LEist hasn't got back to me yet on the price. In NZ I bet you could safely double what you guys would pay in the US.

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  • KittyDog
    KittyDog Member Posts: 1,079
    edited September 2013

    She quoted me around $120 for each leg.  My custom Juzo's are $240 each and need replacing about every 4 months.  So anything is better than nothing right now.  Which is what I am doing.  I can no longer glue them on because I broke out in hives twice in one week to the glue.  

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Kitty just the thought of glue almost makes me break out in hives! UGH, Im sorry youve had that to deal with that.

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