BRAC testing ????

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110
110 Member Posts: 44
edited June 2014 in High Risk for Breast Cancer

I had core biopsy in august 2013. showed radial scar. Ended up with another surgeon and had lumpectomy at beginning of Sept. Results were all B9, fibrocystic change with apocrine metaplasia, focal intraductal epithelial hyperplasia without atypia, rare microcalcifications. I had follow up with my surgeon and she said you are good for a year. My mother had bc before age 50. i discussed this with breast specialists and she said I did not meet critieria for brac testing as I only had one relative. even with lumpectomy she still said see ya in a year.  I told her i did not have any sisters or aunts. only mother having bc. neither grandparents had bc to my knowledge. my obgyn had previously suggested in past several years but i was getting mammo's every 6 months anyways due to cysts they were following up. I am 46 years old.

At times I would like to get it done as I would not have any problem on taking them off for prevention. But also i have been through a big roller coaster ride for the past month and a half as well.

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  • edie61
    edie61 Member Posts: 9
    edited September 2013

    I was aslked yesterday if I would like to have it done I have a very strong family history..so far my daughter is the only one that says please do mama..Guess i will get it done and hope the Ins will help cover it...

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  • 110
    110 Member Posts: 44
    edited September 2013

    i  have met my deductable for the year per the phone call to the insurance company.

    with my mother having bc before 50 and my cysts complex and simple I had been getting diagnostic mammograms every 6 months.

    now with lumpectomy and findings dr said see ya in a year and no to brac testing. dr said needed 2 family members, even though i explained i have small family.

    just confused right now. i think i should have testing but i have just been through such a ride.

    greatful of my findings but findings say slight increase of chance of future development, also slight chance of future development due to mother.

    but then other studies say just because my mother had it does not mean i will get it.

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  • edie61
    edie61 Member Posts: 9
    edited September 2013

    well i will have the test done on the 24th  not sure how lng it will take to come back or if the ins will pay..mom and 2 aunts and a 1/2sister all had breast ca and only mom still with us after 11 years ..have 2 sisters , lots of nieces and 1 daughter..so it needs to be done for them

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  • besa
    besa Member Posts: 1,088
    edited September 2013

    110- consider making an appointment with a genetic counselor.  You can get an informed opinion concerning testing and if the counselor recommends testing they can arrange it (and, if you want, submit their conclusions  to your insurance company so that you can hopefully have the cost covered.)  For a list of good genetic counselors go to the web site www.facingourrisk.org   .  A genetic counselor will take a limited family into account as well as other cancers in the family associated with the BRCA mutation (in addition to breast and ovarian cancer, there are other cancer that indicate the presence of the mutation.)  Look at this AETNA web site -- see item number "V" under BRCA testing. 

    http://www.aetna.com/cpb/medical/data/200_299/0227.html

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  • Miapink
    Miapink Member Posts: 2
    edited September 2013

    I'm new to this site , I'm high risk as my mum passed away from breast cancer and a string family history I'm getting tested in December . Really worried as it's something that's forever on my mind x

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