Calling on all triple negatives w/ local recurrence

Scanxiety!  I hate the waiting!  Do they not understand how hard it is to wait to hear results?  I had a CT scan on Wednesday and I was hoping to hear the results today.  Now, since the doctor's office closes early on Friday, I assume that it will be Monday before I know.  It's most likely fine but until I know, for sure, my mind is playing those tricks!  

Anyway, thanks for letting me vent!  Out damn, beast!  For us all!

Namaste'.

I did have a CT/PET in January and the only thing in the lung was mild degree of dependent atelectasis which has been there for a while.  This nodule is new from January to now.  

Onc. wants to wait until I go back to see him in November for another scan.  I don't want to wait that long.  I'd rather do it in 2-3 months than wait 4-6 months.  Insurance may not allow it though.  

I hate this....the not knowing sucks.  I'd rather know that it's back because then I can start working on it.  This not knowing and waiting is awful!

Wrsmith - I'm sorry that another problem showed up and that you have to wait to have it rechecked. Lung nodes don't always have anything to do with cancer.....so I hope it will be nothing.



I agree with you ladies. I've read all the research on why they don't do scans and how it doesn't make a difference to survival.......but I told my MO exactly this. "You can tell me all your facts, but you can't convince me that catching it early won't make a difference. I know that shoveling 25 pounds of shit is much easier than trying to shovel 100 pounds of shit"! Luckily my MO has a sense of humor, lol.

Wrsmith- have faith, when first diagnosed I has 4 lung nodules. I'm down to 2 and they've stayed stable in the CATS over the last 2 years.

Wrsmith-sometimes a nodule can be from histoplasmosis. Fungal infection spread by birds. Very common in Kentucky. Many of us have them and they're harmless. The MO should be able to tell you if it looks like histo.



Beacbound, I am on carbo and taxotere. Local recurrence with no mets but we went ahead w chemo. It's a rough go but doable.



Hope you all are happy and well.

Thanks crs.  I'm expecting an aggressive regimen and I think I'm ready, as ready as you can be I suppose. 

Happy Friday!!!

Netty - mine did not read that way.  I would make a call to your MO to get clarification.

I'm heading to ATL Thursday for my Friday appointment with an oncologist at Emory.  Ever since my MO and I discussed this appointment, even before it was a possibility, I’ve been excited to hear what this new MO has to say about my situation and what type of treatment I should have.  Now that it’s getting closer and closer, that excitement is turning into nerves.  I’ve mentally accepted the fact that I will, more than likely, be on chemo again but this makes it real.  I know my husband and the rest of my family are scared to death so I don’t want them to know I’m as nervous as I really am.  I just needed to tell someone. 

hi, been away for a while, checking in again.

I see my mo tomorrow, she'll probably order a PET scan, if no progression, then consult with her, plastic surgeon , and breast surgeon. MO wants to cut these buggers out if no progression.  She wants to try for a cure, and not just palliative care.

Beachbound, I was given an option with gemzar and carboplatin by original MO. My 2nd opinion (who i now use) went with Xeloda.  Mine was so close to end of original treatment that she said it would be easier on  my body, and at the latest onco convention, they said it was promising for treatment of local recurrence. It's usually used for people who have stage IV with organ mets. I have hand and foot syndrome and sometimes the big D, but overall it's kinder on my body than what I had originally. 

Like I said, I'll know more tomorrow, but it doesn't feel as if the tumors (3) got any bigger. 2 actually feel smaller, hard to tell bc my temp implants shift and sometimes they feel bigger than other times.

Keep the faith, I met a lovely lady , stage IV tnbc, and is still going strong 6 yrs into it.  

Hi ladies. I hope you're all doing well in your treatments. I think about you every day.



I had my last infusion of the Evil Ixempra on Monday. I'm on day 6 of 14 on my last round of Zelda. I will be SO glad when this chemo is finished and I can start feeling human again. I'm close!



Phyllis

Slowly - It was in the breast tissue. I had a new lump just below my Lx incision.  The tumor went to within 1 mm of the chest wall.  I also had 1/47 axillary nodes.  They took all level 1 and 2 nodes in the Mx.  I will have rads on the level 3 nodes next month.  I hope that's as easy as the first time!

I went to Emory on the 16^th and the oncologist there recommended Gem/Carbo.  Initially she thought my recurrence was over 12 months post my last chemo and she recommended the CT of the ACT since I had success with it before.  But when I told her I found my skin met about 11 months post chemo and we watched it for a few months, she changed her mind to the Gem/Carbo.  I am scheduled for surgery to have my port placed on the 4^th and then I think I’ll start chemo on the 9^th.  It’s really REAL now.  My MO is sending me to a fertility specialist to preserve my eggs, as he doesn’t think they’ll be viable following this chemo.  I was ready for the chemo but this threw me for a loop and has me very upset.  I’m 32 and I don’t have any children.  We started trying in 2011 when I was originally diagnosed.  Then we tried again this year but once again, cancer trumps all.  I’m having to make a HUGE decision very quickly and it scares me to death.  I’ve had time to read/research and come to accept my chemo treatment but I wasn’t ready for this. 

Thanks crs. The specialist called me this afternoon and he said the ACT probably already caused damage and recommended that I ask my little sister to donate her eggs to me when it's time to try again. It's pretty devastating but this too I shall overcome. Who knows what God has planned for me.

Slowloris - Thank you!  Hoping the best for you.  ((Hugs))

Crs - Happy belated birthday!  I hope it was wonderful!!  I'm so excited that you're inches from the finish line!