Are there any bone mets and liver mets survivors

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smiley47
smiley47 Member Posts: 215
edited June 2014 in Canadians Affected by Breast Cancer

Is there anyone out there that has survivied being diagnosed with bone mets and liver mets.  I was 3c breast cancer in 2008 and was doing very well with the after care meds but now I have been diagnosed with bones mets to the ribs and possible liver mets.  Anyone out there with advice on this?

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  • jocanuck1951
    jocanuck1951 Member Posts: 1,003
    edited September 2013

    Hi katie, raising my hand ✋I have liver mets. Diagnosed last November, still hard to accept...I was stage 4 right from the start. Where in Canada are you? Jo

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited September 2013

    Hi katie - another liver metster here. Dx in 2011 - also stage iv from the get go. I have been doing well with tx and have been stable for quite some time now.

    Sorry that you are dealing with mets. It is scary, but there are lots of treatments out there and lots of us living (for a long while, I might add) with mets of all kinds. You will find lots of support and encouragement on these boards. We are all here for one another.

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  • smiley47
    smiley47 Member Posts: 215
    edited November 2013

    Hi:

    Thank you for your kind words of encouragement. I live near Huntsville, Ontario. I will be using the Sudbury cancer centre. My tests and family doctor are in Huntsville. I find the tests and the waiting to be the hardest part, I feel like I could explode with stress and worry. Then I have to sit there and politely listen to the doctors tell me how my tests came out; it is mind bending, trying to cope. I have some good friends they are very supportive.  My father and family are in England and I had to tell my father today, he was heart broken because my mother died of bone cancer in 2007 and then I was diagnosed in 2008.

    I hope it is not in my liver, I had just got used to the idea it might be in my bones but was hoping the bone scan was wrong and the c-scan would show a different outcome; not to be. Then the doctor told me I might have liver cancer, with two questionable spots and then she pulled a face.  So I am not hopeful, just scared to death.

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  • smiley47
    smiley47 Member Posts: 215
    edited September 2013

    Hi Barsco:

    Its great to meet another liver met survivor, I thank you for trying to be supportive to me at this time. I have no idea about liver cancer and how they will look at treating it. If there are spots on the liver could it be from something else and the doctor is mistaking it or is the cancer quite noticeable for the medical community to judge from a quick look at a c-scan?

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited September 2013

    Hi katie - the spots on your liver could be something other than cancer but the only way to know for sure is to have a biopsy done. If it is found to be cancer it is likely that it is breast cancer that has metastisized (not liver cancer).

    I do hope that it is found NOT to be cancer, but unfortunately there is that possibility. Remember though that there is life after stage iv dx. You can live for yrs with mets.

    Keep us posted on how you are doing. You are not alone - lots of support and encouragement from everyone here.

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  • Sjww
    Sjww Member Posts: 10
    edited March 2014

    I haven't seen activity on this topic for several months but am interested in how you guys with bone and liver mets are doing . I found bump on sternum in Aug 2012, which turned out to be bone mets and scans in march 2013 showed spots on liver and pleural effusion. Over this last year I've been on tamoxifen, then Afinitor/aromas and now have just started chemo (taxol) as the liver tumour is still growing. Who else is out there with bone and liver mets?

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  • willowwood
    willowwood Member Posts: 4
    edited March 2014

    hi, just diagnosed with a sternum mets.  Have cervical lymph nodes, mediastinum tumor and one spot of liver, watching another.  Failed abraxane which really only worked for three months and then added herceptin because of borderline FISH.  Two month later scan showed tumor and lymphn node size increase and now sternum mets.  Starting xeloda and ixempra next week and very scared.  Feel like the cancer is winning.

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  • Sjww
    Sjww Member Posts: 10
    edited April 2014

    Hi willow wood,

    I'm sending you hope and strength to stay positive. There are lots of treatment options so don't give up hope.  My sternum mets showed up in Aug 2012 and I also had liver mets and fluid buildup in several areas. 5 radiation treatments stopped the sternum growth in its tracks. Then I was put on tamoxifen but  developed a serious plueral effusion so it was drained and I went on Afinitor/aromasin. After 4 months, there was little change other than  some continued growth of the liver mets. So now I am doing chemo (taxol) with  Xgeva to prevent bone fractures.  Every once in a while I also feel like the cancer is winning but don't let those thoughts stick around - they can be habit forming. Wishing you effective treatment and  a calm mind ;-)

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