burning arm pain with expanders wont let up.
It has been almost 6 wks since my mastectomy with expanders. I am STILL in pain! Nobody told me how painful this was going to be. My PS refuses to give me more lorazepam..."Advil should be enough." Why does my arm have burning pain and what can I do to make it go away?
Comments
-
Hi Pam. I have burning in the back of my arm from shoulder to elbow. I alsi see a lot if sumilar posts. I was told it is nerve damage. Massaging it provides temporary relief for me. Did you have lymph nodes removed?
-
Sometimes neurontin/gabapentin can work on nerve pain. Have you had any fills? Sometimes the TEs are sitting on nerves and once they are inflated a bit, the pressure is relieved. If your PS won't give you meds to help, check with your Primary MD or your oncologists. Being in pain is not acceptable..and the docs don't always have any concept of what we experience.
Best wishes -
Thank you for responding. I saw my PE yesterday and he prescribed gabapentin for the nerve pain. He also said my TE could be causing the arm pain. I chose not to have more saline added this week.
I also had a lymph node removed.
The gabapentin seems to help so far. At least it did last night. You mentioned nerve damage. Could this be permanent from the mastectomy? -
Pamelot- sorry your having this pain. I had it too,it transversed below the implant going to my
. Part of the underarm was numb and still is 7 years later. The nerve pain under the breast gradually went away. Maybe a year. Never worn underwire bra since then. Go with what ever is most comfortable. -
THIS, chronic pain is why I will decline breast reconstruction. I had it for two years after the first mastectomy and fortunately that went down quite a bit. It is very manageable now. So, I will let sleeping dogs lay.
-
Pamalot:
It is impossible to predict IF or HOW LONG nerve damage pain takes to recover.
I am 4 months shy of being 3 years out from my bilateral mastecotmy w/no reconstruction and lymph node removal and I STILL have such bad problems with the surgical neuropathy from the surgery that I still can't even function around the house (and now after my July 2013 lung surgery, I am the lucky winner of more nerve damage!!)
I still need multiple medications and Lidociane IV Infusions every 9-10 weeks for pain.
Others never get this, some get it worse, some not so bad, some heal up quickly, some drag on for years. And not even doctor's can predict if and when and how much recovery each person will get.
I didn't have reconstruction but it is possible to have neuorapthy from nicking nerves AND have breast recontruction pain or have one without the other. Basically, it is a crap shoot who gets it or not and how much.
I am terribly sorry to hear of you having these pain problems.
I would suggest you make an appointment with your Breast Surgeon (I would not suggest the plastic surgeon because I have read of many women who's plastic surgeons poo-poo or ignore their pain, especially if it is from nerve damage. I am sure that there are good PS's out there, not saying they are all bad or that yours is) and discuss your possible nerve damage.
I would write down EXACTLY and as SPECIFIC as you can be as to WHERE you feel pain, WHAT the pain feels like (use a lot of specific, descriptive adjectives, the more the beter), WHAT makes it WORSE, WHAT makes it BETTER and any PATTERNS to pain (better in the morning, worse at night, etc). That way you will be less likely to forget anything when disussing it.
There are medications and treatments out there for surgical neuropathy, most come with some side effects, but like everything else, everyone handles them differently.
I hope you start to get some relief.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team